Author |
Topic: Officially chronic (Read 203 times) |
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender: 
Posts: 10429
|
 |
Officially chronic
« on: Aug 15th, 2004, 8:08am » |
 Quote  Modify
|
Hi guys,
the last time I was writing, I was on my way to see the neurologist. She confirmed that my episodic CH has turned into chronic. I got huge dose of maxalt for the pain and verpamil & verpamil for the prevention. I hope this combo works!!!
Best wishes to all,
sandie99
|
|
 IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
synergy2120
New Board Junior
There is a rainbow out there somewhere...... ..
Gender:
Posts: 84
|
|
Re: Officially chronic
« Reply #1 on: Aug 15th, 2004, 8:14am » |
Quote Modify
|
Sorry to hear that sandie, my partner is chronic.
sebding happy and PF vibes your way sweetie!!!
luv sarah xx
|
|
IP Logged |
|
|
|
no-one
New Board Hall of Famer
aude sapere cogito ergo disce pati
  
Gender:
Posts: 508
|
|
Re: Officially chronic
« Reply #2 on: Aug 15th, 2004, 9:04am » |
Quote Modify
|
(((( Sandie ))))
I am sorry to hear that you are now chroic. I pray that the meds do the job for you. Don't forget you are not alone, we are here for you.
Hugs
Bec
|
|
IP Logged |
"Be who you are and say what you feel...Because those that matter....don't mind....And those that mind....don't matter."
Man is what he believes. Anton Chekhov
Unless you believe, you will not understand.
|
|
|
UN_SOLVED
New Board Hall of Famer
I need a fully-automatic Imitrex injector !!
 
