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Topic: I have a little list... (Read 613 times) |
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AussieBrian
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I have a little list...
« on: Jul 11th, 2005, 8:56pm » |
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Pills, potions and poisons. Treatments, therapies and tricks of trade.
What we've tried over the years could make for interesting reading and I'll show you mine if you'll show me yours.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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ClusterChuck
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The BEAST rises again, and again, and again, and .
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Re: I have a little list...
« Reply #1 on: Jul 11th, 2005, 9:24pm » |
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on Jul 11th, 2005, 8:56pm, AussieBrian wrote:| I'll show you mine if you'll show me yours. |
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Wait a minute, my zipper is stuck ... Give me a minute, and I'll show you ...
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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Donna_D.
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Re: I have a little list...
« Reply #2 on: Jul 11th, 2005, 9:31pm » |
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on Jul 11th, 2005, 9:24pm, ClusterChuck wrote:
Wait a minute, my zipper is stuck ... Give me a minute, and I'll show you ...
Chuck
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Probably stuck on a bandaid if I remember correctly....
or was it superglue?
DD
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 The information contained above is for the expressed use of fellow clusterheads and their supporters. Any misuse of this information by any of my "Ex's" is considered to be creepy and a form of harassment and will be duly noted by the ch.com webmaster 
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burnt-toast
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Re: I have a little list...
« Reply #3 on: Jul 11th, 2005, 9:31pm » |
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Extra Strength Excedrin - 1 - 2 dozen a day - Don't know how I survived that stupidity.
Prescription Pain Killers - like candy - Don't know how I survived that stupidity either.
Cinnamon - The real bark kind - soaked the bark in boiling water and left it brew for days into a strong sweet liquid - would pour some into a mug, heat it and drink it when attacks occurred. At one point I swore it worked but my dilusions didn't last long - haven't used it in years.
Currently snortin' Anbesol (actually applying with q-tip) - again I'm at the I swear it works stage - Haven't hit the "it was just another dilusion stage" yet.
Modified to include
Lithium
Verapamil
Cafertot
Variety of Steroids
Melatonin
Imitrex
O2
Zomig
Didn't know you wanted the more legitimate stuff.
Tom
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| « Last Edit: Jul 11th, 2005, 9:55pm by burnt-toast » |
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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AussieBrian
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Re: I have a little list...
« Reply #4 on: Jul 11th, 2005, 9:39pm » |
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Ok, from the top............
Ice packs
Hot packs
Ice and hot packs alternately
Prescribed glasses
Teeth pulled
Aspirin
Paracetamol
Codiene
Paracetamol with codiene
Morphine (on prescription, thank you)
Valium
Caffergot and it's mate
Immegran tabs
Immegran shots
Massage therapy
Very serious opiate shots but the name escapes me
Hypnosis
Denial
Psychiatric advice
Pacing, jogging, running, swimming
Serial head banging
Steam baths
Horrible shots in the back of my neck to "break the ganglion"
Coffee, tea, booze
Haven't done the seance thing yet, but will advise.
Not that any of it has worked, either, but it's been an adventure.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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E-Double
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Re: I have a little list...
« Reply #5 on: Jul 11th, 2005, 9:45pm » |
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Some tricks that I used to use and sometimes still do are:
*Wrapping a bandana tightly around my skull (be careful)
*Filling a sink with scaulding water creating a steam bath and placing my head over it with a towel covering
it.
*Going from Steam to Frigid shower.
*Standing infront of A/C
*Icepacks or frozen veggies on the back of the neck or eye
*Tons of STRONG coffee.
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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vig
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Re: I have a little list...
« Reply #6 on: Jul 11th, 2005, 9:46pm » |
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I will say it has been one h311 of an adventure....
no doubt
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never, Never, NEVER quit. -Winston Churchill
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Charlie
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Re: I have a little list...
« Reply #7 on: Jul 12th, 2005, 1:48am » |
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Cafergot and Inderal. Some success with the latter. Cafergot was useless. Sitting in the dark with an open window...in winter even. Felt good, didn't work. Absolute silence. Felt good too.
The technique I post here did the trick more than 75% of the time. At least it shortened them and now and then killed them very fast. What a deal that was.....
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Topical
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Re: I have a little list...
