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Charlie
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Larry King
« on: Apr 27th, 2005, 11:30am » |
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Yesterday, Larry King had one of his headache panels.
Seymour? Diamond was there and a MD named Lawless. King's beautiful wife (the old fart), Lee Grant, and an actress who was one of The Brady Bunch kids.
At least CH was mentioned along with the forms of Migraine. It also turns out that besides Migraines, King's wife has also been diagnosed with CH. King has taken her to ERs for morphine and other treatments. She said she was having an "aura" during the interview...whatever that meant in this case.
Diamond and Lawless pretty much agreed with us smartahses on symptoms and Lee Grant said a good friend in the movie profession had CH. I suppose it was Frank Capra.
CH was a very minor part of this show but at least it was mentioned by them and one call-in. Lots of Imitrex, Topomax, beta blockers, Zomig, and hormone therapy disgussed with varying results.
Oh. Lee Grant said her friend dragged an O2 tank with him wherever he went and it help him greatly when it got so he was screaming on bathroom floors. The docs were big O2 fans as well. Diamond said 90% O2 was effective. This isn't someting I understand but I thought you will have your say.
Something anyway.
Charlie
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| « Last Edit: Apr 27th, 2005, 11:39am by Charlie » |
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sandie99
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Re: Larry King
« Reply #1 on: Apr 27th, 2005, 12:15pm » |
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That's great for us! Sure, it would be better if Larry had ch himself, but at least that's something. Little publicity is good publicity. 
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Killroy 2.0
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Re: Larry King
« Reply #2 on: Apr 27th, 2005, 3:11pm » |
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I was watching that, I was not impressed by the panel. I don't care who they are or were? They did not seem well informed and it drove me nuts just to sit there and watch the show. Then when Diamond himself said that CH was a man headache and could not believe the call had been dx with ch because she was a woman. I turned the show off. 
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don
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Quote:| it would be better if Larry had ch himself, |
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Not for Larry it wouldn't.
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vig
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Re: Larry King
« Reply #4 on: Apr 27th, 2005, 3:15pm » |
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on Apr 27th, 2005, 3:11pm, Gena wrote:| Then when Diamond himself said that CH was a man headache and could not believe the call had been dx with ch because she was a woman. |
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no kidding?
Seymour said THAT?
DS 
Says a lot about the Diamond HeadaCHe clinic....
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thomas
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Re: Larry King
« Reply #5 on: Apr 27th, 2005, 3:22pm » |
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on Apr 27th, 2005, 3:11pm, Gena wrote:| Then when Diamond himself said that CH was a man headache and could not believe the call had been dx with ch because she was a woman. I turned the show off. |
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They are lucky you weren't in the audience, you would have went up there and kicked his ass. 
Or hit him over the head with your O2 tank. 
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| « Last Edit: Apr 27th, 2005, 3:25pm by thomas » |
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Killroy 2.0
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Re: Larry King
« Reply #6 on: Apr 27th, 2005, 3:27pm » |
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on Apr 27th, 2005, 3:15pm, vig wrote:
no kidding?
Seymour said THAT?
DS
Says a lot about the Diamond HeadaCHe clinic....
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If my memory is correct - he said - Cluster headaches are natures way of evening things out. Women get meegrens and men get clusterheadaches. 90% of all cases are men. He could not believe she was dx with clusterheadaches because she was a women. But then went on to talk about 02 treatment she asked about.
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Killroy 2.0
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Re: Larry King
« Reply #7 on: Apr 27th, 2005, 3:29pm » |
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on Apr 27th, 2005, 3:22pm, thomas wrote:
They are lucky you weren't in the audience, you would have went up there and kicked his ass.
Or hit him over the head with your O2 tank. |
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I was out of bed trying to find the # for the Larry King SHow 
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thomas
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Re: Larry King
« Reply #8 on: Apr 27th, 2005, 3:32pm » |
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on Apr 27th, 2005, 3:29pm, Gena wrote:
I was out of bed trying to find the # for the Larry King SHow
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I called imitrex one night after seeing their commercial for it's use for migraine, gave the poor operator a piece of my mind about how we spend more than the "M" people and get NO mention whatsoever.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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seasonalboomer
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Re: Larry King
« Reply #9 on: Apr 27th, 2005, 3:57pm » |
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man, you cluster people are a hard lot to make happy. lets talk about it, but only say it the way we want you to say it. be happy larry king had it on his show at all. its better than we've had from what it sounds like.
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Ueli
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What a moron! Does Diamond think because he is a famous doctor he can ignore the most simple mathematical principles? Even if his 10% figure were correct, the chances to find a female clusterhead are much larger than to win the lottery jackpot, and that happens from time to time I hear.
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Killroy 2.0
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Re: Larry King
« Reply #11 on: Apr 27th, 2005, 4:01pm » |
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on Apr 27th, 2005, 3:57pm, seasonalboomer wrote:| man, you cluster people are a hard lot to make happy. lets talk about it, but only say it the way we want you to say it. be happy larry king had it on his show at all. its better than we've had from what it sounds like. |
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Misinformation IS NOT better then no infomation at all!!!!
Just senitive about the subject because, if I had been a man I would not have been misdx for 12 years. My symptoms are classic.
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pattik
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Re: Larry King
« Reply #12 on: Apr 27th, 2005, 4:04pm » |
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Maybe us CH ladies should do a mass emailing to Dr. D
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thomas
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Re: Larry King
« Reply #13 on: Apr 27th, 2005, 4:05pm » |
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on Apr 27th, 2005, 4:01pm, Gena wrote:
Yes they are, right out of the book.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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seasonalboomer
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Re: Larry King
« Reply #14 on: Apr 27th, 2005, 4:07pm » |
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Some information is better than no information. In the past couple months we've now had the Discovery special, now Larry King, etc... on headaches. And the information while imperfect has attracted quite a few people to learn more. If you watched these boards after the Discovery special, a lot of people found there way and got more info --- good info.
The conventional media will never be a great source of good information, but at least it gets SOME information out.
And I understand female sensitivity on the subject. But step outside of your gender issues for a moment and be pleased about any momentum that can be created by ANY exposure. Whether it is incomplete or flawed.
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thomas
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Re: Larry King
« Reply #15 on: Apr 27th, 2005, 4:10pm » |
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on Apr 27th, 2005, 4:07pm, seasonalboomer wrote:
And I understand female sensitivity on the subject. But step outside of your gender issues for a moment and be pleased about any momentum that can be created by ANY exposure. Whether it is incomplete or flawed. |
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Yes be pleased that now even more people are going to say "Only men get those, I saw a famous headache Dr. on Larry King and that's what he said." Yes women rejoice! You don't have clusters. I declare Gena the winner in this argument.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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seasonalboomer
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Re: Larry King
« Reply #16 on: Apr 27th, 2005, 4:17pm » |
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on Apr 27th, 2005, 4:10pm, thomas wrote:
Yes be pleased that now even more people are going to say "Only men get those, I saw a famous headache Dr. on Larry King and that's what he said." Yes women rejoice! You don't have clusters. I declare Gena the winner in this argument. |
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Based on your faith in the american public and their mental capacity why would you even worry. you're of the opinion that they wouldn't have remembered a single thing past the imitrex commercial anyway. so the idea that they would be around the watercooler the next day talking about how all those poor guys suffer so with those headaches, sure am glad my daughter will never get anything like that, is moot anyway.
My original argument, which I don't believe is wrong, is that the clusterheads are tough group to make happy when it comes to any kind of publicity. I don't believe that point was argued.
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Killroy 2.0
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Re: Larry King
« Reply #17 on: Apr 27th, 2005, 4:23pm » |
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on Apr 27th, 2005, 4:17pm, seasonalboomer wrote:
I don't believe that point was argued. |
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I once again have to bring gender in to this - Not being a man and all I do not feel the need to get argue any point with you. I believe I made a valid point. I made a statement and I stand by it.
Edited to add I believe this qualifiys for a:
WHATEVER
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| « Last Edit: Apr 27th, 2005, 4:24pm by Killroy 2.0 » |
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rextangle
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Yeah, I saw that show last night.... it was pretty useless and that old fart from the Diamond Clinic didn't seem any more knowledgable than any fucking doctor I've seen...
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thomas
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Re: Larry King
« Reply #19 on: Apr 27th, 2005, 4:25pm » |
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on Apr 27th, 2005, 4:17pm, seasonalboomer wrote:
My original argument, which I don't believe is wrong, is that the clusterheads are tough group to make happy when it comes to any kind of publicity. I don't believe that point was argued. |
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I will agree that we don't like misinformation. How many minority groups do? BTW Gena is still the winner.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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seasonalboomer
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Re: Larry King
« Reply #20 on: Apr 27th, 2005, 4:29pm » |
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so have we been officially categorized as a "minority group"? I missed that on the last census, sorry.
I don't disagree with Gena. She can win. Women most often do win arguments even though think they aren't arguing. I often make a lot of "points" for the sake of making "points" and find it is better for my emotional state if I don't consider it an argument.
Have a blast with that one. I hung it out on the clothesline for you. Maybe there are some "points" to be made about it.
Larry King sucks but he could of covered the Michael Jackson case for ANOTHER night instead.
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thomas
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Re: Larry King
« Reply #21 on: Apr 27th, 2005, 4:32pm » |
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on Apr 27th, 2005, 4:29pm, seasonalboomer wrote:| so have we been officially categorized as a "minority group"? I missed that on the last census, sorry. |
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No we are not an official minority group, however we are a group, and we make up a very small percentage of the general population, so we are in the minority, make of it what you will.
And as far as arguments go, I tell people what I think about an issue, period. If you don't agree with me, then that just means that your brain does not work the same as mine, this is no fault of your own, just a matter of chemistry and biology.
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| « Last Edit: Apr 27th, 2005, 4:37pm by thomas » |
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Karla
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Re: Larry King
« Reply #22 on: Apr 27th, 2005, 4:34pm » |
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Yes, my mother called me today to tell me that ch was mentioned on the Larry King show last night. She was surprised and thought it was pretty good considering you usually don't hear it mentioned.
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Karla
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seasonalboomer
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Re: Larry King
« Reply #23 on: Apr 27th, 2005, 4:36pm » |
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on Apr 27th, 2005, 4:34pm, Karla wrote:| Yes, my mother called me today to tell me that ch was mentioned on the Larry King show last night. She was surprised and thought it was pretty good considering you usually don't hear it mentioned. |
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And she didn't say, Karla, the doctor said women don't get CH. So what's wrong with you?
Hmmmmmmmm...... Then maybe the exposure was just that "pretty good considering you usually don't hear it mentioned".
Sorry to have commandeered your nice post Karla,
Scott
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Re: Larry King
« Reply #24 on: Apr 27th, 2005, 4:44pm » |
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Any information can be good for all of us however misinformation continues to perpetuate the notion that women don't get ch, a challenge many women have faced for years and will conitnue to do so if this continues to be called a "man's" heaadche...
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Suck it up Princess...
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