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Topic: In cycle? Out of cycle? (Read 296 times) |
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don
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My neuro asked me today "Are you in cycle or out of cycle"? I said "I dunno".
"I no longer have nighttime attacks and the ussual triggers are not triggering......but....if I take a nap it's a guaranteed hit. So I ask you.....Am I in cycle or out of cycle"?
He says "I dunno".
I left with an Rx for 20 imitrex injections with 2 refills. His reasoning? In case I need a lot of naps.
Gotta love this guy.
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Lobster
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Re: In cycle? Out of cycle?
« Reply #1 on: Aug 24th, 2004, 12:26pm » |
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In.
No shit... in the middle of my last episode I was slapped in the middle of any daytime nap also. Straaange. 
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IndianaJohn
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Re: In cycle? Out of cycle?
« Reply #2 on: Aug 24th, 2004, 12:35pm » |
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This may sound strange. I almost always get this "pressure" in my head when a cycle is about to start or I'm in cycle. I can't explain it any other way. But I always know. It's when the a cycle is ending that I have trouble know if it's over or not.
And I always stockpile my trex!
John
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Did my brains fall out or is this headache over?
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k9n8
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Re: In cycle? Out of cycle?
« Reply #3 on: Aug 24th, 2004, 1:00pm » |
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I almost always get this "pressure" in my head when a cycle is about to start or I'm in cycle.
That is what I refer to as a shadow. I dont know if that is the same as what other people refer to, but this pressure, and feeling of impending doom (learned) is always present when in the middle of a cycle.
k9n8
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IndianaJohn
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Re: In cycle? Out of cycle?
« Reply #4 on: Aug 24th, 2004, 1:11pm » |
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I tend to differentiate between shadows and the pressure. I can have the pressure and be in no pain. The shadows are like a low level headache. Almost like a tension headache, sometimes like a little CH...
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Did my brains fall out or is this headache over?
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Carl_D
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Re: In cycle? Out of cycle?
« Reply #5 on: Aug 24th, 2004, 1:36pm » |
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In cycle since February of 1998.
Sometimes I wonder if this will ever end.
Carl D
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Melissa
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Re: In cycle? Out of cycle?
« Reply #6 on: Aug 24th, 2004, 2:46pm » |
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Out of cycle here. I am expecting to get back into cycle approx. 1 year from now.
 mel
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echo
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Re: In cycle? Out of cycle?
« Reply #7 on: Aug 24th, 2004, 3:20pm » |
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In
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Jeepgun
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Re: In cycle? Out of cycle?
« Reply #8 on: Aug 24th, 2004, 4:45pm » |
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I get that same pressure sensation, but it's not the same as a shadow at all. Autumn has traditionally been the time that I go into cycle, but last year, it skipped and I got hit with a cycle last spring instead, so this autumn, I'm not sure what to expect. All quiet on the western front, for the moment...
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Mark C
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Re: In cycle? Out of cycle?
« Reply #9 on: Aug 24th, 2004, 5:00pm » |
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Hell I don't know either....on about a three days cycle of heavy shadows followed by three days of no shadows....still no meds needed so I ain't complaining.
After 30 years of this $hit I still cannot figure this thing out... 
Not complaining....yet...Mark
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Cerberus
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Re: In cycle? Out of cycle?
« Reply #10 on: Aug 24th, 2004, 5:05pm » |
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Good Question...
I went to my GP after a similar anomaly...got meds re-scripted...reported today to the neuro, her advice? Start the Verapamil now....great.  methinks I will wait another month....yeah I know...stupid, but I havent had a "Cycle" even really begin. I know the idea is preventative measures, but man I take so much crap already that I cant tell if its my med regimen triggering or if its a fluke and I REALLY dont want to add to the confusion with Verap and Adderal and Remeron and Alprazolam and and and and and already coursing through my system...makes me just wanna tell the beast to either hit me or get the fuck out.....DAMMIT! 
Ramon
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IndianaJohn
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Re: In cycle? Out of cycle?
« Reply #11 on: Aug 24th, 2004, 5:11pm » |
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I would agree to be cautious with the verap. My GP told me the same thing and it wound up not working this cycle...I would definately wait...
