Author |
Topic: So, it's been known to happen.... (Read 323 times) |
|
kimmiedawn81
CH.com Alumnus
New Board Hall of Famer
Stuck in the middle with you!
  
Gender: 
Posts: 1426
|
 |
So, it's been known to happen....
« on: Aug 25th, 2005, 6:27pm » |
 Quote  Modify
|
I've been wrong a few times in my life, but yeah the beast has started rearing his ugly head. I thought that it was a different type of headache, but it has started transforming into the same SOB that he did last year. I've been stabbing myself in the arm constantly, which I know isn't good for me. So, if anyone knows of any good neuros in the St. Louis area, please let me know. I'm trying to keep upbeat, but it's getting kinda tough. And my boyfriend just isn't that caring. Well, he's caring, but I don't think that he knows how to handle it. That bothers me somewhat, but oh well. Anyhow, I know that all of you deal with the same shit that I do, so I'm sorry for rambling. Take care!
|
|
 IP Logged |
|
|
|
Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
 
Gender: 
Posts: 26213
|
|
Re: So, it's been known to happen....
« Reply #1 on: Aug 25th, 2005, 6:36pm » |
Quote Modify
|
Get the boyfriend on the keyboard and I will give him a crash course on CH!!!!
Sorry its starting again, babe....but you know it will end.
Now put a boot in the boyfriends ass!!!
|
|
IP Logged |
It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
|
|
|
kimmiedawn81
CH.com Alumnus
New Board Hall of Famer
Stuck in the middle with you!
Gender:
Posts: 1426
|
|
Re: So, it's been known to happen....
« Reply #2 on: Aug 25th, 2005, 6:37pm » |
Quote Modify
|
I've tried getting him on here, but he doesn't really seem too interested. And that alone makes me a little upset.
|
|
IP Logged |
|
|
|
Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
Gender:
Posts: 26213
|
|
Re: So, it's been known to happen....
« Reply #3 on: Aug 25th, 2005, 6:39pm » |
Quote Modify
|
on Aug 25th, 2005, 6:37pm, kimmiedawn81 wrote:| I've tried getting him on here, but he doesn't really seem too interested. And that alone makes me a little upset. |
|
Uh-oh....Id be worried too, sorry.
|
|
IP Logged |
It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
|
|
|
kimmiedawn81
CH.com Alumnus
New Board Hall of Famer
Stuck in the middle with you!
Gender:
Posts: 1426
|
|
Re: So, it's been known to happen....
« Reply #4 on: Aug 25th, 2005, 6:52pm » |
Quote Modify
|
I'm gonna have an in depth conversation with him about it tomorrow. And if nothing changes, then something will have to change. If that makes sense.
|
|
IP Logged |
|
|
|
Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
Gender:
Posts: 26213
|
|
Re: So, it's been known to happen....
« Reply #5 on: Aug 25th, 2005, 6:57pm » |
Quote Modify
|
It makes all the sense in the world!
Are you here to bang me?......Or are you here to love and care about me?
Theres only one answer.
|
|
IP Logged |
It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
|
|
|
Carl_D
Guest
|
|
Re: So, it's been known to happen....
« Reply #6 on: Aug 25th, 2005, 7:05pm » |
Quote Modify
 Remove
|
Kimmie.
I'm in the area, and neuro after neuro, the one I finally ended up with is at Washington University Neuroscience Center. He knows CH pretty well.
Richard Sohn
4921 Parkview
St Louis, MO 63110
(314) 362 - 7240
Peace,
Carl D
|
|
IP Logged |
|
|
|
kimmiedawn81
CH.com Alumnus
New Board Hall of Famer
Stuck in the middle with you!
Gender:
Posts: 1426
|
|
Re: So, it's been known to happen....
« Reply #7 on: Aug 25th, 2005, 7:35pm » |
Quote Modify
|
I'm gonna call a neuro tomorrow and I'm wondering if Craniosacral work would help with the clusters. Craniosacral work is a form of massage, in case any of you weren't sure.
|
|
IP Logged |
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: So, it's been known to happen....
« Reply #8 on: Aug 25th, 2005, 7:43pm » |
Quote Modify
|
When I was episodic, I had cranio sacral massage done several times (out of cycle) and I enjoyed it very much. Frankly, it sounds a little scary for me to consider in cycle. I'm not sure why, kd, but the thought of adjusting the cranial fluid just kinda makes me cringe. I have no real basis for that opinion...just a "feeling".
