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Topic: Check this out (Read 245 times) |
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alienspacebabe
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Re: Check this out
« Reply #1 on: Mar 3rd, 2005, 3:49pm » |
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That's a great article, Svenn....
thanks for sharing it with us.
Lizzie
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Not until we are lost do we begin to understand ourselves.
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Check this out
« Reply #2 on: Mar 3rd, 2005, 4:07pm » |
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That was a good one indeed. Thanks so much, Svenn! 
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Langa
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So many donuts, such little time...
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Re: Check this out
« Reply #3 on: Mar 3rd, 2005, 8:08pm » |
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One for the archives. Thanks Svenn!
Langa
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When you saw only one set of footprints, it was then that I carried you.
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Ueli
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I can't join in the eulogies of the previous posters.
True, the article is above the average wishy-washy on clusters. But IMHO there are some serious flaws, potentially harmful for a clusterhead if his doctor goes by this article.
I looked up the authors on the website of the UCSD:
Ellen L. Beck, M.D. - My primary interest as a family physician is teaching and practicing a "mind-body" approach to medicine by incorporating counseling, teaching and balancing Western and contemporary approaches.
William J. Sieber, Ph. D. - as a clinical health psychologist has focused his research on quality of life and outcomes assessment, chronic pain, and the impact of psychological well-being on both perceived and actual health status.
Raul Trejo, M.D. - is Clinical Instructors at UCSD (not more to be found at ucsd.edu)
They write: "Verapamil in dosages of 360 to 480 mg daily is one of the few treatments for episodic cluster headache...." (for chronics their limit is 360 mg).
These low dosages are the upper limits recommended for heart / blood pressure treatment. They stick to the same dosage for CH, probably to save their ass from litigations. Experts like Goadsby and Robbins set the upper limits 2 -3 times higher; do we have to assume they are irresponsible drug pushers???
We find the usual misuse of the statistical concept of correlation: Clusterheads smoke and (allegedly) drink more than average. Therefore, tobacco and alcohol must, if not causing CH, at least have a bad influence on the development of CH. Their sentence "Heavy alcohol use is more common in patients who progress to chronic cluster headache compared with those who have episodic headache" must appear to an ardent reader of this message board just as plain bullshit.
"Relaxation training paired with thermal biofeedback" for CH comes just before "take an Aspirin and lay down".  But no wonder that a devotee of holistic "medicine" and a shrink try to promote their trade. 
Let me once again quote the gurus of the DMKG (German Migraine and Headache Society). Göbel, Diener, Grotemeyer and Pfaffenrath, some gentlemen treating many clusterheads and active in research, write at http://www.dmkg.org/archb/cluster.htm:
Ohne Wirksamkeit sind auch Biofeedback, Akupunktur, Neuraltherapie, Lokalanästhetika, physikalische Therapie, operative Massnahmen und jegliche Form der Psychotherapie.
(Furthermore, without effect are biofeedback, acupuncture, neural therapy, local anesthetics, physical therapy, surgery and any kind of psychotherapy)
If you want to printout something to bring to you doctor, I recommend
Correct management of cluster headaches
by the cluster experts Prof Peter Goadsby and Dr Manjit Matharu, not this half-assed compilation from people that probably never have (successfully) treated a clusterhead.
PFNADs, Ueli 
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Lizzie2
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Re: Check this out
« Reply #5 on: Mar 4th, 2005, 12:08am » |
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If you join MD Consult, there is an EXCELLENT patient education handout on clusters. I believe it even mentions this site. It is very lengthy, but a very good read. I would definitely want to include it as part of patient education when diagnosing a new sufferer.
I think it may be expensive to join. We get free use of it as students/employees of Jefferson. 
L2
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Charlie
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Re: Check this out
« Reply #6 on: Mar 4th, 2005, 2:58pm » |
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It is better than usual Svenn.
Thanks for the headsup on some of the nonsense too, Ueli.
What hospitals are being forced to do over here. Ueli,(because many are bankrupt) is to open up areas for these alternative gurus to practice and places to meditate your troubles away. Many of our biggest and best are on this silly tack. 
Still. all in all, the more articles that come close: the better.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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