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Topic: Like lifes not hard enough on us (Read 487 times) |
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Sean_C
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Yesterday our primary care physician called and said my wife has Lupus 
He wants her to go to Boston to see a specialist.
I'm pretty bummed guys, she's my everything and unfortunately I can't make it stop or else I would, infact my understanding is that there's no cure at all so recovery isn't an option I guess
If you could spare a prayer for us it would be greatly appreciated. God knows we need it.
Thanks guys
Love to all
Sean.......................
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ClusterChuck
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Re: Like lifes not hard enough on us
« Reply #1 on: Jan 21st, 2005, 5:16am » |
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Sean, lupus is rough, but I knew a lady who lasted a very long time, and had a fairly good life, even with the lupus. Strange thing was, she did not die from lupus or its complications. She was a diabetic (even before the lupus) and that is what got her!
But, you still got my prayers and vibes for you and your darling wife. You can deal with this. Be there for her, as she has been there for you.
Chuck
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E-Double
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Re: Like lifes not hard enough on us
« Reply #2 on: Jan 21st, 2005, 6:06am » |
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Quote:| I'm pretty bummed guys, she's my everything and unfortunately I can't make it stop or else I would, infact my understanding is that there's no cure at all so recovery isn't an option I guess |
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Many hugs to you both brother!
This is one thing that WE all understand regardless of the disease....
Love and Live!
Best!
E
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hilbily
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Re: Like lifes not hard enough on us
« Reply #3 on: Jan 21st, 2005, 6:27am » |
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Our prayers go out to you and family. Jim
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Grandma_Sweet_Boy
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Re: Like lifes not hard enough on us
« Reply #4 on: Jan 21st, 2005, 6:54am » |
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Sean - I'm so sorry to hear this. PM or email me if there's anything I can do.
In the meantime, lots of prayers going up for you and your wife.
Hugs
Maa
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Jeepgun
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Re: Like lifes not hard enough on us
« Reply #6 on: Jan 21st, 2005, 7:30am » |
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What Tara Ann said, Sean. Hang in there, my friend. Gimme a call if you need to vent, wanna talk, or whatever... 
My best to you and your wife,
-Frank
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Renee
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Re: Like lifes not hard enough on us
« Reply #7 on: Jan 21st, 2005, 8:06am » |
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Sean,
Your wife, and you, will be in my prayers.
Support is always a p.m. away.
God Bless You and Yours,
Renee
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Langa
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Re: Like lifes not hard enough on us
« Reply #8 on: Jan 21st, 2005, 8:36am » |
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You'll both be in my prayers...
Langa
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nani
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Re: Like lifes not hard enough on us
« Reply #9 on: Jan 21st, 2005, 9:09am » |
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Oh f*ck, Sean....
Lots of prayers for her and you. 
Check your PMs for my number if you ever need anything. love to all of you, nani
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sandie99
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Re: Like lifes not hard enough on us
« Reply #11 on: Jan 21st, 2005, 10:22am » |
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Sean,
I am so sorry to hear about that... 
Lots of prayers for your family.
Wishing you the best,
Sandie
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broomhilda
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Re: Like lifes not hard enough on us
« Reply #12 on: Jan 21st, 2005, 12:36pm » |
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Oh Sean big hugs to you, Barb and the kids....
Sending a care package of prayers on over to you and Barb and the kids...
pm or call me anytime, thinking of you
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Suck it up Princess...
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cat14
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Re: Like lifes not hard enough on us
« Reply #13 on: Jan 21st, 2005, 2:27pm » |
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Sean,
Sorry you and your wife have to deal with lupus too, I sent you loads and loads of prayers!
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ExplodingEyeBall
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Re: Like lifes not hard enough on us
« Reply #14 on: Jan 21st, 2005, 3:07pm » |
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john_d
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Re: Like lifes not hard enough on us
« Reply #15 on: Jan 21st, 2005, 3:07pm » |
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I am sorry Sean
prayers going up
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Gator
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Re: Like lifes not hard enough on us
« Reply #16 on: Jan 21st, 2005, 3:14pm » |
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I am sorry to hear this. My prayers and on their way, bro.
In the mean time, this page from www.lupus.org gives a lot of hope.
http://www.lupus.org/education/prognosis.html
Quote:
PROGNOSIS:
The idea that lupus is generally a fatal disease is one of the gravest misconceptions about this illness. In fact, the prognosis of lupus is much better today than ever before. |
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Keep your chin up. She's gonna need some of that clusterhead strength to help her cope. You know you can always come back to the well when you need more.
Mike
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| « Last Edit: Jan 21st, 2005, 3:16pm by Gator » |
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Jonny
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Re: Like lifes not hard enough on us
« Reply #17 on: Jan 21st, 2005, 3:40pm » |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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minnie
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Re: Like lifes not hard enough on us
« Reply #18 on: Jan 21st, 2005, 3:49pm » |
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sorry to hear this Sean.will be praying for the strength you'll both need to deal with this.
Minnie
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kissmyglass
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Re: Like lifes not hard enough on us
« Reply #19 on: Jan 21st, 2005, 4:38pm » |
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Sorry to hear
good news is they can control it pretty well these days.
hang tough!
Kev
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Donna_D.
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Re: Like lifes not hard enough on us
« Reply #20 on: Jan 21st, 2005, 5:57pm » |
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Sean give your wife a great big hug and be strong for her.
Lupus is NOT the end of the world although it may seem like it. My Aunt was diagnosed over 20 years ago with Lupus and the doctors have been able to control it fairly well....deal with it the best you can and read, read, read...any of this sound familiar?  You know what to do...now do it.
There is hope, and there is prayer. I will be praying for the both of you...for strength and for health.
Love you both,
DD
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BMoneeTheMoneeMan
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Re: Like lifes not hard enough on us
« Reply #21 on: Jan 21st, 2005, 6:34pm » |
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Best wishes and long life
BMonee
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Sean_C
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Re: Like lifes not hard enough on us
« Reply #22 on: Jan 21st, 2005, 10:41pm » |
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You know what makes this board so great?...........................ALL OF YOU 
Thanks so much for all the support and pm's guys, they won't be forgotten believe me.
Lotsa Love back at ya
Sean....................
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cootie
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Re: Like lifes not hard enough on us
« Reply #23 on: Jan 21st, 2005, 10:52pm » |
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I have two friends with lupus...........seems it comes and goes.....they do fine for while then bad for while. But last I saw them they were doin GREAT......the one went thru some bad times at first then it seem'd to subside and she has been doin good a long time. Other friend did great several years.....she had a bad spell couple years back but like I said...seems to come and go with ups and downs. Good luck to ya both and hope she has all GOOD times. Ups with no downs Pam (yeah I wish)
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OneEyeBlind
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Re: Like lifes not hard enough on us
« Reply #24 on: Jan 22nd, 2005, 5:05am » |
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Sean, prayers and good vibes coming your way. Read up on the disease, knowledge is power. Glad to hear that she'll be going to a good doc, that makes all the difference in the world.
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