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Topic: prednisone (Read 341 times) |
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john_d
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I keep hearing horror stories involved with this drug. Is this stuff incredibly dangerous for clusterheads or what? Should the site warn others? I don't have any experience with it myself outside the really bad things I hear about here.
John D
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| « Last Edit: Oct 3rd, 2004, 9:16am by john_d » |
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Jonny
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Shhhh, you'll scare potential victims 
...................................No like Pred
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Lizzie2
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Re: prednisone
« Reply #2 on: Oct 3rd, 2004, 9:57am » |
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I'd just weigh the risks and benefits if I were you.  I always thought I could handle the risks until this most recent medical diagnosis. Ehhhhh chit happens! Now I'd rather have the CH's than the many surgeries in my future! But also...pred never stopped my cycles...it just would give me a few days off. If it were to stop my cycle completely, I probably wouldn't have cared about the problems it caused. But then again, if it had stopped my cycle completely, I wouldn't have had to keep taking it, and I probably wouldn't be where I'm at now with the knees!
You have to decide if it is worth it!
Lizzie
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don
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Quote:| Is this stuff incredibly dangerous for clusterheads or what? |
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Its been extremely beneficial to this one.
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Jimmy_B.
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Re: prednisone
« Reply #4 on: Oct 3rd, 2004, 10:37am » |
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Prednisone is a drug that needs to be tapered slowly when it is stopped. I have had good luck with the Medrol Dose Pack, that I take at the beginning of a cycle.
Any drug can be dangerous, if not used properly. Before I start any drug I research & then research some more. When I'm done researching, I ask questions of my Doc & Pharmacist. This also goes with O.T.C. drugs. Also having a very knowledgable physician helps.
Jimmy
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eddie
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Re: prednisone
« Reply #5 on: Oct 3rd, 2004, 10:37am » |
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i have taken it off and on since i was 23 now im
40. yes i can tell what it has done to me.
its an oxy- morone its good & bad. if you go
look in a PDR [wallmart has them ] you wouldnt believe
what it says. i have done the pred 3 times
this summer it just will not break mine
this time yes im chronic and it sucks.
i can tell you lifetime of prednisone
is not good for ya. i take supplements
to help, but i just know i read alot about pred
yrs ago and more recently. it also will mess
up different organs in your body if you
dont take it right. i have been in this CH
cycle for almost 400 days, i do use verapamil
o2, imitrex and did pred taper 3 times just
this past summer. i think you can only take
so much in a years time. CLUSTERBUSTER
is what i need / i hope to hear from anyone
about it to help me out till i can proccure my
own. dont want to scare anyone but check
the PDR {PILL BOOK FOR DOCS} and make
your own jugdement. PFDAN TO ALL& HUGS
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| « Last Edit: Oct 3rd, 2004, 10:41am by eddie » |
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PFDAN TO ALL>><< http://www.putfile.com/ededearl>>><music> http://www.myspace.com/pamneddie
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Lizzie2
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Re: prednisone
« Reply #6 on: Oct 3rd, 2004, 10:54am » |
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on Oct 3rd, 2004, 10:37am, Jimmy_B wrote:Prednisone is a drug that needs to be tapered slowly when it is stopped. I have had good luck with the Medrol Dose Pack, that I take at the beginning of a cycle.
Any drug can be dangerous, if not used properly. Before I start any drug I research & then research some more. When I'm done researching, I ask questions of my Doc & Pharmacist. This also goes with O.T.C. drugs. Also having a very knowledgable physician helps.
Jimmy |
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Hey Jimmy,
Not trying to play devil's advocate or anything, but you know where I go for headache treatment. I've never once had an inappropriate taper. All have been about 7 days or so in length, starting at around 60-70mg and tapering over the course of the week. Somewhere along the line though..my body said no!
I do think it can be helpful, but it is not without risks!
Lizzie
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vig
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Re: prednisone
« Reply #7 on: Oct 3rd, 2004, 10:54am » |
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It works wonders at GREAT expense.
It causes long term damage.
I vote no.
