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KMT
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What the......
« on: Apr 1st, 2005, 12:39am » |
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What did I do wrong?
Crap something isn't right.
Took Kudzu and Indocin an hour and a half ago and I am getting hit. Oh my I can bearly type.
Breath, breath.
I don't get it I am doing wrong. What I thought might work.  Isn't. My head is heavy and I feel light headed oh the pain.
Shutting up know augggg...............
Kim
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aka...................................................... KimY
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cootie
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Re: What the......
« Reply #1 on: Apr 1st, 2005, 12:45am » |
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Could the two meds of outruled each other ? I am so sorry you are gettin HURT rite now......but have read where trex doesn't work if takein it......could the other stuff of over rode it ? Sorry I ain't one to know much on this issue.......or give the best advice. Gee....what am I good for.......depressingly dumb Pam
Big ole PF wishes your way tho....I am good for that !!!
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sundancer
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Re: What the......
« Reply #2 on: Apr 1st, 2005, 12:45am » |
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I'm, so sorry, hang in there, you will get thru it. Do you use 02?
How long have you been taking kudza, what brand and what dose?
Hate to ask questions of you when you are suffering.
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KMT
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Re: What the......
« Reply #3 on: Apr 1st, 2005, 12:52am » |
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Took a total of 180 mg today of the Kudzu recovery today was the first day. My pulse is really weak and low. Kinda tingly all over and feel light head but can't lay down pain is to much.
O2 is in bed room and hubby is asleep hate to wake him but only on 10 Liters till tomorrow.
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aka...................................................... KimY
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sundancer
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Re: What the......
« Reply #4 on: Apr 1st, 2005, 1:00am » |
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I don't do trex, but I believe I read in a thread something about being cautious in mixing kudzu and trex. "Zu" may lower your blood pressure on it's own.
The 02...are you on 10 liters?
It was 5 days of kudzu and horrible hits all night long before I was PF. I take solaray 1 tab in the a.m. one before dinner and two before bed. Also take magnesium and melatonin. I've been PF 12 days now.
Don't give up on kudzu, I believe it needs to build up in your system.
Are you any better?
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clarence
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Re: What the......
« Reply #5 on: Apr 1st, 2005, 1:02am » |
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Hang in there Kim. PF prayers for you.
Casey
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KMT
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Re: What the......
« Reply #6 on: Apr 1st, 2005, 1:06am » |
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I think the Indocine is the problem I had lightheadedness with the Kudzu but this other crap is awful.
Pain is still bad looks like a late nighter here.
Yah 10 L will get more tomorrow got a script for 12-15 L
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KMT
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Re: What the......
« Reply #7 on: Apr 1st, 2005, 10:01am » |
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Well I survived another night. Will continue the Kudzu and give it time to be effective. The Indocine makes me a little skeptical we will see.
I am groggy today but otherwise ok.
PF wishes to the rest of you.
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vig
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Re: What the......
« Reply #8 on: Apr 1st, 2005, 10:15am » |
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I thought Indocin/Indomethacin was recommended for CPH sufferers not CH'ers...
First ensure the Indocin is for you/not for you, THEN try the Kudzu.
I don't think anybody's tried that combination before, as far as I know...
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KMT
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Re: What the......
« Reply #9 on: Apr 1st, 2005, 10:24am » |
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Someone suggested that I had CPH that is the only reasone I started Indocine. It is perscribe to take as needed up to three times a day. I don't believe it helped with the pain last night but am keeping an open mind  .
I was doing ok with Kudzu except for a little lightheaded yesturday and when I got home I took a dose of Indocine because my head was bothering me then all those symptom described above showed up. Maybe its just a shocker to the body. I don't know. 
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sandie99
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Re: What the......
« Reply #10 on: Apr 1st, 2005, 10:46am » |
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Jonny
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Re: What the......
« Reply #11 on: Apr 2nd, 2005, 1:46pm » |
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on Apr 1st, 2005, 10:24am, Kim Y. wrote:| Someone suggested that I had CPH that is the only reasone I started Indocine. [ |
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Was that "Someone" a Doctor?
Have you been diagnosed?
If your getting light headed taking Kudzu you should tell a Doctor, it could be lowering your blood pressure to much.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
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fubar
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Re: What the......
« Reply #12 on: Apr 2nd, 2005, 4:31pm » |
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Both times I tried Indocin it made my stomach hurt like hell. My doctor put me on it many years ago to rule out CPH when my cluster attacks were very short (<5 minutes each) for a while. Did nothing for me. I would think that mixing the Kudzu and the Incocin would mke it difficult to reach any conclusions about either one.
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KMT
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Re: What the......
« Reply #13 on: Apr 2nd, 2005, 5:48pm » |
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I think I had false hope with the Indocine its only as needed 50mg but so far each time I have taken it the CH stays the same without relief. Following its daily pattern like clock work.
Kudzu since Wed. and am still feeling pain right now kip 3 and around 10/11pm at a Kip 5-6.
For the next couple of days I will avoid Indocine and try just the Kudzu.
(Also got the hair done and sentive nose lately is also part of the problem...)
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Jonny
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Re: What the......
« Reply #14 on: Apr 2nd, 2005, 6:08pm » |
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on Apr 2nd, 2005, 5:48pm, Kim Y. wrote:| I think I had false hope with the Indocine its only as needed 50mg but so far each time I have taken it the CH stays the same without relief. Following its daily pattern like clock work. |
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I take it that you did not understand my question.....Have you been diagnosed.....if so, for what?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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KMT
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Re: What the......
« Reply #15 on: Apr 3rd, 2005, 12:53am » |
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Jonny I was Dx. with CH two months ago. The reason for the Indocine was someone on here said that my s/s didn't sound like CH they sounded like CPH I thought anything was possible. So I talked with the doc. Looks like theory has been proven. I am a true CHer.
Checked BP and didn't drop much. I think it was the quick change and the combo of Indocine and Kudzu as well as the pain all together.
Sorry I missed your post...
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Mr. Happy
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Re: What the......
« Reply #16 on: Apr 3rd, 2005, 1:41am » |
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on Apr 3rd, 2005, 12:53am, Kim Y. wrote:
There's a feather in your cap you didn't need to wear. Now you know you don't have CPH, get the O2 thing squared away, then let's talk drugs.
Progress and love. Don't you just feel it?
RJ
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BikerBob
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Re: What the......
« Reply #17 on: Apr 3rd, 2005, 4:40am » |
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Nice post, RJ 
Bob
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| « Last Edit: Apr 3rd, 2005, 5:26am by BikerBob » |
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Ruth
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Re: What the......
« Reply #18 on: Apr 3rd, 2005, 10:55am » |
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I tried Indocin way back in the 70's, didn't help me at all.
Try to keep your head up and don't give up, I hope you find something that helps you soon.
Ruth
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lionsound
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Re: What the......
« Reply #19 on: Apr 3rd, 2005, 12:38pm » |
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(getting caught up now  )
Kim,
When I take indocin at first ...or after having been off it for a while...it does make me very lightheaded and I feel really strange,kind of unco-ordinated and floaty until I've taken it for a few days. Come to think of it it also made me feel strange if I took it without enough food in my belly.
I had been taking it for the ice pick jabby things but had to stop because it gave me rebound HA when I took it daily , and now I just take it as a regular NSAID for when I tweak my neck and can't move.
Hope you're feeling better,
PF's
-R
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