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dynasty
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To my husband
« on: Sep 30th, 2004, 9:09pm » |
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Okay so this is my first post so please bear with me...
I just need my husband Scott to know just how much I care about him and love him! He is a episodic cluster migraine sufferer gone chronic 
This man is amazing! He's 32 years old, we have been married 9 yrs this past August, we have a beautiful 4 yr old daughter. We have been together 13 yrs... and I have watched him go through these time and time again. I feel so helpless, yet the only thing I know how to do is let him know I am here.
Now he has gone chronic. We have FINALLY found a neurologist that is doing everything he can to help us, however, we are at the Litium point. Though this medication scares me, I will never ever deny him getting the relief he needs. Please say prayers that this is the one that helps.
The reason I am posting though is to tell him this:
Scott, I LOVE YOU!!! You are my life, my love, my best friend, my EVERYTHING! You are NEVER a burden, NEVER. I am your wife and I am proud!!!! Baby, whatever, or where ever you need me I am there. We will get through this, we always do!. You are the strongest person I have ever known, don't give up! Aly and I love so very very much........ We will do this, we will fight it, and together WE WILL BEAT IT!!! I promise you!
Just remember your support is here! I love you baby.,... don't you ever think anything else! I LOVE YOU!!!!!!!!! 
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thomas
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Beautiful  Welcome!
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jhammer
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Re: To my husband
« Reply #2 on: Sep 30th, 2004, 9:16pm » |
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Welcome to the board Dynasty, and may I say that Scott is lucky to have someone as supportive you behind him.
One word of advice though, don't use the terms 'cluster' and 'migraine' in the same description.
I personally have no experience with the Lithium, but I've read about it as a treatment. Everyone here reacts different to different treatments, that's half the problem with these damn things. I hope he finds what works for him soon.
~Hammer
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broomhilda
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Re: To my husband
« Reply #3 on: Sep 30th, 2004, 9:18pm » |
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Welcome, you sound like a wonderful and truly amazing supporter....
Wishing for pain free days and nights for you and Scott...
Andrea
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Suck it up Princess...
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Cathi04
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Re: To my husband
« Reply #4 on: Sep 30th, 2004, 9:42pm » |
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Dynasty....I think you've got it!!! Scott... you have the rock of Gibraltar there.........lucky you!!!!
It is sad you need to be here in Clusterville, but I am happy you have found the place...settle in, BOTH of you.... read everything to the left, post any questions you have......grab some oars....and know there are plenty of people here who understand, and will do what they can to help you cope, laugh a bit....give you something to grab onto when you need it most..send you vibes, wrap their cyber arms around you..and in general, help you deal with life in Clusterville....
Stick around..........this could well be your other home.......
PF to BOTH of you......
Cathi 
OH, and....
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Leesa
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Re: To my husband
« Reply #5 on: Sep 30th, 2004, 9:43pm » |
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Dynasty, sorry you and Scott have found us but welcome to the family. That is one of the most beatiful posts Ive seen on here in a long time. Scott is VERY lucky to have you in his life. Your a GREAT support to him!
PF wishes, Leesa
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"The truth of the matter is that you always know the right thing to do. The hard part is doing it." General H. Norman Schwarzkopf 
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Jonny
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Anyone know Scott?
I dont and im here every day.
.............................................jonny
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Jayne
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Re: To my husband
« Reply #7 on: Sep 30th, 2004, 10:20pm » |
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Hi Dynasty.
I too am chronic, and 10 months ago my doctor said to try Lithium (and verapamil).
I was very leery about taking lithium.
10 months later I can say this has been my best year ever as a sufferer. I have NO side effects from the drug.
I am on 450 mg of Lithium and 360 mg of verapamil per day.
Now I love the stuff. I just don't go around announcing to non sufferers that I am on that drug.
A lot of chronics have noticed that we get cycles within our chronicness....meaning at sometimes it's worse than others, so It might not be that your drugs have quit working.
He is lucky he has you.
Jayne
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Charlie
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Re: To my husband
« Reply #8 on: Sep 30th, 2004, 10:58pm » |
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Welcome and what a great intro.
I'm glad you found us and if you look around you'll find some good ideas about dealing with this horror. You have some real reading to do but good luck and let us know how things are going.
Charlie
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vig
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Re: To my husband
« Reply #9 on: Sep 30th, 2004, 10:59pm » |
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Lucky guy... 
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never, Never, NEVER quit. -Winston Churchill
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dynasty
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Re: To my husband
« Reply #10 on: Sep 30th, 2004, 11:09pm » |
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on Sep 30th, 2004, 9:48pm, Jonny wrote:Anyone know Scott?
I dont and im here every day.
