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Topic: I hate nights like last night (Read 243 times) |
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tpitts77
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I hate nights like last night
« on: Jun 28th, 2005, 10:56am » |
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I had 4 chs last night, 11:30, 1:30, 3:30 and 5:30. F- ing sucks  . O2 worked for 2 of them. I must have woke up to late for the other 2, had to use Trex. I have an important meeting today at work, so I couldn't catch up on my sleep. Just wanted to vent a little. Thanks for listening.
Tony
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Candycane
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Re: I hate nights like last night
« Reply #1 on: Jun 28th, 2005, 10:58am » |
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Hey Tony,
Nights like that do suck BIG time, vent anytime....Hope today and tonight is better, hang tough!
Candy
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vig
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Re: I hate nights like last night
« Reply #2 on: Jun 28th, 2005, 10:58am » |
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sorry to hear it...
what else have you been taking?
chin up, bro
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tpitts77
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Re: I hate nights like last night
« Reply #3 on: Jun 28th, 2005, 11:02am » |
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vig,
I take verapamil (150 mg daily) and indocin (480mg daily). I took an extra Verapamil this morning and have been pf so far (Knock on wood).
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alienspacebabe
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Re: I hate nights like last night
« Reply #4 on: Jun 28th, 2005, 11:03am » |
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You might want to look into increasing your verapamil... at 240 I was still getting hit... at 480 I'm PF...
Ask your doc if you can increase it, then ask for a new/higher prescription.
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| « Last Edit: Jun 28th, 2005, 11:05am by alienspacebabe » |
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don
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Re: I hate nights like last night
« Reply #5 on: Jun 28th, 2005, 11:07am » |
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9 Mg of Melatonin at night might help.
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Candycane
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Re: I hate nights like last night
« Reply #6 on: Jun 28th, 2005, 11:07am » |
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Tony,
I am not a doctor or even a nurse (even though I play one sometimes) your verapamil sounds low to really help. You need to read more here about it and talk to your Doctor. Could make a HUGE difference!!!Most people are on a lot higher doses.
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aprilbee
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Re: I hate nights like last night
« Reply #7 on: Jun 28th, 2005, 11:07am » |
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keep rowin'....sorry to hear, those sleepless nights can get to ya! PF vibes to ya!!
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vig
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Re: I hate nights like last night
« Reply #8 on: Jun 28th, 2005, 11:09am » |
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on Jun 28th, 2005, 11:03am, alienspacebabe wrote:
You might want to look into increasing your verapamil... at 240 I was still getting hit... at 480 I'm PF...
Ask your doc if you can increase it, then ask for a new/higher prescription. |
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good advice...
Indocin?
why?
If I remember correctly, Indocin helps CPH, but doesn't do much for CH.
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tpitts77
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Re: I hate nights like last night
« Reply #9 on: Jun 28th, 2005, 11:09am » |
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Got to go my meeting now. Hope I don't fall asleep. Thanks for the vibes. I've never really bitched on hear before, but for some reason it's making me feel a little better.
Thanks fellow CHers!! 
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Gator
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Re: I hate nights like last night
« Reply #10 on: Jun 28th, 2005, 12:57pm » |
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on Jun 28th, 2005, 11:02am, tpitts77 wrote:vig,
I take verapamil (150 mg daily) and indocin (480mg daily). I took an extra Verapamil this morning and have been pf so far (Knock on wood). |
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You sure you don't have those backwards? Everything I've read says 200mg max per day. MY doc told me 300mg was the upper limit. I hope you're taking it with meals or with an antacid. That stuff will eat your stomach up.
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E-Double
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Re: I hate nights like last night
« Reply #11 on: Jun 28th, 2005, 2:04pm » |
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on Jun 28th, 2005, 12:57pm, Gator wrote:
You sure you don't have those backwards? Everything I've read says 200mg max per day. MY doc told me 300mg was the upper limit. I hope you're taking it with meals or with an antacid. That stuff will eat your stomach up.
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Exactly what I was thinking
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tpitts77
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Re: I hate nights like last night
« Reply #12 on: Jun 28th, 2005, 3:10pm » |
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Yeah,
I did have those backwards, OPPS. 480 mg Verapamil and 150 mg of Indocin SR. I take an extra 240 mg Verapamil when they get bad like last night. It usually works but sometimes I have to take prednisone to break the cycle.
I've been chronic since they started in '96. This seems to work pretty well for me. When I'm doing "good" I only get about 3 a week. Those 3 usually abort with the O2 or Imitrex injections.
Thanks for the advice and in case your wondering my meeting went fine and I didn't fall asleep.
Tony
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Jeepgun
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Re: I hate nights like last night
« Reply #13 on: Jun 28th, 2005, 3:30pm » |
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Sorry to hear you had a rough night, Tony. Hang in there...
PFDAN's,
-Frank
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nani
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Re: I hate nights like last night
« Reply #14 on: Jun 28th, 2005, 4:45pm » |
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Awww, Tony...sorry you're having a bad time. Come and b*tch whenever you need to, OK? Pain free wishes, nani
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burnt-toast
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Re: I hate nights like last night
« Reply #15 on: Jun 28th, 2005, 5:52pm » |
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I like to think the bad nights help me appreciate the not so bad ones a little more. Hard to believe something can make you appreciate a little less pain.
Hang in there, and work with your doc. to find the best med/treatment mix.
Tom
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jcmquix
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Re: I hate nights like last night
« Reply #16 on: Jun 28th, 2005, 6:21pm » |
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Dude, I think my Beast and your Beast must know all the same BEAST..... I had the same exact night almost, those BASTARDS had one hell of a party last night, I'm gonna snuff my BEAST tonight.
Hope you get some rest and PF nights..
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BMoneeTheMoneeMan
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Re: I hate nights like last night
« Reply #17 on: Jun 28th, 2005, 6:32pm » |
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We all know where you're comin from! Keep the faith and PF sunshine vibes being sent to you as we speak.
Like some other people said, take melatonin and benadryl at night 1 hour before bed. I take 9mg melatonin and 50mg dypenhydramine (benadryl, tylonol PM, unisom).
That is the most effective thing i have ever done to prevent CHs. Of course if you get hit anyway, you still need trex, but it reduced my attacks by 75% and made it only like 1 to 2 per night......
PF wishes
BMonee
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Bethany1
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Re: I hate nights like last night
« Reply #18 on: Jun 28th, 2005, 7:14pm » |
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Sorry you had a rough night, but glad you made it thru the meeting! Hang in there, wishing you a pain free night tonight.
Beth
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TxBasslady
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Re: I hate nights like last night
« Reply #19 on: Jun 28th, 2005, 10:30pm » |
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on Jun 28th, 2005, 5:52pm, burnt-toast wrote:| I like to think the bad nights help me appreciate the not so bad ones a little more. Hard to believe something can make you appreciate a little less pain. |
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Funny how that works..... 
So very true. 
PF vibes to you, Tony......hang in there!
Jean
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BlueMeanie
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Re: I hate nights like last night
« Reply #20 on: Jun 28th, 2005, 10:55pm » |
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Vibes Tony... Hope the beast settles down for awhile. I know what you mean too, after a really bad one, the others make for a much better day.
Hang in there Tony. It's o.k. to let it out, sometimes it can be as good as another med not taken.
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