« Reply #8 on: Jul 12th, 2005, 4:47am » |
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Advil gelcaps for normal headaches work great.
These are now in my med chest:
Verapamil
O2
Cafergot
These didn't work for CH:
Advil gelcaps
Tylenol
Aspirin
Lithium
Lidocaine
Imitrix (nasal)
Maxalt
Distractors I've tried:
Head beating(not recommended)
Cold shower
Soaked hair with fan blowing
Pinch nerve center
Massage
Excercise
Hyperventilation
Digging toenails into soles of feet
Sex
Ice cubes or frozen dinner (preferably Swanson) 
A leg cramp I got accidentally had during an attack worked best.
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sandie99
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Re: I have a little list...
« Reply #9 on: Jul 12th, 2005, 6:12am » |
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Impressive lists, guys!
To add some of my own:
magnesium (actually abourted 3 attacks in the beginning & I got horrible attacks when I lived few days without it)
ice cream (aborted attack once - ch didn't return that day)
anadin extra (actually helped with shadows)
Naturally there are lots of meds which I have tried, but since they have been mentioned already I didn't want to mention them again.
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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AussieBrian
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Re: I have a little list...
« Reply #10 on: Jul 12th, 2005, 6:46am » |
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She Who Must Be Obeyed has just returned from work, taken her rightful place within our household, and is currently calling from the kitchen that I must add.......
Prednisone
Nurofen
Lavender oil
O2 (of course, thanks Sandie)
Tiger balm (kip4 to kip9 within 15 seconds)
Milo - a chocolate drink - while confined to protect me from myself.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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LadyElaine
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Re: I have a little list...
« Reply #11 on: Jul 12th, 2005, 9:27am » |
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Had teeth pulled out (DON'T DO THAT) Don't work
Had shock treatment (Don't do that either) Didn't work
Hot towels (made it worse)
Cold towles
ice
cold shower
hung head off bed think if blood rushed to my head it would stop (did not work)
Had Buddy put my head between his hands and mash as hard as he could. Don't do that it worries the supporter !
Hit head on padio floor (Don't do that either) Broke my nose and had a few stiches.
meds
Verrapamil
Norotten (sp)
Zomig
Melatonin
Imitrex shots
Hot sause
Riding in a car hanging head out the window.
Nose in air condition vent
Cold shower
Sitting in the snow.
The hardest thing I did was I gave my self a shot of novacain up under my eyes pain big time( DON'T DO IT)
It worked but my whole face felt like I had a stroke for almost a day.
The list goes on
The things we do !
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thomas
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Re: I have a little list...
« Reply #12 on: Jul 12th, 2005, 9:43am » |
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Sudafed
Asprin
Hot showers
Cold showers
Pressing my eye into my head with the palm of my hand
Cold packs
Hot packs
Afrin
4way
Norgesic Forte
Phirenol
Hot shower while banging head against cold shower tile
Strangulation
Pain transferance techniques
Imitrex
Paxil
More imitrex
Pills, shots, nasal sprays all imitrex
Verapamil
Excedrin Migraine.
Prednisone
Sansert
More imitrex
DHE IV treatment
Oxygen
Hmmm more trex
Amerge
Melatonin (Hallelujah)
Magnesium
Axert
Prozac
zomig
shrooms
Things in bold, I had some mearsurable success with.
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| « Last Edit: Jul 12th, 2005, 6:02pm by thomas » |
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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seasonalboomer
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If I think hard enough maybe it'll go away.....
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Re: I have a little list...
« Reply #13 on: Jul 12th, 2005, 9:50am » |
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Just a few of my prouder moments:
-Placing face into snow drifts while stumbling drunk
-Trying to puke because it makes my eyes
-Jumping into very cold pool in winter
-Face in air conditioning vent
-Looking up into bright lights
-Scalding hot water in sink with towel over it (duplicate from e-double)
-Snorting Dr. Bronner's Peppermint Soap
-Steam room at health club (made worse - very embarassing)
-Drinking MORE alcohol
-Holding my breath
Many would find these lists to be sad and pitiful. Only clusterheads can see the little glints of humor that many of these crazy experiences bring when looking back upon them. (At least I do, anyway.) This forum has allowed me to actually tell some of the crazier ones not only here but to people that know me and laugh.
