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Topic: I never bitch...... (Read 821 times) |
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Jonny
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Give me a shovel Ill dig my own grave!
 
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I never bitch......
« on: May 25th, 2005, 7:34pm » |
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about my head, but I do post whenever something good is happening so others will have some hope (Newbies)
Ive been chronic for 30 years, been taking the magic cocktail of Lithium and Verapamil everyday for about the last 14 years. It has helped to kill 80% of the HA's from ever reaching my brain....LOL
Ok, now for the new news....6 weeks ago I made an appointment with my Neuro, it had been 18 months since I had blood work (I know....practice what you preach)
Knowing that I would run out of meds before I saw him I started half dosing, in the past this was a bad thing to do....I would get slammed every night cause of it. For some reason this time I had no daily shadows and when I did wake up at night it was just a shadow that 02 killed in 5 minutes (I have never killed a HA that woke me up with 02)
I told my Neuro this and he said "take what you feel you have to, you have been doing this so long you know more than I do".................I love that guy 
Im going to continue to half dose as long as I can and hopefully ween off.....Can I get a Fuckeneh? 
.......................................jonny
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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floridian
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Fukeneh, Bro!
Good to be pain free, good to have a doc that cooperates.
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pattik
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Re: I never bitch......
« Reply #2 on: May 25th, 2005, 7:46pm » |
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Way to go, Jonny
Maybe this IS the beginning of weaning off---keep us posted on this. I have high hopes for you. pk 
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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maffumatt
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Good going man, I hope that it works out for you. I have noticed that alot of people here know more than their doctors, and the doctors seem to leave treatment decisions to the patients. Hopefuly they are learning something. I know that when I want to try something different, my doc never has any objections.
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..Danielle..
New Board Old Timer
Water and ice are my friends
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Re: I never bitch......
« Reply #4 on: May 25th, 2005, 7:56pm » |
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Too cool Jonny ! 
(Hard for me to swear, unless i'm ticked)
Danielle
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Keep your face to the sunshine and you cannot see the shadow. -Helen Keller
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alchemy
CH.com Alumnus
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get out of my head
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Re: I never bitch......
« Reply #5 on: May 25th, 2005, 8:04pm » |
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FUKENEH!!!![size=2][/size]
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vig
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CHit Happens
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Re: I never bitch......
« Reply #6 on: May 25th, 2005, 8:07pm » |
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I don't know about a fuckeneh, but how about congratulations....
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never, Never, NEVER quit. -Winston Churchill
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BarbaraD
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Hugs to ya
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Re: I never bitch......
« Reply #7 on: May 25th, 2005, 8:08pm » |
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Great news Jonny. Hope it stays PF and NEVER comes back...
Hugs BD
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What don't kill ya, Makes ya stonger!
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BikerBob
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Re: I never bitch......
« Reply #8 on: May 25th, 2005, 8:15pm » |
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Go back to the full dose on the Lithium. Lately, your posts have been showing symptoms of the manic side of bipolar disorder. 
Bob
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kissmyglass
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Don't Mix Triptans
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Re: I never bitch......
« Reply #9 on: May 25th, 2005, 8:22pm » |
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WOO fuckin HOO...Couldn't be happier for you man.
Maybe after 30 years you wore the beast out.
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"It does so fucking look like her" - Picasso
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Charlie
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Happy to be here
  
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Re: I never bitch......
« Reply #10 on: May 25th, 2005, 8:22pm » |
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Nice fuckin' goin'
Charlie 
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Redd
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Re: I never bitch......
« Reply #11 on: May 25th, 2005, 8:30pm » |
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| « Last Edit: May 25th, 2005, 8:31pm by Redd » |
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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nani
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Got kudzu?
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Re: I never bitch......
« Reply #12 on: May 25th, 2005, 8:30pm » |
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Thats great news!  hugs, nani
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Others may come and go, but MY power is MINE.
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broomhilda
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Ride it!
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Re: I never bitch......
« Reply #13 on: May 25th, 2005, 8:39pm » |
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Fuckeneh!!!That is wonderful news may it continue and see your future as being pf, you deserve the break
Whooooooo hoooo!!!
Hugs on over!
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Suck it up Princess...
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Jonny
CH.com Alumnus
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Give me a shovel Ill dig my own grave!
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Re: I never bitch......
« Reply #14 on: May 25th, 2005, 8:50pm » |
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Folks......I have no idea WTF is going on, I just know I am not going to judge it for as long as it goes my way.
This is the first time in two thirds of my life that I am able to live....and I dont know why, thats the hard part.
I found you in 1999 and have been here since.......I thank you all for what you have done for me everyday.......see you in Dallas my family!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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notseinfeld
New Board Hall of Famer
Enough is Enough. Vote Libertarian
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Posts: 648
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Re: I never bitch......
« Reply #15 on: May 25th, 2005, 8:51pm » |
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Sheee-Yot bro!
That's uplifting.
Keep us posted.
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-----------Democracy is three wolves and a sheep voting on what's for dinner. ---------------------
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maffumatt
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See you there Bro.. hell Ill even buy a round or two........
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toolong
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Looking for an answer
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Re: I never bitch......
« Reply #17 on: May 25th, 2005, 10:01pm » |
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Great Doc you've got there Jonny.Good fuckin' future to ya man!!!!!!!
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Hey,watch this!I saw it on a cartoon and I think it might work!
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Mr. Happy
CH.com Alumnus
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If I can do it, it ain't art.
 
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You're Don's bitch......
« Reply #18 on: May 25th, 2005, 10:06pm » |
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Hey.....Mr. Fukeneh....you may turn into a whining occasional meegrainer.
Can I have all your cool CH stuff?
RJ
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May those who don't want any
Have memories of never getting any.
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don
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Re: I never bitch......
« Reply #19 on: May 25th, 2005, 10:11pm » |
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you still suck.
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Kevin_M
CH.com Alumnus
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withered branches grow green again.
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Re: I never bitch......
« Reply #20 on: May 25th, 2005, 10:12pm » |
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Good to hear Jonny!
I know you've gotten through A LOT. It's backing down off ya and that means the most.
that's ROCKIN'
damn cool
Kevin M
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Redneck
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Re: I never bitch......
« Reply #21 on: May 25th, 2005, 10:18pm » |
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Damn Newbies! 
Kick ass and take names bro.
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kcopelin
CH.com Alumnus
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good grief
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Re: I never bitch......
« Reply #22 on: May 25th, 2005, 10:21pm » |
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So now you can find out how much of your personality was cluster induced and how much is just Jonny being Jonny
PFDAN forever!
kathy
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Words count, chose carefully.
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Jimi
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Who loves ya baby!
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Re: I never bitch......
« Reply #23 on: May 25th, 2005, 11:13pm » |
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One thing that you can predict when it comes to clusters. They are unpredictable. Great news Jonny and Good Luck bro.
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I am convinced that life is 10% what happens to me and 90% how I react to it.
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Ruth
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Re: I never bitch......
« Reply #24 on: May 25th, 2005, 11:35pm » |
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Simply wonderful for you.
Ruth
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