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ClusterChuck
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More ER training ... UPDATED
« on: Aug 8th, 2005, 7:05pm »
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I am getting tired of this KERAP!!  Why do I have to be the one to train the medical staff, at my local teaching hospital, what a cluster hit is like, and how to deal with it?
 
I spent most of last night, in the emergency room, for something not related to clusters.  Naturally (for me, anyhow), while there, I got hit.  I asked for O2 with a non-rebreathing mask.  The nurse had to get the doctor’s OK, first.  Fine.  I can accept that.  I had already told her about my cluster headaches.  By the time they got their act together, I was at a full KIP 8.  I had two doctors, and three nurses in there trying to do something for me.  They kept trying to hold me down, the bastards!!  They were also trying to get me back on the bed (not that they had any hope of that!).  Fortunately, one nurse had the sense to remove the I.V. I had attached to me.  She really accomplished a lot, seeing how I was dancing and flailing around so much.  I was trying to tell them to just leave me alone.  I had the O2, and there was nothing they could do.  The doctors were trying to decide what drugs to give me to alleviate the pain.
 
Fortunately the O2 worked.  After it came down, they were totally blown away with the severity, and the speed that it came on, and also, how quick it went away, once it started to go.  They were amazed that someone could survive one of those, never mind up to 15 a day, day after day.  They were very receptive to my information, and hopefully, the next ch’er will have an easier time of it.  It was very frustrating to keep having to refuse all the drugs they were trying to inject me with.
 
I just hate being such a spectacle!  And why, with all the times I have been in the ER, haven’t I run across someone that I have already trained?  Oh, well, such is the life of a reluctant trainer!!
 
Chuck
« Last Edit: Aug 9th, 2005, 8:22pm by ClusterChuck » IP Logged

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Re: More ER training ...
« Reply #1 on: Aug 8th, 2005, 7:16pm »
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Chuck!  Always tryin to draw attention to yourself!  Tsk tsk! Wink  What "other" problem were you having that you had to go to the ER?  Are you alright sweets?  Don't make us worry about you more than we already do!!
 
*tappin foot*
 
 Kiss
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Re: More ER training ...
« Reply #2 on: Aug 8th, 2005, 7:16pm »
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Geez, Chuckie.  I'm so sorry that you had to go through that.  But, try to look at as an educational opportunity for the people who work in the ER.  God knows, when CH sufferers have to go the ER, we are treated like druggies half the time.  I've learned that there are times when you must hide your CH hits, and times when you just gotta let it fly and let everybody and their brothers see a full blown 10.  Once people witness it, they begin to understand what you are going through.  I've shown the biggie on three separate occasions, and those that saw it, now give me the space and time that I need to get through it, and the encouragement I need to get through the next one.
 
Again, sorry you had to go through it, but maybe, just maybe it helped.
 
 Undecided
 
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Re: More ER training ...
« Reply #3 on: Aug 8th, 2005, 7:17pm »
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At least you were able to educate a particular shift of people in the ER.  It likely won't be an experience they forget very soon.
 
Perhaps, if each of us approached our local hospitals about giving an inservice to the ER staff about Clusters, your experience would never have to be repeated.  Maybe ... someone could put a PowerPoint presentation together and we could all hit the road.  Good God!  What I wouldn't give to see our medical profession educated by lay people with a rare disorder!
 
Kris
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ClusterChuck
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Re: More ER training ...
« Reply #4 on: Aug 8th, 2005, 7:22pm »
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on Aug 8th, 2005, 7:16pm, Melissa wrote:
What "other" problem were you having that you had to go to the ER?  Are you alright sweets?  

 
Don't worry, I'm fine.  I'm still here to bitch and moan, ain't I??  Don't worry.  I'm a survivor.
 
Chuck
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Re: More ER training ...
« Reply #5 on: Aug 8th, 2005, 7:27pm »
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on Aug 8th, 2005, 7:17pm, Kris_in_SJ wrote:
Perhaps, if each of us approached our local hospitals about giving an inservice to the ER staff about Clusters, your experience would never have to be repeated.  

 
Kris, the frustrating part is the number of times that I have been to the ER (almost all for non-CH related things) and I almost always get hit there, and I STILL have yet to find someone that I have already trained!!!  I don't mind training, but when will it end?  I have been there at least a dozen times in the past couple years.
 
Chuck
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Re: More ER training ...
« Reply #6 on: Aug 8th, 2005, 7:28pm »
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on Aug 8th, 2005, 7:22pm, ClusterChuck wrote:

 
Don't worry, I'm fine.  I'm still here to bitch and moan, ain't I??  Don't worry.  I'm a survivor.
 
Chuck

 
You damn well better be!
 
Luv & kisses
Sandy
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Re: More ER training ...
« Reply #7 on: Aug 8th, 2005, 7:38pm »
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So sorry Chuck.  
 
It's a never ending battle to get some sanity or at least some common sense drilled into terrified medical staffs.
 
Here, at our hospital, everyone seems to know of it thanks to some cousins and friends with CH. We have a good hospital anyway.
 
Damn it, I guess the ER is one place where gray hair doesn't impress anyone.    Not that we're all that impressed with you anyway....  Cool
 
Charlie
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Re: More ER training ...
« Reply #8 on: Aug 8th, 2005, 7:41pm »
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Chuck, you didn't go another 12 rounds with the toilet seat again, did you?  Shocked laugh
 
Hang in there, bro'. Love ya'!
 
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Re: More ER training ...
« Reply #9 on: Aug 8th, 2005, 7:41pm »
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Chuck your  tool................
 
