Author |
Topic: My news segment did a lot of good.... (Read 371 times) |
|
Jayne
CH.com Alumnus
New Board Hall of Famer
Pull my finger!
Gender: 
Posts: 1460
|
 |
My news segment did a lot of good....
« on: Dec 9th, 2004, 8:43am » |
 Quote  Modify
|
I have bumped into so many people that know me fleetingly that said they saw my news segment and for the most part it has been a good impact on awareness about out plight.
There was this one dopey woman I bumped into and she said "Oh I saw you on the news about your cluster headaches".....she went on "I get those too"
"Oh really" I replied"..."Describe to me how you behave when you are in pain"
"well I throw up lots, I have to lay down and be real quiet"
"Hmmm", me says. "How often do you get these attacks"
"Maybe 4 times a month"
Well I went on to tell her she does not have CH and she argued with me and stated strongly that she does.
So I gave her a long lesson about CH..that lasted for about 10 minutes.
She ended with "Well my doc says it's CH"
"You need a new doc" I said......AGGGGGGG
But for the most part I have had some great responses and people seem to "GET IT"
|
|
 IP Logged |
If you haven't laughed today, it's been a wasted day. 
|
|
|
OneEyeBlind
New Board Hall of Famer
Yea, I can do this
Posts: 574
|
|
Re: My news segment did a lot of good....
« Reply #1 on: Dec 9th, 2004, 8:46am » |
Quote Modify
|
That's great, Jayne ! Bravo for you getting the word out !
|
|
IP Logged |
One cannot step twice in the same river, for fresh waters are forever flowing around us.
|
|
|
Jeepgun
Guest
|
|
Re: My news segment did a lot of good....
« Reply #2 on: Dec 9th, 2004, 9:01am » |
Quote Modify
 Remove
|
Magnificent, Jayne!! Sorry you had to run into someone who insists that they have CH when they don't. BTDT... The wife of a guy I work with has migraines and insists that they are "cluster migraines." 
|
|
IP Logged |
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender:
Posts: 10429
|
|
Re: My news segment did a lot of good....
« Reply #3 on: Dec 9th, 2004, 10:47am » |
Quote Modify
|
Good for you, Jayne!
That woman had a migraine, not CH...
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
marlin
New Board Newbie
I love YaBB 1G - SP1!
Posts: 3
|
|
Re: My news segment did a lot of good....
« Reply #4 on: Dec 9th, 2004, 11:10am » |
Quote Modify
|
So, jayne, how do I get to see this news story? Is it an mpeg that I can grab? I'd really like to see it.
Thing is... I just plum gave up trying to explain it to casual acquaintances or, worse yet, strangers. I've found it to be a total waste of time -- Tired of the dumbass deer-in-the-headlights slack-jawed gaze I get. Perhaps you have a better approach? See, the problem is you look just fine (most of the time), no tumors or terminal cancer to report... you don't even have a cough so no one can relate except to how they know a HA feels. 3 advils and 5 minutes later they're fine.
Oh, last time I checked only 0.1% of the population gets 'em. I've never even met anyone in person that gets CHs and I've been at it 27 years.
|
|
IP Logged |
|
|
|
BarbaraD
CH.com Alumnus
New Board Hall of Famer
Hugs to ya
Gender:
Posts: 5164
|
|
Re: My news segment did a lot of good....
« Reply #5 on: Dec 9th, 2004, 11:30am » |
Quote Modify
|
Great job Jayne... I'm surprised you didn't clobber that woman.
Marlin - you need to make a meet and greet or a convention. It's an eye opening experience (or eye closing experience with several getting hit). But it's not something you forget.
Again - keep up the good work Jayne..... They'll have to pay attention to us someday.
Hugs BD
|
|
IP Logged |
What don't kill ya, Makes ya stonger!
|
|
|
Cerberus
New Board Hall of Famer
Whomever said that two heads are better than one?
Gender: 
Posts: 2117
|
|
Re: My news segment did a lot of good....
« Reply #6 on: Dec 9th, 2004, 1:43pm » |
Quote Modify
|
I too would like a copy...
Video format doesn't matter as long as its digital and not a tape.
Peace...
Ramon
|
|
IP Logged |
I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
|
|
|
Jeepgun
Guest
|
|
Re: My news segment did a lot of good....
« Reply #7 on: Dec 9th, 2004, 1:54pm » |
Quote Modify
Remove
|
Ditto! I wanna see!!
|
|
IP Logged |
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: My news segment did a lot of good....
« Reply #8 on: Dec 9th, 2004, 2:16pm » |
Quote Modify
|
Quote:| I work with has migraines and insists that they are "cluster migraines." |
|
I've heard medical professionals use that phrase!
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
Jeepgun
Guest
|
|
Re: My news segment did a lot of good....
« Reply #9 on: Dec 9th, 2004, 2:20pm » |
Quote Modify
Remove
|
My Vanderbilt-trained neurologist showed me a poster that detailed the signs and symptoms of a cluster headache, and even pointed out to me, "See? The word 'migraine' doesn't appear on this poster anywhere!" THEN, the blithering MORON has the stones to write me a script for Depakote for "cluster migraines." Holy mother of god, I wanted to kick him in the balls repeatedly, until he was curled up on the floor, retching, and screaming for mercy! 
|
|
IP Logged |
|
|
|
vig
CH.com Alumnus
New Board Hall of Famer
CHit Happens
Gender:
Posts: 4401
|
|
Re: My news segment did a lot of good....
« Reply #10 on: Dec 9th, 2004, 2:21pm » |
Quote Modify
|
Thanks Jayne!
Some people will never learn, but I bet the rest all did.
|
|
IP Logged |
never, Never, NEVER quit. -Winston Churchill
|
|
|
BlueMeanie
Guest
|
|
Re: My news segment did a lot of good....
« Reply #11 on: Dec 9th, 2004, 3:09pm » |
Quote Modify
Remove
|
Hi Jayne,
I checked the archives at the News station which originally broadcasted your video. Unfortunately, they don't go back that far.
Glad your video got some attention. I really thought you did an excellent job. Don't worry about the lady. As you know, you'll never get CH's across to everyone.
|
|
IP Logged |
|
|
|
don
Guest
|
|
Re: My news segment did a lot of good....
« Reply #12 on: Dec 9th, 2004, 3:38pm » |
Quote Modify
Remove
|
The saga of the mis-diagnosis continues. Only now it's the flip side.
Used to be CH sufferers being diagnosed with migraines, now its migraine sufferers being diagnosed a clusters.
|
|
IP Logged |
|
|
|
Annette_Emond
New Board Veteran
Family Member
Gender:
Posts: 189
|
|
Re: My news segment did a lot of good....
« Reply #13 on: Dec 9th, 2004, 10:14pm » |
Quote Modify
|
Ok... I've seen this before and I've never said anything..... Years ago, when I was still using birth control pills, I suffered from "clusters" of Migraines. The doctors used the term cluster migraines. I'm sure that many doctors still do. They were definitely migriane headaches and definitely NOT CLuster Headaches!. But give the poor Migrainers a break! They hurt too. Sometimes in clusters.
Annette
|
|
IP Logged |
Happiness runs in a circular motion..
you can sometimes come back around to what you thought was done.
|
|
|
Jeepgun
Guest
|
|
Re: My news segment did a lot of good....
« Reply #14 on: Dec 10th, 2004, 9:45am » |
Quote Modify
Remove
|
Absolutely, Annette. Pain is pain, no doubt about it. I would never want to experience what migrainers go through! What really sucks is being misdiagnosed as suffering from "cluster migraines," and then given migraine medication, instead of being treated for cluster headaches. 
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss