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notseinfeld
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Re: hmm
« Reply #1 on: Apr 15th, 2005, 7:27pm » |
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gheesh---they're a little touchy bout those shrooms. Someone must've been shaken up about a post as there's still a sound of iron cages dropping down and wailing people fleeing the scene.
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-----------Democracy is three wolves and a sheep voting on what's for dinner. ---------------------
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Kirk
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Re: hmm
« Reply #2 on: Apr 15th, 2005, 8:30pm » |
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I could almost hear the sound of a trout being slapped upside someones head.
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Kevin_M
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Re: hmm
« Reply #3 on: Apr 15th, 2005, 9:37pm » |
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A person, Les, gives the consensus regarding stance of the Board of Trustees on the next thread, it seems based upon informed choice. Clear lines are drawn on decision making. The efforts of achieving are done in different ways. When the information they are looking for and prefer is discussed, the door is not permanently closed and locked regarding advocasy of the subject.
Kevin M
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Ree
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Re: hmm
« Reply #4 on: Apr 16th, 2005, 7:59pm » |
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we most certainly live in a free society here.......free to speak as we chose......ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
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don
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Seems to be a simple matter of protocol and professional courtesy and respect.
Goadsby is the patron. He has worked with OUCH UK a lone time. It would be professionally inappropriate to not consult with him first after he has receieved the data.
Could be wrong.
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Ree
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Re: hmm
« Reply #6 on: Apr 16th, 2005, 8:19pm » |
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well i just find it funny that we can't get people to act as adults here but other Ch. sites discriminate content that is appropriate on their site... I can only imagine what the cluster world thinks of this site here... everything is appropriate here...with the exception of the MIGRAINE SUFFERERS...... demons that we are......ree
PS and said UKers post here and run away with their ideas and freedoms here...HMMMMMMM is right....
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespockethttp://www.prohawaiian.com
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pubgirl
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Thank you Kevin and Don
Maffumatt, that is an old post you have linked to, if didn't read selectively you would see that there is a link to the MAPS trials on there.
Visitors can click the link and read everything they could want to know about shroom research. The area you visited is the entry point for new visitors. In the same way as any board, ch.com, OUCH US, wherever it may be, information is linked to as it couldn't possibly be all there on one page. There are links to most things on there I think you'll find.
As Don also says, quite rightly, our relationship with Professor Goadsby is very close and longstanding and we follow his lead on what treatments or research he thinks are effective or worth pursuing and we use his up to date information and advice to advise our sufferers.
W the B
Ree,
As I'm sure you are referring to me, please be upfront and say so. BUT you miss the point, they are two completely different sites with different purposes, The site linked to is a new person visitor site for initial CH advice. It needs to be kept relatively clear and simple for confused or distressed people who know very little about CH. You wouldn't post the same things on ch.com as you would post on there or on OUCH US or use the same language.
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| « Last Edit: Apr 16th, 2005, 9:11pm by pubgirl » |
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maffumatt
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Thankyou for clearing that up Puggirl, I was wondering why they would limit information like that. That was my first time to visit Ouch UK .
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pubgirl
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That's Ok maffumatt
I'm trying to work out now how to unlock the post you linked to from December and put an additional message on it to point people to the MAPS thread.
It may take a while as I'm not very good at all that stuff! 
Wendy
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pubgirl
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on Apr 16th, 2005, 8:19pm, Ree wrote:well i just find it funny that we can't get people to act as adults here but other Ch. sites discriminate content that is appropriate on their site... I can only imagine what the cluster world thinks of this site here... everything is appropriate here...with the exception of the MIGRAINE SUFFERERS...... demons that we are......ree
PS and said UKers post here and run away with their ideas and freedoms here...HMMMMMMM is right.... |
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An add on comment which I wanted to say about Cluster Headache websites.
Despite the fact that there seems to be some resentment from Ree of me posting here, I have always thought it a very good thing that there are several different sites across the world serving different purposes and run in different ways, which we can post on and share information or ideas and thoughts. I try and make my contributions to any site useful (apart from the occasional drunken moment )
DJ purposely makes this site mostly "self regulating", that is its huge value and its potential downside in my view. It is a great place to argue new thoughts and ideas, but it can be a bit of an intimidating place for new sufferers. This is the necessary result of it being so open.
The various OUCH sites across the world serve a different purpose and are run in different ways to serve that purpose.
