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Topic: New Kid in Town (Read 377 times) |
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TomM
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New Kid in Town
« on: Jul 29th, 2004, 12:11pm » |
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There's a new kid in town. He transferred from a another department (legal assistant) @ my firm to my office (I.T.) a month ago. Super fellow. Quiet at times but very freindly. I worry that the more he gets to know me the less he will like me...naw...that's not possible. 
Anywho...he told me yesterday he's a clusterhead! I shared this site with him and sent him a ton of info. He said he registered here but I do not know his login name. Out of respect for his privacy I will not reveal his name so we'll just call him TomM's I.T. Cluster Newbie.
Please welcome TomM's I.T. Cluster Newbie
Thanks.
TomM
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"Everyone should believe in something. I believe I'll go fishing."
--Thoreau--
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thomas
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Welcome aboard 
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Jeepgun
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Welcome to the headbanger's ball! BYOR: Bring Your Own Restraints. 
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| « Last Edit: Jul 29th, 2004, 1:03pm by Jeepgun » |
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ExplodingEyeBall
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I can't think of anything clever to put here.
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Re: New Kid in Town
« Reply #3 on: Jul 29th, 2004, 12:22pm » |
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Another Computer Geek Cluster Head???
Welcome!!!
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Just poke out my eye and get it over with!!!
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Gator
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Re: New Kid in Town
« Reply #4 on: Jul 29th, 2004, 12:25pm » |
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Welcome to our little corner of the net, TomM's I.T. Cluster Newbie! Make your presence known so we can abuse you properly. j/k
Gator
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ShariRae
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Re: New Kid in Town
« Reply #5 on: Jul 29th, 2004, 1:01pm » |
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Welcome...sit down & join us 
Shari
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Only two defining forces have ever offered to die for you,
Jesus Christ and the American Soldier.
One died for your soul, the other for your freedom.
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pschmidt
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I love YaBB 1G - SP1!
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Re: New Kid in Town
« Reply #6 on: Jul 29th, 2004, 3:58pm » |
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Hey all, thanks for the warm welcome.
And Tom, 870 posts? Get back to work. 
Seriously, I'm glad Tom turned me onto this place. I'm still learning all the lingo, but I guess I'm an episodic sufferer. I get these headaches for about 6 weeks every 3 years on the nose.
I'm headed to the doctor tomorrow to get som sort of treatment going this go- round; maybe you all could offer some advice.
I've been diagnosed with cluster headaches by two seperate doctors. How can I be absolutely sure the diagnosis is correct? CAT scan, MRI? I would think that if I'm only getting these once every three years, it's pretty safe to assume that they are, indeed, cluster headaches. However, when I asked around on another site, I got these responses, which definitely make me second guess both myself and the doctors.
damn dude.
what does your doctor say?
not trying to be a downer, but ever since my friend Kevin died of burst aneurysms early last year at age 32, I take my headaches so much more seriously now. he had a really bad headache that he tried to ignore, which quickly escalated.
please get checked out if you can.
get a cat scan.
sounds like you're having a blood flow issue.
what you've described is what killed a classmate of mine in highschool.
any problem with your vision out of either eye as this is going on?
Hey, thanks for the reassurance guys! I'll be sure to keep that bloodflow issue in mind tonight at 1am 
Secondly, the last time i was in my cycle I took Amerge. I think it has more of a Placebo effect than anything else. When I visit the doctor tomorrow, do you all have any advice as to what I should request? Tom seems to have had luck with Imitrex, and I'd like to give that a shot.
Damn, sorry for the longwinded post. I just want to get all of my ducks in a line for tomorrow.
Thanks again Tom and everyone else.
Pat
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The harder they come, the harder they fall; one and all.
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Big Dan
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SMASH BRAIN!
 
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Re: New Kid in Town
« Reply #8 on: Jul 29th, 2004, 4:02pm » |
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Hi, Pat!
-Big Dan
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Not going anywhere for a while?...
... Grab a Snickers, Fatass.
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Superpain
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Re: New Kid in Town
« Reply #9 on: Jul 29th, 2004, 4:10pm » |
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My mom had an anyeurysm rupture. You'd be dead...
What kind of site did you get all that advice on?
The most popular/effective meds for the majority of people are...
Preventatives; Prednisone taper while starting verapamil, 2nd choices, topomax or depakote...
Abortives; OXYGEN! Imitrex injections or NS, zomig NS.
Other abortives include frova, amerge, replax and a few others. They are all "triptans".
A majority of us prefer O2 and imitrex injections though.
Zomig runs a close second.
Whatever you do, be sure and get a script for O2 with a regulator that can go up to 15 lpm!
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Chris
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Jeepgun
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Well, your doctor may send you to a neurologist and order an MRI and CAT Scan, just to rule out any possibility of an opthalmic nerve tumor, aneurism, or brain tumor. Go with the flow on this, because it keeps both you and your doctor on the safe side.
Secondly, print out the medical link on the lefthand side on this site, and then using a Hi-Lighter, mark your specific symptoms. When you see your doctor, let him have the paper. This will not only give him a very specific idea of what you have, but treatment options and how CH treatment differs from what is effective in treating migraines.
Very best wishes to you, and may you remain pain-free.
Frank
[O|||||O]
JEEP
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Jonny
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Oh great!!...another dude with shit for brains
Welcome, shit for brains.....LOL
......................................jonny
Edit:...To yell at Tom.....Where the hell ya been fuckin fishin?....Jeez
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| « Last Edit: Jul 29th, 2004, 4:45pm by jonny » |
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Gator
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Re: New Kid in Town
« Reply #12 on: Jul 29th, 2004, 5:22pm » |
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Welcome to the family, Pat. Sorry you have a reason to be here, but really glad you are. This place is a wealth of knowledge and support. A lot of people come and go and come back as their cycles start up again. Some stick around and provide continuity and help even when out of cycle.
Aside from the reading assignments that have been provided already, here is one on the different Abortive, Transitional and Preventative treatments as well as some Surgical Alternatives that Superpain found a while back:
http://www.future-drugs.com/admin/articlefile/ERN020304.pdf
Print that out and take it to your doc as well.
Now that you're here, don't be a stranger.
Gator
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BlueMeanie
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Welcome Pat.
I can understand why you got responses from other sites that don't have a clue about Cluster Headaches. Most people always say it's either NOT that bad or you're dying.
Looks like you've been doing your homework. 02 is the safest way to go. Make sure you get the correct info from the menu on the left of this page.
PFDAN to ya.
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KingOfPain
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Disgusted!
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Re: New Kid in Town
« Reply #14 on: Jul 29th, 2004, 5:46pm » |
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pschmidt,
Glad you found Clusterville.
Edit: Thanks TomM!
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| « Last Edit: Jul 29th, 2004, 5:46pm by KingOfPain » |
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Arrived August, 1999.
We swallow greedily any lie that flatters us, but we sip only little by little at a truth we find bitter.
- Denis Diderot
Real friendship is shown in times of trouble; prosperity is full of friends. - Euripides
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thomas
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Dude, if you had luck with amerge, don't switch to imitrex. If you can't get amerge again, see about zomig.
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Charlie
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Re: New Kid in Town
« Reply #16 on: Jul 29th, 2004, 5:59pm » |
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Welcome to the madhouse. New blood is always welcome here. Some of the others are old farts.
If you have clusters, rest easy... at least between attacks. Clusters will not kill you. They don't cause any permanent damage. That's the only decent thing about this horror.
One way to test for clusters is: Do they wake you out of a sound sleep? Are they so painful that you can't sit still? Do they scarce the living shit out of you? You cannot lie down or rest durinig a cluster attack.
Good luck with the tests. Neurological tests are not painful but look like something out of a Vincent Price movie. They ARE incredibly boring.
Good luck and come back soon so we can further abuse you.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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pschmidt
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I love YaBB 1G - SP1!
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Re: New Kid in Town
« Reply #17 on: Jul 29th, 2004, 6:43pm » |
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Thanks again everyone for the welcome.
If I told you all where I asked the question that elicited those responses, you'd laugh me out of here. (It has to do with my one, expensive hobby)
Thomas: The thing is, I'm not sure I've had any luck with Amerge. It was prescribed to me three years ago during my last cycle.
Wednesday morning, I woke up at 1:12 am. I knew exactly what was happening. I had hoped in the past I would get these headaches again, but the minute I opened my eyes I realized that it was starting again. I immediately ran downstairs and rifled through the medicine cabinet to find the Amerge. I popped one 2.5mg tab and waited. The attack lasted almost exactly one and a half hours.
Thursday morning, 1:12am again (I wish I could wake up for work in such a timely manner ) This time I decided to ride it out. Again, it was just about the same length.
I am going to try it again tonight, this time with Amerge again, and see if there is any improvement. The headaches always get worse near the middle to end of the cycle, so I have a little time to experiment before I lose my mind.
Charlie: That sounds about right. I don't think I've ever been able to sleep through an attack. Once they are in full swing I definitely feel like I'm going to die.
Thank you all for the wonderful resource.
Pat
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The harder they come, the harder they fall; one and all.
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Jonny
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Pat,
Pills are pills.....go for the 02 man, imagine killing 90% of every headache just by breathing.
02-02-02-02!!!
Work on a prevenetive, but get that 02!
...............................jonny
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kissmyglass
CH.com Alumnus
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Don't Mix Triptans
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Re: New Kid in Town
« Reply #19 on: Jul 29th, 2004, 6:54pm » |
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Welcome! Sounds like you should get some Oxygen asap....for starters.
Good Luck!
Kev
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"It does so fucking look like her" - Picasso
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TomM
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Re: New Kid in Town
« Reply #20 on: Jul 29th, 2004, 6:55pm » |
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Pat--Yes indeed--welcome to the mad house. And you thought my office was bizzare. Wait until you get to know some of these folks!
Seriously, it's always good to know that there are people who care and many on this board will go out of thier way, beyond your wildest imagination, for you--including me.
Folks--I'm just getting to know Pat and he's a great guy. I thank yawl for your kind words to Pat and your encouragement.
Good luck @ the doctors tomorrow!
TomM
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| « Last Edit: Jul 29th, 2004, 7:03pm by TomM » |
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"Everyone should believe in something. I believe I'll go fishing."
--Thoreau--
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Jonny
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on Jul 29th, 2004, 6:55pm, TomM wrote:Pat--Yes indeed--welcome to the mad house. And you thought my office was bizzare. Wait until you get to know some of these folks!
Seriously, it's always good to know that there are people who care and many on this board will go out of thier way, beyond your wildest imagination, for you--including me.
Folks--I'm just getting to know Pat and he's a great guy. I thank yawl for you kind words and encouragement.
Good luck @ the doctors tomorrow!
TomM |
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Tom......You might have to explain me to him.....LMAO
....................................jonny
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pschmidt
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I love YaBB 1G - SP1!
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Re: New Kid in Town
« Reply #22 on: Jul 29th, 2004, 6:58pm » |
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On the O2; how do I approach my doctor (GP) about that? Outright ask?
hmm, I wonder if they will refill my N20 bottles with O2, sans sulphur?
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The harder they come, the harder they fall; one and all.
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TomM
New Board Hall of Famer
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Posts: 2006
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Re: New Kid in Town
« Reply #23 on: Jul 29th, 2004, 7:01pm » |
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on Jul 29th, 2004, 6:57pm, Jonny wrote:
Tom......You might have to explain me to him.....LMAO
....................................jonny
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Already done, Bro...I told him the truth...ALL of it!
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"Everyone should believe in something. I believe I'll go fishing."
--Thoreau--
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TomM
New Board Hall of Famer
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Posts: 2006
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Re: New Kid in Town
« Reply #24 on: Jul 29th, 2004, 7:03pm » |
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on Jul 29th, 2004, 6:58pm, pschmidt wrote:| On the O2; how do I approach my doctor (GP) about that? Outright ask? |
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Yup. You don't get what you don't ask for. Tell him/her you're read that it is a good abortive, which it is.
TomM
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"Everyone should believe in something. I believe I'll go fishing."
--Thoreau--
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