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| « Last Edit: Oct 3rd, 2004, 10:55am by vig » |
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never, Never, NEVER quit. -Winston Churchill
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Jeepgun
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I was prescribed prednisone for my last cycle. I got the script filled, but didn't take it. I really don't know why I didn't take it, other than experiencing a strong inner "nudge" that I should leave it alone, so I did.
In hindsight, I'm glad. I think I would choose the clusterbusters method over prednisone, if I absolutely couldn't stand the pain anymore.
-Frank
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eddie
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Re: prednisone
« Reply #9 on: Oct 3rd, 2004, 11:15am » |
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medrol dos pak
dont even phase me at all
almost 20 years of pred is hell
on the body but i had no choice
research all meds from docs
the more you take the higher
you have to go the longer you
take it the more damage it does
but it does work for alot of diff
stuff / like i said its good but bad
PFDAN TO ALL
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JDH
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Re: prednisone
« Reply #10 on: Oct 3rd, 2004, 11:54am » |
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I've used Prednisone and it gave me a short break until I started tapering down then I was right back to where I started. IMO the long term risk are not worth a few pf nights.
there are better ways to deal with this.
Jim
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Jimmy_B.
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Re: prednisone
« Reply #11 on: Oct 3rd, 2004, 1:52pm » |
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on Oct 3rd, 2004, 10:54am, Lizzie2 wrote:
Hey Jimmy,
Not trying to play devil's advocate or anything, but you know where I go for headache treatment. I've never once had an inappropriate taper. All have been about 7 days or so in length, starting at around 60-70mg and tapering over the course of the week. Somewhere along the line though..my body said no!
I do think it can be helpful, but it is not without risks!
Lizzie |
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I wasn't trying to suggest that your problems with Pred. were caused by Physician failure or inappropriate tapering. I apologize if it came out that way. Just wanted to make sure that John really researches this med before making a decision.
Do ya forgive me 
Jimmy
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Get informed! Don't vote a party ticket. Go to www.vote-smart.org and find out where your political candidates stand.
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Lizzie2
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Re: prednisone
« Reply #12 on: Oct 3rd, 2004, 2:03pm » |
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on Oct 3rd, 2004, 1:52pm, Jimmy_B wrote:
Do ya forgive me
Jimmy |
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LOL..of course! 
Lizzie
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totka
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Re: prednisone
« Reply #13 on: Oct 3rd, 2004, 2:40pm » |
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First drug which works for me. It stopped my last cycle on the first day.
Hungarian cluster-ass-kick therapy is Solu-Medrol (IV) and Medrol pills 500 mg tapered to 8 mg in two weeks.
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I have two enemies, cluster headache and English grammar.
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Kris_in_SJ
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Re: prednisone
« Reply #14 on: Oct 3rd, 2004, 8:56pm » |
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I think it's a great drug when taken rarely for episodic clusters. Really helps me until my prevent (Verapamil) has kicked in.
Side effect for occasional Prednisone (proper taper down) use - EXTREME HUNGER.
Side effects for frequent or prolonged Prednisone use - TOO MANY TO MENTION.
I think you have to weigh it out. If you've never (or rarely) taken it, it might very well help you in your cycle. I don't think it works this way for chronic CH (as above testimony says).
Good luck!
Kris
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Patrick_A
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Re: prednisone
« Reply #15 on: Oct 3rd, 2004, 10:54pm » |
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Prednisone and Verapamil stopped mine in its tracks and i have now been painfree for 13 months.
Pred definitly has some awful side-effects but so does putting a shotgun to your head due to losing patience with the CH's.
Patrick
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thebbz
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Re: prednisone
« Reply #17 on: Oct 4th, 2004, 7:43pm » |
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Prednipoison or Kip 9? Lesser of two evils . No choice.
Take whatever else works . If no alternative then go for the poison. Kip9 or pred...lesser of two evils..LOL 
BB
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ccbiggsoo7
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Re: prednisone
« Reply #18 on: Oct 28th, 2004, 1:43am » |
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Have taken it once or twice a year for 5 years, when the verapamil and lithium quit working. Just stay on it for about a week with orw/0 a taper. I tried both no reaction that was different, but doctor will recommend a definite taper. No side effects except for sore gums. Even though I am chronic it stops those really extra tough cycles when lith and verap wouldn't. I personally think it's great if used properly and not for long periods.
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chris
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