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Lizzie2
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Need NECH Feedback..
« on: Feb 11th, 2005, 8:54am » |
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Hey all,
I'm looking into setting up an appointment at NECH. It will just be temporary for now because I'm still waiting for my dad to make the phone call to my current neuro, and some other stuff has to happen, but I figure it can't hurt to set up the appointment.
So in the meantime...can anyone give me positive or negative feedback on NECH who has been there? Is Dr. Sheftell the best person to go see? I know all 3 docs there have good reputations, but it seems Dr. Sheftell does a lot with clusters. One of my good friends goes to see Dr. Rappoport I think.
Any other feedback you can provide would be most excellent.  Thanks!
Lizzie2/Carrie
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kissmyglass
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Re: Need NECH Feedback..
« Reply #1 on: Feb 11th, 2005, 11:50am » |
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Go ...you'll be in good hands whoever you see there.
Kev
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Lizzie2
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Re: Need NECH Feedback..
« Reply #2 on: Feb 11th, 2005, 12:18pm » |
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Awww tried to call, but they are closed on Fridays. I will call back on Monday. It is not that far from here, and also right up the road from where my mom grew up in New Canaan. I'm excited about a new change!
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catlind
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Re: Need NECH Feedback..
« Reply #3 on: Feb 11th, 2005, 1:21pm » |
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Any of the 3 docs there are good to see. Dr. Tepper tends to be the one that does the most in terms of patients and appt's. Dr's Sheftell and Rapoport do see patients but tend to do more of the science/research part of things and often are out of the office to speak or attend conferences.
Again, all 3 are very good and all 3 are very very knowledgeable when it comes to clusters, I've met with all 3 of them, and saw Dr. Tepper as patient.
Dr. Bigal doesn't see patients but heads up the research, and Dr. Volcy is there on a fellowship so I'm not sure if he sees patients on his own or with one of the other docs. (He sat in with Dr. Tepper for my appt).
Hope that helps. They are well worth the money and the time.
Cat
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A true friend is someone who reaches for your hand and touches your heart
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Lizzie2
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Re: Need NECH Feedback..
« Reply #4 on: Feb 11th, 2005, 3:33pm » |
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Thank you both Cat and Kev...and for those who sent me PM's. That is very helpful.
So far, I'm feeling really positive that this could be a good change.
I was very interested in what Dr. Volcy said about their preventative use of Amerge over the summer at NashCon. When I printed out the studies and showed them to people where I am currently treated, they said "no way, no how." And it was dropped.
However, I know Amerge works in a preventative fashion for me because when I take it...it kicks in about 2 hours later...and then prevents headaches for up to 6 hours or so...and drops the baseline significantly, even though I still have a migraine the entire time. I tend not to get as many clusters a night on the days I take Amerge. I would love to just have the chance to try this...if nothing else!!
We'll see Thanks again for the input!!
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Renee
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Re: Need NECH Feedback..
« Reply #5 on: Feb 13th, 2005, 11:28am » |
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Doc Sheftell rocks!!! 
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
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don
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Re: Need NECH Feedback..
« Reply #6 on: Feb 13th, 2005, 11:34am » |
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There was a time when when Cat spent countless hours working with NECH incorporating them as a medical affiliate for OUCH.
OUCH once again dropped the ball.
NECH is highly recommended.
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Sean_C
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Re: Need NECH Feedback..
« Reply #7 on: Feb 13th, 2005, 11:40am » |
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MAGNUM is fortunate to have a gifted and talented international leader in the Migraine and headache medical field as their Medical Advsor Chair, that of Fred D. Sheftell M.D., F.A.C.P.. Dr. Sheftell is currently director and founder of The New England Center for Headache located in Stamford, Connecticut and Associate Medical Director of the Headache In-Patient Unit at The Greenwich Hospital. He is Clinical Assistant Professor in the Department of Psychiatry at New York Medical College. Dr. Sheftell received his MD degree from New York Medical College and completed his internship at Brookdale General Hospital in New York City. He served his residency at Metropolitan Hospital where he was also appointed chief resident. He was Chief of the Department of Psychiatry at McDonald Army Hospital from 1970-1972, where he was decorated by the United States Army for his contributions and efforts in drug and alcohol abuse.
