Author |
Topic: RED LETTER DAY!!!! (Read 223 times) |
|
blossom
CH.com Alumnus
New Board Old Timer
Life is GOOD!
Gender: 
Posts: 396
|
 |
RED LETTER DAY!!!!
« on: Aug 22nd, 2005, 10:00pm » |
 Quote  Modify
|
I went to the neuro this morning and that went very well. He is trying me on Neurontin - 300 mgs 2 times a day for the first 3 days then up to 300 mgs 3 times a day after that for the first few weeks then he will up it as needed after that. I don't know much about Neurontin if anyone has had experience with it (NANI!!!) let me know what a "normal" dose is for a Clusterhead. I want to make sure this guy knows what he is doing and since y'all are really the experts here I trust what you have to say. NOW for the even bigger news and what I have been up to for the past week.........
I AM BUYING A HOUSE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Holy Moses is this a nerve wracking experience! I have never bought a house before and I am a wreck! It is the coolest house EVER! It's a bungalow-style with 4 bedrooms, 2 full bathrooms, living room, dining room, kitchen and a laundry room (an actual room, not a closet!!). It has brand new carpet in all the rooms except the kitchen, laundry room, bathrooms and hallway downstairs. The kitchen and hallway are hardwood floors (brand spankin' new!), the bathroom downstairs and laundry room are tile, the bathroom upstairs is linoleum and the rest of the house is brand new carpet (extremely nice and expensive!) that was just laid in the last 2 months. New roof put on 2 years ago (huge bonus!), new furnace, wiring and all electric. It also has a basement which is the full length and width of the house which is about unheard of in this area. We don't have dirt in this area - we have rock with a tiny bit of dirt mixed in! It is light sage green with white and darker sage green trim. It is gorgeous! It has a yard but not a huge yard which I didn't want a big yard anyway. It is in a very quiet neighborhood but you know that will change when we move in!  Just had to share - I will take some pictures and post as soon as I can!
Kisses all!
Karen
|
|
 IP Logged |
"If I'd of known 30 years ago how your life was going to turn out I'd have drown you at birth!" - what my father said to me on my 30th birthday
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
 |
Re: RED LETTER DAY!!!!
« Reply #1 on: Aug 22nd, 2005, 10:16pm » |
Quote Modify
|
Buying a house? That's too cool. 
I was on Neurontin for 5 years. At first it helped a lot. I stayed on 300 mgs 2X a day for about 3 years. Then I started having to increase. It would help for awhile and then stop. By December 2004, I was taking 1800 mgs a day and really couldn't say it was helping anymore. 
I had room to go up another 600 mgs a day and just decided against it. Some (including me) experience drowsiness at first. And sometimes, a not at all unpleasant "fuzzy" feeling. I hope it works wells for you, sweetie. hugs, nani
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
cootie
New Board Hall of Famer
sumday I'm gonna be sumbody........ ..
Gender:
Posts: 8406
|
|
Re: RED LETTER DAY!!!!
« Reply #2 on: Aug 22nd, 2005, 10:49pm » |
Quote Modify
|
Neurontin 'bad' for me.....made me drunk feeling, dazed and abused. Shew that stuff messed me up.......if I had a beer I would not be able to talk or walk. Did that a few times and caught me off gaurd.....how embarrassing !!!! Got red patches on my face too and saggy looking muscles. I'm a supporter so took it for other reasons but not no more.......didn't agree with me but it doesn't do that to most. Special med Pam
Your house sounds so cool.......beats my 1960's gag me gold shag carpeting and teeny bathroom and one and a half bedrooms. Course I do like bein in the woods and it bein private here. Would love extra bedrooms and bathrooms and NEW stuff...........
|
|
IP Logged |
Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
|
|
|
TxBasslady
CH.com Alumnus
New Board Hall of Famer
Bass fishin' is a h00t It's the catchin' that sux
Gender:
Posts: 3201
|
|
Re: RED LETTER DAY!!!!
« Reply #3 on: Aug 22nd, 2005, 11:39pm » |
Quote Modify
|
Never taken Neurontin....
But congratulations on the new home! It sounds beautiful.
Jean
|
|
IP Logged |
How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
|
|
|
Lizzie2
CH.com Alumnus
New Board Hall of Famer
"L'Chaim"~Hebre w Toast~"To Life"
 
Gender:
Posts: 4458
|
|
Re: RED LETTER DAY!!!!
« Reply #4 on: Aug 22nd, 2005, 11:51pm » |
Quote Modify
|
Congrats on the house!! That's wonderful!!! You worked hard - now you get to enjoy it!! 
As far as neurontin - before I had CH, I took it up to a ridiculously high dose before finally getting the heck off of it. It wasn't a good med for me - they say it has almost no side effects - it made me feel like I was doped up on antipsychotics all day long. I was soooooo tired, losing my hair, had no energy...kinda like a hypothyroid type experience.
