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Topic: I just have (Read 3401 times) |
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cat14
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I am in a cylcle now (chronic cycle) and I can't really see much or type worth a sh*t, BUT I have to post! Bye Miss my playmates Wendy
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: I just have
« Reply #1 on: Jan 12th, 2005, 2:13pm » |
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Wendy, so sorry that the beast is visiting you.... Hang in there! By the way, I just love that pic! PFdays, sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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vig
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CHit Happens


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Re: I just have
« Reply #2 on: Jan 12th, 2005, 2:18pm » |
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big hug for ya wendy...
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 never, Never, NEVER quit. -Winston Churchill
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Langa
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So many donuts, such little time...
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Re: I just have
« Reply #3 on: Jan 12th, 2005, 2:29pm » |
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Langa
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When you saw only one set of footprints, it was then that I carried you.
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ExplodingEyeBall
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Re: I just have
« Reply #4 on: Jan 12th, 2005, 2:37pm » |
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Hang in there.
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Just poke out my eye and get it over with!!!
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Bob P
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Shut up Bob!

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Re: I just have
« Reply #5 on: Jan 12th, 2005, 2:38pm » |
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Isn't a chronic always in cycle?
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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BarbaraG
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Gotta Love Me :-)


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Re: I just have
« Reply #6 on: Jan 12th, 2005, 2:53pm » |
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Jeez Boob, I think you're right. BarbaraG(chronic)
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cat14
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okay, then I am having a F*ckin Sh*tty week! Is that better?
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Margi
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Re: I just have
« Reply #8 on: Jan 12th, 2005, 2:57pm » |
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you're right, Barb. Bob's been right, what, three times in less than two days now? The sky is falling!! The sky is falling!! Run for your LIVES!!
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world) source unknown
IMHO (which in my universe is correct) kathy copelin, ch.com 8/8/06
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BarbaraG
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Re: I just have
« Reply #9 on: Jan 12th, 2005, 3:01pm » |
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I'm running Margi. Also just boosting my posts. Wonder who I'll piss off first?????? How are doing Margi? BarbaraG BTW where is BarbD hiding these days???
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Margi
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Re: I just have
« Reply #10 on: Jan 12th, 2005, 3:04pm » |
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I'm doing good, Barb - thanks for asking. Freaking cold though. Looks like you're having some nasty weather too though. I saw BarbD here the other day. Haven't seen Elaine around for a long while though. Jackie popped her head up last night - that was pretty cool. now if we could only find Drummer...or that guy named, what was it? Daren Johnson or something like that?
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world) source unknown
IMHO (which in my universe is correct) kathy copelin, ch.com 8/8/06
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cat14
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Guess the old timers took over my thread! Oh well, I did get my first laugh today from it !
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vig
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CHit Happens


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Re: I just have
« Reply #12 on: Jan 12th, 2005, 3:22pm » |
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Wendy, you've been hijacked....
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 never, Never, NEVER quit. -Winston Churchill
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nani
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Re: I just have
« Reply #13 on: Jan 12th, 2005, 3:54pm » |
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Hmmm....EpiCHronic...a term I learned right here ... definition: A chronic sufferer with severe episodes. I also suffer the same way, Wendy...I knew exactly what you meant. BTW...It's heartwarming to see how much support you're getting....
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« Last Edit: Jan 12th, 2005, 4:03pm by nani » |
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Others may come and go, but MY power is MINE.
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Margi
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Re: I just have
« Reply #14 on: Jan 12th, 2005, 4:08pm » |
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nani's right - Barb and I got sidetracked. Wendy, my hat's off to you. Rare the clusterhead that can post while getting hit. My husband sure can't. He can barely even form a sentence during an attack, let alone practice his typing. You're stronger than most here. Nani, didn't I read one of your posts where you said you had been diagnosed with CPH? Have you tried indomethacin? I've heard it's got almost 100% effectiveness in controlling CPH.
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« Last Edit: Jan 12th, 2005, 4:10pm by Margi » |
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world) source unknown
IMHO (which in my universe is correct) kathy copelin, ch.com 8/8/06
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nani
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Re: I just have
« Reply #15 on: Jan 12th, 2005, 4:15pm » |
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I tried Indo to rule out CPH...within 4 days we knew it wasn't. I did get 3 full PF days first, though...then the rebounds came and bit me in the ass. Wendy's tried it, too. We were both (at seperate times) hoping we had CPH and Episodic CH. No such (?)luck...
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Others may come and go, but MY power is MINE.
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Margi
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Nuthin like a good neck rub!

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Re: I just have
« Reply #16 on: Jan 12th, 2005, 4:26pm » |
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if you got 3 immediate pain free days by introducing indo, I'd say chances are pretty good that it is CPH. It could be the other meds you're on that are interfering with it working. Sure sounds like it's worth considering a taper off everything else and letting indo do its work alone.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world) source unknown
IMHO (which in my universe is correct) kathy copelin, ch.com 8/8/06
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cat14
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Wendy, my hat's off to you. Rare the clusterhead that can post while getting hit. My husband sure can't. He can barely even form a sentence during an attack, let alone practice his typing. You're stronger than most here. Thank you Margi, tell your husband about trex shots, they work good!!!
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« Last Edit: Jan 12th, 2005, 5:08pm by cat14 » |
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Margi
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Re: I just have
« Reply #18 on: Jan 12th, 2005, 5:11pm » |
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I can't think of anything that would allow most clusterheads to post during a hit. Not even trex shots. Trust me - after 30 years of clustering, he knows his limitations.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world) source unknown
IMHO (which in my universe is correct) kathy copelin, ch.com 8/8/06
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cat14
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I don't remember saying I was in the middle of a hit, I said I was having a bad week. Meaning hit on and off!Thanks for getting on my thread and supporting me, just like us clusterheads do for each other, right Margi????
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Bethany1
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Re: I just have
« Reply #20 on: Jan 12th, 2005, 5:21pm » |
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Wendy so sorry to hear your having a bad week!!! I love ya hon, take care of yourself and get better-- Your bud--B
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I am sofa king we todd did.
crack is wack
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Margi
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Re: I just have
« Reply #21 on: Jan 12th, 2005, 5:23pm » |
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right you are, Wendy - thanks so much for reminding me that we lowly supporters couldn't possibly match the support the big dawg "clusterheads" give each other. Silly me. sorry to have hijacked YOUR thread.
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« Last Edit: Jan 12th, 2005, 5:24pm by Margi » |
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world) source unknown
IMHO (which in my universe is correct) kathy copelin, ch.com 8/8/06
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cat14
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Looks like your having a bad day, to start on someone just for saying they were having a sh*t week seems alittle strange to me. PMS?
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thomas
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Re: I just have
« Reply #23 on: Jan 12th, 2005, 5:38pm » |
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Getting out the Orville Redenbachers........
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Roxy
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Re: I just have
« Reply #24 on: Jan 12th, 2005, 5:44pm » |
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on Jan 12th, 2005, 5:30pm, cat14 wrote:Looks like your having a bad day, to start on someone just for saying they were having a sh*t week seems alittle strange to me. PMS? |
| We are clusterheads, or are the supporters of someone who is a clusterhead. So.....most weeks are shit weeks. Margi has done more than her share of supporting and helping......so back off. Tracey....another chronic who can't type while getting hit.
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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