Have you read about kudzu, sweetie. Here's a link (read all the links in it, too)
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action= display;num=1110584362
pf wishes, nani
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
kimmiedawn81
CH.com Alumnus
New Board Hall of Famer
Stuck in the middle with you!
Gender:
Posts: 1426
|
|
Re: So, it's been known to happen....
« Reply #9 on: Aug 25th, 2005, 8:10pm » |
Quote Modify
|
Well Nani, I don't think that that would work for me, I'm on Inderal and Verapamil and the only thing that works for me is Imitrex injections. So, I'm not sure that this Kudzu thing would work.
Who knows...
|
|
IP Logged |
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: So, it's been known to happen....
« Reply #10 on: Aug 25th, 2005, 8:16pm » |
Quote Modify
|
Damn Kim,
I knew it!
You're a pro and know the drill.
I'd gladly take them from you as I would anyone here.
Regarding your boyfriend........That's BS!!!!!
He needs an education in not only your condition which you will most likely have forever but how to truly love!
My 2cents
Hugs,
Eric
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
kimmiedawn81
CH.com Alumnus
New Board Hall of Famer
Stuck in the middle with you!
Gender:
Posts: 1426
|
|
Re: So, it's been known to happen....
« Reply #11 on: Aug 25th, 2005, 8:18pm » |
Quote Modify
|
I just don't think that he knows how to handle it....any suggestions for him?
|
|
IP Logged |
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: So, it's been known to happen....
« Reply #12 on: Aug 25th, 2005, 8:25pm » |
Quote Modify
|
I have to side with the King on this one,the guy is either there to love and keep or take and leap. Make it clear to him which one you prefer.
All the best.
BB
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
Carl_D
Guest
|
|
Re: So, it's been known to happen....
« Reply #13 on: Aug 25th, 2005, 8:27pm » |
Quote Modify
Remove
|
on Aug 25th, 2005, 8:18pm, kimmiedawn81 wrote:| I just don't think that he knows how to handle it....any suggestions for him? |
|
Ask him if he would want someone to understand his pain if he was getting kicked in the balls nonstop for an hour at a time. Maybe THEN he'll get it.
Check your PMs.
Carl
|
|
IP Logged |
|
|
|
Redneck
Guest
|
|
Re: So, it's been known to happen....
« Reply #14 on: Aug 25th, 2005, 8:38pm » |
Quote Modify
Remove
|
on Aug 25th, 2005, 8:10pm, kimmiedawn81 wrote:I'm on Inderal and Verapamil
Who knows... |
|
Shit, be very careful! Get to a doctor now! And send the BF here, If Jonny cant educate him no body can. What doses of Inderal and Verap are you on?
|
|
IP Logged |
|
|
|
kimmiedawn81
CH.com Alumnus
New Board Hall of Famer
Stuck in the middle with you!
Gender:
Posts: 1426
|
|
Re: So, it's been known to happen....
« Reply #15 on: Aug 25th, 2005, 8:40pm » |
Quote Modify
|
on Aug 25th, 2005, 8:38pm, Redneck wrote:
Shit, be very careful! Get to a doctor now! And send the BF here, If Jonny cant educate him no body can. What doses of Inderal and Verap are you on?
|
|
120 mg each/once a day
|
|
IP Logged |
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: So, it's been known to happen....
« Reply #16 on: Aug 25th, 2005, 8:58pm » |
Quote Modify
|
PROPRANOLOL HYDROCHLORIDE (in Inderal) may interact with VERAPAMIL
Both verapamil and propranolol have the ability to decrease blood pressure and slow the heart rate. When taken together, these effects can be even greater. If you are taking these two drugs together, your doctor may want to closely monitor your blood pressure and heart rate. If you are experiencing problems, it may be necessary to adjust the dose of either medication. Ask your healthcare provider about these drugs and this potential interaction as soon as possible.
This interaction is well-documented and is considered major in severity.
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
kimmiedawn81
CH.com Alumnus
New Board Hall of Famer
Stuck in the middle with you!
Gender:
Posts: 1426
|
|
Re: So, it's been known to happen....