Then, when my neuro moved away and I started up with the one I have now, he put me on it again but for restless leg syndrome. I told him I didn't want to take it, but he persisted that because I was taking a different dose and for RLS this time, it wouldn't have as many side effects. I took it because this was back in the day when I actually listened and followed directions.... 
I took myself off it at either 600 or 900mg because I still had the same side effects (duh...it was still neurontin - doesn't matter what in hell I was taking it for...) - got fed up and wasn't getting anywhere with stating my case for why I shouldn't be on neurontin. Well that started it - I kicked almost all my meds after that because I wanted to be heard and that was the only way to get anyone's attention......kicked my topamax (thank GOD) and about 5 other meds. Of course, wound up being put on a whole other regimen because I was a trainwreck after that, but at least I got my point across - and I showed myself that only *I* control what meds I take - nobody else - so I can say no if I want to.
My mom takes neurontin at 300mg twice a day also for RLS. She does fine with it - no side effects at all.
So it affects everyone differently!! I've heard some great stories about neurontin and also some on the other end of the spectrum - so individual. One thing to note is that if you get some nasty side effects, you can always get off it - but I usually feel like I'll try a new med even if the se's don't sound very good - and then just back off it if it doesn't work well for me. However, I wouldn't recommend trashing all meds cold turkey - better to work with a doc on that one.
Congrats again on the house and hope the neurontin kicks the beast's ass for you!!!
Hugz,
Carrie
|
|
IP Logged |
|
|
|
blossom
CH.com Alumnus
New Board Old Timer
Life is GOOD!
Gender:
Posts: 396
|
|
Re: RED LETTER DAY!!!!
« Reply #5 on: Aug 23rd, 2005, 12:03am » |
Quote Modify
|
Thanks for the feedback on the Neurontin everyone. I am going to try it because I just can't keep going like this. I was trying the "no meds" method and the beast is having a wild time in my head so it's time to go after him. I discussed a couple meds with the Dr. and he suggested Topamax - no thank you and Depakote which after hearing his take on it I said no thank you as well. Chris went with me and when the Dr. was talking about Depakote Chris looked horrified. The Dr. said "I don't like to give this to younger women because it causes you to get fat, lose your hair, mood swings and if you were to get pregnant on this it causes birth defects. We can try it if you promise that you won't be trying to get pregnant." There is NO WAY I am going on something like that! I am not having any more kids but good Lord - getting fat and losing my hair doesn't sound like much fun at all. Now the "fuzzy" or "doped" feeling isn't at all abnormal for me when not on meds so I am not too worried about that. I seem to be getting more and more stupid with each passing day anyway so what the heck - I can be an airhead and in pain or an airhead and pf. I choose the latter!  OH and he went on and on about quitting smoking and NO caffeine.... I think he's a quack. Just kidding, I am going to detox the caffeine and cutting back on the cigs until I am nicotine-free. Can't go cold turkey, doesn't work for me.
Kisses!
Karen
|
|
IP Logged |
"If I'd of known 30 years ago how your life was going to turn out I'd have drown you at birth!" - what my father said to me on my 30th birthday
|
|
|
Lizzie2
CH.com Alumnus
New Board Hall of Famer
"L'Chaim"~Hebre w Toast~"To Life"
Gender:
Posts: 4458
|
|
Re: RED LETTER DAY!!!!
« Reply #6 on: Aug 23rd, 2005, 12:16am » |
Quote Modify
|
LOL believe it or not - depakote was like the 3rd med I ever took when my chronic daily headache type began. It actually did help, but the side effects felt like some mild form of chemo. I did lose lots of my hair, got such horrible acid reflux that I couldn't eat, even though I couldn't eat I seemed to puff out like a balloon - my skin was even peeling and turning very very pale and blotchy - and I could sleep through 4 alarm clocks and my mom calling me to wake me up in time for classes. I still have pages of notes that I can't even read because I was falling asleep taking notes. Then there was the massive anticholinergic crisis when given the IV form (depacon) - I prefer not to think about that,....I pretty much had a break with reality due to how my body processes that drug!
I'm on a waiting list to try Lyirca (generic: pregabalin). Honestly, I forget if he said it works like topamax or depakote - but it's supposed to have almost no side effects. We shall see! Pfizer keeps putting off the release date (been out in parts of Europe for awhile now) because of some FDA/DEA red tape. Until they come out with that, I go to my neuro once a month and we throw random stuff at the CH/NDPH just to see if it'll budge.
Well...I'm with you though - I often try things regardless of what others report back about it just because I need to do SOMEthing or else I'll go nuts from the pain.
And as for the caffeine? I was good about it for a long time - until I realised that it had nothing to do with my headaches......and now they'd have to pry my caffeinated beverages out of my cold, dead hands. LOL
|
|
IP Logged |
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
   
Gender: 
Posts: 14968
|
|
Re: RED LETTER DAY!!!!
