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   Author  Topic: My aunt found the "cause" of CH  (Read 899 times)
sandie99
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My aunt found the "cause" of CH
« on: Mar 25th, 2005, 4:50am »
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My mum told me this morning that my aunt is certain that she knows why I have CH.  
 
Are you ready?
 
It's PSYCHOLOGICAL. I'm imagining it all! Angry
Yeah, sure, tell that my neurologist! He thinks that my pain is very real one.
 
I got so mad... as you can imagine. I am so glad that my aunt and her family are not coming over for dinner today... She's get a piece of my mind!
 
When next attack comes, I'll just tell it that "you're not for real, I'm just imagining you..."
 
I must bite my tongue so that I won't tell her that her daughter's allergies are psychological... Lips Sealed
 
Best wishes & PF days,
Sandie
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Re: My aunt found the "cause" of CH
« Reply #1 on: Mar 25th, 2005, 7:13am »
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on Mar 25th, 2005, 4:50am, sandie99 wrote:
It's PSYCHOLOGICAL. I'm imagining it all!

Uh yes... In other words... IT'S ALL IN YOUR HEAD! Grin
 
Wishing you PF and annoying-aunt-free days.
 
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Re: My aunt found the "cause" of CH
« Reply #2 on: Mar 25th, 2005, 7:33am »
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Sandie don't be so upset please.  My ex Mechanic/armchair doctor boyfriend swore up and down lthis time last year that my headaches also were psychological, and that I should talk to a shrink buddy of his who ahd 100% success rate in "curing" females with these *types* of headaches. (females don't get CH remember...)  HAHAHAHA  
 
 
 
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Re: My aunt found the "cause" of CH
« Reply #3 on: Mar 25th, 2005, 7:42am »
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I have heard that sooo much   it's all in my head head ....and you know ....I just don't have the time anymore to get upset need to get ready for a headache......lol
 
hoping all have a a good and pf day
AJ
 
life is to darn short
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Sean_C
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Re: My aunt found the "cause" of CH
« Reply #4 on: Mar 25th, 2005, 8:35am »
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Been there too Sandie Grin We could only wish it was pschological Grin Do you remember that tv series "SOAP" and Bert would snap his fingers and he'd think he disappeared? Thats what I do Grin
 
Sean....................
« Last Edit: Mar 25th, 2005, 3:13pm by Sean_C » IP Logged
BarbaraD
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Re: My aunt found the "cause" of CH
« Reply #5 on: Mar 25th, 2005, 8:39am »
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What people don't understand they try to make up reasons for. CH is inexplicable so people can't just accept it at that. They have to have REASONS.  
 
But to give your aunt credit -- I've suspected for years it was all in my head. The pain, the eye drooping, the sinus problems -- all of it.  
 
AFter years of hearing bs from well meaning people, I just take it with a grain of salt and tell them it's all in my head before they come out with it. Saves hiding a lot of bodies.... Cheesy
 
Hugs BD
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Re: My aunt found the "cause" of CH
« Reply #6 on: Mar 25th, 2005, 8:54am »
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Hi Sandie:
 
A family once told me that I don't really hurt as much as I say I do, it's just that my Pain Tolerance was low...
You can hardly blame them...most people have never heard of Cluster headaches or even met someone who suffered with this...also, most of our friends and family have never witnessed us under an attack.
 
Do what I did.  Print some info from here and hand it out to family members and friends...invite them to this site too...either they'll believe you then or think we're all a bunch of loonies... Tongue
 
Langa
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Re: My aunt found the "cause" of CH
« Reply #7 on: Mar 25th, 2005, 9:15am »
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on Mar 25th, 2005, 8:54am, Langa wrote:
...or think we're all a bunch of loonies...

Are you inferring we aren't? Wink
 
I happen to be proud to call this insane posse my family.
 
Hirvimaki-it's-all-in-my-head-Isi
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Re: My aunt found the "cause" of CH
« Reply #8 on: Mar 25th, 2005, 9:20am »
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Funny, my wife said the same thing, they both must have the same illness.
 
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Re: My aunt found the "cause" of CH
« Reply #9 on: Mar 25th, 2005, 9:23am »
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Imagine an illusion that you are pretending that your Aunt is psychological.
 
Dreaming.
 
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Re: My aunt found the "cause" of CH
« Reply #10 on: Mar 25th, 2005, 9:27am »
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on Mar 25th, 2005, 4:50am, sandie99 wrote:
It's PSYCHOLOGICAL. I'm imagining it all! Angry

My 2 friends say it ain't so... Smith & Wesson. I just want to shoot people who say that.
Sorry, Sandie. Nothing personal.
TomM
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Re: My aunt found the "cause" of CH
« Reply #11 on: Mar 25th, 2005, 9:28am »
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I made a post a while back that "people just don't understand".I don't really think that anyone who has never experienced CH can relate to what we go thru.Their explanation of something they don't understand is "maybe it's just in our heads".I guess those who are non-believers should visit this site and do a little research.Next time she drops by for a visit let her read this site just for a few moments.Maybe then she'll have a little compassion for you.Good luck and PF days and nights. WinkDavid
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Re: My aunt found the "cause" of CH
« Reply #12 on: Mar 25th, 2005, 11:28am »
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Actually, reading this site may not convince anyone as we are all just a bunch of low pain threshhold lunatics whining about a headache.   There are some more useful links that have nothing to do with this site that may help persistant non-believers get a clue.
 