Gender: 
Posts: 733
|
|
Re: Officially chronic
« Reply #3 on: Aug 15th, 2004, 9:19am » |
Quote Modify
|
Sorry to hear.
That sux. You've been going for a year without much of a break heh ? I know how you feel.
Hope better days are coming for you !
Best wishes,
Unsolved
|
|
IP Logged |
I'm STILL alive ?
|
|
|
alleyoop
New Board Hall of Famer
Wake me up when it's all over.
Gender:
Posts: 1143
|
|
Re: Officially chronic
« Reply #4 on: Aug 15th, 2004, 9:34am » |
Quote Modify
|
Sorry to hear your diagnosis, Sandie. Seems like everytime you turn around, there's a new chronic. Be interesting to see how many of us there are now. Maybe we could start a CCH Club, elect UNSOLVED president! 
Seriously, it's not a fun row to hoe. Hope you get relief soon!
.........................................alley 
|
|
IP Logged |
I know that the Good Lord won't put any more on you than you can stand, but sometimes I wish He weren't quite so PROUD of ME!
|
|
|
farmboy
New Board Veteran
In Cycle and in Pain
Posts: 197
|
|
Re: Officially chronic
« Reply #5 on: Aug 15th, 2004, 10:10am » |
Quote Modify
|
sorry to hear that you have went chronic. sure hope the meds do their job and give you some relief.
vibes to you
|
|
IP Logged |
|
|
|
Jonny
Guest
|
Verapamil & Verapamil is one hell of a combo
Good luck
.............................jonny
|
|
IP Logged |
|
|
|
Jayne
CH.com Alumnus
New Board Hall of Famer
Pull my finger!
Gender:
Posts: 1460
|
|
Re: Officially chronic
« Reply #7 on: Aug 15th, 2004, 10:48am » |
Quote Modify
|
sorry to welcome you to the chronic club Sandie 
I hope you make a turnaround.
|
|
IP Logged |
If you haven't laughed today, it's been a wasted day. 
|
|
|
Prense
CH.com Alumnus
New Board Hall of Famer
Kerry is an idiot!
Gender:
Posts: 1607
|
|
Re: Officially chronic
« Reply #8 on: Aug 15th, 2004, 10:50am » |
Quote Modify
|
on Aug 15th, 2004, 10:45am, Jonny wrote:Verapamil & Verapamil is one hell of a combo
Good luck
.............................jonny |
|
It is...
|
|
IP Logged |
Where does the white go in a snowman when the snow melts?
|
|
|
IndianaJohn
New Board Hall of Famer
Into the jaws of the Beast we ride!
Gender:
Posts: 643
|
|
Re: Officially chronic
« Reply #9 on: Aug 15th, 2004, 11:31am » |
Quote Modify
|
So sorry to hear of your diagnosis. We're hear for you if you need us....
Best Wishes!
|
|
IP Logged |
Did my brains fall out or is this headache over?
|
|
|
don
Guest
|
I'll save a seat in the episodic box for you.
Hopefully you'll be able to reclaim it.
|
|
IP Logged |
|
|
|
Jonny
Guest
|
on Aug 15th, 2004, 11:42am, don wrote:I'll save a seat in the episodic box for you.
Hopefully you'll be able to reclaim it. |
|
Sorry dude, I just filled that seat, but.....she can sit on my lap
............................jonny
|
|
IP Logged |
|
|
|
don
Guest
|
Folding chairs.
I got folding chairs.
|
|
IP Logged |
|
|
|
miapet
New Board Hall of Famer
what doesn't kill me makes me stronger
Gender:
Posts: 676
|
|
Re: Officially chronic
« Reply #13 on: Aug 15th, 2004, 12:21pm » |
Quote Modify
|
Sorry to hear your diagnosis . . . hope you're able to kick the beast to the curb soon.
*positive light and energy*
miapet
|
|
IP Logged |
Clusterbusters Rock
www.clusterbusters.com
|
|
|
Karla
CH.com Alumnus
New Board Hall of Famer
One of Many and Never Alone - Join OUCH
Gender:
Posts: 3090
|
|
Re: Officially chronic
« Reply #14 on: Aug 15th, 2004, 1:15pm » |
Quote Modify
|
Well this chronic lady has been pain free for 22 weeks and is no longer chronic. Yeah. I am going to find a folding chair for me to sit on in the eposodics club house.
|
|
IP Logged |
Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
|
|
|
Mac
New Board Old Timer
Gender:
Posts: 303
|
|
Re: Officially chronic
« Reply #15 on: Aug 15th, 2004, 1:34pm » |
Quote Modify
|
Sorry to hear you've been diagnosed as chronic Sandie. I've been chronic for 4 years(6 or 7 hits a week) but I've only had one hit in the last 2 months! I don't know if that qualifies as "in remission" or not but there is hope. Hang in there.
pfdan glen
|
|
IP Logged |
"We hang the petty thieves and appoint the great ones to public office". - Aesop
portfolio http://www.artwanted.com/McDonall
http://www.clusterheadaches.ca
|
|
|
ClusterChuck
CH.com Alumnus
New Board Hall of Famer
The BEAST rises again, and again, and again, and .
Gender:
Posts: 3181
|
|
Re: Officially chronic
« Reply #16 on: Aug 15th, 2004, 2:50pm » |
Quote Modify
|
Sandy, it is not the worst news that there ever was. Remember our dear honorary clusterhead, Christopher.
There could be worst news.
There are plenty of us that survive with the handle of "chronic" ... It can be dealt with. Some have had that title for over twenty years. I have had it for over six years. We are still here. Don't let a title get you down. You are a clusterhead. Us clusterheads are tough. We will not let the beast get the best of us. We are stronger than he is.
Now forget about the word "chronic" and get on with living your life to the fullest. Life is too great to worry about a word.
Life is wonderful!
Chuck
|
|
IP Logged |
"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
|
|
|
kimmiedawn81
CH.com Alumnus
New Board Hall of Famer
Stuck in the middle with you!
Gender:
Posts: 1426
|
|
Re: Officially chronic
« Reply #17 on: Aug 15th, 2004, 7:43pm » |
Quote Modify
|
on Aug 15th, 2004, 11:47am, Jonny wrote:
Sorry dude, I just filled that seat, but.....she can sit on my lap
............................jonny |
|
I would gladly give up my seat for good!
|
| « Last Edit: Aug 15th, 2004, 7:45pm by kimmiedawn81 » |
IP Logged |
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
  
Gender:
Posts: 14968
|
|
Re: Officially chronic
« Reply #18 on: Aug 15th, 2004, 11:32pm » |
Quote Modify
|
Rats.
How I hate to read that another is added to the chronic list. It ain't fair.
Here's hoping your combo works.
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
Gator
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 4556
|
|
Re: Officially chronic
« Reply #19 on: Aug 16th, 2004, 1:36am » |
Quote Modify
|
Sorry to hear the news. Listen to Chuck, though. You're clusterhead tough and life's too important to worry about a word.
Hang in there.
Gator
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss