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Topic: Re: how Long? (Read 2139 times) |
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echo
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Re: how Long?
« on: Dec 16th, 2004, 11:21am » |
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This post raised a whole bunch of questions for me.
What type headache -- 10 hours is too long for constant CH.
What meds?
Give us a little more infor and we'll give up what we can.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
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becky8
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Are you sure you're at right place?  Not trying to be negative but you really should read the side bar and take the CH quiz.
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Redd
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Re: how Long?
« Reply #2 on: Dec 16th, 2004, 11:47am » |
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Again Please read the side bar....take the quiz, and then the 30 question quiz.
Clusters are rare, and there are many ill informed docs out there.
I'm leaning toward mis diagnosis here...anyone else?
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becky8
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Listen Hon,
I 'm gonna try a help you. As will many others here, but you need to see a neuro first and find out if its really CH. Clusters can go on for days but not one headache that last for days, follow me? The longest one goes for is maybe 3 hours, but you could have alot of those in one day! Understand, it might feel like one long one but its many hits all day. Drugs we use here are like verapamil,lithium these are preventives. There are others too but these are the most popular. Imitrex is an abortive, that stops the pain right then. You need to check out this stuff on this site and the OUCH site on the side boards. More people will respond here I am sure and help you.Good Luck!
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Lobster
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Re: how Long?
« Reply #4 on: Dec 16th, 2004, 11:59am » |
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Oh. Then they do not have CH. Easy peasy.
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vig
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Re: how Long?
« Reply #5 on: Dec 16th, 2004, 12:00pm » |
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It's really rare that CH headaches go on longer than an hour or two. 11 hours is almost proof that it's NOT a cluster headache.
We don't mean to minimize the grief you're going through, it must be horrible to watch. But it does mean there's a reasonable chance at misdiagnosis going on here.
Good luck Exhausted.
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becky8
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Explain carefully, if its CH I know how you must be feeling, and I am so sorry. Hang on, and tell us how they are in detail, carefully!!! We will start from there. Have you seen a doctor, sometimes docs don't know CH so they give the wrong meds. What are symtoms? Besides your head killing you, anything else?
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Redd
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Re: how Long?
« Reply #7 on: Dec 16th, 2004, 12:01pm » |
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NO...I repeat NO single attack lasts 11 hours. you go from zero pain to intence in 10 minutes then back to zero pain. What you are describing is NOT a CH attack.
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ExplodingEyeBall
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Re: how Long?
« Reply #8 on: Dec 16th, 2004, 12:02pm » |
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I think every one is trying to tell you and your loved one that this doesn't sound like CH.
The duration of 10 hours at a time that your talking about is very, very rare if not non-existent.
It sounds like there may be other problems that are not CH related.
Have them make an appointment with a neuro NOW and get the head checked out. It may very well save their life.
It never hurt to go get the test (MRI, EEG, etc...) and rule out other causes.
Just my opinion.
Pat
Edited to add:
Like Redd said most people go from 0 to 10 in a matter of seconds and stay that way for 10 to 45 minutes.
When I am in the middle of a cycle, I can go up to 3 hours (Which is a LOT) before the pain goes away, but 10 hours is not normal and should be checked out soon.
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| « Last Edit: Dec 16th, 2004, 12:05pm by ExplodingEyeBall » |
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vig
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Re: how Long?
« Reply #9 on: Dec 16th, 2004, 12:03pm » |
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well, let's dig deeper...
What are the other symptoms?
Can he handle light and sound?
Vomiting?
Is he laying down?
Where exactly is the pain located in his head?
Top? bottom?
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echo
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Re: how Long?
« Reply #10 on: Dec 16th, 2004, 12:13pm » |
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on Dec 16th, 2004, 11:17am, exhausted wrote:.......do they eventually die or what?
Not from the CH
the amount of drugs consumed amazes me, a person should be in the hospital at this point dont you agree?
Probably not a bad idea at this juncture. If CH has been confirmed in the past there may be something else that has manifested to cause this lenghty exteme pain.
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Lobster
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Re: how Long?
« Reply #11 on: Dec 16th, 2004, 12:13pm » |
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10 hours behind the eye... yow... what can that be?
Are they abortable with a triptan, ie Imitrex, Zomig, et al?
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| « Last Edit: Dec 16th, 2004, 12:14pm by Lobster » |
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echo
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Re: how Long?
« Reply #12 on: Dec 16th, 2004, 12:17pm » |
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Fantastic that they stopped. Thanks for the PM's. Does sound like CH from what you told me in the PM.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
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vig
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Re: how Long?
« Reply #13 on: Dec 16th, 2004, 12:24pm » |
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Hi Exhausted,
What do you mean "can't move them"?
Either way, CH is a progressive disorder, it only gets worse if it's not treated properly.
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ExplodingEyeBall
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Re: how Long?
« Reply #14 on: Dec 16th, 2004, 12:25pm » |
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For the sake of not scaring anyone or sounding like a doomsayer, I have not mentioned my fear with this but I now feel like I have no choice.
CH hurts real bad and it's in the same place as you are explaining.
Now.... Add to that the possibility of having a brain tumor or maybe an aneurysm or anything not right in the sinus cavity along with the CH and 10-11 hours of torture doesn't seem out of the question.
Talk to a neuro NOW. Forget about the past diagnosis. Something is seriousely wrong and it needs attention.
Pick up the phone and make an appointment.
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Margi
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Re: how Long?
« Reply #15 on: Dec 16th, 2004, 12:29pm » |
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something's not right with this....sorry, but I smell a rat here. There's something hauntingly familiar about this style of writing.
I apologize in advance if I'm out of line here but, please get this person to a hospital immediately if all of the above is true. Cluster attacks don't last that long, it could very well be rebounds from the laundry list of meds and narcotics, or (God forbid) it could be a real medical emergency if the pain is lasting that long and is as severe as you portray.
again, if I'm off base here I'm sure I'll be shot down but seeing a supporter put posts up like these just doesn't ring true with me.
What's your sufferer's name here, Exhausted?
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| « Last Edit: Dec 16th, 2004, 12:30pm by Margi » |
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vig
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Re: how Long?
« Reply #16 on: Dec 16th, 2004, 1:03pm » |
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It's not negative...
We're trying to help.
It's definitely NOT classic CH if it's still going, but there ARE variants, and maybe, just maybe, we can help find you BOTH some help.
Still...
Is he vomiting?
Is he sensitive to light or dark?
Is he laying down?
And if he's diagnosed improperly, then the wrong medicines may aggravate the situation, not alleviate it.
Oh, and by the way, many of the prescription drugs are VERY mind altering, in fact, some are more so than the alternative. just my humble opinion.
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vig
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Re: how Long?
« Reply #17 on: Dec 16th, 2004, 1:10pm » |
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We want the best for both of you.
Good luck.
GET SOME SLEEP!
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BobG
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Re: how Long?
« Reply #18 on: Dec 16th, 2004, 1:25pm » |
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on Dec 16th, 2004, 12:29pm, Margi wrote:something's not right with this....sorry, but I smell a rat here. There's something hauntingly familiar about this style of writing.
seeing a supporter put posts up like these just doesn't ring true with me.
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I have to go along with Margi here. Something ain't right with this picture.
exhausted, your description of symptoms of "they" and "them" and your refusal to answer any questions leads me to think you're just playing games here.
P.S. Have a nice Holiday season. 
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Jimi
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Re: how Long?
« Reply #19 on: Dec 16th, 2004, 1:37pm » |
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I'm with Margi and Bob. If they have had it for years, then they know of 02 and triptans. The drugs mentioned are never used for clusters. Not passing the smell test to me.
If that person is a member here, then there would be no need to withhold that info unless the supporter doesn't want the sufferor to know they posted.
You guys tried. I heard no questions from him(her) concerning 02 or triptan, verap, lithium etc.
I hope it is bogus, because if it is true, somebody is having serious problems.
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becky8
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I agree and she was PMing me and I was TRYING to help bu tshe would not answer any questions and was actually rude to me. Kinda pisses me off cause I was really worried about her and TRYING again to be helpful!!
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becky8
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WTF??????
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BlueMeanie
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on Dec 16th, 2004, 11:17am, exhausted wrote:| the headaches now last for over 10 hours |
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Not a Cluster Headache
Quote:| this time its been lasting for almost a month every day for ten hours at least...doctor has tried morphine tramadone sp? a anti depressent, xanax...among some things......somma, flexiril...there has been so many taken |
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Not Cluster Headache medicine
Quote:| the CH sufferer I'm writing about has had a lot of experience with it and knows what it is |
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Doesn't take 02, Imitrex or any Cluster headache drugs but is experienced ?
Quote:| I dont think they want me being to specific about it and who they are...I'm juust trying to catch up here....I love them and want the best for them. |
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Is it more than one person ?
Quote:| to the morons and judgemental cretins...I am a male alwyas have been and I ask the questions you give the answers. none of you are doctors and none are experts. |
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Then why ask the questions if you don't want the CORRECT answers ?
Quote:| have attacked my girlfrined in the past, her and I just talked about it and she told me as much as to who would be supportive and who wouldnt be....and she got it right regarding who would help. |
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Nothing but games. Just checking to see who's who it looks like.
For your info, people are here to help, NOT play silly games.
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BobG
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Re: how Long?
« Reply #23 on: Dec 16th, 2004, 2:32pm » |
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on Dec 16th, 2004, 2:11pm, exhausted wrote:to the morons and judgemental cretins Wow. Someone got up on the wrong side of his stall this morning!...I am a male alwyas have been Hey, me too! and I ask the questions you give the answers Wrong! You refused to answer and evaded the questions ...none of you are doctors and none are experts. True. Are you?
I am not rude unless attacked, you attacked me and have attacked my girlfrined in the past, her and I just talked about it and she told me as much as to who would be supportive and who wouldnt be Can we see her list? I want to see who the morons cretins are....and she got it right regarding who would help.
thanks to those that can read. You're Welcome. |
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Hope you have a nice Christmas. Hope your girlfriend's pain goes away. And I hope Santa brings you a Spell Check.
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ExplodingEyeBall
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Re: how Long?
« Reply #24 on: Dec 16th, 2004, 2:37pm » |
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For the record here...
Becky8 was concerned enough that she PM'd me to tell me she was leaving for a while and asked me to keep an eye on what was going on and help if possible.
Pat
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| « Last Edit: Dec 16th, 2004, 2:37pm by ExplodingEyeBall » |
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