W the B
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Sean_C
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on Apr 16th, 2005, 10:08pm, pubgirl wrote:| Despite the fact that there seems to be some resentment from Ree of me posting here |
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When did she say that????
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Not4Hire
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Re: hmm
« Reply #12 on: Apr 16th, 2005, 10:25pm » |
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on Apr 16th, 2005, 9:04pm, pubgirl wrote:That's Ok maffumatt
I'm trying to work out now how to unlock the post you linked to from December and put an additional message on it to point people to the MAPS thread.
It may take a while as I'm not very good at all that stuff!
Wendy |
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Hey Dubya da Bee... any links to MAPS is a GOOD THING... and if possible...
(I just took a long over-due surf of the UK-OUCH page)
a link to the O2 page that DJ has here may do some good for new arrivals... I mean one that's not too hard to get to....
http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm
and we're working on some "tuning" of the page.....jones?
best .....steve(n4h)
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pubgirl
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on Apr 16th, 2005, 10:25pm, Not4Hire wrote:
Hey Dubya da Bee... any links to MAPS is a GOOD THING... and if possible...
(I just took a long over-due surf of the UK-OUCH page)
a link to the O2 page that DJ has here may do some good for new arrivals... I mean one that's not too hard to get to....
http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm
and we're working on some "tuning" of the page.....jones?
best .....steve(n4h) |
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Hi Steve
We have quite detailed 02 links on there already as the right kit is quite complicated to get hold of in the UK. Things will be much better in October though as all NHS 02 will be at 14l per minute. That will save OUCH UK a huge amount of work loaning out regulators.
Wendy
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pubgirl
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on Apr 16th, 2005, 10:19pm, Sean_C wrote:
When did she say that???? |
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Sean
r.e. "Said UK'ers who post here"
I'm the one who replied to the thread in question that maffumatt linked to on the OUCh Board, and there isn't anyone else on there who posts here ( or not with their real name anyway  so there isn't anyone else it could be.
If you didn't mean me Ree, I sincerely apologise, but can't see who else it could possibly be.
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Kevin_M
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Re: hmm
« Reply #15 on: Apr 17th, 2005, 12:15am » |
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on Apr 16th, 2005, 10:08pm, pubgirl wrote:| I have always thought it a very good thing that there are several different sites across the world serving different purposes and run in different ways,... |
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Wendy, this statement reflects a parallel understanding of what I read from the UK site when posting a somewhat similar statement but you make the point clear again.
Quote:| The efforts of achieving are done in different ways. |
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Kevin M
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| « Last Edit: Apr 17th, 2005, 12:39am by Kevin_M » |
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Ree
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Re: hmm
« Reply #16 on: Apr 17th, 2005, 7:59pm » |
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Let's just say I was damned surprised to see that Wendy was the author of the post restricting Flash and locking the thread....Never did I say that I resented Wendy specifically posting on this site.... Just surprised at the change in voice of the Wendy that I am used to hearing at CH.com USA!!!
Everyone knows that I am not a huge supporter of shroom therapy "FOR OUR FAMILIES NEEDS" (be sure not to take this out of context). But I am an advocate for freedom of speech and my first post to this thread stated that..... If you took it personally, well...
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don
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Freedom of speech is fine on an open forum.
OUCH UK is a business and discussions there should be appropriate to the guidelines and policies of that business. As in any business.
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Ree
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2008's my year to shine~SUN IS OUT!!!YAY
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Re: hmm
« Reply #18 on: Apr 17th, 2005, 8:47pm » |
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just callin em as I sees em.........mr diplomat!!!!
ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespockethttp://www.prohawaiian.com
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don
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Dont matter anyway.
The post is old.
OUCH UK is OUCH UK.
and
Wendy sucks.
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Simon
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Re: hmm
« Reply #20 on: Apr 17th, 2005, 10:17pm » |
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...but does she swallow? 
Don't think even l'il ol' me could say that there.
Baa
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Ree
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2008's my year to shine~SUN IS OUT!!!YAY
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Re: hmm
« Reply #21 on: Apr 17th, 2005, 11:17pm » |
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on Apr 17th, 2005, 8:35pm, don wrote:Freedom of speech is fine on an open forum.
OUCH UK is a business and discussions there should be appropriate to the guidelines and policies of that business. As in any business. |
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and to add a coment....... let us not forget where OUCH originated be it anywhere on earth......
ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespockethttp://www.prohawaiian.com
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Sean_C
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on Apr 17th, 2005, 10:17pm, Simon wrote:| ...but does she swallow? |
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Don does 
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