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avonlea63
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Canadian "newbie!"
« on: Sep 29th, 2004, 8:12pm »
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Hi out there in Clusterland! I have suffered for about 3 years with horrible, horrible headaches and have tried amost every med out there. I would constantly explain to my Doc how it felt like a knife in my left eye, how they would go away only to come back just when I thought it was over, how I would cry and cry because no one understood the pain. WOW, now I am finally going to see a neurologist. About time, eh? I am so glad that someone mentioned these cluster headaches. I am also glad that I checked this site out and see that what you all describe is exactly how I've been feeling! I'm not alone!! I feel better just reading your letters. Thanks. Canadian Clusterhead
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Grandma_Sweet_Boy
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Re: Canadian "newbie!"
« Reply #1 on: Sep 29th, 2004, 8:16pm »
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And hello from another Canadian.  Actually, I live about 30 minutes away from you.
 
Who are you seeing for a neuro?  You will be asked if you've checked out all the information areas to the left of the screen.  There's a ton of helpful information for you there.
 
We also have a Canadian site that you might want to check out.
 
We're beginning to get enough of us now in the GTA to actually arrange a meeting!  You won't know what you've missed until you've met another sufferer.
 
Hope you have a good supporter in your corner.
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avonlea63
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Re: Canadian "newbie!"
« Reply #2 on: Sep 29th, 2004, 8:22pm »
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I'm not sure yet who my neurologist is. I will find out on Monday. I'll let you know. Thanks also for letting me know to check out the info to the left beforehand. What's the Canadian site address?
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Jeepgun
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Re: Canadian "newbie!"
« Reply #3 on: Sep 29th, 2004, 8:43pm »
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I'm so glad you found this safe harbour. Very best wishes with your neuro, too. Let us know how it goes. Hope you get some good results and some medication that will blunt the pain.  Undecided
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Jonny
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Re: Canadian "newbie!"
« Reply #4 on: Sep 29th, 2004, 8:47pm »
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http://www.clusterheadaches.ca/
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broomhilda
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Re: Canadian "newbie!"
« Reply #5 on: Sep 29th, 2004, 8:52pm »
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Thanks for posting the link Jonny!
 
Welcome aboard fellow Canadian Clusterhead, sorry you had to find us but this is one of the best places to be for info and support, read away and once again welcome!!! Hope you find a good neuro soon!
 
Andrea
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Suck it up Princess...

Callico
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Re: Canadian "newbie!"
« Reply #6 on: Sep 30th, 2004, 2:51am »
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Welcome aboard.  Wish you weren't here! Grin But then I wish none of us were.
 
Wish you the best with the Neuro.  Check the information on Oxygen particularly.  It's cheap, effective for many of us if used right, and it has no side effects.
 
Keep us posted.
 
Jerry
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
avonlea63
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Re: Canadian "newbie!"
« Reply #7 on: Sep 30th, 2004, 7:54pm »
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Wow, thanks for all the advice and warm welcomes. I will keep you all posted on which neuro I get. Right now my Doc has tried me on Zomeg and Fiorinal with somewhat good results. Imitrex did not help, nor Maltinol (don't remember the correct name Tongue). Let's hope we all have a good weekend!
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