.............................................jonny |
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No sweety u probably don't know Scott. However, he does know you guys. He is here on these boards, and website just about everyday. We came across this site back in March, and have been here ever since.
With that in mind, please let me extend my thank you for all the kind words. Also, thank you for all the unknowing support you have given my husband. It is because of this site, and these boards we have learned so much. And the support of knowing that he is not alone, has helped him to find the strength to fight "the beast" (this is the correct term right lol)
Thanks again, and I wish all of you only pain free days and happiness...... I will have you all in my prayers
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thomas
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on Sep 30th, 2004, 9:48pm, Jonny wrote:Anyone know Scott?
I dont and im here every day.
.............................................jonny |
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I'm pretty sure I do. I think he's probably the most famous clusterhead in the world.
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Melissa
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dynasty,
Thank you so much for showing your support for Scott. You seem like one terrific wife, don't ever change!
Take care and feel free to post here anytime, or if not, you can always drop me an email at mfiltz@isp.com anytime you want to talk. I've suffered for 14years myself, and you have a lot of wonderful qualities just like my supporter husband (although he is more silent, lol).
Take care,
mel
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Kevin_M
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Re: To my husband
« Reply #13 on: Sep 30th, 2004, 11:38pm » |
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Glad you came through the door Dyna. Tell Scott hi and there's room on board.
Kevin M
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alleyoop
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Re: To my husband
« Reply #14 on: Oct 1st, 2004, 12:20am » |
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WELCOME!!!!!
.......................alley
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Callico
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Re: To my husband
« Reply #15 on: Oct 1st, 2004, 1:57am » |
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Welcome to you both. Thank you for being a supporter. There are so many here who have had a far different response from their spouse, and it is so refreshing to see someone else who will stand with her man. (There are a lot of spouses that DO support. I don't mean to diminish them. I honor them greatly, especially theo ones who make it a point to be a part of this great board.)
Don't be afraid of the Lithium. It has a bit of a reputation due to its use for phychotic treatments, but it has been a real Godsend tome for the clusters. The only side effects I have had from it are that is makes my coffee taste a little funny, and I notice a slight tremor in my hands on occasion. I would not think of giving it up at all now. Verap and Lithium have made my life liveable again.
Jerry
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K-9
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Re: To my husband
« Reply #16 on: Oct 1st, 2004, 2:36am » |
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WOW Dynasty, that was like enough love and support for all of us. Very refreshing. You're very strong!!!! You and Scott both!!  I have been chronic and did use Lithium for about four years when I was at one of my worst periods. Not too many side effect for me, and it didn't "stop" my ha but man did it regulate it. I thought I could set my watch to the beast before, but after being on Lith, It helped me to better 'plan' my life. I say give it a try!!! Welcome to both of you!!
Chuck
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E-Double
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Re: To my husband
« Reply #17 on: Oct 1st, 2004, 8:05am » |
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Dyansty,
That brought me to tears!
What a lucky Scott is as we are for a meeting a new friend.
Best to both of you.
E.
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Jeepgun
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Wow.... Scott is a very fortunate man. Other people have offered some wonderful advice, so I'll just say to Scott: Hang in there, man. To you, Dyna: Wow! What a wonderful supporter you are, and what a fabulous amount of love pours forth from your words.
All the very best to you both,
-Frank
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thomas
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on Sep 30th, 2004, 11:10pm, thomas wrote:
I'm pretty sure I do. I think he's probably the most famous clusterhead in the world. |
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Oops, wrong Scott.
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echo
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Re: To my husband
« Reply #20 on: Oct 1st, 2004, 11:47am » |
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Great note. Thanks for the intro.
Scott is an extremely fortunate person to have someone like you in his corner.
Welcome to the family.
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ArCane
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Re: To my husband
« Reply #21 on: Oct 1st, 2004, 11:55am » |
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Welcome. Nice to have you on board. We could all hope to have a loving, supporting spouse such as yourself. I wish the best for both you and Scott.
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ShariRae
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Re: To my husband
« Reply #22 on: Oct 1st, 2004, 2:35pm » |
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Awwww....that was beautiful....and not only do you have eachother.. you now have US!!! Welcome aboard!
Huggs
Shari
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ExplodingEyeBall
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Re: To my husband
« Reply #23 on: Oct 1st, 2004, 2:59pm » |
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Wow!!!
My wife supports me but I don't think she understands as well as you do. I guarantee you that Scott is happy to have you around.
BTW: If Scott has never posted here, make sure and have him sign in and post. We'd all be happy to talk to him.
Pat
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Superpain
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Re: To my husband
« Reply #24 on: Oct 1st, 2004, 4:30pm » |
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Is Scott the Buckeye scooter scott?
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Chris
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