Dr. Sheftell is cited in Woodward and White's, "Best Doctors in America," a textbook identifying outstanding physicians in the United States, Castle and Connoly's, "Best Doctors New York Metro Area," and is listed in the first edition of "Who's Who in Medicine and Healthcare (1998-1998 )." Dr. Sheftell has co-authored six books with Dr. Rapoport on the subject of headache and contributed to numerous others. He is past course director for the American Association for the Study of Headache and has served on its Board of Directors. Dr. Sheftell has authored numerous medical articles and has done extensive research on the subject of headache. He has lectured widely throughout North and South America and Europe on many aspects of the subject of headache to medical groups, institutions, business leaders, and universities. He is a winner of the United Way's Silver Award, the National Migraine Foundation's Public Awareness Award and the American Council for Headache Education's Lifetime Achievement Award.
He has been a featured guest on numerous national, regional and local broadcasts, including Nightline, Dateline NBC, National Public Radio, 20/20, Good Morning America, the Fox Network, CNN, the Today Show, and PBS' Innovations. He is editor of Seminars in Headache Management. He served on the editorial board and as a consultant to C. Everest Koop's Time-Life Medical vide series on migraine. Dr. Sheftell is the national president of the American Council for Headache Education (ACHE), general secretary of the International Headache Society's Education Committee and chair of the subcommittee for the World Headache Alliance.
Sounds like a winner to me Liz 
Sean......................
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Renee
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Re: Need NECH Feedback..
« Reply #8 on: Feb 13th, 2005, 12:01pm » |
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and he's a good singer too!
They left off his position at ACHE.
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
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Lizzie2
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Re: Need NECH Feedback..
« Reply #9 on: Feb 13th, 2005, 2:24pm » |
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Do you know if there is a way to find out what insurance plans they take before I call them on Monday? I know sometimes you can find it online. I have a Blue Cross plan that is based out of Philly, and I have this sinking feeling they won't accept it. I can't afford to pay out of pocket.
I have had a couple of excellent recommendations for wonderful doctors...one who actually is listed as a headache specialist at Jefferson. I used to go to another doctor in his practice before switching to the headache center in 2001. The other used to be the chair of Jefferson's department of neurology but is now at Hahnemann Hospital which is right up the street. Apparently he is very caring and kind, and if he couldn't help then he would be very honest about it and would send me to who he thought was best. He probably wouldn't just redirect me to the headache center since he did not leave Jefferson on good terms and took half the practice with him. Interesting...!
These are other options I am getting around Philly just in case NECH does not accept my insurance. I would still reallllly like to go up there, but I can't pay out of pocket! We'll see! Hopefully I can call tomorrow!
L2
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catlind
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Re: Need NECH Feedback..
« Reply #10 on: Feb 13th, 2005, 6:05pm » |
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I don't remember which insurances they do take, but it's only 2 or 3 that they accept.
If you give them a call they will tell you what insurances up front.
The cost of the initial visit for me was about $450 because I didn't go through the entire process. I think the initial visit is around $600 though. They do ALOT of stuff in that visit, and even though I had to pay out of my own pocket, it was worth EVERY penny.
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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Lizzie2
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"L'Chaim"~Hebre w Toast~"To Life"
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Re: Need NECH Feedback..
« Reply #11 on: Feb 14th, 2005, 12:55am » |
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 Unfortunately they do not accept my insurance, so I will begin calling tomorrow or Tuesday to find a new neurologist in the Philadelphia area who will take my case. Ugh... Guess this won't be as easy as I might have wished! But then...the last year and a half has been so horrid that I definitely still have to make the leap and find a new doc.
Ah well...
Still thanks for the advice
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