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Topic: Long Nite (Read 366 times) |
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kimh
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What don't kill ya makes ya stronger
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It's 5am. Hard hits began at 9pm last nite. Three total. Last one at 2am. Been shadow-boxing since - exhausted but sleep is out of the question. A glimpse in the mirror tells me Kim is still inside somewhere but behind a screen. Something else is there as well. Pretty soon Brian will wake and get ready for work. We will look at one another like a thousand times b4. No words. Just the exchanged silent grief. In a minute i'm going to try and take a shower, cuz i'm sweaty and stinky (oops i smiled - I'M STILL HERE GODAMIT   )
Thanks for being here and giving me a place to go at times like these***I know you ALL know the place that i am visiting.... 
PF wishes
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Carl_D
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You're not alone Kim.
I've had 10 hours sleep in the last um, 168 hours, or something like that. Coming out of a major panic attack right now from last sleep attempt.
This is starting to mess with me BIGTIME!.
Carl D
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E-Double
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Are we ourselves?
  
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Re: Long Nite
« Reply #2 on: Aug 4th, 2004, 6:52am » |
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Hang in there Kim!!
It seems that our friend is trying to take back my nights as well  not yet with a vengence but enough to be getting me nervous.
I haven't felt anxiety in a couple of weeks and now I'm a bit shaky.
Trying not to let it show to Joanna though (hope not being stupid but it seemed to have been passing)
I told ya before if ya need me even in the middle of the night I will try and it's no burden!!
Eric,
P.S.
You too Carl! I know I'm hundreds of miles away but ya got another clusterbud if needed!!!
Wish you all could get some rest and have Pain free nights!!!!
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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ExPat_jac
New Board Junior
air so thick it is it's own food group!!!
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Re: Long Nite
« Reply #3 on: Aug 4th, 2004, 7:05am » |
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Hang in there Kim....
Heck, I gave up sleep or any hopes of it years ago when I went chronic!
(lost a wife over it too...so..Brian, do the right thing...be there..nothing more )
think of it this way Kim....you get to see all the cool late nite TV....
You get to find what REALLY goes bump in the nite...
You get to see just how far you can go without sleep before things in the house start to move on ther own!
I've known acid heads thats paid good money for what we do as a normal course of getting by!!! 
I was finally able to go to bed last night myself at 5:30..only to wake back up at 6:30 to go offf to work...
CarlD..hang in there buddy...10 hours in the last 168 hours? Hey..you can still type! don't let the deamon win....
Look y'all...it's not easy...but we do it..one night at a time...sometimes hour by hour....
I've ben doing HEAVY lack of sleep since moving to this third world s^&t hole...damn..what *ever* made me go to the tropics!!! lol But look, if I can do it, so can you....
I'm 12 hours ahead of you....so that means if you drop me an e-mail...I'll get it when it's the next day for you
Sooo..if you're afraid you're not going to make it and are up at 0-Dark-30 drop me an email and I'll give you the lottery numbers for the next day
If nothing else...you know you'll not be disturbing my sleep!
Hang tuff!
PFN's for you.....
and as the Italians say...Golden Dreams!
ExPat_Jac
"livin and lying in 3/4 time...in Indonesia no less!"
"damn it's hot here!"
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| « Last Edit: Aug 4th, 2004, 7:07am by ExPat_jac » |
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OneEyeBlind
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Yea, I can do this
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Re: Long Nite
« Reply #4 on: Aug 4th, 2004, 7:23am » |
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Ah fluck, I hate it when the beast comes a knocking and ya don't stop rocking !!!!!!!!!
Hey Kimmers, I can hold yer hand for ya this weekend ! We'll pretend we are teeney boppers having an all nighter !
I wonder if stuff goes bump in the night on Lake Canederago ..... holy crap, we might see the Lock Ness Monster or something !
Hang tough everyone ........... sending good vibes your way !
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One cannot step twice in the same river, for fresh waters are forever flowing around us.
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Jeepgun
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Hang in there, Kim... Fucking cluster demon... Break your foot off in his ass!
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ShariRae
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Re: Long Nite
« Reply #6 on: Aug 4th, 2004, 8:43am » |
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Hang tough kim.. try to grab lil 10 minute naps when ya can.. just dont let em go to long..anything is better than nothing...
Huggs
Shari
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Only two defining forces have ever offered to die for you,
Jesus Christ and the American Soldier.
One died for your soul, the other for your freedom.
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Kevin_M
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withered branches grow green again.
