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Topic: @%#*@%#&* clusters (Read 306 times) |
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Renee
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May we all find some pf time! Is it summer yet?
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@%#*@%#&* clusters
« on: Nov 29th, 2004, 2:15pm » |
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
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nani
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Got kudzu?
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Re: @%#*@%#&* clusters
« Reply #1 on: Nov 29th, 2004, 2:19pm » |
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Others may come and go, but MY power is MINE.
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ExplodingEyeBall
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I can't think of anything clever to put here.
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Re: @%#*@%#&* clusters
« Reply #2 on: Nov 29th, 2004, 2:22pm » |
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Just poke out my eye and get it over with!!!
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JDH
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Re: @%#*@%#&* clusters
« Reply #3 on: Nov 29th, 2004, 2:24pm » |
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Sorry Renee.
Never give up......EVER!
Jim
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
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BarbaraD
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Hugs to ya
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Re: @%#*@%#&* clusters
« Reply #4 on: Nov 29th, 2004, 2:34pm » |
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Sorry kid ... thought we were on the road to better days. Hang in there...... The weather has GOT to change sometime...
Hugs BD
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What don't kill ya, Makes ya stonger!
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Grandma_Sweet_Boy
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What Goes Around Comes Around!
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Re: @%#*@%#&* clusters
« Reply #5 on: Nov 29th, 2004, 4:01pm » |
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Hang tough kiddo - hopefully this too will pass!
Carol
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Redd
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Re: @%#*@%#&* clusters
« Reply #6 on: Nov 29th, 2004, 4:32pm » |
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hang tough you are stronger than the beast!
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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Carl_D
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Hang in there Renee. You can't see us, but we're with you.
Peace & hugs,
Carl D
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LeLimey
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OUCH-US - Less "ME" and more "WE"
 
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Re: @%#*@%#&* clusters
« Reply #8 on: Nov 29th, 2004, 7:22pm » |
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It WILL end
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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Gator
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Re: @%#*@%#&* clusters
« Reply #9 on: Nov 29th, 2004, 7:48pm » |
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I feel for ya babe, but I just can't reach ya! 
Sorry you're getting hit. I think a lot of us are right now. The damned weather doesn't help either.
Hang in there.
Gator
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: @%#*@%#&* clusters
« Reply #10 on: Nov 29th, 2004, 11:43pm » |
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Pain free vibes bein sent thru the rain snow sleet and hail fer ya............we get it all in Ohio Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Charlie
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Happy to be here
  
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Re: @%#*@%#&* clusters
« Reply #11 on: Nov 29th, 2004, 11:47pm » |
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Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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sandie99
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Re: @%#*@%#&* clusters
« Reply #12 on: Nov 30th, 2004, 2:42am » |
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Hang on there!
I pray that you're pf soon...
sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Melissa
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Renee,
I'm sorry to hear you are getting slammed bad. I hope it lets up for you real soon.
take care,
mel
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Renee
CH.com Alumnus
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May we all find some pf time! Is it summer yet?
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Posts: 1060
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Re: @%#*@%#&* clusters
« Reply #14 on: Nov 30th, 2004, 11:16am » |
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Thanks all for the support.
Yesterday was one of the worst CH days I've ever had.
Hoping today goes MUCH better as I can't take days like yesterday.
Still fighting,
Renee
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
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Gator
CH.com Alumnus
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Posts: 4556
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Re: @%#*@%#&* clusters
« Reply #15 on: Nov 30th, 2004, 12:00pm » |
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on Nov 30th, 2004, 11:16am, Renee wrote:Thanks all for the support.
Yesterday was one of the worst CH days I've ever had.
Hoping today goes MUCH better as I can't take days like yesterday.
Still fighting,
Renee |
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Exactly how long did your DHE vacation last? Not long enough for the cost, I'm sure. My neuro thinks I'm crazy for not letting him put me in the hospital to do the DHE thing. Oh, well.
I hope things start going better for you.
Gator
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Renee
CH.com Alumnus
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May we all find some pf time! Is it summer yet?
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Posts: 1060
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Re: @%#*@%#&* clusters
« Reply #16 on: Nov 30th, 2004, 1:21pm » |
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Gator,
The inpatient DHE vacation lasted a bit over a month. Then I was prescribed DHE injections for home use and they helped as well.
The DHE worked much better and longer than the triptans, for me, and the Zonegran did a good job once I increased the dose after the hospital stay.
However, I'm tired of pills and painful DHE injections and clusters so I have detoxed off of everything and am left open to the beast with only o2 to battle him for the next few days.
Things WILL turn around very soon and I'll kick the beast out the door but it's just getting thru this few days of detox that is kicking my butt.
This too shall pass..one hour at a time. I'll just keep telling myself that and soon be pf.
I'm gonna win this battle....eventually,
Renee
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
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