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Topic: Interesting Letter From A Former Chronic Sufferer (Read 324 times) |
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Carl_D
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Interesting Letter From A Former Chronic Sufferer
« on: Aug 19th, 2005, 5:15pm » |
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Just been doing more personal research on our malady and I stumbled upon this letter from an Attorney who was chronic for 18 years to Diamond Headache Clinic. I asked Mr Rosenstein his permission to post the link here and he responded kindly. Might be something to think about too, especially if you are chronic and suffer from 'other' pain. This is worth a read.
http://www.medicalnewstoday.com/youropinions.php?opinionid=4917
Peace,
Carl D
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nani
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #1 on: Aug 19th, 2005, 5:19pm » |
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If my brain shrinks anymore...I'm in DEEP shit... 
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LeLimey
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #2 on: Aug 19th, 2005, 5:20pm » |
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Carl do you think it would be okay for me to post this on OUCH UK please?
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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E-Double
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #3 on: Aug 19th, 2005, 5:23pm » |
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Great letter and kinda scary to be honest
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I can't believe that I have to bang my
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Carl_D
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #4 on: Aug 19th, 2005, 5:31pm » |
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Absolutely Limey. He said he is more than happy to help anyone else who suffers with CH.
Carl
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Jeepgun
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #5 on: Aug 19th, 2005, 5:34pm » |
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Holy shit.... I've always had phenomenally great eyesight. I'm a "righty." Last cycle, (began in late February) I was reading and briefly rubbed my left eye without my eyes leaving the page. The entire page blurred, so I tried adjusting the distance that I was holding the book at. My right eye has become extremely far-sighted. I need to make an eye appointment but keep putting it off. I really don't need glasses. Yet. It makes me wonder if I haven't somehow damaged the lens of my right eye by grinding my palm into it...
In any case, that was quite an interesting (and frightening) letter.
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unsolved1
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #6 on: Aug 19th, 2005, 5:37pm » |
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I think the dude has a few screws loose too.
Never heard of a shrinking brain due to clusters before.
UNsolved
PS. I bet Dr. Diamond got a big laugh from this letter.
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| « Last Edit: Aug 19th, 2005, 5:38pm by unsolved1 » |
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Kevin_M
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #7 on: Aug 19th, 2005, 6:16pm » |
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My brain shrinks when I go in the pool.
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Jonny
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #8 on: Aug 19th, 2005, 6:33pm » |
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"The opinion you requested appears below. Please note that any comments expressed below do not reflect the opinions of Medical News Today. "
Nuff said....if they wont back what they print consider it bullshit!
Shrinking brain?.....give me a fucking break!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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floridian
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #9 on: Aug 19th, 2005, 6:58pm » |
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The ideas are worth thinking about, but I am not buying it. Brain shrinkage is probably from prolonged pain, inflamation, or some other biochemical abnormality like reduced blood flow to the brain. There is no evidence that the brain shrinks for the purpose of reducing the area of the brain that causes the problem (hypothalamus or cortex or whatever ). To the contrary, it could be that people with more shrinkage have more problems with the hypothalamus.
But his letter does hold out hope - even people with bad CH can outgrow it or see them reduced over time. And even though it wasn't a scientific study, maybe there is something to it. Who knows?
I am taking the opposite approach - I am going to try to keep my brain from shrinking; everytime I feel it shrinking, I am going to push some more chi up that way. Oh, I think I feel some shrinkage... there, nipped that little one in the bud.
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Charlie
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #10 on: Aug 19th, 2005, 7:03pm » |
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Ueli........where are you when we need you? 
No doubt sincere but he seems a tad unhinged--all those headaches didn't help of course.
I'm glad his headaches are better anyway.
Charlie
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Jonny
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #11 on: Aug 19th, 2005, 7:10pm » |
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on Aug 19th, 2005, 6:58pm, floridian wrote:
even people with bad CH can outgrow it or see them reduced over time. |
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I will give you that....after 30 years chronic im sliding into my 31first year half dosing my preventitives....I even went 5 weeks with no meds at all and that is so unheard of with me.
Nowadays, I wake up before it even hits Kip 5 and am able to kill it with 02, I guess what Im trying to say is that I avoid 95% of HA's.....and have been for some time.....Cured?......I doubt it......Happy?.....Wish you were with me on this!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Melissa
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #12 on: Aug 19th, 2005, 7:14pm » |
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Oh great, as if I don't have enough problems! 
BTW, the vision thing sucks. My history is already horrid with eyesight problems. I bet I'll be blind before I turn 65. 
Anyway, that's an interesting theory, but I've never heard of it before. There are many other chronic brain problems out there and you never hear about brain shrinkage. 
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cootie
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #13 on: Aug 20th, 2005, 12:54am » |
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Interesting article on this crap......dunno wether I believe it or not......I don't beleive everything I read or hear anyhow....also have heard ageing causes shrinkage but doesn't do alot of damage. Yeah rite........whatever.......facts to fret by Pam
http://www.livescience.com/041122_brain_pain.html
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maffumatt
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #14 on: Aug 20th, 2005, 1:13am » |
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Makes you wonder if perhaps he is a headbanger, seems to me that after years of that practice it could have the same effect as a boxer...................................
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nani
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #15 on: Aug 20th, 2005, 2:30am » |
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on Aug 19th, 2005, 6:16pm, Kevin_M wrote:| My brain shrinks when I go in the pool. |
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ROTFLMAO, Kev. 
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CHTom
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #16 on: Aug 20th, 2005, 4:47pm » |
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Maybe he has very long fingers and picks his nose a lot and sometimes goes too far-lawyers!
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LeLimey
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #17 on: Aug 20th, 2005, 4:54pm » |
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I posted this on OUCH UK and it raised a point I hadn't thought of which is that Jasper hasn't exactly had a lot of time for brain shrinkage! He isn't the ONLY kid with CH sadly either.
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Barry_T_Coles
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #18 on: Aug 21st, 2005, 9:16pm » |
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If pain shrinks the brain I reckon mine is just about to turn into a Void.
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Callico
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #19 on: Aug 21st, 2005, 10:02pm » |
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Could it be the brain shrinkage could be caused by the five meds he was on? Five meds all at one time? What were they, and what dosages?
Interesting theory.
Jerry
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kimmeesue
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Re: Interesting Letter From A Former Chronic Suffe
« Reply #20 on: Aug 22nd, 2005, 12:13am » |
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This might explain my kid's referring to my brain as the black hole. ANd here I always thought they meant I was a deep thinker.
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If I wasn't doing this I'd probably be doing something else.
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