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Topic: Norwegian Medical Professionals Stunned! (Read 754 times) |
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The mad viking
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Norwegian Medical Professionals Stunned!
« on: Aug 27th, 2004, 6:17pm » |
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Fellow Sufferers and Supporters:
Good news abounds from this side of the pond. As you probably know, I was invited to speak at the annual Polarmed [ http://www.polarmed.no ]conference held in Sandefjord Norway on Wednesday, August 25th. I am pleased to provide this information as proof that CH education and interest ranks high among the medical community.
In attendance were approximately 265 medical professionals including Neurologists, GP’s and nursing personnel. Being invited by Polarmed, I had a choice of whom I would be representing as I spoke, O.U.C.H., or the Norwegian HA Society. I chose to represent O.U.C.H., and wore an older-version of our O.U.C.H. t-shirt. I must state right off, that I was absolutely taken aback when I received a standing ovation from such a distinguished group.
My participation consisted of several trips to the podium, where, amazingly I was able to capture the hearts and minds of all in attendance. Of course, I was not alone, standing in front of these medical professionals. I owe a lot to Chuck and Justin for providing me with a video of Chuck going through a CH attack. That, in and of itself, would have been enough information for the group. Some of these professionals had to leave the auditorium during the video and stated to me, in private conversation afterwards, that they walked out because they could not watch anyone in such extreme pain. The Professor of the Headache Center of Norway has requested permission to utilize the video of Chuck as a training tool in their curriculum for up and coming Neurologists.
I related my own, personal story of what this disability has meant in my life and the impact it has had on family, friends and relationships far and wide. Talking about what a Godsend Oxygen has been, raised eyebrows and many questions later in the day. You see, none of these professionals realized how much 02 helps our sanity and existence. After providing my personal history and Chuck’s video, I had the opportunity to speak privately with the ‘guru of CH’ in Norway. His comment, “you just blew away my upcoming speech”. In short, he felt he could not top what I had just presented.
The next item that simply blew the crowd away was the presentation of C.H.A.T.S. A direct quote from the head of Polarmed, “we have been searching for just such a tool for years”. I went prepared, and handed out 12 CD’s with the C.H.A.T.S. presentation. Once again, the Professor of the Norway HA Center was ‘blown away’, and requested a CD of C.H.A.T.S. He will be providing feedback from a medical professional perspective.
There were a lot of private conversations during our breaks in the agenda, and since Polarmed is in the 02 field, most of these centered on our usage of oxygen. One technician related a story of an individual going through a 30-litre 02 tank per day. His question….”what’s up with that”, “Why ‘so’ much 02”? I explained that I too, would have no problem using such a quantity if the Beast is in major attack mode.
Due to the overpowering presentations [Chuck’s hit, my personal story and C.H.A.T.S.], I have been invited to speak at upcoming events in Denmark and Sweden. I will provide specific dates of these events as soon as I receive formal invitations via snail mail.
In closing, I would once again like to extend thanks to Chuck and Justin for the powerful video of a CH attack. I truly believe that the opportunity to educate the medical field of our debilitating disease exists on a broad level. The secret is getting in front of the proper individual(s) to get on an event agenda.
Sincerely,
Svenn Thørn
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vig
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Re: Norwegian Medical Professionals Stunned!
« Reply #1 on: Aug 27th, 2004, 6:19pm » |
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FANTASTIC!
Thanks to all of you, Svenn, CHuck, and Justin!
Thanks also to Dan and Grant....
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| « Last Edit: Aug 27th, 2004, 7:13pm by vig » |
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Jonny
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Re: Norwegian Medical Professionals Stunned!
« Reply #2 on: Aug 27th, 2004, 6:23pm » |
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ROCK-N-ROOOOOLLLL!!!!
You are the man, Svenn......good for you brother!
.........................jonny
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IndianaJohn
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Re: Norwegian Medical Professionals Stunned!
« Reply #3 on: Aug 27th, 2004, 6:24pm » |
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That's great news!!!!
Thanks from the other side of the pond for making such an outstanding presentation.
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Did my brains fall out or is this headache over?
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Mark C
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Re: Norwegian Medical Professionals Stunned!
« Reply #4 on: Aug 27th, 2004, 6:24pm » |
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FANTASTIC!
Thank you very much!
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Lizzie2
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Re: Norwegian Medical Professionals Stunned!
« Reply #5 on: Aug 27th, 2004, 6:27pm » |
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Svenn,
Thank you again so much for all that you do. That is AMAZING, and I'm so excited to hear it!!!!!!!!!
Hugz,
Lizzie 
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Root
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Re: Norwegian Medical Professionals Stunned!
« Reply #6 on: Aug 27th, 2004, 6:28pm » |
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YOU are just too cool for school Svenn 
Thank you.
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Mac
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Re: Norwegian Medical Professionals Stunned!
« Reply #7 on: Aug 27th, 2004, 6:29pm » |
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Awesome Svenn.Thanks to you CHuck and Justin. Is that a pinpoint of light I see at the end of the tunnel?
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purpleydog
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Re: Norwegian Medical Professionals Stunned!
« Reply #8 on: Aug 27th, 2004, 6:31pm » |
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That's great, Svenn! Fantastic!
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Woobie
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Re: Norwegian Medical Professionals Stunned!
« Reply #9 on: Aug 27th, 2004, 6:32pm » |
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Hate to say it.........
