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Topic: Your suggestions are needed..... No Pain Involved. (Read 279 times) |
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saintslair
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Your suggestions are needed..... No Pain Involved.
« on: Sep 9th, 2004, 8:13pm » |
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Hi All,
I could use everyone's help. I'm fine, pain-free for the last four weeks and loving every minute of it.
I am currently working on several projects with Ozzy and Randy for OUCH and OUCH PA/NJ. I currently have another project in the works that I have been thinking about for a few years and have decided to dive into it now. I have noticed the majority of the times I come this message board or guestbook someone is looking for a doctor, neurologist or an O2 supplier that undersatnds clusters. What I am undertaking is a website dedicated to cluster sufferers called "The Cluster Head Yellow Pages". I have already purchased several domain names and I now in the process of laying out the web pages. This website will not be in competition with either CH.com or OUCH (No message boards). It will be independent of CH.com and OUCH.
What I can use everyones help with a list of GPs, Neuros, etc. and O2 suppliers that understand clusters headaches and what we go through. I know there are lists on both sites but this will be a site dedicated strictly to listings of Docs, O2 suppliers, Medical suppliers and anything else that would make sense for a listing.
I am not asking anyone....... I repeat........ anyone for any money..... only information.
I don't want donations.... If you want to donate, donate to OUCH or DJ.
Besides if this thing does take off maybe I could get advertizing money from some of the drug companies.
If I get the site working the way I would like you will be able to enter your zip code and search for the Docs or suppliers in your area.
Any information or suggestions are be greatly appreciated. You can post here, email or PM me.
I added - thta the only information that will appear on the site is the docs or O2 info not the info of the person recommending them.
Sincerely,
Andrew Santos
Thank you and PFNAD to all.
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| « Last Edit: Sep 10th, 2004, 7:56am by saintslair » |
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They say what doesn't kill us makes us stronger, well then some of the strongest are right here. PFNAD TO ALL!!!
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eyes_afire
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Re: Your suggestions are needed..... No Pain Invol
« Reply #1 on: Sep 9th, 2004, 8:23pm » |
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My doc (he rocks):
http://webapp.hmc.psu.edu/physdir/provider.cfm?id=sross2
I can't recommend O2 suppliers since I got into a dispute with my last supplier. Right now I'm O2-less.
--- Steve
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Still around... in a brand new world now...
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Callico
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Re: Your suggestions are needed..... No Pain Invol
« Reply #2 on: Sep 10th, 2004, 1:40am » |
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Thomas Freedom MD (Neuro)
Director, Sleep Disorders Lab
Department of Neurology
2100 Pfingston Rd
Glenview IL 60025 www.enh.org
(847) 657-5875
Dr Freedom has been absolutely wonderful to work with. Because he knows I am self pay with out insurance he is careful not to do tests that are only marginally needful, and he is also careful to try and keep the costs down on meds as well as he can. He just recently took the directorship of the lab at ENH after several years at Loyola.
He is one of the few Drs that I have known who will sit down and LISTEN to all you have to say before coming to a conclusion. Personally, I will drive whatever distance I have to to keep him.
Jerry
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BobG
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Re: Your suggestions are needed..... No Pain Invol
« Reply #3 on: Sep 10th, 2004, 6:58am » |
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Have you asked OUCH if you can use this list to get started?
http://www.clusterheadaches.org/doctors.htm
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Stay stressed. Never relax. Never sleep. Ever.
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don
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Re: Your suggestions are needed..... No Pain Invol
« Reply #4 on: Sep 10th, 2004, 7:09am » |
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You dont need permission. It's not copywrited and is now public information.
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saintslair
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TAME THAT BEAST!!!
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Re: Your suggestions are needed..... No Pain Invol
« Reply #5 on: Sep 10th, 2004, 7:54am » |
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Bob & Don,
Bob thanks for the suggestion..... Don even though it is public information I feel it is common courtesy to ask their permission.
Thanks and PFNAD to all,
Andy
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They say what doesn't kill us makes us stronger, well then some of the strongest are right here. PFNAD TO ALL!!!
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saintslair
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TAME THAT BEAST!!!
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Re: Your suggestions are needed..... No Pain Invol
« Reply #6 on: Sep 10th, 2004, 8:36pm » |
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Hi All,
Here's an opportunity to help without taking out your wallet.
PFNAD to all,
Andy
"bump"
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They say what doesn't kill us makes us stronger, well then some of the strongest are right here. PFNAD TO ALL!!!
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