Author |
Topic: Clusters and flying (Read 318 times) |
|
..Danielle..
New Board Old Timer
Water and ice are my friends
 
Gender: 
Posts: 259
|
 |
Clusters and flying
« on: Nov 25th, 2004, 3:12pm » |
 Quote  Modify
|
 I've never flown before when my clusters are in cycle. Anyone know if this is going to trigger ? I'd really like to avoid that situation on a 737.
|
|
 IP Logged |
Keep your face to the sunshine and you cannot see the shadow. -Helen Keller
|
|
|
Jonny
Guest
|
30 years chronic and avid flyer....never had a CH in the air....but thats just me, others will tell you different.
................................jonny
|
|
IP Logged |
|
|
|
Kirk
CH.com Alumnus
New Board Hall of Famer
VINIMUS, VIDIMUS, DOLAVIMUS
    
Gender: 
Posts: 1914
|
|
Re: Clusters and flying
« Reply #2 on: Nov 25th, 2004, 3:36pm » |
Quote Modify
|
CH since 1969. Been flying to Alaska, Asia and South America all that time. No CH probs so far.
Knock on wood 
|
|
IP Logged |
|
|
|
BobG
New Board Hall of Famer
Gender:
Posts: 5747
|
|
Re: Clusters and flying
« Reply #3 on: Nov 25th, 2004, 4:54pm » |
Quote Modify
|
Have spent many hours in the air. No problems. But, that was all in a pressurized plane.
Have noticed attacks come with changes in pressure while driving in the mountains in a non-presurrized car.
|
|
IP Logged |
Stay stressed. Never relax. Never sleep. Ever.
|
|
|
Renee
CH.com Alumnus
New Board Hall of Famer
May we all find some pf time! Is it summer yet?
Gender:
Posts: 1060
|
|
Re: Clusters and flying
« Reply #4 on: Nov 25th, 2004, 10:38pm » |
Quote Modify
|
I have problems after landing and exiting from the pressurized cabin when traveling to a lower elevation from where i departed.
My neuro had me take a triptan one hour prior to landing as a prevent and that has worked the only time I've flown since. Prior to taking the triptan the hits would be BIG.
Nothing like banging your head around on walls in a baggage claim area. I won't go there again.
|
|
IP Logged |
23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
|
|
|
marlin
New Board Newbie
I love YaBB 1G - SP1!
Posts: 3
|
|
Re: Clusters and flying
« Reply #5 on: Nov 25th, 2004, 10:47pm » |
Quote Modify
|
No problem for me normally.
Did get hit 3 weeks ago in the air. Retreated to the spacious head and slammed a trex shot - all gone. Waited a little longer than I normally would before reaching for the trex. Had to get my bag out of the overhead and hunt around for the kit in front of a crowd, not that I gave a shit. At least they didn't have to watch me blast myself.
I'm convinced it was merely a coincidence that I got hit in the aircraft. I was getting hit 3X/day at the time...
|
|
IP Logged |
|
|
|
Marc
New Board Newbie
Gender:
Posts: 39
|
|
Re: Clusters and flying
« Reply #6 on: Nov 25th, 2004, 11:09pm » |
Quote Modify
|
I fly pretty much every week for work and it's not a fun place to be when I get hit. Flying doesn't trigger my CH's, they happen when they happen........
I carry a small card with a very brief CH explanation so that I don't have to interact with people asking if I need help. It also helps avoid arguments about leaving your seat when the fasten seat belt light is on.
Generally, I've found flight attendants to be super supportive in bringing me ice and tons of paper towels - then leaving me alone as requested on the card.
|
|
IP Logged |
|
|
|
john_d
Guest
|
on Nov 25th, 2004, 11:09pm, Marc wrote:I fly pretty much every week for work and it's not a fun place to be when I get hit. Flying doesn't trigger my CH's, they happen when they happen........
|
|
Exactly.
I used to fly on and maintain an aircraft called a p3 as an electronics tech, regularly the pilots would have to do training and they needed guys to sit as aft observers of the engines, to sit in the back and look at the engines to make sure they did not catch on fire basically. For their training, we would take off and land the bird for hours at a time. Never a trigger, but occasionally a hit. I did get the headaches, but I had to do my job, I would just squint with the eye and dance in my seat. If I tried to medical excuse out, I would have been sent to some crappy job like passing out basketball's at the gym. It really is amazing what you can do even when you are in horrible pain. I once unloaded an entire 18 wheel truck load with a forklift and I was getting hit the entire time. Tough choices back then. These days, I am not in cycle (thank God and knock on wood) but if I was I would just close the door to my office, or go out to my car. And that card idea is awesome, I would definitely do that.
|
|
IP Logged |
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
 
Gender:
Posts: 14968
|
|
Re: Clusters and flying
« Reply #8 on: Nov 27th, 2004, 2:05am » |
Quote Modify
|
Flying was never a problem. I had some kind of pressure "headache" or something ten years before they began. It wasn't related and happened only once. Flying was never a trigger.
Happy Landings.
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
Mr. Happy
CH.com Alumnus
New Board Hall of Famer
If I can do it, it ain't art.
 
Gender:
Posts: 2217
|
|
Re: Clusters and flying
« Reply #9 on: Nov 27th, 2004, 2:09am » |
Quote Modify
|
on Nov 27th, 2004, 2:05am, Charlie wrote:| Flying was never a trigger. |
|
Either time?
What did Orville and Wilber say?
RJ
|
|
IP Logged |
May those who don't want any
Have memories of never getting any.
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender:
Posts: 10429
|
|
Re: Clusters and flying
« Reply #10 on: Nov 27th, 2004, 2:48am » |
Quote Modify
|
During my CH time I have flown on several occasions and I have (so far) never had CH attack during the flight itself. I have had small attacks before the flight, triggered getting up early etc.
Best wishes,
sandie99
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
Jonny
Guest
|
on Nov 27th, 2004, 2:09am, Mr. Happy wrote:
Either time?
What did Orville and Wilber say?
RJ
|
|
ROTFFLMMFAO.......Hap, your too much 
|
|
IP Logged |
|
|
|
Ree
New Board Hall of Famer
2008's my year to shine~SUN IS OUT!!!YAY
 
Gender:
Posts: 5236
|
|
Re: Clusters and flying
« Reply #12 on: Nov 28th, 2004, 12:49am » |
Quote Modify
|
ok his name is^ high_commander^ you guys... I think he means he FLIES the plane as in PILOTS the plane... (do I have to tell you everything LOL) anyway of course he could be a Priest or a Minister that would make him a HIGH commander too... Glad my kid the Pilot doesnt get cluster... He does get HA but swears by that water water water method... claims you guys don't hydrate enough... Love to you Ree
|
|
IP Logged |
Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
|
|
|
The mad viking
CH.com Alumnus
New Board Hall of Famer
Always Look on The Bright Side of Life
Gender:
Posts: 3135
|
|
Re: Clusters and flying
« Reply #13 on: Nov 28th, 2004, 3:54am » |
Quote Modify
|
Well , I did survive the 13 hours flight to Nashville without any hits.
But the absence of the ciggies almost did , but thats another chapter 
Svenn
|
|
IP Logged |
Always Look on The Bright Side of Life
|
|
|
Testy1
New Board Junior
Posts: 96
|
|
Re: Clusters and flying
« Reply #14 on: Nov 28th, 2004, 8:10am » |
Quote Modify
|
Been hit quite a few times between here and either Europe or Asia. Six or seven hour flights are just about a guarantee. If I'm on a cycle I'm going to get zapped.
As I can't get immitrex, I carry a bottle of cafergot and immigran and just eat a few of those and wait the thing out.
A few very ugly flights but the worst thing is no cigarettes afterwards.
Regards
Jack.
|
|
IP Logged |
|
|
|
Jeepgun
Guest
|
I used to be a flight medic on Hueys. I fly to Japan and back, every so often. I've piloted several different types of planes and ultralights. Flying is not a trigger for me.
|
|
IP Logged |
|
|
|
ClusterChuck
CH.com Alumnus
New Board Hall of Famer
The BEAST rises again, and again, and again, and .
Gender:
Posts: 3181
|
|
Re: Clusters and flying
« Reply #16 on: Nov 29th, 2004, 1:26pm » |
Quote Modify
|
Flying is NOT a trigger for me, either. But I did get nailed a couple times on the flights to Nashville. I can't use trex, and did not have O2, so I just had to ride them out. Not fun, or pretty. Thank the Lord, my daughter was with me to ward off the "do-gooders".
Chuck
|
|
IP Logged |
"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
|
|
|
echo
CH.com Alumnus
New Board Hall of Famer
Chronic and still alive --- I Win!
Gender:
Posts: 4214
|
|
Re: Clusters and flying
« Reply #17 on: Nov 29th, 2004, 1:36pm » |
Quote Modify
|
As long as the plane stays under 28K ft I'm ok. Go over 30K ft and I will get a moderate dance during the decent. Just enough to make me know the fuck stick is there but not bad enough to take me out of the game.
He saves nailing me to the wall until I fall asleep.
|
|
IP Logged |
"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
|
|
|
..Danielle..
New Board Old Timer
Water and ice are my friends
Gender:
Posts: 259
|
|
Re: Clusters and flying
« Reply #18 on: Nov 29th, 2004, 4:35pm » |
Quote Modify
|
Thank you to everyone who resopnded. I'm flying to Vancouver in december and was a little worried. For those who wondered about the High Commander label -
I am a she, not a he - and the label was given to me by the kids I work with. I run a camp kitchen in the summer and therefore control everyones food, the kids felt this warranted the label.
|
|
IP Logged |
Keep your face to the sunshine and you cannot see the shadow. -Helen Keller
|
|
|
Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
Posts: 3757
|
|
Re: Clusters and flying
« Reply #19 on: Nov 29th, 2004, 5:36pm » |
Quote Modify
|
Hi,
I see you're from Lloyd. I'm in Calgary. My hubby is a clusterhead and he has found that when he's in cycle and he flies, it's after he lands that he does experience a few more hits. Do you have any abortives that you can take with you on the plane? If you're flying Westjet, they're pretty understanding about that kind of stuff - sure would be worth checking ahead of time to see if it's ok if you bring your meds on board.
Just wanted to let you know that we also have a Canadian website for Canadian clusterheads and we have a message board there, just like this one. Feel free to drop in anytime.
http://www.clusterheadaches.ca
|
|
IP Logged |
http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss