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Topic: PF since Friday! (Read 1379 times) |
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Jeepgun
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PF since Friday!
« on: Mar 8th, 2005, 11:37am » |
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The only thing I've been taking, this cycle, is a multi-vitamin and kudzu. I have been pain-free since last Friday, with only a very minor "twinge/hit" on Sunday afternoon. Today, as an experiment, I am going off of the kudzu to see what the results will be. If I get hit, so be it: I'll begin taking the kudzu again. So far, I am tentatively hopeful that I will remain pain-free. If I do, this will be the shortest, most painless cycle I've ever had, in the eight years of waging war on the beastie.
This cycle has been strange, anyway: In years past, I would wake up in the middle of the night with a Kip-8, and from then on, for the next 6-8 weeks, I would be getting hit with Kip-8's and 10's three and four times a day, everyday, until the cycle would abruptly end.
This cycle seemed to ramp up with very mild hits, and even when I got hit last Thursday night at 1:00 a.m., it was really only a Kip-7.
So.... *fastening my seatbelt, crossing fingers, sacrificing a chicken and spraying the blood in quasi-religious symbols all over the kitchen* I guess we'll see what happens.
 "tick tick tick tick..."
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Her: "Have you ever hit a deer?"
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Her: ..... "WHAT is the MATTER with you!?"
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don
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Quote:| it was really only a Kip-7 |
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LMAO!
Only Clusterheads would use the word only to desribe pain at a level 7.
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| « Last Edit: Mar 8th, 2005, 11:46am by don » |
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Mark C
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Re: PF since Friday!
« Reply #2 on: Mar 8th, 2005, 11:46am » |
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E-Double
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Re: PF since Friday!
« Reply #3 on: Mar 8th, 2005, 11:48am » |
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Enjoy it Frank!!!
Ditto what Don said.... Too Funny.......I was a dancin' yesterday evening....reached about an 8....Wife comes home asks if I'm ok.......I say No problem while filled with the nastty discharges of a lovely HIT.......
I truly believe that we can handle anything!!
Good luck brother & may it be quick!
E
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Jeepgun
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Re: PF since Friday!
« Reply #4 on: Mar 8th, 2005, 11:49am » |
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LOL! Well, it was bad enough that I was turning my head sideways and pressing my eye against the steel support posts in the basement, but it wasn't a headbanger, and it only lasted for a half hour. Like Bob_P's sig line: "If this is as bad as it gets, I can handle it." 
Thanks, E-dub & Mark! 
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| « Last Edit: Mar 8th, 2005, 11:51am by Jeepgun » |
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Her: "Have you ever hit a deer?"
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Hirvimaki
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Re: PF since Friday!
« Reply #5 on: Mar 8th, 2005, 11:57am » |
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Yeah, Frank! That is awesome! I've been PF for over a week now just on kudzu.
Happy days!
More PF days to you, buddy!
Hirvimaki-Isi
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Jeepgun
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Re: PF since Friday!
« Reply #6 on: Mar 8th, 2005, 12:02pm » |
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Thanks, Hirv. You too, pal.
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Her: "Have you ever hit a deer?"
Me: "What, like, in the FACE?"
Her: ..... "WHAT is the MATTER with you!?"
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KMT
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Re: PF since Friday!
« Reply #7 on: Mar 8th, 2005, 12:08pm » |
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LeLimey
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Re: PF since Friday!
« Reply #8 on: Mar 8th, 2005, 12:11pm » |
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I'm so pleased for you!  Hope it lasts and lasts
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seasonalboomer
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Re: PF since Friday!
« Reply #9 on: Mar 8th, 2005, 12:15pm » |
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I'm crossing my fingers for you. Please keep us informed on going flat off the kudzu. I'll keep you posted on the tapering method (cutting doses down).
I'm sending a package of kudzu for my Dad (also a sufferer) to keep in the medicine cabinet for his next cycle. He's been in remission for a couple years. Nothing more heartwarming than hanging out, doing the father-son thing and talking about the crazy shit you do when you have a clusterheadache. "Oh yeah, and I remember this one time, it was soooooo bad, that I _______ __________", "Really Dad, did that help?", "Well not really but it's crazy isn't it?"
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Jeepgun
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Re: PF since Friday!
« Reply #10 on: Mar 8th, 2005, 12:33pm » |
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LOL, Boomer... I guess that's one father/son bonding experience I'm glad I don't have!
It's much too early to draw any definitive conclusions, but the kudzu experiments and preliminary results are exciting!
Thanks, Kim!
Thank you, LeLimey. I hope it brings you some relief too. Hang in there...
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| « Last Edit: Mar 8th, 2005, 12:34pm by Jeepgun » |
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Her: "Have you ever hit a deer?"
Me: "What, like, in the FACE?"
Her: ..... "WHAT is the MATTER with you!?"
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nani
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Re: PF since Friday!
« Reply #11 on: Mar 8th, 2005, 12:37pm » |
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That's good news Frank! Keep us posted.
It's hard to believe that there are more folks out there who might really benefit from this and haven't tried it yet.
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Jeepgun
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Re: PF since Friday!
« Reply #12 on: Mar 8th, 2005, 12:42pm » |
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Will do, Nani.
