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   Author  Topic: ouch UK in the news  (Read 333 times)
maffumatt
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ouch UK in the news
« on: Jul 27th, 2005, 12:56pm »
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http://icwales.icnetwork.co.uk/0100news/0200wales/tm_objectid=15669207&a mp;method=full&siteid=50082&headline=what-makes-things-worse-is-being-told-we-have-a-migraine--sinusitis-or-just-a-low-pain-threshold--name_page.html
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thomas
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Re: ouch UK in the news
« Reply #1 on: Jul 27th, 2005, 1:06pm »
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Great article.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
LadyElaine
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Re: ouch UK in the news
« Reply #2 on: Jul 27th, 2005, 1:09pm »
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thumbsup Way to go OUCH UK!
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Re: ouch UK in the news
« Reply #3 on: Jul 27th, 2005, 1:33pm »
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Hip-Hip, Hoorah! Right ON OUCH UK!
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Re: ouch UK in the news
« Reply #4 on: Jul 27th, 2005, 1:44pm »
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WHOO-HOO!!! Congratulations and good show, OUCH UK! Smiley
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Re: ouch UK in the news
« Reply #5 on: Jul 27th, 2005, 2:23pm »
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Excellent job getting the word out about cluster headaches!
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Re: ouch UK in the news
« Reply #6 on: Jul 27th, 2005, 2:29pm »
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Nice press, OUCH-UK
 
"Rumor"  - that article is a precursor to an article about CH and mushrooms that will appear in The Guardian Newspaper (UK) within the next few days... stay tuned.
 
BB
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Re: ouch UK in the news
« Reply #7 on: Jul 27th, 2005, 2:55pm »
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Being chronic, I can definitly see where a neuro regulator would be an almost ideal solution.
 smokin
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Re: ouch UK in the news
« Reply #8 on: Jul 27th, 2005, 2:57pm »
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Way to go, OUCH UK!  Good article.  Interesting the comparison about the occurence of CH being the same as MS.  I didn't know that!  Well done, Val!
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Re: ouch UK in the news
« Reply #9 on: Jul 27th, 2005, 3:45pm »
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on Jul 27th, 2005, 1:46pm, vig wrote:
good, but...
 
"She hopes to become one of the few people in the country to benefit from a new treatment where electrodes are implanted in the brain to switch off the pain from attacks."
 
I think she's WAAAAAAAAAAAY off base on that one.
 
if there were nothing else that worked, than maybe, but there's just too many better choices.

 
Vig - Val has tried just about everything. We have two other regular posters to OUCH UK who HAVE had alot of success with the ONSI. Its not something I can bear to contemplate Ill admit but I think Val is a brave lady and she is pushing the boundaries for the rest of us.
 
This article has been syndicated and will be appearing in 200 local newspapers over the course of the next 4-6 weeks. Howzat for a result for OUCH?!
 
We have also had a HUGE article in a womans weekly magazine here by our very own Wendy the Brit AKA Pubgirl. I took a couple of copies for Donna when we came to Dallas and there is due to be another big spread on Val in September so we are getting a high profile in the press. I'll keep you all updated of course on both this and how our lovely Val gets on!
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Re: ouch UK in the news
« Reply #10 on: Jul 27th, 2005, 4:11pm »
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Of course it does silly.. and I will support all of those choices too as well you know!
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Re: ouch UK in the news
« Reply #11 on: Jul 27th, 2005, 4:23pm »
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Great article(s) - It's nice to see coverage that attempts to tell the real story of our little nightmare.
 
Tom
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Re: ouch UK in the news
« Reply #12 on: Jul 27th, 2005, 9:54pm »
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That's nicely done.  
 
Thanks Helen.  
 
Charlie
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Re: ouch UK in the news
« Reply #13 on: Jul 28th, 2005, 2:40am »
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Great stuff!
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LadyElaine
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Re: ouch UK in the news
« Reply #14 on: Jul 28th, 2005, 3:54pm »
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Thought I would bump this! Its a good thing. Any time something is in the News about Clusters, should be important. OUCH UK being in the news is as good to me as OUCH USA. The point is Clusters are being told about more and more people are hearing about our pain. I have found in the last few years I can say I have clusters and people will say I have heard of that. Smiley Use to be when I would say I had clusters no one knew what it was.
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Re: ouch UK in the news
« Reply #15 on: Jul 28th, 2005, 4:28pm »
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Bump.
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Re: ouch UK in the news
« Reply #16 on: Jul 28th, 2005, 5:28pm »
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on Jul 27th, 2005, 3:45pm, LeLimey wrote:

This article has been syndicated and will be appearing in 200 local newspapers over the course of the next 4-6 weeks. Howzat for a result for OUCH?!

 
Yup, I've seen this before. It's a fantastic piece. I hope to see more of it and other articles about CH. People need to know including Doctors. I hope someone who was wrongly diagnosed can read it and identify their affliction. That's a big payoff.
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Re: ouch UK in the news
« Reply #17 on: Jul 29th, 2005, 3:47am »
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GREAT WORK
 
Seems that someone knows what they are doing
 
Svenn
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Carl_D
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Re: ouch UK in the news
« Reply #18 on: Jul 29th, 2005, 4:34pm »
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That article fricken ROCKED!!!!
 
I know about 30 people I need to send that to.
 
Peace,
Carl D
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