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Topic: How should I take this? (Read 259 times) |
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aprilbee
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How should I take this?
« on: Jun 3rd, 2005, 11:54am » |
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I saw my neuro yesterday, to try ANOTHER preventative...not my point though...I was telling him about the medications and treatments I have read here. He looked at me like I was goofy and continued with the typical "look at my finger" exam. Then he says, "so you are online talking with a lot of old men on that website?" What the fuck does that mean??? I quickly answered with a resounding "NO" and tried telling him about the website and the people, he didn't want to hear any of it...I'm seriously thinking about getting a new neuro... 
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Langa
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Re: How should I take this?
« Reply #1 on: Jun 3rd, 2005, 11:56am » |
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Quote:| I'm seriously thinking about getting a new neuro... |
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Good idea...
Langa
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thomas
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Re: How should I take this?
« Reply #2 on: Jun 3rd, 2005, 12:00pm » |
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Maybe he's like me, when I get people who try and tell me about stuff they've read on the internet as far as fixing their cars go, I let it go in one ear and out the other. You've got to realize most of the crap on the internet is just that, crap. This place is an exception to that rule. I tend to use the term "World wide support group" myself.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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aprilbee
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Re: How should I take this?
« Reply #3 on: Jun 3rd, 2005, 12:01pm » |
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That was the term I used, a support group...I dunno. 
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Linda_Howell
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Re: How should I take this?
« Reply #4 on: Jun 3rd, 2005, 12:01pm » |
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A picture is worth a thousand words.
You should have printed out some of the more pertinent information here and taken it in to SHOW him.
Linda
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seasonalboomer
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Re: How should I take this?
« Reply #5 on: Jun 3rd, 2005, 12:02pm » |
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on Jun 3rd, 2005, 11:54am, aprilbee wrote:| "so you are online talking with a lot of old men on that website?"... |
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Is that what you all are? Damn, and I thought you all were neuro's. Or are neuro's all old men? Or does your neuro want to find a place where he can be a dirty old man and talk to clusterheads about their pain?
What a jack ass! Knee to the groin might have actually been appropriate.
Sorry to hear you had to deal with such a jerk. I agree with Langa.
Scott
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sandie99
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Re: How should I take this?
« Reply #6 on: Jun 3rd, 2005, 12:03pm » |
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on Jun 3rd, 2005, 12:00pm, thomas wrote:| I tend to use the term "World wide support group" myself. |
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Aww... That's what this site is! 
But April, I have met 5 neuros so far. Find the kind who takes you seriously and listens to you. And DON'T accept meds you don't want. You're the one with the pain in your head, not the doc. He has no idea what battle you're fighting!
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karma
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Re: How should I take this?
« Reply #7 on: Jun 3rd, 2005, 12:04pm » |
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It doesn't really matter what he thinks about this place.
The question is, Is he educated about CH and is he helping you.
How you answer that question should guide you.
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LeLimey
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Re: How should I take this?
« Reply #8 on: Jun 3rd, 2005, 12:23pm » |
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April you are paying his wages and if he isn't doing what you want then sack him!
Get yourself to a new neuro pronto girlie!
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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aprilbee
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Re: How should I take this?
« Reply #9 on: Jun 3rd, 2005, 12:28pm » |
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thanks for the input guys!! 
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clarence
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Wake up
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Re: How should I take this?
« Reply #10 on: Jun 3rd, 2005, 2:00pm » |
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on Jun 3rd, 2005, 12:04pm, karma wrote:It doesn't really matter what he thinks about this place.
The question is, Is he educated about CH and is he helping you.
How you answer that question should guide you. |
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I think that Karma is spot on. Let him be a jerk about the internet, but if he is helping you with the pain, maybe biting your lip and refusing to kick him is worth it.
Casey
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Gator
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Re: How should I take this?
« Reply #11 on: Jun 3rd, 2005, 2:46pm » |
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You are from the OKC area, right? Who are you seeing? I have seen Dr. Marc Lenearts at the OU Medical Center Neurology twice so far and he seems very receptive to information from ch.com - even info about psilocybin, lsd/lsa and kudzu. He asked me to send him links to the info and thanked me when I did. He also listens to and discusses input about other medications I have seen discussed on this board. He spends a lot more time with me than either my GP or my two previous neuros. Apparently, he has around 5 - 7 clusterhead patients. I am going to take him some materials to give out to the clusterheads and ask him to recommend this website. I get the feeling he will do it.
If you're interested, here is his contact info:
Dr. Marc Lenaerts
OU Physicians, Dept of Neurology
711 Stanton L. young BLVD, Ste 310
Oklahoma City, OK 73104
PH#: 405-271-3535
FAX: 405-271-2523
He is in the Presbyterian Professional Building. Actually, they are in Suite 210 right now. A lot of construction going on in the building.
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| « Last Edit: Jun 3rd, 2005, 5:30pm by Gator » |
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aprilbee
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Re: How should I take this?
« Reply #12 on: Jun 3rd, 2005, 3:49pm » |
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Thanks!! I will definately look into it!
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kimmeesue
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Re: How should I take this?
« Reply #13 on: Jun 3rd, 2005, 5:33pm » |
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My first neuro came into the exam room like a whirling dervish and almost maniacally exclaimed she was going to cure me of my headaches. She specializes in headaches/neurosurgery. I gave her a year and guess what...I went chronic and she acted like I wasn't cooperating.
I found a new doc who at least doesn't make empty promises.
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If I wasn't doing this I'd probably be doing something else.
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TonyG1
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Re: How should I take this?
« Reply #14 on: Jun 3rd, 2005, 6:19pm » |
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on Jun 3rd, 2005, 12:02pm, seasonalboomer wrote:
Is that what you all are? Damn, and I thought you all were neuro's. Or are neuro's all old men? Or does your neuro want to find a place where he can be a dirty old man and talk to clusterheads about their pain?
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Or maybe he wanted to be a dirty old man talking to other dirty old men.... <ewwwhhh ...> 
whatever his motive, I would kick him to the curb and find a new neuro
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BobG
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Re: How should I take this?
« Reply #15 on: Jun 3rd, 2005, 6:20pm » |
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All clusterheads are old men. Except me!
Go knee that jack ass in the groin!
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ClusterChuck
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Re: How should I take this?
« Reply #16 on: Jun 3rd, 2005, 7:26pm » |
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I am NOT a dirty old man !!! (STFU, DD and Svenn!!)
I am NOT a dirty old man ...
Yes you are ...
Am NOT ...
Are TOO !!!
Am NOT ...
Are TOO !!!
Am NOT ...
Are TOO !!!
Am NOT ...
Are TOO !!!
(quick, somebody smack me ...)
Chuck
PS: Time for you to get a new neuro ...
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Charlie
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Re: How should I take this?
« Reply #17 on: Jun 3rd, 2005, 10:16pm » |
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You know more than he. Tell him so. My neurologist has asked me several times what's the latest from us. He knows I suffered for 23 years but see him now just for my seizures. He's a pretty good little twerp.
Dump him. 
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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