 
 
an educational tool that is. And an insperation..................
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Re: More ER training ...
« Reply #10 on: Aug 8th, 2005, 7:47pm »
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Been in your shoes in the ER, Chuck, many times.  The training seems to never end - even those you've previously trained need refreshers!
 
Better luck next time!
 
Jim R
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Re: More ER training ...
« Reply #11 on: Aug 8th, 2005, 7:58pm »
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Chuck, I hope you know I was just teasing you... Undecided
 
I'm glad to hear you are alright, and I'm sorry about having to educate the medical community where you live.  I know it gets tiresome and becomes and annoyance.
 
take care,
mel
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Re: More ER training ...
« Reply #12 on: Aug 8th, 2005, 8:20pm »
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Aw man Chuck...I'm sorry to hear that..   Undecided
 
I may actually be using one part of my honors project for ER inservice for nurses at some point, but I've been too busy getting adjusted to life with the little ones lately!  At any rate, because I've spent a lot of time working in the ER, and then also as a patient for quite an array of complications, I have talked their ears off about CH...and at least 4 or 5 of them (yeah a small number to say the truth) have seen me get hit while working in the ER.  
 
The last time that happened (several months ago), the nurse I was working with told me to go use O2 in the flex unit...however, when the beds are full, I didn't have access.  So my friend Jim, who was a tech in the ER, went and got me ice, met me outside, and gave me a cigarette while my friend Tara stood guard and gave me ANOTHER cigarette.
 
I don't even smoke...LOL  The combination of CH AND ER work is just enough to send this non-smoker over the edge, though! Wink
 
Glad you are okay.....we all worry about you!!
 
Hugz,
Carrie Smiley
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Re: More ER training ...
« Reply #13 on: Aug 8th, 2005, 9:13pm »
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   I bet you scared the hell out of them. I can just see them standing there with their mouths open when you came down and looked at them all normal again. Well as normal as you can look.  Kiss
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Re: More ER training ...
« Reply #14 on: Aug 8th, 2005, 9:33pm »
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You need a break dude.....I dunno how you do it and that break has got to be comeing cuz you deserve it. PF wish book Pam
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Re: More ER training ...
« Reply #15 on: Aug 8th, 2005, 10:12pm »
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Chuck, Chuck, Chuck - always trying to make a scene.   Grin  I hope all is well and you are feeling better.  
 
 Kiss -
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Re: More ER training ...
« Reply #16 on: Aug 8th, 2005, 10:12pm »
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damit. damit damit!!!!!!!!!!!!!  Chuck you have rarely brought me to tears.  But you did it this time.
 
 
     Fu**
 
I just got my pics back from Dallas.  I am looking at one in particular...you're on the couch...and Charlie is standing there educating that security officer who was freaking out.  He could not understand why we were all just standing around...not doing anything.  Not until Charlie took the time to explain.
 
Chuck,  I love ya man...one of these days you will meet up with one who you have educated/trained...
 
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Re: More ER training ...
« Reply #17 on: Aug 8th, 2005, 10:26pm »
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Come clean Chuck. You weren't at the ER.
 
You had to do down to the free clinic again didn't you?
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Re: More ER training ...
« Reply #18 on: Aug 9th, 2005, 4:02am »
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Chuck, I'm so sorry... Cry
 
Maybe one of these days we've trained them all!
(Well, alt least living in hope doesn't hurt!)
 
I still think that you're a better trainer than I am, though. I get very irritated with some attacks and I'd be ready to hurt anyone... Add couple docs and nurses with no idea and blood shed is ready. Grin And I'm a peace-loving person! That's why I try to deal with the beast as much on my own as possible.
 
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Re: More ER training ...
« Reply #19 on: Aug 9th, 2005, 6:48am »
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on Aug 8th, 2005, 10:26pm, don wrote:
Come clean Chuck. You weren't at the ER.
 
You had to do down to the free clinic again didn't you?

 
 
*snicker*
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Re: More ER training ...
« Reply #20 on: Aug 9th, 2005, 7:10am »
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Chuckster.... Sad
 
Sorry it got so bad that you had to even go to the ER. Cry
Hope you feel better today.  PF wishes and vibes...
 
Quote:
Perhaps, if each of us approached our local hospitals about giving an inservice to the ER staff about Clusters, your experience would never have to be repeated.  Maybe ... someone could put a PowerPoint presentation together and we could all hit the road.  Good God!  What I wouldn't give to see our medical profession educated by lay people with a rare disorder!  
Wow I am game... I plan to use it for speaches in public speaking class and if get a chance will do it in class for all the future RNs out there...
 
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Re: More ER training ...
« Reply #21 on: Aug 9th, 2005, 9:24am »
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I'll say it, you cross-dressing hippie.......it's your ticker, damnnit! A weakened heart, on top of the stress of all these high-kip hits, you're trouble, my friend!
 
Take care of your self, mister.......and always wear clean undies...ya just never know!
 
Now.should the nursing staff get combat pay, or should you get a Training fee??????
 
Bit me....... Tongue
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Re: More ER training ...
« Reply #22 on: Aug 9th, 2005, 9:26am »
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Hi Chuck,
sorry to hear about your ordeal at the ER room, I have never been to ER for a cluster but last year I was in ER for another reason and got hit.
I asked for an imitrex shot and was given it in a speedy manner. I wish that all of us out there could have such a good experience, maybe someday Undecided
Take care guy,
Love ya  
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Re: More ER training ...
« Reply #23 on: Aug 9th, 2005, 9:34am »
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Exactly why I've never gone to the ER.  Here's hoping you get out of the training business!
 
Best Wishes
 
Tom
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Re: More ER training ...
« Reply #24 on: Aug 9th, 2005, 11:56am »
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Show off Wink
 
 
 
Just happy you are ok!
 
You are ok right?
 
 
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