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crazy_mj
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Re: In cycle? Out of cycle?
« Reply #12 on: Aug 24th, 2004, 5:16pm » |
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I HAVE AN INNIE!!!
I know pretty lame.
ANYWAY....
I am in cycle but on a break...but the shadows are forewarning of impending doom!!!
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BobG
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Re: In cycle? Out of cycle?
« Reply #13 on: Aug 24th, 2004, 7:55pm » |
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hey don
Stay stressed. Never relax. Never sleep. Ever.
and don't nap! Ever.
Doesn't anybody ever listen to me? 
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Stay stressed. Never relax. Never sleep. Ever.
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Kris_in_SJ
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Re: In cycle? Out of cycle?
« Reply #14 on: Aug 24th, 2004, 8:47pm » |
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Ditto to BobG. Still in - don't nap!
Hugs,
Kris
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Sean_C
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Re: In cycle? Out of cycle?
« Reply #15 on: Aug 24th, 2004, 9:06pm » |
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I'm with the rest of them Don, if you get hit your still in the cycle but its hopefully on the slide.
I have to tell ya, Lieberman is awesome, you picked a winner 
Sean..................
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athos
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Re: In cycle? Out of cycle?
« Reply #16 on: Aug 24th, 2004, 11:57pm » |
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perpetually in cycle... unless you every 4/5 days break
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Mastifflvr28
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Re: In cycle? Out of cycle?
« Reply #17 on: Aug 25th, 2004, 1:40am » |
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Number 2 pain in the ass about this disease (number 1 would be PAIN) is that I have to give up my nappies when in cycle. I really love my nappies.
Like BobG says...never take nappies.
Oh wait...I'm female...I don't get clusters...NM
Mast
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BarbaraD
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Re: In cycle? Out of cycle?
« Reply #18 on: Aug 25th, 2004, 7:41am » |
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You take naps?????? That's a guarantee for me to get hit so I quit taking them years ago....
Just started back on topamax and hope to heck it works again ..... (fingers crossed). Been off it since last Oct. I could use a break right about now......
Hope you don't need the trex.....
Hugs BD
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Lobster
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Re: In cycle? Out of cycle?
« Reply #19 on: Aug 25th, 2004, 8:07am » |
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on Aug 24th, 2004, 12:26pm, Rock_Lobster wrote:
Oh... I am not in. Just saying that IMO Don is in. If I have had a CH in the last few weeks, I would consider myself in.
I have been out-of-cycle since I shroomed a few months ago. Shrooms seem to be the reset button for my hypothalathingy.
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Leesa
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Re: In cycle? Out of cycle?
« Reply #20 on: Aug 25th, 2004, 4:07pm » |
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I would bet my last dime your still in. Hope you dont need the Trex babe.
Now STFU Don!! BTW...........U suck.............
Love ya anyway, Leesa 
PS: Dave NEVER naps hes got to be REALLY sick if he does. Leaves the nappin to me. HEHHEEE 
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don
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Re: In cycle? Out of cycle?
« Reply #21 on: Aug 25th, 2004, 9:34pm » |
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Ree
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Re: In cycle? Out of cycle?
« Reply #22 on: Aug 25th, 2004, 9:40pm » |
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To me Don as long as you are getting hit you are in CYCLE......... sorry dude... better days ahead just believe and it will end..........love ree
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don
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Re: In cycle? Out of cycle?
« Reply #23 on: Aug 25th, 2004, 9:49pm » |
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Thanks Ree. I'm not sweating it. I've taken Bob's advise and have been riding the MBTA for 103 hours straight.
Cant get anymore stressed than that! Just keep riding till the cycle ends.
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| « Last Edit: Aug 25th, 2004, 9:50pm by don » |
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Ree
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Re: In cycle? Out of cycle?
« Reply #24 on: Aug 26th, 2004, 12:23am » |
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LOL Don.......Keep on riding!
 Maybe some Irishman will write a song about you... YOU'LL BE THE MAN WHO NEVER RETURNED.........Poor old Donny..........oh sorry I think they already wrote that song......... hopefully it will be over soon. When Daves cycle ends they space out and he gets less attacks per day too maybe this is a good sign......... ok tell me to STFU........... optimistic ree
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