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Topic: Well fuck a duck............... (Read 227 times) |
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Tiannia
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Well fuck a duck...............
« on: Sep 10th, 2004, 3:29pm » |
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Well that got yout attention. 
But the doc office called this am and asked me if I wanted to come if got an appointement at 11 today. So I went.
Here is what he is says... And this is the Doc that Greg here in Vegas refered me to cause he is Greg's doc and understands clusters. But he says that I cant have clusters because they have not stopped so it cant be CH if it is Chronic. "If they dont stop then they would call them something else. That is why they are called Cluster HA cause there is a break in the cycle" So I guess I am the first person he has ever seen that is not eposodic.
He put me back on
Neurontin 600mg (300 am / 300 pm)
Inderal 80mg ( I begged him for Verap, but he said he wanted me to stay on what I had been on even though it was not makeing any difference in my HA, that we dont want to change more then one med at a time)
Replax Tabs ( Bah guess my hubby will have them for Migraines. I asked the phamisist if they work as slow as the Trex tabs and he said yes. And I get a whole 6 a month for 30 day)
But I did get my referal for the Neuro. So now I have to see how soon they can get me in. I am going to start calling them Monday (even though I am supposed to wait 5 days to give the doc time to fax the referal). Crossing my fingers that I will get a doc who has a fucking clue.
I'll keep you posted.
-Tia
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| « Last Edit: Sep 10th, 2004, 3:48pm by Tiannia » |
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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Gator
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Re: Well fuck a duck...............
« Reply #1 on: Sep 10th, 2004, 3:43pm » |
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Tia, can you get me an e-mail address or a mailing address for this clown? I'll send him some information to show him what a dumba$s he is better educate him on CH. Better yet, maybe OUCH could send him an informational educational package with the info about chronic clusters highlighted.
If he is doing this to you, then he will be doing it to others. We need to correct this situation every time it occurs.
Gator
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Linda_Howell
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Hearing is one thing. Listening is another.
 
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Re: Well fuck a duck...............
« Reply #2 on: Sep 10th, 2004, 3:54pm » |
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YES!!!!! What Gator said.
In fact give us all his mailing address. We'll inundate his mail box.
Sheesh. And all this time I thought I was a chronic clusterhead.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Kevin_M
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withered branches grow green again.
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Re: Well fuck a duck...............
« Reply #3 on: Sep 10th, 2004, 4:06pm » |
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Well, you're getting to the neuro sooner than you thought you would, on the bright side anyway. Things seem to be moving slowly along, but moving. Hang in Tiannia. My first appointment sucked too.
luck to you too Tia,
Kevin M
sp
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| « Last Edit: Sep 10th, 2004, 4:07pm by Kevin_M » |
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Tiannia
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Life does not apologies......
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Re: Well fuck a duck...............
« Reply #4 on: Sep 10th, 2004, 4:21pm » |
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I think that all of Southwest Medical Associates (this is one of the biggest group of doctors in the City) should get something sent out to all of thier Doctors so that they all at least Hear what the fuck clusters are and that not all people fit into thier nice little check list.
Does OUCH have an informational packette that can be sent out? Probably need to post this on the OUCH Board.
Aye Kevin. At least it saved me a little time to get into a new Neuro.
-Tia
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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Carl_D
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Re: Well fuck a duck...............
« Reply #5 on: Sep 10th, 2004, 4:27pm » |
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Sadly, there are more and more Doctors and nurses who are ignorant as fuck when it comes to Clusters.
I'm surprised he didn't tell you it couldn't be Clusters because you're a woman. 
Hang in there,
Carl
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IndianaJohn
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Re: Well fuck a duck...............
« Reply #6 on: Sep 10th, 2004, 5:10pm » |
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Best of luck Tia. Hopefully the neure will be better.
Big vibes to ya!
John
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Did my brains fall out or is this headache over?
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Superpain
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GOT O2!?
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Re: Well fuck a duck...............
« Reply #7 on: Sep 10th, 2004, 6:58pm » |
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It just never ends for you! 
Don't waste any time gambling or buying lottery tickets because you are sure to lose... 
Something good has to happen to you soon. Seriously... The laws of probability have to kick in at some point!
Vibes~
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Chris
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Karla
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Re: Well fuck a duck...............
« Reply #8 on: Sep 10th, 2004, 7:17pm » |
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I am so sorry that you got a dr that wasn't knowlegeable about chronic clusters. I went 6 years without a break. Ouch definitly needs to send him some material.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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Mark C
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Onward through the fog.
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Re: Well fuck a duck...............
« Reply #9 on: Sep 10th, 2004, 7:26pm » |
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The OUCH library is chock full of good detailed information. Look here for a start.
Good Luck,
Mark
PS-remember...it is very hard to teach someone who alrady knows everything..
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Tiannia
New Board Hall of Famer
Life does not apologies......
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Re: Well fuck a duck...............
« Reply #10 on: Sep 10th, 2004, 7:53pm » |
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on Sep 10th, 2004, 6:58pm, Superpain wrote:It just never ends for you!
Don't waste any time gambling or buying lottery tickets because you are sure to lose...
Something good has to happen to you soon. Seriously... The laws of probability have to kick in at some point!
Vibes~ |
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It is ok. a Cluster angel has made my life much easier so I have a little bit of leway. But I figire there are people here who have these much worse then I do, so I do have a break.
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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