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Topic: Cluster Newbie!! Excuse Me!! (Read 202 times) |
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Spike266
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Cluster Newbie!! Excuse Me!!
« on: Nov 18th, 2004, 4:51am » |
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My name is Mike , and I am totally new to the website and to all of your experiences. After reading some of the messages on the board, I do realize I don't have so bad after all. It all started with having a series of horrific headaches a few years ago, but they only lasted about a week and I never really did anything about them because I thought at the time they were alergy related (I also have hay fever). The very same types of headaches came back to me again in the very begining of September. I went some 4-5 weeks doing nothing more that waiting them out suffering through them and taking massive doses of Excedren, Ibuprofen, or Tylenol. I finally couldn't take it any longer and made an appointment to see my Doc. He RXed low dose of Imitrex pills. About 10 days passes and the frequencie and severity of the headaches was now to a point that I was almost totally incapacitated. I went back but my regular Doc was not there. The Doc I saw at the time said she thougtht I may have what was called "Cluster Headaches" and she RXed me a Beta blocker and continued the Imitrex. A week passed and my wife couldn't stand to see me in this condition any longer so she found you on the NET and called the Doc. Later that day she came home with Topamax and Imitrex injectors. Now keep in mind that I have all of the symptoms of having Cluster Headaches, so I don't know if the antiseizure med. (Topamax) was the reason or if I just suddenly went into remission but the headaches stopped within a couple of days. Never had to inject myself and I never got to try to see if the O2 treatment would have worked. I guess at this point I just don't know, but I will continue to research the Clusters until I know more about them and I am more prepaired if they ever rear their F___ing heads again. Until then just sitting on 20 doses of Imitrex injectors. You all are a great support group for each other and God Bless Every Single One Of You. THANKS, MIKE
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totka2
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Re: Cluster Newbie!! Excuse Me!!
« Reply #1 on: Nov 18th, 2004, 5:06am » |
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on Nov 18th, 2004, 4:51am, Spike266 wrote:| Until then just sitting on 20 doses of Imitrex injectors. |
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Wow! New application of Trex 
Welcome!
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http://www.clusterheadache.hu
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Spike266
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Re: Cluster Newbie!! Excuse Me!!
« Reply #2 on: Nov 18th, 2004, 5:10am » |
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Yeh, Well my wife would probably tellyou its closer to where I do my thinking anyway Ha HA
Thanks
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Melissa
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Re: Cluster Newbie!! Excuse Me!!
« Reply #4 on: Nov 18th, 2004, 7:42am » |
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Hey, a fellow Wisconsinite!! Hiya Mike, welcome to the family. Sorry to hear of your head pain, but glad your wife found this site.
Take care,
 mel
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Redd
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Re: Cluster Newbie!! Excuse Me!!
« Reply #5 on: Nov 18th, 2004, 7:53am » |
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Welcome WI homeboy, sorry you have to be here but so glad your wife found this place for you. Lots and lots of good insight here...and keep reading.
Don't be a stranger..(or any stranger than the rest of us ok?) 
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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Jeepgun
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Re: Cluster Newbie!! Excuse Me!!
« Reply #6 on: Nov 18th, 2004, 8:25am » |
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Welcome. Sorry for the reason that you're here, but glad to have you aboard.
-Frank
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Ruth
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Re: Cluster Newbie!! Excuse Me!!
« Reply #7 on: Nov 18th, 2004, 8:34am » |
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Welcom Mike,
This is a great place to hang out even if your headaches are gone.
Ruth
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Edna
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Re: Cluster Newbie!! Excuse Me!!
« Reply #8 on: Nov 18th, 2004, 8:53am » |
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Welcome to your new home Mike,
Although it's always sad to learn of another sufferer, we're extrememly glad you found us. And PLEASE, tell your wife this is her home too. There is a message board for supporters here as well. There's lots of reading to be had with very useful information.
Sad thing about clusters..........."they'll be back".........hope not any time soon for you!! But, know that lots of us stick around even when out of our cycle. I'm hoping you do too.
Glad to have you,
EDNA
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nani
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Re: Cluster Newbie!! Excuse Me!!
« Reply #9 on: Nov 18th, 2004, 9:04am » |
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Welcome Mike and sorry you're here. Di you have a prescription for the trex? If you do it may be wise to have them filled when you can, even if you're not in cycle. Most ins companies limit how many you can get. Many here stockpile so that when the next cycle hits, they have plenty. Good luck to you.
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