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Topic: Painless Cluster Headaches (Really!) (Read 9227 times) |
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floridian
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Painless Cluster Headaches (Really!)
« on: Oct 12th, 2004, 5:07pm » |
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The case report follows a 22-year-old man who was experiencing the neurologic symptoms of cluster headache including nasal stuffiness, a droopy eyelid, and contraction of the pupil in his left eye -- without the head pain normally associated with the condition.
This is the first case reported showing evidence that these symptoms may be initial symptoms and not a response to the pain, as experts have believed.
"This report may guide future cluster headache research in another direction, away from viewing these symptoms as a reflex reaction to the pain," said neurologist Rolf Salvesen, MD, PhD, author of the case report and associate professor at the University of Tromsø in Norway.
The man reported that these symptoms occurred every day for a few weeks with one to three attacks a day for one and two hours. After six weeks, the attacks stopped.
Six years later, he returned with his previous symptoms and severe pain in the area around his left eye that lasted for about 90 minutes about twice a day. He was treated with sumatriptan, a drug used to alleviate cluster headache pain, and within 30 minutes the pain was gone. After six weeks the pain was gone and so were most of his other symptoms.
"It's suggested by experts in cluster headache that the other symptoms experienced by people with cluster headache are a reflex response to the head pain," said Salvesen. "This report is evidence that a person can have other symptoms of cluster headache without the pain, suggesting these symptoms are primary symptoms."
Cluster headache is characterized by severe pain and several other neurologic symptoms, including tearing and redness of the eye, contraction of the pupil, stuffy nose and drooping eyelid. About one in every 1,000 people suffer from cluster headache and the majority of sufferers are men.
http://www.sciencedaily.com/releases/2000/08/000811062536.htm
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echo
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Re: Painless Cluster Headaches (Really!)
« Reply #1 on: Oct 12th, 2004, 5:08pm » |
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Cluster symptoms with out the pain?
Sign me up.
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Valerie
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Re: Painless Cluster Headaches (Really!)
« Reply #2 on: Oct 12th, 2004, 5:42pm » |
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"About one in every 1,000 people suffer from cluster headache and the majority of sufferers are men."
Not me, I'm one of the lucky, lucky women!
I think my chances of winning the lottery are SMALLER than being a woman with cluster headaches.
I'll take the pain free kind - anyone want mine?
Good article though 
Valerie
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Valerie
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Re: Painless Cluster Headaches (Really!)
« Reply #3 on: Oct 12th, 2004, 5:44pm » |
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Or would that be my changes of winning the lottery are greater than being a woman with cluster headaches? I don't know, my head hurts 
Valerie
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Margi
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Re: Painless Cluster Headaches (Really!)
« Reply #4 on: Oct 12th, 2004, 5:53pm » |
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My husband gets those for the duration of his remissions now. About 4:30 every day, he gets "cluster eyes" (one pupil dilates, one constricts) and it lasts for about 45 minutes. You could set your watch by it. This time of year, in his remission year - it will happen two or three times a day. He often doesn't even realize it, but I always see it. I hate seeing cluster eyes.  But...no pain, so we'll take it.
He's been this way since the end of a very bad cycle in 2002. Another Floridian (Todd) told us about this phenomenon way back when and it was called a "silent attack" at that time. So I guess Mike is now, officially, a "silent chronic". But he still does go into a full blown attack every second November. Cluster is punctual if nothing else. 
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Donna_D.
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Re: Painless Cluster Headaches (Really!)
« Reply #5 on: Oct 12th, 2004, 8:07pm » |
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Redd and I were just talking about this the other day!
There are times when the left side of my face "droops" and I get the one sided stuffy nose, but NO pain...
It is not very often but it is the same way my face reacts when I am getting hit....wierd, huh?
Anybody else have this happen to them?
DD
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Re: Painless Cluster Headaches (Really!)
« Reply #6 on: Oct 12th, 2004, 10:39pm » |
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Yes, been there, done that unmedicated. Late October 2002 to early April 2003. Sandwiched between a 13 month cycle and my current 17 month cycle. At least I'm controlled. 
--- Steve
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OneEyeBlind
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Re: Painless Cluster Headaches (Really!)
« Reply #7 on: Oct 12th, 2004, 11:03pm » |
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That's funny, cause my sinuses have been giving me problems .. or so I thought. Head has been kind of weird lately. But what I did notice was my eye !!!!!!!! For weeks it has had the droopy goofy look to it, but no headaches. I'm taking an asprin and calling it a day though, cause no clusters and I'm still a happy camper !!!!!!!! I'll take what I need, and leave the rest !
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john_d
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Re: Painless Cluster Headaches (Really!)
« Reply #8 on: Oct 12th, 2004, 11:07pm » |
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It seems like the stuffy nose and droopy eyelid would just be a minor annoyance without the pain. It's amazing to me that a doctor was even be able to diagnose the condition described in the article.
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down_the_tubes
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Re: Painless Cluster Headaches (Really!)
« Reply #9 on: Oct 12th, 2004, 11:28pm » |
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i go through the spells of droopy eye, nose, the whole nine yards without the pain. usually when i am in remission. i am an oddball that falls between episodic and chronic. i might go a month with out the beast paying me a visit, and then bam, he pulls up a chair and stays for about a month. it scares the hell out of me when i get the droopy eye without the pain, because i don't know if it is the real deal, and i am going to get hit.
melissa
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Gator
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Re: Painless Cluster Headaches (Really!)
« Reply #10 on: Oct 13th, 2004, 2:47am » |
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on Oct 12th, 2004, 5:07pm, floridian wrote:
LMAO Good one!!!
Painless clusters, huh? Deal me in!!!
Gator
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BobG
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Re: Painless Cluster Headaches (Really!)
« Reply #11 on: Oct 13th, 2004, 4:47am » |
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Painless or phantom ch has been discussed here before………..
Todd's post from the archives that Margi mentioned, it is connected to what floridian posted above.
click this
http://www.clusterheadaches.com/wwwboard/messages/59810.html
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| « Last Edit: Oct 13th, 2004, 4:49am by BobG » |
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The mad viking
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Re: Painless Cluster Headaches (Really!)
« Reply #12 on: Oct 13th, 2004, 6:50am » |
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AHHHHHHHH
What a classic 
This is still under discussing with the "brains" here.Rolf Salvesen, MD, PhD " A Professor in neurology"well known and respected in many countries says this.We clusterheads has tried for years to get a meeting with him here.No luck so far.While attend the medical congress in Sandefjord a while back i got the chanse to talk to Professor Lars Jacob Stovner about this over a lunch.
Stovner is the head neuro in headaches here in Norway
This might happend in 1/500 clusterheads he said.No further explanations.He tried but you has to remember that im just a clusterhead and no DR.
Trying to explain all those fancy words will risk my toungh to brake.Cant take any chanse on that
Svenn
Sorry,my mistake 500 and not 5000.how can i stop this "fighting against the keyboard" ?
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| « Last Edit: Oct 13th, 2004, 9:16am by The mad viking » |
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BobG
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Re: Painless Cluster Headaches (Really!)
« Reply #13 on: Oct 13th, 2004, 8:37am » |
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Since the only cluster sufferers that come here are the ones with computers, that would make us only a small minority of all clusterheads......and
since the phantom ch has been mentioned here more than once,
I'd say that Professor Lars Jacob Stovner's statement of 1/500 is way off.
Just like the old myth that women don't get ch. This board has proven that very wrong.
modified to change 5000 to 500.
But, even 1/500 sounds, to me, wrong. I'd be willing to bet it's closer to 1/100.
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| « Last Edit: Oct 13th, 2004, 9:38am by BobG » |
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Melissa
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Re: Painless Cluster Headaches (Really!)
« Reply #14 on: Oct 13th, 2004, 8:51am » |
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on Oct 13th, 2004, 8:37am, BobG wrote:
Just like the old myth that women don't get ch. This board has proven that very wrong. |
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I'd grin, but I wish we DIDN'T get them.
Ya know, it's all the mans fault. Everything is the mans fault.
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Killroy 2.0
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Re: Painless Cluster Headaches (Really!)
« Reply #15 on: Oct 13th, 2004, 9:00am » |
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phantom ch - Yep been there done that. As a matter of fact I was getting them at the convention. I talked to the nero about them and he could give me know REAL answer. I am just thankful for anytime I have that is pain free, so what if everyone thinks I cry everyday at 3 
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ozzy
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Re: Painless Cluster Headaches (Really!)
« Reply #16 on: Oct 13th, 2004, 10:08am » |
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Maybe this should be a new thread, but depending on the responses I might make it, it's own or not.
Painless CH, other autonomic symptoms being primary (droopy nose, etc) fits very well with something I have been thinking about lately. As an episodic turned chronic, I've had the "privilige" of being on both sides. Also as chronic, I am more aware of all symptoms a lot more than when I was episodic. As episodic I never gave another thought about one sided: pressure, stiffiness, droopiness, etc. Now I am more aware.
I believe that all those symptoms are always there, to a greater or lesser extent, always. Meaning, if you have CH it is more of a spectrum than a clear cut case of Episodic/Chronic. You may not experience pain but only a few weeks a year, but you probably experience the other symptoms year round.
I don't want to bum anyone out, this is only my theory. Being Chronic, has taught me to take one day at the time (big cliche), but it is the only way to deal. Some days are harder than others, but you deal and move on with your life.
Ozzy
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Tiannia
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Re: Painless Cluster Headaches (Really!)
« Reply #17 on: Oct 13th, 2004, 10:37am » |
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on Oct 12th, 2004, 11:28pm, down_the_tubes wrote:| i go through the spells of droopy eye, nose, the whole nine yards without the pain. usually when i am in remission. i am an oddball that falls between episodic and chronic. melissa |
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I wish. Mine has been for 15 months straight now and never have the eye without the Pain. I guess there is something to look forward to. But the eye will start always before the pain, and I refuse to take any trex until I see how bad the pain will be because if it is an attack that I can just fight through, then I dont waste the trex I have. Especially since Trex is no longer covered by my insurance, and the Replax doesn't do shit.
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