But NEENER NEENER NEENER !!
I TOLD YOU! 
Good Job Svenn!!!!
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Karla
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Re: Norwegian Medical Professionals Stunned!
« Reply #10 on: Aug 27th, 2004, 6:42pm » |
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Thanks Svenn for having the courage to go forward and make this presentation. It is obvious that you did your homework well. God Speed brother as you move on to other conferences and conventions.
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Karla
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firebrix
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Re: Norwegian Medical Professionals Stunned!
« Reply #11 on: Aug 27th, 2004, 6:46pm » |
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If I can't use Brikki Language, words fail me!!
AWESOME job you did there Svenn!!
Big Thank Yous to Chuck and Justin.
This is real progress!!
firebrix
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Redd
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Re: Norwegian Medical Professionals Stunned!
« Reply #12 on: Aug 27th, 2004, 6:49pm » |
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Two words my dear Sven
Thank you!!! 
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Carl_D
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Re: Norwegian Medical Professionals Stunned!
« Reply #13 on: Aug 27th, 2004, 6:53pm » |
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Very awesome Svenn!
Can't put it quite into words but, thanks for representing all of us there.
Thanks to Chuck, for allowing himself to be filmed at such a vulnerable moment.
Peace,
Carl D
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KingOfPain
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Re: Norwegian Medical Professionals Stunned!
« Reply #14 on: Aug 27th, 2004, 6:54pm » |
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Svenn,
Thank you for all your hard work & dedication.
Thank you also to all those that helped Svenn
in this presentation.
You, my friend, are the tops.
Way To F'n Go!
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Jeepgun
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Re: Norwegian Medical Professionals Stunned!
« Reply #15 on: Aug 27th, 2004, 7:11pm » |
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*tears...* Svenn.... Thank you! Thank you! Thank you!
I am overwhelmed with gratitude for what you've done, Svenn, for Chuck volunteering to be filmed, for Justin making this documentary, for the C.H.A.T.S. program and what it potentially means to/for all of us, to the physicians who were so receptive and compassionate... *more tears...*
Damn...
Thank you. Thank you...
-Frank
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Simon
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Re: Norwegian Medical Professionals Stunned!
« Reply #16 on: Aug 27th, 2004, 7:38pm » |
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'nuff said.
S
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Kevin_M
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Re: Norwegian Medical Professionals Stunned!
« Reply #17 on: Aug 27th, 2004, 8:06pm » |
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Svenn,
I just knew you would relay just the BEST presentation to these doctors. As a sufferer and advocate for the cause you put together a most memorable dipiction of clusters that put the pain and suffering in their laps. Chuck's portion of the presentation would have bothered me very much too. Thank you Chuck and Jason too, for the adequate depicting of clusters.
With the CHATS presentation also, that puts the best tool for them to use at their fingertips soon. All very important and A GIANT LEAP FOR CLUSTERS. Wow!
Thank you Svenn, thank you!
Kevin M
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Cerberus
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Re: Norwegian Medical Professionals Stunned!
« Reply #18 on: Aug 27th, 2004, 8:34pm » |
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He shoots....He SCORES! FUCKINEH!
Ramon
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Melissa
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Re: Norwegian Medical Professionals Stunned!
« Reply #19 on: Aug 27th, 2004, 8:39pm » |
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I could not get past the 3rd paragraph without tearing up....
Svenn, this means more to me than you know. Both you and Dan and everyone who has helped with C.H.A.T.S. have lifted my heart and my hopes to a new level. Words cannot describe what I'm feeling right now.
Thank you,
mel
I'm sorry, in all my emotions I forgot to thank Chuck for forgoing isolation for the greater good and to Justin for being there to film the horror we all go through.
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| « Last Edit: Aug 27th, 2004, 9:06pm by Melissa » |
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Gator
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Re: Norwegian Medical Professionals Stunned!
« Reply #20 on: Aug 27th, 2004, 8:56pm » |
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I gotta tell you, Svenn. I had total confidence in you, but this is way beyond any expectations. You rock, dude.
A big thanks goes to Chuck and Justin and all who worked on the C.H.A.T.S. program and anyone else that was involved.
Keep up the good work, everyone.
Gator
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broomhilda
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Re: Norwegian Medical Professionals Stunned!
« Reply #21 on: Aug 27th, 2004, 9:03pm » |
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Svenn, thank you from the bottom of my heart!!!
Thanks to all of you, Svenn we knew you could do it!
Awesome!
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Suck it up Princess...
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Charlie
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Re: Norwegian Medical Professionals Stunned!
« Reply #22 on: Aug 27th, 2004, 9:11pm » |
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Fantastic Svenn. Great job and good for you and the videos. I knew you could do it. 
That you put up with my nonsense is hard to believe.
You're scary my friend.
Charlie
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floridian
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Am I suprised that you stunned them? Suprised that they were wowed by your carefully developed presentation? Suprised that a video of Chuck getting hit impressed them? Suprised that CHATS was recognized as just what the doctor ordered? Nah. Lots of great work went into your presentation. I am very glad to hear about it, but not at all suprised. Thanks to all that contributed to the effort, especially Svenn.
Flott hjá þér, Svenn!!
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kissmyglass
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Re: Norwegian Medical Professionals Stunned!
« Reply #24 on: Aug 27th, 2004, 10:00pm » |
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WoW!! Awesome Svenn!! You are getting a standing ovation from me too.....
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