« Reply #7 on: Aug 23rd, 2005, 1:56am » |
Quote Modify
|
Lots of luck with the meds and very cool about your new house. Welcome to lawn care central. Careful though. 
(I can't read it either. Most of the really good smilies are Russian....go figure)
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
Jeepgun
CH.com Alumnus
New Board Hall of Famer
BOHICA!!!
Gender:
Posts: 3840
|
|
Re: RED LETTER DAY!!!!
« Reply #8 on: Aug 23rd, 2005, 7:25am » |
Quote Modify
|
Congrats on the bungalow!
/singing, The Doors', "Roadhouse"
|
|
IP Logged |
Her: "Have you ever hit a deer?"
Me: "What, like, in the FACE?"
Her: ..... "WHAT is the MATTER with you!?"
|
|
|
burnt-toast
New Board Hall of Famer
Gender:
Posts: 1686
|
|
Re: RED LETTER DAY!!!!
« Reply #9 on: Aug 23rd, 2005, 7:40am » |
Quote Modify
|
Congratulations - just make sure you get a professional home inspection. It can be a great bargaining chip at the least and identifiy potential serious defects at best.
Tom
|
|
IP Logged |
Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
|
|
|
blossom
CH.com Alumnus
New Board Old Timer
Life is GOOD!
Gender:
Posts: 396
|
|
Re: RED LETTER DAY!!!!
« Reply #10 on: Aug 23rd, 2005, 7:44am » |
Quote Modify
|
The home inspection is being done this week along with the appraisal. It's a great price and so much work has been done on it! We are getting a steal for around here. We know the owner through my best friend and he is a real estate agent here in town, he knows what a big mouth I have and believe me he's not going to screw us on it when he relies on word of mouth for advertisement! I'm going to take some pictures tonight and I will get them posted. SO EXCITED!
Kisses!
Karen
|
|
IP Logged |
"If I'd of known 30 years ago how your life was going to turn out I'd have drown you at birth!" - what my father said to me on my 30th birthday
|
|
|
lionsound
CH.com Alumnus
New Board Hall of Famer
breathe
Gender:
Posts: 2021
|
|
Re: RED LETTER DAY!!!!
« Reply #11 on: Aug 23rd, 2005, 8:17am » |
Quote Modify
|
Good luck with the meds and the house!
The house sounds more exciting!
|
|
IP Logged |
|
|
|
Bethany1
CH.com Alumnus
New Board Hall of Famer
Always do whatever's next.
Gender:
Posts: 1612
|
|
Re: RED LETTER DAY!!!!
« Reply #12 on: Aug 23rd, 2005, 11:40am » |
Quote Modify
|
Wow Karen that is fantastic news!!!!
Congratulations girl, no one desearves it more than you.
|
|
IP Logged |
I am sofa king we todd did.
crack is wack
|
|
|
minnie
New Board Hall of Famer
my greatest joys are my daughters April & Beth
Gender:
Posts: 1059
|
|
Re: RED LETTER DAY!!!!
« Reply #13 on: Aug 23rd, 2005, 12:34pm » |
Quote Modify
|
Congratulations on getting a house.sounds like most of the work and a lot of the expensive maintenance is done.yahoooooo.....
About neurontin first of I'm a supporter my experience is for my back but the side affects are the same.I can only speak my side effects . I wasn't on it long when one night about 5 pm.I started feeling drunk.My words were slurring and I know I wasn't walking straight.I called Billy at work and he said just relax and the side effects would end just let the girls watch tv and relax.needless to say I stopped taking it.the docter wanted mew to try a lower dose ...no thank you.For the record not a drop of alchohol was consumed that night  
Good luck with the house and meds....
MInnie
|
|
IP Logged |
Friends are Angels who lift us to our feet when our wings have trouble remembering how to fly
______________
You may only be one person to the world
but you may also be the world to one person.
|
|
|
LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
Gender:
Posts: 11720
|
|
Re: RED LETTER DAY!!!!
« Reply #14 on: Aug 23rd, 2005, 12:41pm » |
Quote Modify
|
Oh congratulations on your new home!! woo hoo!!
room for us to come and visit too LOL!
It sounds lovely and I can't wait to see the pics
We need to talk soon!
lots of love
Helen X X X X X X X
|
|
IP Logged |
The arsehole I'm divorcing needs to get a life and stop stalking mine
|
|
|
blossom
CH.com Alumnus
New Board Old Timer
Life is GOOD!
Gender:
Posts: 396
|
|
Re: RED LETTER DAY!!!!
« Reply #15 on: Aug 23rd, 2005, 10:05pm » |
Quote Modify
|
You know you are welcome to come visit whenever you want, Helen! Plenty of room for guests for sure! I would think I had died and gone to heaven if I had houseguests! We definately need to talk - I want to hear all about Jabs big day and what has been going on with you!
Kisses!
Karen
|
|
IP Logged |
"If I'd of known 30 years ago how your life was going to turn out I'd have drown you at birth!" - what my father said to me on my 30th birthday
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss