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Topic: it's official (Read 738 times) |
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john_d
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I am in a cycle for the first time in like 5-7 years. Funny thing my twin brother knew it right away, he saw the fear in my eyes and my face going flush before it even hit. I am going to do what I usually do- hopefully it will do the trick. these godamn peice of shit ha's fricken piss me off like nothing else. 
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LeLimey
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OUCH-US - Less "ME" and more "WE"
 
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Re: it's official
« Reply #1 on: Dec 5th, 2004, 6:59pm » |
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Oh I'm so sorry.. all that time PF and now this. I hope it passes quickly for you and you kick that beastie b@stards arse
Helen
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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marlin
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Re: it's official
« Reply #2 on: Dec 5th, 2004, 7:04pm » |
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Good luck dude. If your cycles last a month or so you should consider meds that have some prospect of breaking the cycle. Of course maintain that abortives stockpile.
Q: Is your twin identical and does he also get CHs?
If can answer either with a yes I'll bet there are a few research groups that might be real interested in sticking needles in you guys and taking a bunch of MRIs and performing all sorts of tests...
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john_d
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no he doesn't. there is another twin who posts here and his twin does not get them either, and him and I are both identical twins. Which means my brother and I and his brother and him share exactly the same genetics.  But whatever, all I can think about now is 'fuck this', you know what I mean? fuck this
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E-Double
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Re: it's official
« Reply #4 on: Dec 5th, 2004, 7:32pm » |
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kick it's ass!!!!!!!!
hopefully it's in and out!
PF wishes and here for ya!
E.
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| « Last Edit: Dec 5th, 2004, 7:32pm by E-Double » |
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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john_d
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thanks for the good thoughts and vibes folks. it's funny how they really do make you feel better, calmer. thanks.
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don
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What meds are effective for you?
Got any stockpiled?
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nani
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Re: it's official
« Reply #7 on: Dec 5th, 2004, 7:45pm » |
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that really bites, john! But, you are stronger than it is...so kick it's ass. vibes, an lots of PF wishes to you!
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Others may come and go, but MY power is MINE.
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Ree
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Re: it's official
« Reply #8 on: Dec 5th, 2004, 7:46pm » |
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Sorry John~~ We are here for ya brother... let us know what you need. love ree
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john_d
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on Dec 5th, 2004, 7:45pm, don wrote:What meds are effective for you?
Got any stockpiled? |
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i've never taken meds, I am not against them it just that 7 years ago the only thing I remember people saying worked was oxygen, and I did not even do that. Does that special fungus everyone talks about actually work? I am not sure what to do, I may try to get some oxygen.
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nani
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Re: it's official
« Reply #10 on: Dec 5th, 2004, 8:01pm » |
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I'm pretty sure it's OK to use O2 and the fungus. You just can't use chemical meds... I think.
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Others may come and go, but MY power is MINE.
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cschick
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That is very interesting you being an identical twin. So sorry to hear you are getting these f'in things again. Hope you find something that works for you!
PFDAN to you!
Karen
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don
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Have you stayed in touch with a neuro or GP?
7 years has been along time and there are proven effective meds out there now that will help you manage your pain and maintain some quality of life.
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john_d
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Thanks
I never bring this up because it sounds like a lame cure post but what I do when I get in cycle is I practice meditation. When I get into a hit or shadowing really hard, I sit in half-assed lotus position and be aware of my breathing, of the pain, of everything and I let it be- that is what I do. It's worked (for me) in the past. Well, I just investigated and discovered I starting posting at ch.com almost this same time last year and I was shadowing then also. Last year I never did get hit though. But what I did then was 1) quit drinking 2) started meditating again, and the shadowing stopped. At this point in my life I am back to drinking (nightly) and I stopped meditating about a month ago. I am getting back on the plan right-fricken-now, it's amazing the discipline I can feel coarsing through my veins with the thought of clearing the pain of ch. we'll see what happens. still- 
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Sean_C
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I always had luck with snake oil, wanna buy some 
Sorry to year hear the bad news, vibage comin your way.
Sean...........................
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| « Last Edit: Dec 5th, 2004, 8:22pm by Sean_C » |
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Kris_in_SJ
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Re: it's official
« Reply #15 on: Dec 5th, 2004, 8:24pm » |
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Don's right (man, I hate to say that ....) LOL!
There are new and better meds now. I'm also a 5-year cycler. And, if you're determined to do the chemical-free thing, O2 is effective for many, many people here.
For alternatives, check out clusterbusters.com.
Hugs and wishes for PFDAN,
Kris
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lionsound
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Re: it's official
« Reply #16 on: Dec 5th, 2004, 8:51pm » |
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PF vibes goin' south.
It's kind of cold up here so maybe they'll help like an ice pack.
Check yer IM's
-lionsound.
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Charlie
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Re: it's official
« Reply #17 on: Dec 6th, 2004, 3:45am » |
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This sucks but I hope you think about getting some help although if meditation works, great. You might want to add my technique in the mix though.
Give the bastard a real run for his money.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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sandie99
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Re: it's official
« Reply #18 on: Dec 6th, 2004, 5:38am » |
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I am so sorry that you're getting hit again, John... 
I am glad that you had many PF years, though. You know that it's possible to have those. I hope that gives you strength to fight beast this time! 
Keep on fighting!
Wishing PFdays,
sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
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Lobster
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Re: it's official
« Reply #19 on: Dec 6th, 2004, 8:30am » |
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man... that sucks brother. hope it is a quick and easy one for you.
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ExplodingEyeBall
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Re: it's official
« Reply #20 on: Dec 6th, 2004, 8:57am » |
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Hang in there man.
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Just poke out my eye and get it over with!!!
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Jeepgun
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*cracking open a 50-gallon can of vibes*
Hang tough, my friend... This too shall pass.
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Bethany1
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Re: it's official
« Reply #22 on: Dec 6th, 2004, 9:50am » |
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Vibes coming to you John.... Meditation is great, personally I just can't concentrate. My mom teaches yoga and does reiki (sp) so once she did reiki when I had one but I couldnt sit still. I wish I could, I would rather do the natural thing than all the meds, but hay, Whatever works. Hang in there.
--B
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john_d
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Thank you very much all
quick dumb question, let's say I went to the doc and got some meds.
What is the story with 'rebound' headaches? As an episodic does this mean my cycle will last longer or does it mean I am going to be taking more meds chasing shadows all day?
Thanks if anyone has a chance or inclination to answer
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miCHel
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Re: it's official
« Reply #24 on: Dec 6th, 2004, 5:39pm » |
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Hey John,
Getting hit after 5 years is simply awful. I once had a four-year break and when the beast came back, I was a very unhappy camper.
As some people said, CH treatment has gone a long way in the past few years. Go check your options with a doc/neuro who knows his stuff. I have treated my last two cycles with a Verapamil/Imitrex shots combo and it has made it much easier for me. Rebound headaches and/or longer cycles are also a concern of mine but, so far, using meds have been positive. Next on my list is O2.
Wishing you a very short cycle and an even longer pain free periode!
miCHel
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Good one Scotty! Now beam down my clothes...
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