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Re: Long Nite
« Reply #7 on: Aug 4th, 2004, 8:46am » |
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Run this beast down your shower drain and get all purdy today. Rough battle, but you throw a good punch. Hope your scripts are all refilled nice today. Take care Rockem Sockem.
Kevin M
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jhammer
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This is pure AGONY!!!
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Re: Long Nite
« Reply #8 on: Aug 4th, 2004, 7:03pm » |
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Hang in there Kim. I know you can do it, your a tough Long Island chick right 
~Jake
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IndianaJohn
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Into the jaws of the Beast we ride!
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Re: Long Nite
« Reply #9 on: Aug 4th, 2004, 7:08pm » |
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Hang tough Kim, we're all pulling for you!
Expat_jac, what you wrote was hilarious and so true!
Sleep? WTF is that?
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Did my brains fall out or is this headache over?
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kimh
New Board Hall of Famer
What don't kill ya makes ya stronger
Posts: 764
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Re: Long Nite
« Reply #10 on: Aug 4th, 2004, 7:41pm » |
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Ya'll sure know how ta make a bitch smile
Sniff (more like plug one nostril and SNIFFASHARDTHENBLOWASHARD as i can) lol. Okey dokey. Doin ok here (i look a gargoyle). Remember One Flew Over The KooKoo's Nest? Danny DeVito walkin around mumbling "tired"....."tired"........"tired".........i totally relate lol.
SO. Still waitin on the o2 (insurance co. "reviewing"
Hopefully have it resolved soon.
.....................................  ...................forgot what i was gonna say..................................................................... .................................................................oh yeah, .............."tired" lol.
Keep shiny side up*****
Teletubbies beach towel is in place (wrapped around my neck like snoopy's scarf); peas are chillin, i got cable tv, and one maxalt that my mother screamed her bloody head off and was granted by the petrified pharmacist. .................I suppose i should send him a thank you note.
I can't believe we've never met and cut a good fart together.
Hello?......... Where'd everbody go? lol
Cheers lovies and well wishes*****
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Leesa
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Re: Long Nite
« Reply #11 on: Aug 4th, 2004, 7:54pm » |
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Kim, darlin IT WILL END...........keep the peas chillin and do what ever you need to do gal!! Keep us posted and TRY to get some much needed sleep!! Dont kill me I said TRY ya know.
Sending up PF vibes for ya, Leesa
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"The truth of the matter is that you always know the right thing to do. The hard part is doing it." General H. Norman Schwarzkopf
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maria9
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Posts: 145
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Re: Long Nite
« Reply #12 on: Aug 4th, 2004, 8:10pm » |
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Hey Kim, here are some of my suggestions:
Natural remedies that have been helpful to some:
400 mg per day of Vit B2 (riboflavin)
400-1000 mg of magnesium (slow release is better and the side effect of diarrhea helps combat the constipating side effect of Vera)
9 mg of melatonin before bedtime
Another drug to consider:
I would take a cafergot before bedtime and it would help to cut down on the nightly nasties, but of course you know you can't mix this with the other triptans.
One other thought:
If you are taking any over the counter pain relievers, avoid tylenol, aspirin, and advil as they are thought to cause rebound headaches. Naproxen sodium (Aleve) is less likely to cause rebounds. The Vioxx drugs are also worth exploring.
One additional thought:
Shrooms may be another avenue to explore. These can be taken while on Vera, but you would have to go off the triptans 5 days before dosing. Possible side effects of the shrooms - a giggly experience and hopefully an end to your cycle.
Good luck!
Marsha
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"All you have to do is the best you can. A high wave comes, a crashing wave comes, a gentle swell follows. Whatever comes, stay in your boat. And enjoy the ride. And row." Peggy Noonan
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kimh
New Board Hall of Famer
What don't kill ya makes ya stronger
Posts: 764
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Re: Long Nite
« Reply #13 on: Aug 4th, 2004, 8:25pm » |
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Hey Maria,
spoke to neuro for about the billionth time today. He revised my shopping list:
Microplex - 1 2x daily
Magnesium Citrate (calcium) 400 mg
b2 riboflavin 400 mg
feverfew 380 mg 1 3x daily
And the pills keep PILING up Gheeeeez! Looks like my parents house around here. Pills everywhere.
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Gator
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Re: Long Nite
« Reply #14 on: Aug 4th, 2004, 9:24pm » |
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on Aug 4th, 2004, 8:43am, ShariRae wrote:Hang tough kim.. try to grab lil 10 minute naps when ya can.. just dont let em go to long..anything is better than nothing...
