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Topic: ALL in the same boat (Read 314 times) |
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judkins
New Board Veteran
at peace with myself..at war with the beast..
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Posts: 113
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ALL in the same boat
« on: Mar 24th, 2005, 10:17am » |
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This might sound stupid.. but whether we use
CALouch
OUCHcanada
OUCHuk
CH.com & all other sites across the world we all have one thing in common. We are either Supporters or Sufferers, with the former suffering just as much. As with many people I don't know how I would cope without mine. I was alone for the first 4 years of onset and knowing you have someone by your side makes such a difference. I keep thinking of people who have no support and no access to a computor... what on earth do they do?
I don't quite know why I've posted this... had to get it off my chest. 
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Todays agenda..... get through it !!!!
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Hirvimaki
New Board Hall of Famer
Quod me nutrit me destruit.
    
 
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Posts: 1105
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Re: ALL in the same boat
« Reply #1 on: Mar 24th, 2005, 10:20am » |
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on Mar 24th, 2005, 10:17am, judkins wrote:| ... what on earth do they do? |
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I don't know. I'd be lost without you freaks.
Hirvimaki-Isi
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"What makes us discontented with our condition is the absurdly exaggerated idea we have of the happiness of others."
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nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
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Posts: 7953
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Re: ALL in the same boat
« Reply #2 on: Mar 24th, 2005, 10:22am » |
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So true, Judy...32 years of CH...I found this place last year. I don't know what I'd do without all of you... 
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Others may come and go, but MY power is MINE.
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aj8694
New Board Newbie
I love YaBB 1G - SP1!
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Posts: 19
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Re: ALL in the same boat
« Reply #3 on: Mar 24th, 2005, 10:31am » |
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this is my first cycle with this group (or anyother) and I am soooooooooo thankful...... for the first time my wife is starting to understand...... and there ARE others who understand me and the HELL THANK YOU and I'm sorry you understand (noone should have too)
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magman
New Board Newbie
I love YaBB 1G - SP1!
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Posts: 6
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Re: ALL in the same boat
« Reply #4 on: Mar 24th, 2005, 10:34am » |
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judkins, thank you for you post. It seemed like a perfect thread to cross-post this message I just placed on the O.U.C.H. website.
OUCH Members/Cluster Suffers & Supporters:
O.U.C.H. and the Jefferson Headache Center are exploring various collaborative opportunities. One area of mutual benefit to our organizations is the sharing of information.
To that end, the Headache Center will be forwarding a copy of their Cluster Headache Newsletter for dissemination via mass-emailing to O.U.C.H. members. The first Edition of this letter is linked herein and will be forwarded via email to all members in the next few days.
Jefferson is pleased to provide medical professionals for speaking engagements at O.U.C.H. functions in and around the Philadelphia area and the Northeastern quadrant. Speakers for other areas of the country will be considered on an individual basis. They are considering the possibility of providing a physician to address the O.U.C.H. membership at this years’ annual convention in Dallas.
I am pleased to provide the first installment of the Jefferson Headache Center Newsletter
Regards,
Dan Bemowski, President
Organization for Understanding Cluster Headaches
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| « Last Edit: Mar 24th, 2005, 10:57am by magman » |
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Bob P
New Board Hall of Famer
Shut up Bob!
Gender:
Posts: 3436
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Re: ALL in the same boat
« Reply #5 on: Mar 24th, 2005, 11:31am » |
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Quote:Unlike migraines, cluster headaches
occur primarily in men with hazel or light
colored eyes |
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I told you guys women don't get clusters! 
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| « Last Edit: Mar 24th, 2005, 11:32am by Bob P » |
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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Candycane
Guest
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Re: ALL in the same boat
« Reply #6 on: Mar 24th, 2005, 12:27pm » |
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I'm just glad I found you guys to be in it with. tThanks for for the help!
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| « Last Edit: Mar 24th, 2005, 12:28pm by Candycane » |
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Langa
CH.com Alumnus
New Board Hall of Famer
So many donuts, such little time...
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Posts: 4179
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Re: ALL in the same boat
« Reply #7 on: Mar 24th, 2005, 1:14pm » |
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Great post Judy...! I feel not only blessed to have found this place but honored to be a part of such an awesome family.
Dan Great news! Looking forward to reading the newsletter and future installments!
Langa
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When you saw only one set of footprints, it was then that I carried you.
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Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
 
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Posts: 14968
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Re: ALL in the same boat
« Reply #8 on: Mar 24th, 2005, 5:39pm » |
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So true so true:
We're gonna miss that berg though. 
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
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Posts: 10429
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Re: ALL in the same boat
« Reply #9 on: Mar 25th, 2005, 4:54am » |
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I don't know what I'd do without you all... We're the clusterfamily! 
Bless you all,
Sandie
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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mikey-de
New Board Junior
I love YaBB 1G - SP1!
Gender:
Posts: 58
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Re: ALL in the same boat
« Reply #10 on: Mar 26th, 2005, 9:30am » |
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Yep, all in the same boat...I feel a bit like the uncle that no one really knows too much about. I have no support other than y'all coz nobody gets it....but that's OK, coz I got my mushies and they are my local supporters 
Might have to dose again soon, been getting lil twinges in my neck, teeth and sinus...but so far relatively PF for 8 days now (since last dose) and 10 days before that(since my first dose)
WOOHOOOO!!! 18 relatively PF days with no meds and two 1 gram doses of mushies 
mikey-de
in cycle and PF
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Mushrooms and O2. lotsa O2.
Avatar from wiki
http://en.wikipedia.org/wiki/Cluster_headache
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