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Topic: Long post .. but they made me promise ... (Read 671 times) |
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Dave_Emond
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Long post .. but they made me promise ...
« on: Jul 30th, 2004, 6:46am » |
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Hey my friends!
Okay, I know I promised so many of you I'd update you on my tests results from my doctors right away. But I thought it best to hold off until we settled issues over at OUCH. I did not want my response to possibly influence anyone for sympathy reasons. I'm not looking for sympathy now either, just keeping a promise.
So, here's the situation:
I walk into my Doctors office and we exchange quick greetings, he then asks me if I've been feeling weakness lately. Of course I said, Yes, quite a bit." He said, That's what I would have expected." Now I've been preparing myself mentally for some time now as to how I would take whatever news came my way, all I wanted was an answer. I got it. 
Seems my immune system is indeed failing. This is due to the improper dosage and taper schedule of the Prednisone prescription my last doctor gave me. Too high, too long, too quick a taper and no follow up tests even after several trips back complaining of different symptoms than the "normal" side effects of the Pred. In fact, kept going back over the last 8 months and another ER trip in-between. That still wasn't enough to "warrant any symptoms that I needed further tests." At one point I was told, "to go home and just learn to live with it and see what happens." I got copies of all my medical records they had on me and went to Denver to find a new doc. Now have both an Endocrinologist and a Osteopathic Doctor testing and examining me. One doc after looking at records said, "I'd be thinking lawsuit." I was surprised to hear this from another doctor! (Course now they may never be able to determine what was wrong with me originally. Or maybe is still there.)
So anyway, what does this mean as far as my suppressed immune system? First of course is a high white blood count. Next comes Rampant Yeast Infection, didn't even know men could have yeast problems before.  Was told yeast was found in my stool cultures and that was a bad sign. This alone can continue to spread and destroy glands and organs. (Already my hands and feet are starting to waste away.) Tried a very high dosage of Diflucan, that was supposed to stop any yeast infection, but it didn't touch it. This is because the Pred shut down my thyroid and adrenal glands. Hormones are not reacting and are moving throughout my body destroying other hormones and eventually gland after gland. Being honest with me they said they think they may be able to stop it before it becomes fatal, but could not guarantee it. We're starting with an extremely high dosage of the strongest thyroid medication available, to try to keep it working. Also, doctors orders ... no stress. With my adrenal glands not working properly, should I find myself in an extremely stressful situation, it could instantly throw my body into shock and drop me right there as the adrenaline wouldn't kick in naturally and cause a chain reaction of shut downs of glands. Fortunately I don't stress much. Annette worries though as I tend to come across situations often that require that extra adrenaline.
... yep ... of course there's more ... what'yda expect? 
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Obstacles are those frightful things we see when we take our minds off our goals.
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Mark C
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Re: Long post .. but they made me promise ...
« Reply #1 on: Jul 30th, 2004, 6:50am » |
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Prayers and good vibes to you brother...you are a strong man....I have seen it with my own eyes.....take care of yourself and let me know if you need anything....we are family you know.
Your Clusterbud,
Mark
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Carl_D
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Re: Long post .. but they made me promise ...
« Reply #2 on: Jul 30th, 2004, 6:58am » |
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HOLY SHIT!
I'm sorry to hear that Dave. Seems the meds they try to cure us with are only killing us quicker.
Sending you all the vibes and energies I can muster up.
Keep us posted. And DON'T STRESS! It will work itself out fine with OUCH.
I really don't want to see you resign your position, but if it comes between your health and you, Don't sacrifice yourself.
Pulling for ya bigtime,
Carl D
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Dave_Emond
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Re: Long post .. but they made me promise ...
« Reply #3 on: Jul 30th, 2004, 7:02am » |
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I can't stand by, a car flips upside down and crushes the roof, I squeeze in the window, cut the hanging man down from his seat belt and drag him out. Come across another flipped convertible, as others lift, I pull the driver out, blood pouring out his ears and fighting. I wrap him in my service blanket to stop shock and have to hold him down to keep him from reopening wounds as quick as I could stop the bleeding. (Got put on report for misappropriation of government property for that ... go figure!  ) Many ... many circumstances like these or worse, I just happen to come across. Annette knows that and is afraid for me to go anywhere now ... even WalMart!  Had
Ultrasound done on my abdomen yesterday, will find out Monday what shape organs are in.
Some good news though ... remember all of you to who I complained that they first had me eating nothing but fruit and vegetables and I hate veggies? No more! When doctor said I could not eat these anymore, I was like Raymond when the doc ordered him to play more golf. I told my doc I'd need a note for that because Annette would never buy it!  He did!
Now though, I've got to take these horse pills that are vegetables and fruit with all the things that could be harmful to me now taken out. Oh well, after biting into raw Cauliflower, they don't seem so bad. So the status as of now ... oh wait ... this blew me away! My doc said to me, "Well you are a Chronic Cluster Headache sufferer, you're pain tolerance is so high, that if it wasn't ... you couldn't stand the pain. You wouldn't walk or even sit. And that you can feel this pain while between Clusters, I'd hate to think what it really would feel like to someone else." A Doctor who understood Clusters! I think I'm at the right place!  Okay, let's wrap this up. Status as of now is they think they may have caught it in time, but I should expect many months of pain and weakness and to be careful of depression. Still no guarantees, but have to think positive no matter how bad it gets, again, Doctors orders. Should be fun ahead ... so Mr. Happy ... I know you said, "I'm 25 words or less in person, but turn into Tolstoy at the keyboard!" Look out now, cause there ain't much more I can do these days!
One last note and I'll let you all go rest your eyes. If it weren't for BobW and then back up from Cat, I'd have never known about these tests that were supposed to be done. Had I not changed doc's on your advice, I probably wouldn't be here now. Thanks so much for the "head up!" (Course now others are going to beat ya with sticks for my long posts now.) Got Annette, my family and my extended family here, so life ain't all bad!
That's it for now,
Dave 
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Obstacles are those frightful things we see when we take our minds off our goals.
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Dave_Emond
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Re: Long post .. but they made me promise ...
« Reply #4 on: Jul 30th, 2004, 7:05am » |
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Thanks guys, ain't going anywhere away from OUCH, in fact, it gives me someting to do that I enjoy ... well ... most of the time!
Thanks,
Dave
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Obstacles are those frightful things we see when we take our minds off our goals.
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Jimmy_B
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Re: Long post .. but they made me promise ...
« Reply #5 on: Jul 30th, 2004, 7:45am » |
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That's the spirit, man...keep fighting, never let em see you sweat...& you'll beat this thing.
Good luck & vibes....
Jimmy
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Jeepgun
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Re: Long post .. but they made me promise ...
« Reply #6 on: Jul 30th, 2004, 8:20am » |
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Dave, my prayers and thoughts are with you. It sounds like you've found a fabulous doctor. Keep up the good fight!
-Frank
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ShariRae
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Re: Long post .. but they made me promise ...
« Reply #7 on: Jul 30th, 2004, 8:23am » |
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Prayers & vibes to both you & Annette....try to stay strong....
Huggs
Shari
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BruceD
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Re: Long post .. but they made me promise ...
« Reply #8 on: Jul 30th, 2004, 8:55am » |
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Dave,
I'll keep you & Annette in my prayers. I showed your posts to Lisa & she has certainly seen her share of supressed immune systems in the ICU at work (transplant hospital). She also smiled at your yeast infection comment ... not that you having one is funny, but that she's heard that same thing many times before. Before you even finished the statement, she was thinking that Diflucan probably wouldn't be sufficient. There's several (really powerful) meds that are given IV to take care of these nasties, but they do require monitoring of your renal system. Yours is a tough situation to be in, but I do know one thing ... clusterheads are tougher.
Again, I'm pullin' for ya' man and if you have any questions for Lisa feel free to shout.
Take care
BruceD
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Gator
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Re: Long post .. but they made me promise ...
« Reply #9 on: Jul 30th, 2004, 8:56am » |
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Damn man, what can I say but that I am praying for your recovery. Sorry you're having such a seriously bad time, but am glad someone pointed you in the right direction to get help. Sounds like you have a really good doc now.
If a DOCTOR says you should be thinking lawsuit, then I don't know if I would argue. I am one who is very much disgusted with the litigious nature of today's society so take that for what it is worth.
All my best to you from one novelist to another
Mike aka Gator
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Little Deb
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Re: Long post .. but they made me promise ...
« Reply #10 on: Jul 30th, 2004, 9:11am » |
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Dave, you and Annette will be in my prayers. You listen to her now....stay away from stuff you don't need to be in...you will get your chance to save the world later. It is time to take care of you. Sounds like you have a positive attitude and that is the right attitude. You have strength, and alot of love pulling for you. You will be fine. Please read my thread on "Stuggle".
Big Hugs to ya.................Little Deb
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Elaine
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Re: Long post .. but they made me promise ...
« Reply #11 on: Jul 30th, 2004, 9:27am » |
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Thanks for keeping your promise! You know you are in my prayers.
Love ya
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Jayne
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Re: Long post .. but they made me promise ...
« Reply #13 on: Jul 30th, 2004, 9:47am » |
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Dave, you are an incredible person. I am just so glad that one of your stresses is gone.
Just take it easy and do everything your doc tells you too,,including suing that quack that did this to you.
If you ever need anything, you just shout and you know there are so many people here, including myself that will do anything they can for you.
(((((((((((((((((((((((((DAVE)))))))))))))))))))
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Pinkfloyd
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Re: Long post .. but they made me promise ...
« Reply #14 on: Jul 30th, 2004, 10:03am » |
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Thanks for the update Dave.
If much of what you've been through lately wasn't stressful, you're sicker than I thought brother!!
You're "fight or flight" instinct must be stuck in "analyze and remain calm" mode. Research shows that once you've contracted this heightened enlightenment, you're stuck with it. Hopefully it's contagious.
All the best to you and yours and I'll be looking for improved health with each future update.
PF
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ozzy
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Re: Long post .. but they made me promise ...
« Reply #15 on: Jul 30th, 2004, 10:09am » |
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Dave,
Those that know me, really know that I don't *do* prayers or vibes. My prayers are all with you and Annette. You my friend have shown more character and strength than any human being I know. You take your pain and health situations the way I can only dream to be. You are to be commended and emulated.
In case all of this praise is building up an ego, don't worry about it, enjoy it. If Annette is anything like Sandy, she will surely gently bring you down to earth, and gently remind you that those are the qualities she saw in you when she married you.
Take care my friend and yell if you need anything.
Ozzy
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Turts
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Re: Long post .. but they made me promise ...
« Reply #16 on: Jul 30th, 2004, 12:22pm » |
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Long posts arent bad if they are worthy posts. Thanks for the update Dave.
All I got from it really was:
vegies in a pill cool
Wishing you all the best.
Turts
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Ree
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Re: Long post .. but they made me promise ...
« Reply #17 on: Jul 30th, 2004, 1:17pm » |
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Hey Dave~~~ Feel better brother... and ain't yeast a pain in the ass~~~literally........ we love you and are praying for you. Hopefully the damage from the pred will be reversed for you... believe sometimes thats all we need to do... love ree
ps Hi Annette......... chin up!
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Roxy
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Re: Long post .. but they made me promise ...
« Reply #18 on: Jul 30th, 2004, 1:37pm » |
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Dave,
Thanks for posting this. You know how much we all care.
My thoughts and prayers go out to you and Annette. You are a strong man, and I know you can whip this, given time. Listen to your wife...lol....and behave. Just keep fighting and keep the positive attitude....our vibes for you won't stop.
No stress.....ROTFLMAO.....keep it cool and chill. Everyone here will help you out as much as possible.
Now, go get yourself a good lawyer and let him handle things....takes the stress off of you..... .
Hugs,
Tracey
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The mad viking
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Re: Long post .. but they made me promise ...
« Reply #19 on: Jul 30th, 2004, 2:13pm » |
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Hi Dave
im in loss of words here so i choose the easy way here and just copy what Roxy said.
Just dont have the words to express what i feel now
Take Care
Svenn
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Leesa
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Re: Long post .. but they made me promise ...
« Reply #20 on: Jul 30th, 2004, 2:26pm » |
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Dave, thanks for the update. We are all here pullin for ya so if you and Annette need anything let us know and you will have it! BTW..........LAW SUITE comes to mind..........HEHEHEHEE Give'em hell man!!
Leesa
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Re: Long post .. but they made me promise ...
« Reply #21 on: Jul 30th, 2004, 4:02pm » |
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damn....does no one ever get a break ?
Our best to you and Annette may healing come to you both soon.
Gotta hand it to ya Dave...you have more endurance than I do...I would been done and gone by now hearing all of that from my docs. The stress of having heard it would have done me in.
Hopin for the best
Ramon
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Charlie
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Re: Long post .. but they made me promise ...
« Reply #22 on: Jul 30th, 2004, 5:53pm » |
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Thanks Dave but sorry you have all this to deal with.
As I've posted so many times: How about one friggin thing at time? 
The important thing is too take care of first things first. We'll always be here to give you a hard time when warranted.
All my thoughts and vibes.
Charlie
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Re: Long post .. but they made me promise ...
« Reply #23 on: Jul 30th, 2004, 7:02pm » |
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DAMN Dave ---
I dont know what to say!
please check your PMs !!!!!!
tina
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Jackie
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Re: Long post .. but they made me promise ...
« Reply #24 on: Jul 30th, 2004, 7:15pm » |
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Bless your heart, Dave.
You're gonna win this one......you and Annette together....
Yep...that's what I'm saying.
Love to you both,
Jacks
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