« Reply #17 on: Aug 25th, 2005, 8:58pm » |
Quote Modify
|
I know that they tell you that you can only have 3 Imitrex injections per week. What happens if you go over that?
|
|
IP Logged |
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: So, it's been known to happen....
« Reply #18 on: Aug 25th, 2005, 9:02pm » |
Quote Modify
|
on Aug 25th, 2005, 8:58pm, kimmiedawn81 wrote:| I know that they tell you that you can only have 3 Imitrex injections per week. What happens if you go over that? |
|
Please.... you can go over that per day. Be careful and know your body!!
I'd be more concerned with being on a beta blocker and a calcium channel blocker together.
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
Redneck
Guest
|
|
Re: So, it's been known to happen....
« Reply #19 on: Aug 25th, 2005, 9:03pm » |
Quote Modify
Remove
|
My dear,
I don't do Imitrex, but, me thinks you need a new doctor 
edit: Listen to Eric!
|
| « Last Edit: Aug 25th, 2005, 9:06pm by Redneck » |
IP Logged |
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: So, it's been known to happen....
« Reply #20 on: Aug 25th, 2005, 9:08pm » |
Quote Modify
|
K,
Too much trex is bad. I would be concerned the prevent therapy is not working. If the dope don't work why eat it? Do be careful.
BB
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
Ueli
Guest
|
|
Re: So, it's been known to happen....
« Reply #21 on: Aug 25th, 2005, 9:09pm » |
Quote Modify
Remove
|
Taking Verapamil and Inderal (Propranolol) together is not a very good idea.
From http://www.drugs.com/drug_interactions.html:
propranolol and verapamil (major Drug-Drug interaction)
Description:
MONITOR CLOSELY: Additive reductions in heart rate, cardiac conduction, and cardiac contractility may occur when calcium channel blockers, especially verapamil and diltiazem, are used concomitantly with beta blockers. While this combination may be useful and effective in some situations, potentially serious cardiovascular adverse effects such as congestive heart failure, severe hypotension, and/or exacerbation of angina may occur. Ventricular asystole, sinus arrest, and heart block have also been reported. The risk is increased with high dosages, IV administration, left ventricular dysfunction, or AV conduction abnormalities. Beta blocker ophthalmic solutions may also interact, as they are systemically absorbed and can produce clinically significant systemic effects even at low or undetectable plasma levels. Bradycardia (36 bpm) with wandering atrial pacemaker occurred in a patient taking oral verapamil and timolol ophthalmic drops. The proposed mechanisms include additive slowing in AV conduction, reduced cardiac contractility secondary to beta-blockade, and decreased peripheral vascular resistance secondary to calcium channel blockade. Verapamil and diltiazem may also decrease the clearance of some beta blockers.
That's something a good doctor should know.
BTW, Propranolol does hardly anything against CH, so if you don't need it for another condition,.....
Be careful!
PFNADs, Ueli 
|
|
IP Logged |
|
|
|
kimmiedawn81
CH.com Alumnus
New Board Hall of Famer
Stuck in the middle with you!
Gender:
Posts: 1426
|
|
Re: So, it's been known to happen....
« Reply #22 on: Aug 25th, 2005, 9:12pm » |
Quote Modify
|
I use the Inderal for migraines. I could definitely go off of Inderal and just up the does of the Verapamil....it's a lot cheaper, but I'll wait and see what the new neuro says......whenever I find one.
|
|
IP Logged |
|
|
|
Redneck
Guest
|
|
Re: So, it's been known to happen....
« Reply #23 on: Aug 25th, 2005, 9:14pm » |
Quote Modify
Remove
|
on Aug 25th, 2005, 9:08pm, thebbz wrote:K,
Too much trex is bad. I would be concerned the prevent therapy is not working. If the dope don't work why eat it? Do be careful.
BB |
|
You gotta have the right dope and the right dosage for the individual.
Tried 02 Kimmie?
|
|
IP Logged |
|
|
|
kimmiedawn81
CH.com Alumnus
New Board Hall of Famer
Stuck in the middle with you!
Gender:
Posts: 1426
|
|
Re: So, it's been known to happen....
« Reply #24 on: Aug 25th, 2005, 9:20pm » |
Quote Modify
|
Yes, but the lpm's were really low, so it didn't help me.
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss