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Topic: Clusterheads Documentary (Read 760 times) |
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justin
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Clusterheads Documentary
« on: Oct 29th, 2004, 5:02pm » |
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Hi Gang! Just wanted to post an update and say thanks again to all the people I've been talking to. I am currently editing the footage that I shot in Nashville. I hope to use that as a way to get some grant money to finish the film. I would like to come to visit some of you fine people and see how clusters affect your daily lives. So anyway, I'm making a DVD with Chuck's attack on it along with bytes from the interviews I was able to do with some of you in Nashville. I think it will be a really great collection of stories and information that will get our cause out there. If anyone has anything that they would like to share please email me anytime at justinott@mac.com. I'm always looking for good stories or clusterheads who are trying alternative methods or had success with medications, etc. Hope all is well. Happy Halloween! Justin
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if any clusterheads in NYC want to get together shoot me an email justinott@mac.com
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Mark C
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Re: Clusterheads Documentary
« Reply #1 on: Oct 29th, 2004, 6:45pm » |
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Thanks for the update Justin.........you just might make us a famous!
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maria9
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Re: Clusterheads Documentary
« Reply #2 on: Oct 29th, 2004, 6:54pm » |
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Justin, Thanks so much for making this video. We showed this video at the beginning of our meeting with the doctors/researchers in Boston who will be heading the LSD/psilocybin/ cluster headache research. I can't even describe how the doctors were blindsided by the severity of the pain, they had no idea. Even the director of Harvard Medical School was impressed and is very openly supporting this research study. We are still in need of another $100,000 to support this research, if anybody is interested in making a tax deductible donation to MAPS: http://www.maps.org/support.html Be sure to specify in the comments section that the funds are intended for the cluster headache research. MAPS is just assisting with the donations and research and is not charging any overhead fees. All the money donated will go directly to the clusterhead research. Thanks again Justin for your work for the CH cause, Believe me, it is appreciated, Marsha
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"All you have to do is the best you can. A high wave comes, a crashing wave comes, a gentle swell follows. Whatever comes, stay in your boat. And enjoy the ride. And row." Peggy Noonan
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ClusterChuck
CH.com Alumnus New Board Hall of Famer
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Re: Clusterheads Documentary
« Reply #3 on: Oct 29th, 2004, 7:26pm » |
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Thanks for the update, Justin. Let me know if I can help you at all. Keep up the good work!! Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy." Thomas Fuller
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maria9
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Re: Clusterheads Documentary
« Reply #4 on: Oct 29th, 2004, 7:32pm » |
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Thanks Chuck, For agreeing to be filmed while having a cluster headache, can I vote you into the CH hall of fame? Thanks again, Marsha
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"All you have to do is the best you can. A high wave comes, a crashing wave comes, a gentle swell follows. Whatever comes, stay in your boat. And enjoy the ride. And row." Peggy Noonan
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Jonny
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Re: Clusterheads Documentary
« Reply #5 on: Oct 29th, 2004, 7:34pm » |
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on Oct 29th, 2004, 6:54pm, maria9 wrote: We showed this video at the beginning of our meeting with the doctors/researchers in Boston who will be heading the LSD/psilocybin/ cluster headache research. |
| How about a few copies for us suffering bastards to watch and mail to another? Im sure ALL of us would like to see it.....No? ..................................jonny
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ClusterChuck
CH.com Alumnus New Board Hall of Famer
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Re: Clusterheads Documentary
« Reply #6 on: Oct 29th, 2004, 7:51pm » |
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Let me speak up here. I hope I am not out of line, Justin. When I agreed to this filming, I gave all rights to it to Justin. He owns it. He is trying to make a film. I am sure, he wants to get the information out, AND make some money. There is NOTHING wrong with this. Let him make the film, and earn his money. After it is out, THEN I would feel better about letting so many people see it. Let Justin get his portion FIRST. He earned that right! He deserves that. It is his choice, to let it out before then or not, but I think he should hold onto it, until his film is done. Let him finish his work. Just my feelings on the requests of him letting it out too soon. Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy." Thomas Fuller
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BobG
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Re: Clusterheads Documentary
« Reply #7 on: Oct 29th, 2004, 7:59pm » |
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I agree 100% with Chuck.
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Jonny
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Re: Clusterheads Documentary
« Reply #8 on: Oct 29th, 2004, 8:01pm » |
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on Oct 29th, 2004, 7:51pm, ClusterChuck wrote: AND make some money. Let Justin get his portion FIRST. |
| Hmmmmmm ..............................jonny
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maria9
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Re: Clusterheads Documentary
« Reply #9 on: Oct 29th, 2004, 8:50pm » |
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Justin and Chuck, Your work is so appreciated in the CH realm of things. Just know that you have truly put forth the effort on behalf of all of us, all the rest of the clusterheads out there. Thanks so much for your contribution, Marsha
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"All you have to do is the best you can. A high wave comes, a crashing wave comes, a gentle swell follows. Whatever comes, stay in your boat. And enjoy the ride. And row." Peggy Noonan
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alleyoop
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Re: Clusterheads Documentary
« Reply #10 on: Oct 29th, 2004, 9:01pm » |
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on Oct 29th, 2004, 8:50pm, maria9 wrote:Justin and Chuck, Your work is so appreciated in the CH realm of things. Just know that you have truly put forth the effort on behalf of all of us, all the rest of the clusterheads out there. Thanks so much for your contribution, Marsha |
| Couldn't have said it any better. Thank you guys! ................alley
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vig
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Re: Clusterheads Documentary
« Reply #11 on: Oct 29th, 2004, 9:20pm » |
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I must admit, I did NOT know this was a capitalist venture. I wouldn't have signed the release.
