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Topic: New Effort At An Interview/Article (Read 438 times) |
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Jeepgun
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New Effort At An Interview/Article
« on: Jul 30th, 2004, 3:03pm » |
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I just finished firing off the following letter to my local newspaper. Hopefully, some good will come of it...
_____________________________________________
To Whom It May Concern;
I was interviewed for the following article that appeared in
the Pittsburgh Post Gazette. http://www.post-gazette.com/pg/04160/328352.stm
I don't know whether you would be interested in doing an article on cluster headaches, but if so, I would be glad to participate. One of the most hellish aspects of cluster headaches, is that they affect only .1% of the population, and physicians, neurologists, ENT doctors, and emergency room personnel are woefully uninformed about these headaches which have been characterized in medical journals as "suicide headaches." There is also a link at the bottom of this message that will take you to a site on cluster headaches, where you may read some accounts of what these headaches are like. These aren't "Uncle John's, migraines," or "Aunt Bessie's tension headaches." Cluster headaches have been classified as the worst pain known to mankind.
If you are interested in doing an article about cluster headaches, I may be reached on the weekend and during the evenings at ***-****, or during the day at ***-****.
Thank you for your consideration.
Sincerely,
-Frank H. Weeden
(Cluster headache sufferer for 7 years)
--
Cluster Headache Sufferers Support:
http://clusterheadaches.com/ (page down to the text in red that reads, "Want to know what it's like to live with cluster headaches?" )
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| « Last Edit: Jul 30th, 2004, 4:16pm by Jeepgun » |
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UN_SOLVED
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Re: New Effort At An Interview/Article
« Reply #1 on: Jul 30th, 2004, 4:13pm » |
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I'd be interested in seeing if and how they respond.
Let us know.
Keep fighting the fight !
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Jeepgun
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Re: New Effort At An Interview/Article
« Reply #2 on: Jul 30th, 2004, 4:15pm » |
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Right on, man. I live in a little one-horse town with a crappy little newspaper, but some good may come out of it. We'll see... Thanks!
Frank
[O|||||O]
JEEP
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purpleydog
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Re: New Effort At An Interview/Article
« Reply #3 on: Jul 31st, 2004, 8:36pm » |
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on Jul 30th, 2004, 4:15pm, Jeepgun wrote:Right on, man. I live in a little one-horse town with a crappy little newspaper, but some good may come out of it. We'll see... Thanks!
Frank
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Why don't you fire it off to a newspaper in Nashville too? You'd get more exposure and may possibly be picked up by other news services.
pd
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john_d
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Re: New Effort At An Interview/Article
« Reply #4 on: Jul 31st, 2004, 8:53pm » |
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That is the first time I have seen that article, it is excellent.  Good job.
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Carl_D
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Re: New Effort At An Interview/Article
« Reply #5 on: Jul 31st, 2004, 9:05pm » |
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on Jul 31st, 2004, 8:36pm, purpleydog wrote:
Why don't you fire it off to a newspaper in Nashville too? You'd get more exposure and may possibly be picked up by other news services.
pd
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ESPECIALLY since we just had the CH Convention there. Mention that.
CD
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RevDeFord
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Pain is real if the neighbors know you have it!
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Re: New Effort At An Interview/Article
« Reply #6 on: Aug 1st, 2004, 8:57am » |
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Absolutely Awesome article. I wrote her a letter thanking her.
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kimh
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Re: New Effort At An Interview/Article
« Reply #7 on: Aug 1st, 2004, 9:52am » |
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Frank,
Great interview! Reading stuff like this gives a great sense of hope***
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Jeepgun
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Re: New Effort At An Interview/Article
« Reply #8 on: Aug 1st, 2004, 12:16pm » |
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Thanks! I just sent a copy to Paige Orr at the Nashville Post, as well, and mentioned the convention. http://www.nashvillepost.com
Sooner or later, someone is going to pick this up and run with it.
Frank
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JEEP
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Jeepgun
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Re: New Effort At An Interview/Article
« Reply #9 on: Aug 2nd, 2004, 11:15am » |
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Just got off the phone with Paige Orr, who was so kind, and gave me some leads to some other newspapers. Apparently, hers is a business publication, but I'm now at the Tennessean's website, and I have another lead with The City Paper, so cross your fingers...
*rowing and rowing and rowing and rowing and...*
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| « Last Edit: Aug 2nd, 2004, 11:15am by Jeepgun » |
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Jeepgun
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Re: New Effort At An Interview/Article
« Reply #10 on: Aug 3rd, 2004, 9:42am » |
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What the hell does it take to get any kind of reply from anyone? Grrrrr.... 
I just sent off another copy of my letter to someone at "The City Paper." I'm still trying to find an email address for someone at the "Tennessean."
If this doesn't work, then maybe I'll try the outlying areas like Murfreesboro, Antioch, etc.
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Jayne
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Re: New Effort At An Interview/Article
« Reply #11 on: Aug 3rd, 2004, 10:05am » |
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I talked to the medical reporter at the Tennessean and I emailed him a BUNCH of info, but to no avail it seems.
I also told him about the convention and sent him info about our speakers, and I told him about the news segment. I am sorry Frank but I cant remember the Wally's name.
If you type in the word clusterheadaches in thier search engine...nothing/
I know they did a huge article years ago about botox curing cluster headaches and migraines. I sent the article to BobP when it happened. The guy they interviewed was Joe Catoe I believe. I tracked him down and called him, and he was indeed getting relief from botox. They were injecting him in the base of his neck. The doctors office he was seeing here in Nashville
\gave me no help and wouldn't give me a script for o2.
I hope this info helps you a bit.
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Jeepgun
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Re: New Effort At An Interview/Article
« Reply #12 on: Aug 3rd, 2004, 10:09am » |
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Thank you, Jayne. You rock! I just don't understand the reluctance of newspapers to do a story on this. I mean, the story practically writes itself, and from a journalistic standpoint, it's intriguing, dramatic, and something that the readership would have an interest in. If I were a journalist, I would be all over this like stink on.... er.... I would write an article on it. 
In any case, I have a hell of a lot of tenacity, so I'm going to keep plugging away at it. Sooner or later, someone will write an article, and then someone else, and then someone else, and little by little, like the snowball that starts an avalanche, the word IS going to get out.
Thanks again.
-Frank
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Little Deb
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Re: New Effort At An Interview/Article
« Reply #13 on: Aug 3rd, 2004, 10:03pm » |
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You go JEEP!!
Can I nominate Jeep for something???????????????
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ClusterChuck
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Re: New Effort At An Interview/Article
« Reply #14 on: Aug 3rd, 2004, 10:08pm » |
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He is jes trying ta get HIS picture in the paper this time, instead of that scrufty ass bumm they had in the original story!
Luv ya Franky baby !!!
Chuck
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Thomas Fuller
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don
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Re: New Effort At An Interview/Article
« Reply #15 on: Aug 3rd, 2004, 10:33pm » |
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Quote:| I just don't understand the reluctance of newspapers to do a story on this |
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You already answered your own question.
Quote:| is that they affect only .1% of the population |
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I wouldn't include that little tidbit in the next communication.
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| « Last Edit: Aug 3rd, 2004, 10:34pm by don » |
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TxBasslady
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Re: New Effort At An Interview/Article
« Reply #16 on: Aug 3rd, 2004, 11:19pm » |
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Look at the medical community......lots of them have never heard of CH either !
Education is a given. Your idea is good, but unless you can find a news reporter, or someone in the media business, who has CH, then the response may be less than desired.
I am not suggesting that you give up, Frank. Try and be patient.....we have CH and we know what it's like. You will eventually find someone with a voice.
Jean
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Turts
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Re: New Effort At An Interview/Article
« Reply #17 on: Aug 3rd, 2004, 11:37pm » |
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Quote:If you are interested in doing an article about cluster headaches, I may be reached on the weekend and during the evenings at ***-****, or during the day at ***-****.
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Gday Jeepgun,
I tried to contact you on both numbers above and there was no answer at either one!!! lol
Great work mate. Really trying to give that OUCH mission statement about educating the masses a hammering,
GO GET 'EM!!!
Turts
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'I'm very brave generally,' he went on in a low voice: 'only today I happen to have a headache.' (Lewis Carroll)
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Ree
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Re: New Effort At An Interview/Article
« Reply #18 on: Aug 4th, 2004, 12:22am » |
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VERY COOL.........JEEP ~~~ REE
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Jeepgun
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Re: New Effort At An Interview/Article
« Reply #19 on: Aug 4th, 2004, 8:51am » |
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Thanks for the encouragement and the suggestions. I appreciate it. Turts, the reason you couldn't get through is because you have one of those weird Aussie phones, and the electrons in the lines "swirl" the wrong way.  
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| « Last Edit: Aug 4th, 2004, 8:54am by Jeepgun » |
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Turts
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Re: New Effort At An Interview/Article
« Reply #20 on: Aug 4th, 2004, 8:59am » |
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Quote:| Turts, the reason you couldn't get through is because you have one of those weird Aussie phones |
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Phone??? I was using a baked bean can and some string!!! whats a phone???? sounds like a sexual aid!!!
Turts lol
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'I'm very brave generally,' he went on in a low voice: 'only today I happen to have a headache.' (Lewis Carroll)
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Jeepgun
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Re: New Effort At An Interview/Article
« Reply #21 on: Aug 4th, 2004, 9:01am » |
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LMAO!! That must have been one hella-LONG piece of string! 
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Turts
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Re: New Effort At An Interview/Article
« Reply #22 on: Aug 4th, 2004, 9:08am » |
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I sent my mate out in a dinghy to hold the string out of the water!!!
He should be on his way back by now, its been three days!!
Turts
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'I'm very brave generally,' he went on in a low voice: 'only today I happen to have a headache.' (Lewis Carroll)
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Jeepgun
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Re: New Effort At An Interview/Article
« Reply #23 on: Aug 4th, 2004, 9:12am » |
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Jeez... What is he, some kind of slow swimmer? Man, I thought you Aussies were TOUGH!! Actually, he's probably out playing around with the sharks, taming them, and turning them into the equivalent of sea-going kitty cats. LOL
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| « Last Edit: Aug 4th, 2004, 9:42am by Jeepgun » |
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Turts
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Re: New Effort At An Interview/Article
« Reply #24 on: Aug 4th, 2004, 9:20am » |
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I have read that only humans and dolphins engage in sex purely for physical pleasure!!!
enough said.
Thats and he stopped off for some duty free shopping!!!
Turts
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'I'm very brave generally,' he went on in a low voice: 'only today I happen to have a headache.' (Lewis Carroll)
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