The thing I like about this therapy is:
1. No doctor's visits.
2. No side effects.
3. So far, more effective than any medication I've tried.
4. Cheap ($20USD/bottle)
5. Readily available at the local health food store
6. No O2 cylinder or imitrex injectors, or any other "funny stuff" lying around, making me feel like an invalid or a victim of this condition.
7. Easy: Two tablets T.I.D.
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Her: "Have you ever hit a deer?"
Me: "What, like, in the FACE?"
Her: ..... "WHAT is the MATTER with you!?"
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lionsound
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Re: PF since Friday!
« Reply #13 on: Mar 8th, 2005, 12:49pm » |
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on Mar 8th, 2005, 11:37am, Frank_W wrote:| So.... *fastening my seatbelt, crossing fingers, sacrificing a chicken and spraying the blood in quasi-religious symbols all over the kitchen* I guess we'll see what happens |
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Works best if you swing that chicken around over your head first. 
(lol....I'm not even sure how I know that.....)
*happy dancin* for you!!!!
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Jeepgun
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Re: PF since Friday!
« Reply #14 on: Mar 8th, 2005, 12:52pm » |
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ROFL! I'll remember that next time, Lionsound! LOL!
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Her: "Have you ever hit a deer?"
Me: "What, like, in the FACE?"
Her: ..... "WHAT is the MATTER with you!?"
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The mad viking
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Re: PF since Friday!
« Reply #15 on: Mar 8th, 2005, 12:54pm » |
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Enjoy it Frank!!!
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Jeepgun
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Re: PF since Friday!
« Reply #16 on: Mar 8th, 2005, 12:57pm » |
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Thank you, Svenn. Every morning, when I awake, the first thing on my mind is, "Hey, I didn't get hit last night!! YES!!!!" and I feel like luckiest man in the world...
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Her: "Have you ever hit a deer?"
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Her: ..... "WHAT is the MATTER with you!?"
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Re: PF since Friday!
« Reply #17 on: Mar 8th, 2005, 2:42pm » |
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on Mar 8th, 2005, 12:49pm, lionsound wrote:
Works best if you swing that chicken around over your head first.
(lol....I'm not even sure how I know that.....)
*happy dancin* for you!!!!
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Is the chicken nekkid too? If so then I think I know how you know...
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Cathi04
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Re: PF since Friday!
« Reply #18 on: Mar 8th, 2005, 4:02pm » |
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Frank.....dont forget the garlic around your neck and the TFH!
You KNOW this thrills my sox off!!!!!!
....only a K7.sheesh!!!!
At the risk of repeating myself, you guys are the strongest human beans I know!!!!!!!!!!!
Keep rockin, Frank!!!!!!!!!!!
Cathi.who is smiling all over her face
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unsolved1
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Great news Frank! Enjoy your pain free time 
Unsolved
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Jeepgun
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Re: PF since Friday!
« Reply #20 on: Mar 8th, 2005, 4:11pm » |
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Thank you, Cathi. *BEAMING* Wouldn't it be something if kudzu was found to have the same cycle-ending properties that a prednisone taper did? Maybe that's too much to hope for... Anyway... Thanks again! Thank you, Unsolved. (Hopefully soon to be SOLVED!)
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| « Last Edit: Mar 8th, 2005, 4:12pm by Jeepgun » |
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Her: "Have you ever hit a deer?"
Me: "What, like, in the FACE?"
Her: ..... "WHAT is the MATTER with you!?"
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floridian
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on Mar 8th, 2005, 4:11pm, Frank_W wrote:| Thank you, Cathi. *BEAMING* Wouldn't it be something if kudzu was found to have the same cycle-ending properties that a prednisone taper did? Maybe that's too much to hope for... Anyway... Thanks again! Thank you, Unsolved. (Hopefully soon to be SOLVED!) |
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Not too much to hope for ... I am hoping that (at very least) kudzu will get episodics through a cycle quickly and with little pain, and that chronics can keep the beast at bay indefinitely with out side effects. I am also hoping that kudzu doesn't interfere with the alternative treatment (though it might). Anything above that (like long term remission after a short course of kudzu) will be a nice bonus.
Keeping my fingers crossed.
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| « Last Edit: Mar 8th, 2005, 4:24pm by floridian » |
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clarence
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Re: PF since Friday!
« Reply #22 on: Mar 8th, 2005, 4:49pm » |
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on Mar 8th, 2005, 12:42pm, Frank_W wrote:
The thing I like about this therapy is: |
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My favorite is:
Quote:
Wouldn't that be nice...
Congrats Frank. I am going on 3 weeks now, not completely pain free, but quite nearly. I admire you man, I am too scared to go off the Kudzu. Thanks for being the guinea pig...
Casey
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Bob P
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Re: PF since Friday!
« Reply #23 on: Mar 8th, 2005, 4:49pm » |
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Who knows Flo.
I tried the fungus four times last cluster and it didn't even touch my attacks.
I'm now at 3 years and 3 months remission. That's 6 months past due for my cluster.
Maybe the fungus did work, in a way.
Maybe the zu will too.
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cootie
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Re: PF since Friday!
« Reply #24 on: Mar 8th, 2005, 4:51pm » |
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Good deal......stuff seems to be worth checking out. If ya get bored bein painless you can have my alien space cold, back pain, migraine for the past week, still broken slow to heal foot pain and body aches.....free......I won't charge ya a dime. Happy for you unhappy for me Pam
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