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never, Never, NEVER quit. -Winston Churchill
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Jonny
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Re: Clusterheads Documentary
« Reply #12 on: Oct 29th, 2004, 9:29pm » |
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on Oct 29th, 2004, 9:20pm, vig wrote:I must admit, I did NOT know this was a capitalist venture. I wouldn't have signed the release. |
| Thats why my ass aint on that shit!
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ClusterChuck
CH.com Alumnus New Board Hall of Famer
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Re: Clusterheads Documentary
« Reply #13 on: Oct 29th, 2004, 9:33pm » |
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on Oct 29th, 2004, 9:20pm, vig wrote:I must admit, I did NOT know this was a capitalist venture. I wouldn't have signed the release. |
| Really? Come on now! Lets get real! Of COURSE he is doing it to get the word out, but also, I think, to make some money at the same time. What is the problem here? How can ANYONE hold this against him? He is doing us a HUGE favor. I don't see how anyone can begrudge him making a few dollars at the same time. I hope he makes a LOT of money from it! The more he makes from it, the wider the distribution he/we get! I, for one, am damn glad I was able to contribute to his endeavor. Everyone of you should be too! It is not like he is taking advantage of us. Remember, he is one of us! Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy." Thomas Fuller
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vig
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Re: Clusterheads Documentary
« Reply #14 on: Oct 29th, 2004, 9:36pm » |
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I respectfully disagree. It was not made clear at the time that he was doing this for money. I thought he was doing this like the CHATS teams was... for the cause, regardless of money. Any money made from this should go to OuCH. Just my disappointed opinion.
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never, Never, NEVER quit. -Winston Churchill
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maria9
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Re: Clusterheads Documentary
« Reply #15 on: Oct 29th, 2004, 9:40pm » |
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Thanks again, Justin and Chuck! Marsha
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"All you have to do is the best you can. A high wave comes, a crashing wave comes, a gentle swell follows. Whatever comes, stay in your boat. And enjoy the ride. And row." Peggy Noonan
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ClusterChuck
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Re: Clusterheads Documentary
« Reply #16 on: Oct 29th, 2004, 9:45pm » |
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on Oct 29th, 2004, 9:36pm, vig wrote:I respectfully disagree. It was not made clear at the time that he was doing this for money. I thought he was doing this like the CHATS teams was... for the cause, regardless of money. Any money made from this should go to OuCH. Just my disappointed opinion. |
| I hate to disillusion you, but from my understanding, CHATS is also hoping to make money. But where is the problem with this? Why can't these people work hard for us, and make some money for themselves at the same time? It is not like they are taking the money from us! Remember, these people are HELPING us!!! Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy." Thomas Fuller
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M.R.
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Re: Clusterheads Documentary
« Reply #17 on: Oct 29th, 2004, 9:56pm » |
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At the risk of seeming ignorant here, who is maria9/Marsha? Was just curious. Mike Edited to say Thank you Justin
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« Last Edit: Oct 29th, 2004, 10:51pm by M.R. » |
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alleyoop
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Re: Clusterheads Documentary
« Reply #18 on: Oct 29th, 2004, 10:00pm » |
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on Oct 29th, 2004, 9:45pm, ClusterChuck wrote: I hate to disillusion you, but from my understanding, CHATS is also hoping to make money. But where is the problem with this? Why can't these people work hard for us, and make some money for themselves at the same time? It is not like they are taking the money from us! Remember, these people are HELPING us!!! Chuck |
| .........................alley
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I know that the Good Lord won't put any more on you than you can stand, but sometimes I wish He weren't quite so PROUD of ME!
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vig
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Re: Clusterheads Documentary
« Reply #19 on: Oct 29th, 2004, 10:22pm » |
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I thought the CHATS money was to be funnelled to OuCH... I could be wrong. I'm not saying I'm against it. I AM saying this is the first I've heard of it.
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« Last Edit: Oct 29th, 2004, 10:23pm by vig » |
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BobG
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Re: Clusterheads Documentary
« Reply #20 on: Oct 29th, 2004, 10:27pm » |
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Help me out here folks. I'm confused. I read and re-read Justin's message and the only "money" thing I see is he is hoping for a grant to continue the work. How did this get to be a "capitalist venture"? When and/or where did Justin say he was going to be making any money from his project? Just asking.
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Jayne
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Re: Clusterheads Documentary
« Reply #21 on: Oct 29th, 2004, 10:31pm » |
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Hey Justin I don't give a bugger if you make money from this .....I just want to THANK YOU for what you are doing. With much gratitude Jayne (who wants the world to know how her head hurts)
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unsolved1
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Re: Clusterheads Documentary
« Reply #22 on: Oct 29th, 2004, 10:33pm » |
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Hey Justin...does this mean I have to pay to watch a film i'm in ? J/K Seems to me ... if he was going to make $$ from doing this ..... the more $$ her makes, the more exposure that we'd get. Unsolved
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vig
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Re: Clusterheads Documentary
« Reply #23 on: Oct 29th, 2004, 10:35pm » |
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on Oct 29th, 2004, 7:51pm, ClusterChuck wrote:I am sure, he wants to get the information out, AND make some money. There is NOTHING wrong with this. Let him make the film, and earn his money. ... Let Justin get his portion FIRST. He earned that right! He deserves that. Chuck |
| I don't think Justin ever mentioned it. I got the idea from CHuck's post. Maybe I'm all wrong. Good point
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never, Never, NEVER quit. -Winston Churchill
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Jonny
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Re: Clusterheads Documentary
« Reply #24 on: Oct 29th, 2004, 10:41pm » |
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Alls I know is he didnt have enough money to get me on tape.....he even insulted me and hes still alive........I was in a good mood that day...........PUNK!
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