The Headache Group, The Institute of Neurology, Queen Square, London
From Dr Goadsby
http://www.ion.ucl.ac.uk/~headache/cluster.html
 
From the Michigan Head Pain & Neurological Institute
From Dr Rozen
http://www.mhni.com/clusterheadaches.html
Just another FAQ
http://www.mhni.com/faqs_cluster.html#tic
 
From the Hospital-Doctor website.
http://www.hospital-doctor.co.uk/hd_news/hd_news_article.asp?ID=2498& ;Section=Feature
 
From the National Headache Foundation
http://www.headaches.org/consumer/topicsheets/clusterheadache.html
 
I loved this line from a PubMed Abstract:  
Quote:
The intensity of duster headache pain leads to ethical concerns among researchers over the use of placebo, making randomized controlled trials difficult.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed &dopt=Abstract&list_uids=15742909
 
IHS Headache Guide.  Clusters start on page 44
http://216.25.100.131/ihscommon/guidelines/pdfs/ihc_II_main_no_print.pdf
 
I could go on, but these should be more than enough for the average intelligent non-believer.  If they still do not believe after reading this, they probably still believe the earth is flat and if God had intended man to fly he'd have given us wings.
 
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Re: My aunt found the "cause" of CH
« Reply #13 on: Mar 25th, 2005, 12:16pm »
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The pain is not entirely in my head, there is a little in my neck too...and then the people like that add a lil extra pain...right in the fucking ass moon looser
 
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Re: My aunt found the "cause" of CH
« Reply #14 on: Mar 25th, 2005, 3:05pm »
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Seems alot of people think pain is in yer head when it comes from something 'they can't see' as a reason. No open wounds or lumps and no bleeding from the ears or nose. They think you get a pain or twinge and DWELL on it and if ya kept busy it would not even be noticeable. I say tie em down and saw there arm off slowly and tell em to 'think of something pleasant' cuz it is all in there head. Pain within Pam
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Re: My aunt found the "cause" of CH
« Reply #15 on: Mar 25th, 2005, 3:14pm »
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Now everyone here KNOWS it is not psychological
 
It is from having hair that is too long and bad teeth.
 
 
Sheesh.  
 
 
Wink
 
 
SS
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Re: My aunt found the "cause" of CH
« Reply #16 on: Mar 25th, 2005, 3:26pm »
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on Mar 25th, 2005, 3:14pm, Donna_D. wrote:
Now everyone here KNOWS it is not psychological
 
It is from having hair that is too long and bad teeth.
 
 
Sheesh.  
 
 
Wink
 
 
SS

 
Hey now there SS.  My teef are just fine.  Bof of them!
 
 
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Re: My aunt found the "cause" of CH
« Reply #17 on: Mar 25th, 2005, 3:30pm »
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on Mar 25th, 2005, 3:14pm, Donna_D. wrote:
Now everyone here KNOWS it is not psychological
 
It is from having hair that is too long and bad teeth.

 
MY mom use to say its because I'm no fucking good, its your subconscious, and to get the fuck away from me, there's nothing wrong with you blah blah blah...............................Life without meds and support was tough.
 
Being a misdiagnosed clusterhead at 13 and getting yelled at with a kip 10 was even tougher Undecided
 
Life goes on guys  Wink
 
Sean.........................
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Re: My aunt found the "cause" of CH
« Reply #18 on: Mar 25th, 2005, 5:57pm »
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Sorry Sandy.  I hope that you find some pain free time and some understanding.  We all understand.
 
Casey
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Re: My aunt found the "cause" of CH
« Reply #19 on: Mar 25th, 2005, 7:30pm »
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Years ago my mother told me that I must be in
denial about stress, and that was causing the pains.
 
hahahahahaha
 
me, the youngest of four kids  
who has never had to finish anything,
because my siblings love to assist me....
hahhaha
 
I am such a bohemian....
 
and she insists i am over stressed.....
 
I just laugh it off.
And she ends up changing the subject  
to her arthritis pain anyway.....so
I jsut don't talk about it with her anymore.
 
Forgive and move on....
it's not worth the negativie feelings
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Re: My aunt found the "cause" of CH
« Reply #20 on: Mar 25th, 2005, 7:45pm »
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The last person that said I was imaganing it I offered to share. He was dumb enough to say ok right up to the point where I started chasing him with a hot soldering iron, explaining that I will only hold it there (against his temple) for about an hour. I told him after the first 15 min or so it would not hurt as bad only because there is a point where you start to go numb from the soldering iron. As for the ch we dont get that luxurary sp. For some strange reason my friend didnt want to participate any more. Grin
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Re: My aunt found the "cause" of CH
« Reply #21 on: Mar 25th, 2005, 9:15pm »
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Sandie, have a donut.
 Grin
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Re: My aunt found the "cause" of CH
« Reply #22 on: Mar 26th, 2005, 2:06am »
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I guess the older woman clawing at the walls in my doctor's office was having a psychological episode.  
 
Damn I wish they could rename CH. Maybe calling it a  syndrome wpuld be more discriptive.
 
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Re: My aunt found the "cause" of CH
« Reply #23 on: Mar 26th, 2005, 2:31am »
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I've been chronic since 1996 and have been through the "all in your head" crap ("no, it is in my eye"Wink.  I believe that everyone diagnosed with CH, be it episodic or chronic should be issued a crutch or cane-people with medical disabilities that require some sort of device don't have to put up with the junior psychologist crap (come to think of it, an eye patch would look cool).
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Re: My aunt found the "cause" of CH
« Reply #24 on: Mar 26th, 2005, 2:37am »
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While at work I was shadowing... ready for the next attack and a colleague offered me some paracetemol(cos she gets headaches). A kind gesture but I couldn't take her up on her offer as I tried to explain that they wouldn't work. Her reply to me was "well they work for me". Does anyone else get fed up with trying to explain?? gocrazy
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