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Topic: why me (Read 217 times) |
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millsy
New Board Newbie
I love YaBB 1G - SP1!
Posts: 2
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one pretty laid back dude. Then doctors tell me i must have some psychological/mental problem? Thank god we moved into the 21st century. At first these gutless CH could only get me while i was asleep but to their credit the little demons/beasts did attack in broad daylight.
Have not had a CH for about 3 years and am finding that Methysergide works for me, even though for the first few days on it I feel like Roboman with electrodes attached to my legs.
Good luck everyone!
Millsy :-/
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Melissa
Guest
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Why any of us???
I am very sorry to hear you are back in cycle, but glad to know you've found something that works for you (Sansert). You might want to do some reading up in the Medications/Treatments section of the site to see what's new.
I am due to go into cycle at any time now (I get them every other year) and have been shadowing in the a.m. the past couple mornings. It really sucks they come back, but I play the hand I was dealt and try not to complain.
I hope your cycle is a very short one!
take care,
mel
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BobG
New Board Hall of Famer
Gender: 
Posts: 5747
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Re: why me
« Reply #2 on: Jul 20th, 2005, 7:44am » |
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Be careful with that drug. There is a time limit on how long you can take it. (But, I can't remember how long right now). After taking it for a while you have to stop for a while, otherwise it'll eat your liver.
Good luck.
Keep us informed.
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Stay stressed. Never relax. Never sleep. Ever.
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Topical
New Board Old Timer
Posts: 256
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Re: why me
« Reply #3 on: Jul 20th, 2005, 7:50am » |
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No attack in 3 years? You shoud be  not  millsy!
Grats to you on finding a nice helper.
I hope it is another 100 years before you get another attack. That should cover your lifetime, if you need a few more years though let me know. 
Sorry Melissa, I hope the shadow doesn't know and it's not going to come on. Hang tough!
Edit: After reading Bob I will have to say that is a after all for millsy. *sigh*
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| « Last Edit: Jul 20th, 2005, 7:53am by Topical » |
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BobG
New Board Hall of Famer
Gender:
Posts: 5747
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Re: why me
« Reply #4 on: Jul 20th, 2005, 8:08am » |
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Topical, you can put a back on. Sansert is not that bad. I took it, as a matter of fact it is the only drug I have ever taken for clusters. It worked for me, mostly, and I had no side effects.
Just because it has been banned in the USA doesn't make it all bad.
From webMD site:
Methysergide has caused abnormal thickening of heart valves and of the lining of the lungs or abdomen when this medication was used for extended periods. Therefore, methysergide should be used only when the headaches occur often or are severe. Patients must be under close medical supervision
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Stay stressed. Never relax. Never sleep. Ever.
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TheMasterBaker
New Board Junior
Gender:
Posts: 68
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Re: why me
« Reply #5 on: Jul 20th, 2005, 8:38am » |
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Welcome to Clusterville.....home sweet home....stick around..
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thomas
CH.com Alumnus
New Board Hall of Famer
"Hit like a phillips head into my brain."
Gender:
Posts: 3281
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Re: why me
« Reply #6 on: Jul 20th, 2005, 9:21am » |
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on Jul 20th, 2005, 7:44am, BobG wrote:| Be careful with that drug. There is a time limit on how long you can take it. (But, I can't remember how long right now). |
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Six months on, six months off.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
    
Gender:
Posts: 14968
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Re: why me
« Reply #7 on: Jul 20th, 2005, 5:54pm » |
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Welcome aboard and I'm sorry you've had to deal with this horror. Three years off is great and another couple of PF centuries to you.
I can't talk much about drugs as mine have been gone for many years and some of them weren't being used.
I'm glad you posted though because there is a ton of information here.
Stick around. 
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender: 
Posts: 10429
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Re: why me
« Reply #8 on: Jul 21st, 2005, 3:50am » |
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Millsy,
warm welcome to ch.com family!
I'm so sorry that you're getting hit. But I'm glad you found us!
best wishes & PF time,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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