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Topic: Thought I was over theses things!! (Read 202 times) |
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JaseOH
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Thought I was over theses things!!
« on: Aug 7th, 2005, 3:57pm » |
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Hi all. I have been suffering from these things for over nine years. I actually did not have a significant "cluster" for almost two years. I mena I had an occasional Day or two with the headaches, but nothing longer than that. I just let my guard down, and Here I am day five into the wrost I think I have ever had. So I am here and its nice to see a support group for these things. Nine years ago I couldnt find squat on the internet regarding Clusters. Well I am going to go read this site alittle. But Imitrex doesnt seem to be working anymore, and I have heard of new medicines out there any recemondations? Jason in Ohio
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Jason
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floridian
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Re: Thought I was over theses things!!
« Reply #1 on: Aug 7th, 2005, 4:55pm » |
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What did you do to let your guard down??  The beast comes and goes on his own schedule. Two years pain free is better than a sharp stick in the eye.
Melatonin and magnesium help me - I am episodic and my cycles are always in the summer, my sleep always gets messed up before I get hit, and melatonin helps me get back into a normal sleep cycle, chasing the beast away. I add B-vitamins and some other supplements - I think they help, the melatonin and magnesium have been proven to help in controlled trials.
Oxygen is a good abortive - it has to be high flow rate in a non rebreather mask. Check the 'oxygen info' on the left menu bar.
Lots of other meds being used to various effects - prednisone, verapamil, kudzu, olanzapine, clusterbusters, lithium (mostly for chronics), topomax (messes with memory, not a favorite) Read, read, read, lots of good info here.
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| « Last Edit: Aug 7th, 2005, 4:57pm by floridian » |
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Topical
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Re: Thought I was over theses things!!
« Reply #2 on: Aug 7th, 2005, 5:39pm » |
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Sorry you are in such a bad way. There are quite a few things to try. I hope you get a handle on them very soon. I take verapamil(preventative) and oxygen(abort). Your doctor can try a number of different things. I hope you don't have to 'monkey around' finding the right treatment.
One thought, check the expiration date on the Imitrex. Are those left overs from the last time?
Take care.
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jcmquix
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Re: Thought I was over theses things!!
« Reply #3 on: Aug 7th, 2005, 6:42pm » |
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I know the Feeling, mine came back after 3yrs of being PF. For no reason at all.
I would get back to see a Dr, get some meds (Preventive & Abortives), and read all the information on this site & the tips on the left (Check the O2 info).
I am currently using TREX & O2 as abortives, more O2 these days, stuff works GREAT.
Ask questions ....
PF days to YOU !!!
Charlie
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space. (burnt-toast)
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Redneck
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Re: Thought I was over theses things!!
« Reply #4 on: Aug 7th, 2005, 6:52pm » |
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Give us a bit more background to work with. What meds have you used? Abortves? Prenentives? Many folks here can lead you on the right path, but we need to know where you been. Damn sorry you had to show up at all, nobody wants these things. Look to the left of the screen, lots of info.
Let us know.
Jim
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: Thought I was over theses things!!
« Reply #5 on: Aug 7th, 2005, 7:03pm » |
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Hi Jason....I'm from Ohio also......got a few other Ohio'ns also......funny how there were none for a long time. Brad has went 4 years now since his last cycle.....he normally goes 3......so we are hopeing he skips this fall also but he has been a bit arguementive lately and different......few signs I noticed crop up with last cycle. He has imitrex injections for next cycle we have never tried yet and hope we never do.....hope is all ya can do Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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JaseOH
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Re: Thought I was over theses things!!
« Reply #6 on: Aug 7th, 2005, 10:14pm » |
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This is an amazing site! Thanks for all the ideas. When I originally started withthese things I went to every "EXPERT" I could find in Boca Raton Florida, Conneticut and in New York. I dont think there is a medicine I havent tried, but it seems that you all are still takingt the smae things that were perscribed to me nine years ago. Sad not much movement foreward. Someone asked what I have taken as far as I can remeber I have taken;
Verapamil
Sansert
Wygrain
Predizone
depakote
Lithium
Imetrey (NASAL,Pill,INjection)
O2
Singular
a host of other allergy medicines
Stadol
Darvecet
and I am sure there are a few more
I get very light headed on Verapamil, and I react in a bad way to predisone, eventhouh that seems to break the cycle. I guess being so close to the cleveland Clinic I should go seek help again, it just sucks because it has been so long without. Thanks for the ideas. I used to have a huge o2 tank at home but it never really got rid of them for me. maybe ill try again
The worst thing is that I work shift work, and we just shifted to night shift, I am sure that hasnt helped the situation at all.
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| « Last Edit: Aug 7th, 2005, 10:20pm by JaseOH » |
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Jason
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Charlie
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Re: Thought I was over theses things!!
« Reply #7 on: Aug 7th, 2005, 10:16pm » |
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Rats. Sorry this horror has decided to revisit.
Two years is significant though. One has to wonder WTF we do to deserve a rematch. 
Mine have been gone 13 years and I still can't believe how lucky I've been. I'm almost beginning to feel that I'll never hear from him again. They have been know to show up after longer periods but it's looking good here. 
Keep plugging away and feel free to rant away.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Thought I was over theses things!!
« Reply #8 on: Aug 8th, 2005, 2:26am » |
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Wishing you PF days,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Jeepgun
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BOHICA!!!
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Re: Thought I was over theses things!!
« Reply #9 on: Aug 8th, 2005, 7:32am » |
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One of the latest meds that's being talked about is called Atacand. It seems to have helped some people, and others, it doesn't seem to have helped as much. Sorry you're waging war with the beastie again. Hopefully, this will be nothing more than a quick "blip" on the radar.
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Her: "Have you ever hit a deer?"
Me: "What, like, in the FACE?"
Her: ..... "WHAT is the MATTER with you!?"
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: Thought I was over theses things!!
« Reply #10 on: Aug 8th, 2005, 10:25am » |
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Oxygen didn't help Brad either cuz he wan't useing it rite and didn't know how or the difference. Mite wanna get some info from peeps on here that KNOW and can help direct you and try it again ? Just an idea........different strokes Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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