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Topic: calling for a catch-phrase response please... (Read 640 times) |
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CC2004
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calling for a catch-phrase response please...
« on: Jan 14th, 2005, 9:47pm » |
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FRUSTRATION  - does anyone have a catch phrase we could use when we get some supposedly well meaning  advice from friends & family out there in the other world, like "try to relax, you bring them on yourself"  or other nonsense like that
- there must be something succinct we can say in a meaningful (but hopefully nice !) way to let them know this is NOT a headache, no not even a meegrain
any ideas???
CC
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don
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Re: calling for a catch-phrase response please...
« Reply #1 on: Jan 14th, 2005, 9:51pm » |
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Quote:| does anyone have a catch phrase |
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STFU has worked well for many years.
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Sean_C
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Re: calling for a catch-phrase response please...
« Reply #2 on: Jan 14th, 2005, 9:52pm » |
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Get fucked usually works for me 
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don
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Re: calling for a catch-phrase response please...
« Reply #3 on: Jan 14th, 2005, 10:06pm » |
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Good swift kick in the nuts usually works well to.
You dont have to say a word to them.
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thebbz
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Re: calling for a catch-phrase response please...
« Reply #4 on: Jan 14th, 2005, 10:06pm » |
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To be nice say "I need to be alone now", and leave.
The responses above are the standard for me, and they leave...Ha Ha.
BB
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BlueMeanie
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Re: calling for a catch-phrase response please...
« Reply #5 on: Jan 14th, 2005, 10:10pm » |
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"Get the hell out of here" has a pretty good success rate.
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CC2004
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Re: calling for a catch-phrase response please...
« Reply #6 on: Jan 14th, 2005, 10:19pm » |
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on Jan 14th, 2005, 10:06pm, thebbz wrote:To be nice say "I need to be alone now", and leave.
The responses above are the standard for me, and they leave...Ha Ha.
BB |
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yeah, I need to be alone and my husband understands that
but I was meaning in general when the topic comes up - like at a social gathering and Im not drinking  ??? so I say well I get these clusters, have done for 28 years - Ive had them 28 years but they know better (WTF  ), and they say "oh well you should do this" or you should do that...
And I want to explain to them THESE ARE NOT NORMAL HEADACHES, NOT EVEN MIGRAINES - migraines are a walk in the park - I want them to at least understand they cant know if I cant explain it
Just wish I could get it through to them short and sweet
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don
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Re: calling for a catch-phrase response please...
« Reply #7 on: Jan 14th, 2005, 10:27pm » |
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Slightly tap them on the side of the head and say "This is a migraine"
Then jam your knee in their crotch full force and say "This is a Cluster. Get it now?"
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| « Last Edit: Jan 14th, 2005, 10:28pm by don » |
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CC2004
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Re: calling for a catch-phrase response please...
« Reply #8 on: Jan 14th, 2005, 10:32pm » |
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on Jan 14th, 2005, 10:27pm, don wrote:Slightly tap them on the side of the head and say "This is a migraine"
Then jam your knee in their crotch full force and say "This is a Cluster. Get it now?" |
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 wish I could
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Sean_C
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Re: calling for a catch-phrase response please...
« Reply #9 on: Jan 14th, 2005, 10:35pm » |
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ROTFLMMFAO exactly
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maureeng96
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Re: calling for a catch-phrase response please...
« Reply #10 on: Jan 14th, 2005, 10:44pm » |
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If it's family or friends or other people that you see on a regular basis, the best thing to do is print out some of the basic information for them to read. (Not too much, they'll be overwhelmed).
In a social setting, you could say something like, "Unfortunately, most people confuse cluster headaches with migraines. A cluster headache is kind of like the pain of a three-day long migraine compressed into a one-hour time span."
If all else fails, when they ask if there is anything you can do to get rid of your CH, ask them if there is anything they can do to get rid of their ignorance. 
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CC2004
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Re: calling for a catch-phrase response please...
« Reply #11 on: Jan 14th, 2005, 11:08pm » |
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excellent - thanks!
I still like Don's too - but just as well clusterheads cant drink though coz I might be more likely to try his way
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Charlie
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Re: calling for a catch-phrase response please...
« Reply #12 on: Jan 14th, 2005, 11:21pm » |
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Perhaps we could just tell them to come here if they think we're kidding. If they say "no," kill them....
Damn. I deleted all my really mean smilies relating to this. Give me time.
Charlie
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brain_cramps
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Re: calling for a catch-phrase response please...
« Reply #13 on: Jan 14th, 2005, 11:35pm » |
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on Jan 14th, 2005, 9:47pm, CC2004 wrote:| "try to relax, you bring them on yourself" |
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At one time, my response would be:
"Relax? Are you fukkin *&^%$*$*^% CRAZY? YOU bring on the *&^%*&^% stress! "
but maybe i've mellowed with age
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CC2004
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Re: calling for a catch-phrase response please...
« Reply #14 on: Jan 14th, 2005, 11:41pm » |
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on Jan 14th, 2005, 11:21pm, Charlie wrote:
...Damn. I deleted all my really mean smilies relating to this. Give me time.
Charlie
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not to worry Charlie - you've got the best smilie ever happy to be here
It still makes me smile every time I see it - thanks heaps
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CC2004
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Re: calling for a catch-phrase response please...
« Reply #15 on: Jan 14th, 2005, 11:47pm » |
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on Jan 14th, 2005, 11:35pm, brain_cramps wrote:
At one time, my response would be:
"Relax? Are you fukkin *&^%$*$*^% CRAZY? YOU bring on the *&^%*&^% stress! "
but maybe i've mellowed with age
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hehehe I know the feeling well
Ive mellowed too 
being here helped no end
and I managed to get through without ever once saying STFU  - no mean feat since I cant help but think of the language & kick ass smilies Id be using if I was here  instead of the other world
CC
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Jonny
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Re: calling for a catch-phrase response please...
« Reply #16 on: Jan 15th, 2005, 12:00am » |
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How about......Look at me like that again and Ill rip your fucking balls off, make you swallow them, force you to digest them and then squeeze your fucking head till you shit them out.
Hows your cluster headache?
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Tara Ann
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Re: calling for a catch-phrase response please...
« Reply #17 on: Jan 15th, 2005, 1:40am » |
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The reasons I have "all my problems" is that I don't eat right. Gotta love family.
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maureen
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Re: calling for a catch-phrase response please...
« Reply #18 on: Jan 15th, 2005, 1:53am » |
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i know what you mean as much as I love the kickin in the crotch  (would pay good money to see that) I just tell people it's something most people can't understand and before they have a chance to say all the stupid things you mentioned I let it "slip" that I can't stand people who think they have the solution to my problem when they don't even know anything about it. Usually shuts them up, I think it's the challenging grin on my face that cinches it though 
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Donna_D.
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Re: calling for a catch-phrase response please...
« Reply #19 on: Jan 15th, 2005, 2:19am » |
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Since the start of my headaches my mom has insisted (no joke) that they are due to my teeth (I cracked a few during some bad hits) and my long, heavy hair.
Well, I got my teeth fixed.
Well, I got my hair cut (7 inches off the back  )
Well, I STILL have clusters.
When I called her to tell her this, she said...
"Well, you must not be eating right....are you taking your vitamins?"
I love my mother...dearly. But she has no freakin' CLUE....not one.
MY response to those who tell me THEY had a cluster headache ONCE...
"Oh really, you mean you felt like killing yourself, too....you KNOW they call Cluster Headaches 'Suicide Headaches' don't you?"
That usually stuns them enough for me to change the subject or leave....
DD
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karma
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Re: calling for a catch-phrase response please...
« Reply #20 on: Jan 15th, 2005, 6:25am » |
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People who don't have it don't undertsand and will never understand.
People who bring it up during casual conversation knowing that others won't understand are looking for sympathy and an elevation to hero status for fighting the unimaginable pain.
Why is there this necessity amongst CHers to try and explain the unexplainable?
Most doctors don't understand. Why do people expect the average moron at a cocktail party or the office to understand?
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| « Last Edit: Jan 15th, 2005, 6:59am by karma » |
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PrettyH8Machine
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Re: calling for a catch-phrase response please...
« Reply #21 on: Jan 15th, 2005, 12:16pm » |
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Just tell them "This is not your typical headache. It is like being skull-fucked by Satan himself."
Works for me,
CD
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Jeepgun
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Re: calling for a catch-phrase response please...
« Reply #22 on: Jan 15th, 2005, 12:20pm » |
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"It's like someone is taking a piping-hot knitting needle and forcing it into your eye, then digging it around and around, while having your molars torn out with visegrips."
That's usually a sufficient explanation.
Last, but not least, when I wake up with one and I'm moving out of the room, my wife wakes up and sleepily says, "You're having one, aren't you?" And I quietly say, "Yeah... It's alright, baby. Go back to sleep, okay?" (and then I make my way out to the living room for the headbanger's ball.
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Ree
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Re: calling for a catch-phrase response please...
« Reply #23 on: Jan 15th, 2005, 12:46pm » |
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Believe it or not I can relate to this... when my friends tell me not to worry about my son in Iraq. I would just tell your friends and family that you will only take advice from another Cluster sufferer... or a family member of a sufferer. I finally told my friends and family until their kids go to Iraq or are in a war torn country don't tell me how to feel. Saying I am sorry for your pain is the best thing anyone can do for you...
I am sorry for your pain CC Be well friend...love ree
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Magick
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Re: calling for a catch-phrase response please...
« Reply #24 on: Jan 15th, 2005, 7:54pm » |
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The only thing that I've found that seems to keep people mouths shut (although there are always a few who can't seem to do that) is to say I have a medical condition. I never say the work headache. I tell them I need to be alone and take my medications. I just never use the trigger word HEADACHE.
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