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Topic: Tell me!.... (Read 622 times) |
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Jonny
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Where would you be now if you never had CH?
We all got CH at different ages, 12 (me), 20, 25, 30, all they way up to over 50.
Would you (Being able to do w/o pain) something that you did not do?
This is for both episodics and chronics.......this shit fucks our lives up no matter how often the pain....damn it!!!
I would like to hear if any of you had life plans and CH ruin them.
.............................jonny
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Lizzie2
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Re: Tell me!....
« Reply #1 on: Sep 9th, 2004, 7:48pm » |
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Well I guess a couple health things did, but...
I wanted to go to med school....from when I was about 8 years old or so!!!
I would've also liked to continue with piano had the pain not been so bad.
Ah well. My former neuro told me one thing back in April or so? :
No Regrets!!!
Lizzie 
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Redd
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Re: Tell me!....
« Reply #2 on: Sep 9th, 2004, 7:54pm » |
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I'm not sure how to appraoch this question, but I guess I'll just speak from the time this mutated on me.
To put it quite bluntly, I highly doubt that I'll ever find a person understanding enough to ever have a normal relationship with again. I had always hoped that I'd remarry someday. I don't think that is a realistic wish anymore.
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Donna_D.
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Re: Tell me!....
« Reply #3 on: Sep 9th, 2004, 8:06pm » |
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The only thing I regret is that the beast takes away SOME of the time I spend with my kids. Other than that, I am NOT gonna let the sonnovabeotch win!!
Takes more than the beast to make this Texas Gal give up!
Onward through the pain!
DD
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Melissa
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I don't know where I'd be, and I don't want to know. I love my life the way it is and everything that has happened up to this point, good AND bad. It is made me who I am.
I've always believed, that everything that happens in our lives, happens for a reason, and it is we who choose which paths to follow and which doors to open. If I had a chance to go back and change things, I definately wouldn't.
mel
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IndianaJohn
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Re: Tell me!....
« Reply #5 on: Sep 9th, 2004, 8:26pm » |
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This is a tough one. I've used at least 70% of my vacation, sick and personal time from work to deal with this. So I would probably guess that I would have like to use that time for other things, like a real vacation. Not to mention all the money I have spent on doctors and meds....
Red don't give up on finding someone..I can and does happen.
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Did my brains fall out or is this headache over?
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stevegeebe
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Re: Tell me!....
« Reply #6 on: Sep 9th, 2004, 8:29pm » |
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I don't think anything would be different jonny. Can't say the same if I were chronic. Being episodic has allowed me to simply plow through the bad times and continue on with my plan. Perhaps I don't recoginze the smallest things that affected my daily outlook as a result of this defect.
Being a small part of this family however, has taught me things that I know makes me a better human being and most of all, to relish the pain free times. That, my friend, is enough for me.
Time is short. Live it well as best you can.
Good question.
Steve G
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kimh
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Re: Tell me!....
« Reply #7 on: Sep 9th, 2004, 8:31pm » |
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I'm with Mel. Hindsight..........i don't want to go there cuz it's wasted energy IMHO. After all this time, the ONE thing i think clusters had a negative impact on is my younger days at school. High School was a tough time for me with clusters, because no one understood at all what was happening at that time. We all have rough things to deal with in life. I don't know one honest person who has a "pain-free" life. If it ain't one ting its anudda 
.........actually.............i'm real kool with the lunatic i turned out to be 
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Linda_Howell
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Re: Tell me!....
« Reply #8 on: Sep 9th, 2004, 8:48pm » |
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Hmmm. Started this shit in 87
Got divorced.. and realized I could not get a REAL job because of CH.
So, if this had a impact on my life I would say it was job related. Had to go clean other peoples toilets and shower stalls instead of getting a real 9 to 5 job.
If this had affected any relationships I had...I would consider it as blessing I had been warned that this person was not what I was looking for.
Linda
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Lobster
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Re: Tell me!....
« Reply #9 on: Sep 9th, 2004, 9:07pm » |
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Not really. The life was pretty well rolling when they started (about 15 years ago).
When in-episode I tend to just stay home... make very few plans outside the house. No vacations, not even any day trips. If I go out, it is for a few hours max.
Also I refuse to travel on business during most of an episode, but that has not really hurt anything.
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Rock beats Scissors.
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vig
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Re: Tell me!....
« Reply #10 on: Sep 9th, 2004, 9:16pm » |
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all I know is I wouldn't be where I am and there's no going back.
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never, Never, NEVER quit. -Winston Churchill
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E-Double
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Re: Tell me!....
« Reply #11 on: Sep 9th, 2004, 9:29pm » |
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I don't know if anything would be different to be honest.
However, I do sometimes dwell on whether this will end and then I tend to get scared about pursuing future endeavors.
I really want to go back to school for my PhD but I also know that there is absolutely no leeway when it comes to doctoral programs. Kinda a tough shit attitude. Do your work and can't let personal problems interfere.
I also look at many people here and find inspiration to do whatever it is I need to do and feel that I can probobly find a way to accomplish it. So despite my fears I'll find a way to make this all work.
Good thread Jonny
& Redd, it's out there when we least expect it
Hugs to all.
E
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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farmboy
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In Cycle and in Pain
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Re: Tell me!....
« Reply #12 on: Sep 9th, 2004, 9:34pm » |
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Well for me i think the only thing it really affests for me is that i miss a lot of car shows because i can't take the heat in the summer anymore. My cycle is end of june and begining of july into august. That is when the chrysler car show is and i can never stay long because of the heat, set off an attack.
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ckelly181
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Re: Tell me!....
« Reply #13 on: Sep 9th, 2004, 9:39pm » |
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Yea, I'd have to agree with stevegeebe. My life wouldn't be much different.
I think the only thing that would be different is that panic I feel when I get near a cycle. Every little twitch in my head makes me fearful and tearful.
It's almost a relief when I get them; at least I know what to do and can buckle down and survive.
Good question.
Chris
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| « Last Edit: Sep 9th, 2004, 9:39pm by ckelly181 » |
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Karla
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Re: Tell me!....
« Reply #14 on: Sep 9th, 2004, 9:42pm » |
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I had to give up my career working as a computer programmer/systems analyst for the last 5 years. I hate to be thinking about how much income Ive lost or where I could be at today If I hadn't quit working to go on SSDI. I am however in school now since I have been ch free for last 5 months and taking computer courses so I can get a job again.
My husband and I would have been eligable to Pastor a church many years sooner.
My kids would not have had to pick up the slack with me being unavailable for housework and helping them deal with their lives.
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Karla
suffer chronic ch
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thomas
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I'd have a lot mo' money.
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Gator
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Re: Tell me!....
« Reply #16 on: Sep 9th, 2004, 10:15pm » |
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Well, let's see. I was working for Creative Labs as a Tech Support Agent, but probably would have ended up being fired (if I didn't quit first) because they wanted robots to read scripts and not technicians who could spend time with the callers actually fixing their problems. I was getting fed up them them not allowing me to actually help people and they were getting tired of my long call times. So ch or not, I probably would not be working there now. CH has kept me from going back to work because of the number of hits I get in a day. No one around here wants the liability.
Having said that, I am very happy at home being Mr. Mom. The house is cleaner than it has ever been, meals are served at a decent hour - not when one of us finally gets home from work. And they are good balanced meals, not thrown together crap or sandwiches because we were both too tired to cook. We have less money, but actually seem happier as a couple than when we were both working.
All in all, I'd say that besides the pain, the lack of sufficient meds and the extremely tight budget, I am actually doing better in a way, than before the ch hit.
Gator
Hmmm, go figure!
Editted to add: I'm 11 months in to my first cycle, but hey, at least I'm not chronic, right? 
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| « Last Edit: Sep 9th, 2004, 10:18pm by Gator » |
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JDH
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Re: Tell me!....
« Reply #17 on: Sep 9th, 2004, 10:28pm » |
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Don't think my life would be much different other than I'm no longer scared to death at this time of year.
My cycles start in the fall and I went through a whole lot of them not knowing anyone else was out there....scary stuff for sure.
Jim
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Sean_C
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Started at 13 Chronic
Went from High Honors to below average to failing.
Left school at 16 to go to work full time.
Tried to returned to school a year later, left again due to a kip 10 break down.........never graduated
Went to work for 12 years, later became self employed, own a home, got married to the best supporter ever, had 2 kids, got a dog, a fishing pole and a truck and never looked back. Beast has been with me for almost 25 years (our Silver Anniversary  thank you your so kind) and to answer your question I honestly can say the road I was on prior to medication was pretty rough, the medication road has been alot smoother thanks to trex.
Nice thread Jonny, made me think for awhile
Sean...........
edit: I left school because I assumed my pain in my head was caused by something in the air at the school. Go figure?
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| « Last Edit: Sep 9th, 2004, 10:48pm by Sean_C » |
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Charlie
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Re: Tell me!....
« Reply #19 on: Sep 9th, 2004, 10:47pm » |
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Hard to say but I suppose I'd be stuck feeling sorry for myself only at an epilepsy MB. Sad sites they can be.
You people have helped me get stay a bit away from total self-involvement.
Charlie
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Tim_Z
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Re: Tell me!....
« Reply #20 on: Sep 9th, 2004, 11:11pm » |
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I'm with Mel on this one.
They are hell to live with and I've done some strange things. I'm lucky at work, I just disappear for a half an hour or whatever it takes. If it gets too bad and I can't abort it I go home and come back and try again the next day. I'm fortunate that way. Just wish I could catch up on my sleep during cycle.
It has screwed up some dates and appointments. My wife and kids put up with a lot. They're the greatest.
I generally don't have any regrets and play the hand I'm dealt. I deal with things the best I can and move on.
Tim
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athos
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Re: Tell me!....
« Reply #21 on: Sep 9th, 2004, 11:56pm » |
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CH had screwed my career in more ways than I can count.... I have had very few bosses that have ever understood what the deal was....
No I am unemployed unless you count the Xshirts... but still looking..... got a lot under my belt, but health issues always kill something.....
Hollywood film makup artist
Graphic Designer for Playstation Games
Senior Producer for the Worlds #4 Advertising angency
all affected by CH. and others since then
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unsolved1
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I'd have my Bachelors Of Science in Computer Science degree from IU by now. I had to stop taking classes after nearly 3 years because the CHit got too bad !
Where would I be now ??
Unsolved
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nancyc
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Re: Tell me!....
« Reply #23 on: Sep 10th, 2004, 12:42am » |
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Damn, bro..i had already written my post then read yours...I was thinking the same things when i wrote mine...thinking about how I would be a nurse practioner now instead of an RN if I had not had chronic chs. Thinking how I have not done what I wanted to do in nursing because of chs...Then when I read your post, I could not believe you had posted this !....must be the nite to think back on our past or something...Good topic.... nancyc
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Callico
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Re: Tell me!....
« Reply #24 on: Sep 10th, 2004, 12:49am » |
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I think I have to agree with Kim that if it were not CH it would be something else.
Yes, CH has changed a lot of things in my life. I am not able to operate a business the way I wanted to and tried a few years ago (b4 chronic), and like Karla, it has kept me out of a a lot of ministry opportunities, but it also has opened up others.
All told, I think I have to say I have been blessed with CH. I look at my wife with MS, and my mom with Parkinsons, and Christopher with cancer, and I think I am quite lucky. Besides, had I not found this place while looking for some answers I would have missed out on you people.
good thinker, Jonny.
jc
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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