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seasonal boomer
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Margi
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Re: I have a little list...
« Reply #14 on: Jul 12th, 2005, 9:54am » |
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Mike's tried so much, too.
In the early days before we knew what we were dealing with:
Aspirin by the tonne
Tylenol Extra Strength
Advil Gel Caps
Dristan Nasal Spray (decongestant that is addictive and makes things WAY worse)
Antibiotic after antibiotic for "sinus infection" 
Feverfew
MRI's and CT scans
Sinus draining at the hospital
Teeth extraction
Hot mustard powder up the nose (do NOT try this at home)
Heat (only once. never again)
Massage
Red Wine (bad idea. very bad)
Pot (exTREMELY bad idea. only once.)
Toradol
Sansert
Demerol
Imitrex pills
then we found this place:
welder's oxygen (a Godsend!)
water water water (worked very well a couple times, now, not so much)
ice (THANK YOU!!)
benadryl
gravol
neo-citran
learning to calm down (best defense so far)
shrooms (stopped working for him but did change his remission pattern for awhile)
1 month after, he went to a neuro for the first time ever and was prescribed:
prednisone
imitrex spray
verapamil
magnesium
lithium
now his cycles are more than 6 months in duration (I'm convinced, because of these meds).
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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nani
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Re: I have a little list...
« Reply #15 on: Jul 12th, 2005, 10:13am » |
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The ones I remember:
Fiorinol
Midrin
Excedrin Migraine
All the OTC NSAIDS
Having root canals
Having teeth pulled
Accupressure
Accupuncture
Chiropractics
massage therapy
head banging
trying to push my eye back into my head
temple pressure
ice
heat (definitely NOT for me)
natural migraine "remedies"
Toradol
Vicodin
Percodan
oxygen (aborts about 75% for me)
Morphine (at ERs)
Neurontin
Verapamil
lithium
melatonin
kudzu (something that finally makes a difference for me!)
...and some bizarre treatments that people recommend.
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| « Last Edit: Jul 12th, 2005, 5:03pm by nani » |
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Others may come and go, but MY power is MINE.
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Gator
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Re: I have a little list...
« Reply #16 on: Jul 12th, 2005, 10:45am » |
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Alone and in various combinations:
Tylenol...........Tylenol Allergy Sinus......Pseudofed
Excedrin.........Aspirin.........................Benedryl
Ibuprofen.......Naproxen.....................Coffee
Demerol..........Percocet.....................Relpax
Oxycontin.......Fioricet.......................Tylenol 3 w/Codeine
Flexeril...........Skelaxin......................Tylenol PM
Temazepam....Halcion........................Sonata
Verapamil.......Lithium........................Tegretol
Trileptal.........Topomax......................Indomethacin
Prednisone.....Melatonin.....................Baclofen
Nortriptyline...Oxygen........................Zomig NS
Imitrex NS......Imitrex Injections..........Imitrex Tabs
Depakote.......Heat...........................Ice
Coca Cola......Occipital Nerve Block......Reflexology
Massage........Direct Pressure.............Exercise
Still no working preventative. Oxygen, Zomig NS, Imitrex Injections, and to a lesser extent Imitrex NS, have worked as abortives.
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| « Last Edit: Jul 12th, 2005, 10:49am by Gator » |
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BobG
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Re: I have a little list...
« Reply #17 on: Jul 12th, 2005, 5:00pm » |
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Asprin - didn't help
Sansert
Ice pack
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Stay stressed. Never relax. Never sleep. Ever.
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unsolved1
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Re: I have a little list...
« Reply #18 on: Jul 12th, 2005, 5:29pm » |
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My little list includes:
Imitrex tabs, NS, and injections
Frovatriptan
Maxalt
O2
Verapamil
Meletonin
Lithium
Topamax
Neurontin
Keppra
Lamictal
Depakote
Zyprexa
Indomethacin
Sansert
Methergine
Remeron
Prednisone
Prednisolone
Medrol Dose Paks
Solu Medrol (IM and IV)
Decadron
Dex Packs
Solu Cortez (IV)
Droperidol & Benadryl (IV)
DHE 45 (IM and IV)
Thorazine
Clomid (experimental)
Cell Cept (experimental)
Nerve blocks:
Greater Occiptal block
Sphenopalatine block
Facet block
Histamine Desensitization 
RFG (Radio Frequency Generator)
Bilateral Occipital nerve stimulator 7 day trial
Narcotics
Stadol IV @ 1-3 mg; Stadol NS 2.5ML; Stadol IM 2mg
Demerol IV @ 50 - 75 mg
Morphine IV @ 7 mg
Actiq Lollipop @ 200 mg & 600mg
Valium 10 mg
Loritab 5mg, 7.5mg, and 10mg tablets
Methadone 10 mg
Worst medicines for me:
Topamax & Keppra
The rest I can't remember !! 
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| « Last Edit: Jul 12th, 2005, 6:11pm by unsolved1 » |
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notseinfeld
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Re: I have a little list...
« Reply #19 on: Jul 12th, 2005, 6:02pm » |
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Divining Rods
Exorcism
Expletives
Prayer Group
'Deals'
Meditation
Yoga
Acupuncture (the 6" Nail kind)
Prednisone
Verapamil
Occipital Nerve Block (ONB)
Melatonin
Xanax
All the Triptans
Impressive Lists folks!
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E-Double
CH.com Alumnus
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Are we ourselves?
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Re: I have a little list...
« Reply #20 on: Jul 12th, 2005, 7:47pm » |
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I forgot to add.....
When I first ccame to this site prior to meds I read about someone sniffing amonia.....So I did.....
DO NOT DO THIS!!!!!!
also best defense has been the helmet!
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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JDH
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Re: I have a little list...Imitre
« Reply #21 on: Jul 12th, 2005, 8:14pm » |
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In no particular order:
'shrooms (aka the beast slayer)
O2 (I was doing back flips the 1st time it worked!)
Imitrex injection & ns
Prednisone
Civamide (that's some rough stuff)
Lithium
Verapamil
Caffergot
Feverfew
Magnesium
Melatonin
Stadol ns (probably THE nastiest thing I've tried)
Fioricet w/codeine
Percodan
Percocet
Name an OTC drug and I've tried it
Hot & cold showers
Holding my head out of the car window like a friggin' dog
Ice, ice, and more ice!!!
Alcohol (it took me a long time to figure out that it was a big time trigger...duh me, I actually used to try to out drink the beast)
Weed
Grrrrrrrrrrr!!! and if the prick doesn't stop messing with me I guess I'll be trying my new Zomig script that I had filled last week 
Jim
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
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Topical
New Board Old Timer
Posts: 256
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Re: I have a little list...
« Reply #22 on: Jul 12th, 2005, 8:18pm » |
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on Jul 12th, 2005, 6:02pm, notseinfeld wrote:Divining Rods
Exorcism
Expletives
Prayer Group
'Deals'
Meditation
Yoga
Acupuncture (the 6" Nail kind)
Prednisone
Verapamil
Occipital Nerve Block (ONB)
Melatonin
Xanax
All the Triptans
Impressive Lists folks! |
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What, no Voodoo? 
I was curious about meditation. I see those guys walking of fire and glass and wonder if the control of pain would be easier.
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nani
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Re: I have a little list...
« Reply #23 on: Jul 12th, 2005, 11:05pm » |
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on Jul 12th, 2005, 9:50am, seasonalboomer wrote:
-Placing face into snow drifts while stumbling drunk
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I was thinking about that story the other day while getting hit. (I forgot it was you, LOL) I would've given someone $1000.00 to point me in the direction of a snowdrift that day.
edited to add: I was having a hot flash and getting hit at the same time.
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| « Last Edit: Jul 12th, 2005, 11:07pm by nani » |
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Others may come and go, but MY power is MINE.
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hdido
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Re: I have a little list...
« Reply #24 on: Jul 12th, 2005, 11:10pm » |
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Dilaudid and Actiq work for me; going back on Lamictal-I'm chronic, had a one year remission after being on Lamictal for 6 months, stayed on L for about 6 months after the CH returned, no results/after 3 1/2 years of being chronic again, my neuro suggested giving the Lamictal a try again....not sure if it was a factor in the remission, but since it had no adverse side effects, willing to give it a shot again. Sex also helps, but I don't get enough.
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