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Topic: Who's PF ? (Read 807 times) |
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BlueMeanie
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Just wanted to say i've been PF most of the time i've been here since i missed this years cycle. I know Chronics can't imagine how anyone can forget the REAL pain, but somehow our brains forget. So between my sarcastic comments (that's just me), and forgetting the REAL pain, I apologize. I hope every one of you get your chance to forget the nightmare too.
That's all,
BlueMeanie
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brain_cramps
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Re: Who's PF ?
« Reply #1 on: Jan 13th, 2005, 8:12pm » |
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The tune is unforgettable.
The volume at which it blares is forgettable and shocks me back into reality every time.
PF to all!
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| « Last Edit: Jan 13th, 2005, 8:13pm by brain_cramps » |
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E-Double
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Are we ourselves?
  
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Re: Who's PF ?
« Reply #2 on: Jan 13th, 2005, 8:12pm » |
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Pink Flamingo??
Glad you are free!!
Just running up my #'s 
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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vig
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CHit Happens
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Re: Who's PF ?
« Reply #3 on: Jan 13th, 2005, 8:21pm » |
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I think the brain TRIES to forget...
(just trying to stay a step a head of ya E-dub )
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never, Never, NEVER quit. -Winston Churchill
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Kris_in_SJ
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Re: Who's PF ?
« Reply #4 on: Jan 13th, 2005, 8:22pm » |
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PF and lovin it since July. Finally weaned off the prevents also. And so ... lovin life till the next time around.
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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AussieBrian
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Got beer?
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Re: Who's PF ?
« Reply #5 on: Jan 13th, 2005, 8:27pm » |
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PF and terrified. Still don't know which is worse - the pain or the waiting.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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Killroy 2.0
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Kilroy 2.0 is Here! Kilroy 2.0 is Everywhere!
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Re: Who's PF ?
« Reply #6 on: Jan 13th, 2005, 8:28pm » |
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I am a "wannabe" 
Just trying to lighten the mood 
I am so happy for you just let me know when it is my turn k 
See ya next week Blue
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thebbz
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Ow,Ow,Ow
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Re: Who's PF ?
« Reply #7 on: Jan 13th, 2005, 8:30pm » |
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Pain free here Usually I'm in the battle this time of year. Trying an alternative therapy this time..  Working so far and I haven't missed a winter cluster in so many years. 2 month past due WWWWOOOWWWOOO. and counting.
BB
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It wasn't me I didn't do it
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Jeepgun
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Pain free and living in dread, here. Anytime between now and the second week of February... Occasional shadows and those annoying, infrequent "twinges" that don't amount to anything. Otherwise, "all quiet on the western front."
-Frank
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Filbert
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"Gravy-pure gravy and don't forget it."
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Re: Who's PF ?
« Reply #9 on: Jan 13th, 2005, 8:39pm » |
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on Jan 13th, 2005, 8:27pm, AussieBrian wrote:| PF and terrified. Still don't know which is worse - the pain or the waiting. |
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Definitely the pain AB. Still get fearful about them coming back but then I focus on the memory of the worst one from the last cycle and then I know I'd rather be out of cycle and just have the worry.
18 months PF currently 
PFD Filbert.
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Tim_Z
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Re: Who's PF ?
« Reply #10 on: Jan 13th, 2005, 11:44pm » |
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I am pain free for now, have been for two years now. My cycles are every four years.
The last cycle lasted a little over seven months.
There are no such thing as mild hits for me.
The unreal part of ch is how I really do forget how bad they hurt. Every new cycle is just like the first one I had, I just think to myself WTF. Plain and simple, CH sucks.
Tim
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TxBasslady
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Re: Who's PF ?
« Reply #11 on: Jan 14th, 2005, 12:24am » |
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on Jan 13th, 2005, 8:27pm, AussieBrian wrote:| PF and terrified. Still don't know which is worse - the pain or the waiting. |
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This is so true......and all of it is heartbreaking 
I cannot count the many nights I refused to go to sleep, afraid of the pain. But no matter how long I stayed up....that bastard came for me!
I just started a Pred taper....the CH seemed to be getting worse. Even with the Melatonin...which has worked very well for me most of the time, the CH still is relentless. The last few weeks have been hell.
Day 3 of the taper.....no CH.
See you next week....Bob!
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
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..Danielle..
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Re: Who's PF ?
« Reply #12 on: Jan 14th, 2005, 2:39am » |
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Not exactly pain free... but remarkably fewer than usual and so far nothing over a Kip 6 this cycle.
Weird, but appreciated... 
6 months to the next cycle, hopefully it continues...
Danielle
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Keep your face to the sunshine and you cannot see the shadow. -Helen Keller
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nani
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Re: Who's PF ?
« Reply #13 on: Jan 14th, 2005, 2:46am » |
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What's PF?
I'm so happy for all of yous! You know, Blue, I think we do block out the memory of the pain. When I was episodic each new episode was almost like a surprise. Never had predictable cycles, so I think that's at least partially why.
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Others may come and go, but MY power is MINE.
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K-9
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Re: Who's PF ?
« Reply #14 on: Jan 14th, 2005, 3:46am » |
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Chronic here, but actually having an easy time right now, hope it lasts!!! Congrats to all those PF and Vibes to all those who aren't.
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Melissa
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PF since August 2002. I am here yelling at my tv set cause it's 12 below zero outside and the dumbfucks have not cancelled school for my daughter. Guess they wanna get out early this year. 
Anyhoo, I made a New Year resolution LAST year on Jan 1, that I would be here more often for others. I think I did pretty well for 2004.
We now take you back to your regularly scheduled circus...
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kimh
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What don't kill ya makes ya stronger
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Re: Who's PF ?
« Reply #16 on: Jan 14th, 2005, 7:55am » |
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Was completely pain free since September and have only recently been having shadows in early morning hours on the right side (last cycle was on the left)....As usual, i feel a mixture of dumfounded and scared. I don't understand my own denial process where clusters are concerned. It's like my mind is suffering from paralysis (deer in the headlights syndrome).
PF wishes to all
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hilbily
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Re: Who's PF ?
« Reply #17 on: Jan 14th, 2005, 8:30am » |
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PF for 2 weeks now. Holding my breath, not sure what to expect since this has been my longest episode since finding this strange malady 4 years ago. They never lasted more than 3 weeks before, but this years visit ran about 10 weeks.
I understand the denial process, this year I told my family it was just sinus HA at first (yea, right!).
I am just greatful to have found this site this year. The support here has been incredible, the info invaluable, and humor is great therapy for me (some of these folks, however, just ain't right! )
PF wishes to all!!! Jim
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JDH
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Re: Who's PF ?
« Reply #18 on: Jan 14th, 2005, 8:53am » |
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For the most part I've been PF since Feb '03.
Thanks to the cb'ers I feel like I now have the upper hand over the bastard.
Jim
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
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jminmilwaukee
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Re: Who's PF ?
« Reply #19 on: Jan 14th, 2005, 8:55am » |
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4 years since my last "true" episode. 2 years since I've had a kipp anything. 4 to 6 months overdue for my scheduled reoccurance.
Still hangin around though as a hopefully retired veteran of this affliction.
jmin
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karma
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Re: Who's PF ?
« Reply #20 on: Jan 14th, 2005, 9:13am » |
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PF since september. That ended my normal short cycyle that happens every couple of years. Lucky bastard I guess.
I found this site and learned about all kinds of things I won't use again and one I will definetly try next time.
I never had a problem forgetting about the CHs until I found this damn board. Now I remind my self everytime I check it out.
If I had it to do over again I wouldn't change a thing.
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Jimmy_B.
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Re: Who's PF ?
« Reply #21 on: Jan 14th, 2005, 9:44am » |
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Cluster-free since October...still some chronic pain from a broken neck in a car accident.
Operation is scheduled for March...hopefully then I will be pain-free.
Jimmy
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"I'd much rather be HAPPY then RIGHT any day" Slartibartfast
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Who's PF ?
« Reply #22 on: Jan 14th, 2005, 10:21am » |
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I am so happy for all of you who are PF.
You deserve it!
I've had a PF day (so far) and I must admit that at first I did wonder that what's weird today! It had been so long since the last PF day....
Wishing PF days to all,
sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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thomas
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Re: Who's PF ?
« Reply #23 on: Jan 14th, 2005, 11:24am » |
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I wish........
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Margi
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Re: Who's PF ?
« Reply #24 on: Jan 14th, 2005, 11:28am » |
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on Jan 14th, 2005, 11:24am, guesst wrote:| I wish........ |
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 hugs to you, Thomas.
And, to you too, Jean.
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