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Topic: having cluster right now (Read 280 times) |
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omnibuscortex
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been away a long time. haven't been here for, oh , over a year.
when i'm not in a cycle i can't even think about clusters. forgive my poor tpying, i'm having a cluster headache right this very minute. my typing might get worse.
like right now, while i'm typing this, i'm having a lcuster and i'm tryign to get this out as fast as possible before i lose the abilty to see the keys. i'm juwst trying to wait it out, you know? my rock back and forth hoping it doesn't turn out to be one of those - well nevermind it is one of those bad ones.
oh my god
this is number two today. i expect them to get worse in the next few days.
it's been over a year since my last, figure a yeara nd 4 months or so. i though t i had broken the cycle. hah
i have to reapply for insurance because of a paperwork screw up and you kno wthey're not goign to be nice about a pre-exisiting condition. i'm begging borrowing and stealingmeds from friends. i'm popping aleve juwst to take the peak off the pain just a very little, because hell aything helps.
s\dhfjklhs\ '
ican' t asdf asdj type veyr well but i'm trying to. i remeber how this board was helpful to me.
i haven't been here in a while annd i notice that the board is still the same ugly medical green and white. heh. that's funy. sd;alfjdk'sdf;s\
ok i tried. i'm goignt i beat my headagainst a wall or soething now. you all know what i mean. you've been where i am. n
asdfasdg\asdf ok that's it. i guess i'll see more of you all int he nexxt few months. iii ican'tsssssssss i can' t see the kedmksfmakfm
opuioil
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don
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Re: having cluster right now
« Reply #1 on: Dec 3rd, 2004, 6:28am » |
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Quote:| i can' t see the kedmksfmakfm |
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um hmmm ?!?! First thing I do when getting attacked is run for the puter and start typing. Guess you'll have to follow your website strategy.............................
Quote: but noooo i have to dig around through illegal channels to get the drugs i need. imitrex, hydroconodoe, oxycontin, whatever you got i'll buy it.
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| « Last Edit: Dec 3rd, 2004, 6:37am by don » |
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alleyoop
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Re: having cluster right now
« Reply #2 on: Dec 3rd, 2004, 6:54am » |
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Sorry you're getting hit Barry. Hang in there dude. Get stocked up for battle. Do what you have to do. Unfortunately, as you know, it'll get worse before it gets better!
........................alley 
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I know that the Good Lord won't put any more on you than you can stand, but sometimes I wish He weren't quite so PROUD of ME!
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Renee
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Re: having cluster right now
« Reply #3 on: Dec 3rd, 2004, 7:00am » |
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So sorry to hear you are back but glad you remembered where your ch family is!!!
Hang in there! You're not alone anymore with the beast!
He's been bouncing around my head this morning as well.
Do you have any o2? Drink lots of coffee.
This too shall pass......breathe!!!
renee
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
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alleyoop
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Re: having cluster right now
« Reply #4 on: Dec 3rd, 2004, 7:07am » |
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on Dec 3rd, 2004, 7:00am, Renee wrote:
He's been bouncing around my head this morning as well.
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Sorry to hear you're getting hit too Renee.
Here's hoping your weekend bodes better...
.....................alley 
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I know that the Good Lord won't put any more on you than you can stand, but sometimes I wish He weren't quite so PROUD of ME!
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Renee
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Re: having cluster right now
« Reply #5 on: Dec 3rd, 2004, 7:20am » |
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Alley,
I awoke with it. Good thing...coffee and o2 is handling it quite nicely. Down to only shadows now.
That was a only a 60 minute hit, if it doesn't ramp back up.
Have a good day,
Renee
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
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becky8
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Re: having cluster right now
« Reply #6 on: Dec 3rd, 2004, 10:14am » |
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STOP typing and get some thing for the pain. ANYTHING!!! ice, go out in cold and breath. I have typed when having one but only the light ones you just have to ingnore. Never put yourself thru that!!!!! Are you crazy, (like me?)
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: having cluster right now
« Reply #7 on: Dec 3rd, 2004, 10:26am » |
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Sorry that you're getting hit... 
Wishing you lots of PFdays,
sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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omnibuscortex
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Re: having cluster right now
« Reply #8 on: Dec 3rd, 2004, 3:49pm » |
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i'm out of meds and i had nothing better to do to get my mind off it. coffee and cold air doesn't work on me. in fact i just recovered from one this morning as well. i've got some imitrex coming my way and i'm going to try to stretch them out using the imitrex tip listed on the menu. that and my druggie friends will keep me good for a while. begging my doctor for samples will also help.
now i just have that lingering odd feeling in my head, that pulsing of blood through my temple, just threatening to erupt again. it ruins my whole day.
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becky8
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Re: having cluster right now
« Reply #9 on: Dec 3rd, 2004, 4:52pm » |
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Sorry to hear no meds, been there!! The trex tip is great , but better yet get vials of trex and your own needles. Then you are not using the same needle over again. My Doc loved the idea because he didn't want me to use 6mgs anyway. I told him if he gave me the vials of trex, I would only shoot 3mg at a time. Which is what I always did anyway. Best of Luck to you! Hang in there!!!
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nani
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Re: having cluster right now
« Reply #10 on: Dec 3rd, 2004, 5:47pm » |
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Quote:| my druggie friends will keep me good for a while |
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 That will surely come back and bite you on your ass.
Ice is probably your best bet. Sorry you're getting hit so badly, but drugs are NOT going to help CH. You should not use Imitrex unless it's been prescribed for you. It can be dangerous, dude. Pain free (and narc free) wishes to you.
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Charlie
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Re: having cluster right now
« Reply #11 on: Dec 3rd, 2004, 7:04pm » |
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For god sake get off the keyboard for a bit but come on back and let us know how you're doing.
This thing is made for when you have no meds:
What follows is a technique learned from a neurologist:
I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice.
I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain.
Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working.
This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance.
I hope this technique is helpful and I wish you the best of luck
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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