Huggs
Shari |
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You're actually not too far off the mark there. It's been shown in studies that a 20 minute nap (some call them Power Naps) can be as effective as several hours of sleep. Any more or less, though can leave a person feeling worse than if they hadn't tried. I've tried this when I was doing consulting work and traveling all over the country.
Hang in there Kim. The beast will get tired of you eventually.
Gator
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don
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Quote:| Teletubbies beach towel is in place (wrapped around my neck like snoopy's scarf); peas are chillin, i got cable tv, |
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A picture. please please please a pic.
And by all means, freeze those peas and plop them on your noggin.
Can you use imitrex, verapamil, lithium? Why all the other stuff?
Quote:Microplex - 1 2x daily
Magnesium Citrate (calcium) 400 mg
b2 riboflavin 400 mg
feverfew 380 mg 1 3x daily
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Freeze da peaze!
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maria9
New Board Veteran
Posts: 145
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Re: Long Nite
« Reply #16 on: Aug 4th, 2004, 10:23pm » |
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Hey Kim,
hang in there, I can relate to the early morning exchanges with your spouse. The last cycle, last spring, every morning my spouse would say to me, "how many?" I knew what he was asking, I know that he knew how many times I was out of the bed sucking on the O2. Many times I was up out of bed with a CH even before he got into bed. This too shall pass, keep that in mind.
Marsha
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"All you have to do is the best you can. A high wave comes, a crashing wave comes, a gentle swell follows. Whatever comes, stay in your boat. And enjoy the ride. And row." Peggy Noonan
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Carl_D
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on Aug 4th, 2004, 8:25pm, kimh wrote:
Microplex - 1 2x daily
Magnesium Citrate (calcium) 400 mg
b2 riboflavin 400 mg
feverfew 380 mg 1 3x daily
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Kim,
I've tried Feverfew with no success whatsoever. In fact, it might have made things worse for me. Go ahead and give it a try though, and I hope this latest cocktail will help.
Peace,
Carl D
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Peppermint
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Work it out baby!
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Re: Long Nite
« Reply #18 on: Aug 4th, 2004, 10:56pm » |
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hey footy... 
I'll be there come hell or highwater tomorrow.....oh PLEASE check your email.
Forget about the monopoly until whenever..... I know you.
Love ya - Poopsi
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You like apples? How ya like them apples?
When playing in the gym, beware of steel beams. - M. Amyx
Carve your name on hearts, and not on marble. - Charles H. Spurgeon
FYI - I am NOT a clusterhead.
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ClusterChuck
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The BEAST rises again, and again, and again, and .
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Re: Long Nite
« Reply #19 on: Aug 4th, 2004, 11:48pm » |
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Kim, a trick I use, I get a pillow and lay down to sleep on the floor. I sleep, but I don't sleep as deep, so I don't get hit as bad. Maybe, because I am not that comfortable, I don't actually get to REM sleep stage (where the beast usually hits) and that is what makes it better.
It is not as nice a sleep as it is in your nice comfy bed, cuddling to your honey, (whom you might have just had a lil nookie with) but it IS some sleep. Also, because it is a light sleep, when the beast comes to call, I wake up faster, and I am not into the hit as far, and the O2 has a better chance of working.
Sumptin woit tryin' ..
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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Sean_C
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Vibes comin' to ya Kim..............
Sean...........
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lionsound
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breathe
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Re: Long Nite
« Reply #21 on: Aug 5th, 2004, 8:26am » |
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Kim, I know that look.
My heart goes out to both of you.
-lionsound
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farmboy
New Board Veteran
In Cycle and in Pain
Posts: 197
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Re: Long Nite
« Reply #22 on: Aug 5th, 2004, 8:34am » |
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hang in there kim. sleep what is that? when in cycle sleep is like gold.
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Killroy 2.0
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Kilroy 2.0 is Here! Kilroy 2.0 is Everywhere!
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Re: Long Nite
« Reply #23 on: Aug 5th, 2004, 9:21am » |
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Hang in there sister
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Do the walls speak to you? Do you follow the Geek Messiah? DO YOU COMPLY?!
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Charlie M
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laugh and the world laughs with you
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Re: Long Nite
« Reply #24 on: Aug 5th, 2004, 9:38am » |
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vibes going out to you. hope the day is better. i'v tried anything i can think of, meds, o2, excercise, showers, etc. just no your not alone, we all share your pain. my prayers are with you
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IN ORDER TO ENJOY THE SUN WE HAVE TO EXPERENCE THE RAIN
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