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Topic: Sufferers become supporters for the first time (Read 1025 times) |
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DJ
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Sufferers become supporters for the first time
« on: Jul 19th, 2004, 10:37pm » |
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A lot of sufferers experienced their first cluster attack from a supporter's point of view this weekend for the very first time.
I remember... way back in 1999... both Drummer and myself both experienced our first attacks as supporters. We both posted our stories of how much it affected us and thought I'd bring them back up again as they are so very fitting at the moment...
Drummer's post: http://www.clusterheadaches.com/wwwboard/messages/16987.html
My post: http://www.clusterheadaches.com/wwwboard/messages/19530.html
As hard as it is for a sufferer to see another sufferer go through an attack but I believe every sufferer NEEDS to experience it from the "other side". Once the initial impact of seeing someone go through what you've experienced for years finally sets in, the reality of just how wonderful the supporters in your every day life are! The husbands/wives/boyfriends/girlfriends/children/family/friends... Make it a point to go out of your way to give them a "thank you" and a great big hug. They deserve it!
-DJ
P.S. My ex-wife "Kelly" referred to in my post is not the same person as my friend "Kelli" that was with me this weekend. Just wanted to make that point clear... LOL
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| « Last Edit: Jul 19th, 2004, 10:42pm by DJ » |
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Jeepgun
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Re: Sufferers become supporters for the first time
« Reply #1 on: Jul 19th, 2004, 10:52pm » |
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*sobbing*
Thank you, DJ... I can never say that to you enough...
-Frank
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JDH
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Re: Sufferers become supporters for the first time
« Reply #2 on: Jul 19th, 2004, 10:55pm » |
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I agree DJ.
As hard as it is to witness it gives you an idea of what our supporters go through...I'm gonna go hug mine as soon as I log off 
Jim
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Great to see you again
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Carl_D
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Re: Sufferers become supporters for the first time
« Reply #3 on: Jul 19th, 2004, 11:16pm » |
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You are absolutely right DJ. Every sufferer DOES need to see it from the view of a supporter. It literally changed my life this weekend. On top of all that, I think many of us were also given many excellent examples of what it means to be a supporter and sufferer in people like Luke.
BTW, I really miss Drummer. Maybe one day he will come out of hibernation and post again.
Peace,
Carl D
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DaveHar
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Re: Sufferers become supporters for the first time
« Reply #4 on: Jul 19th, 2004, 11:18pm » |
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DJ, no truer words have ever been spoken. Seeing Chuck get hit was my very first exposure. Seeing Luke at his side to make sure he knew that there was someone there for him reminded me of how much Leesa has done for me.
Ramon and I racing back and forth from the hotel and the restraunt with O2 tanks to make sure he had what he needed, doing wind springs knowing that time is not on our side and that the longer we take the more Chuck had to suffer.
It made me realize how special and how very very lucky I am to have a person like Leesa at my side. I realize now more then ever how very lucky I am and how much more I love her.
DJ, thanks for starting this thread
Dave
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BobG
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Re: Sufferers become supporters for the first time
« Reply #5 on: Jul 19th, 2004, 11:20pm » |
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Thanks DJ. I remember both posts clearly. For the newer people here the 'drummer's garage' in Rochester tha DJ mentioned was the meeting place where OUCH first got started.
I can remember at the 2000 Vegas Convention a lady (Tami????) having to leave the room a couple of times. No one said a word, it wasn't necessary. Everyone knew what was happening and we couldn't do a damned thing to stop it. Really pissed me off that the lady couldn't be pain free for just one f*cking day.
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Racer1_NC
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Re: Sufferers become supporters for the first time
« Reply #6 on: Jul 19th, 2004, 11:24pm » |
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DJ is right......hug your supporter.....NOW!
For me....seeing someone else get hit is like looking in a mirror. Not sure how to put this but.....it's like somehow I "link" with that person, just for a second. I feel the emotion they feel, but not the pain. Make sense to anyone?
Damn....I hate this disease.
Bill
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TxBasslady
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Re: Sufferers become supporters for the first time
« Reply #7 on: Jul 19th, 2004, 11:31pm » |
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D.J.
Thanks and many, many hugs to you. 
You made this all possible. So many things would not exist had it not been for your desire to seek others who suffered as you did.
We are a family.....a family you created....a family I'm damn proud to be a part of.
Lots of love to all who suffer, and all who support.
Jean
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Redd
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Re: Sufferers become supporters for the first time
« Reply #8 on: Jul 19th, 2004, 11:41pm » |
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I'd hug mine but he's still driving his tired self home from Nashville... 
I never thought I'd ever be able to let someone "in close" during a biggie, since I've always had to go through them alone. Never wittnessed anyone experience this hell besides my own reflection till this weekend. It was an experience of overwhelming love for the brother or sister, and intence hatred directed at this demon who has invaded us all.
I Love each and every one of you!!!
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Big Dan
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Re: Sufferers become supporters for the first time
« Reply #9 on: Jul 19th, 2004, 11:48pm » |
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on Jul 19th, 2004, 11:24pm, Racer1_NC wrote:DJ is right......hug your supporter.....NOW!
Bill |
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.... to everyone at CH.com...
-Big Hug
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DJ
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Re: Sufferers become supporters for the first time
« Reply #10 on: Jul 20th, 2004, 12:15am » |
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on Jul 19th, 2004, 11:31pm, TxBasslady wrote:You made this all possible. So many things would not exist had it not been for your desire to seek others who suffered as you did.
We are a family.....a family you created....a family I'm damn proud to be a part of. |
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I'm just the one who provided the original, generic hull of a boat. All of you are the oars that make this boat "the family" it is!
Don't argue with me on this one damnit!
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Jimi
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Re: Sufferers become supporters for the first time
« Reply #11 on: Jul 20th, 2004, 12:26am » |
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Wipe your eyes off DJ and go to bed 
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TxBasslady
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Re: Sufferers become supporters for the first time
« Reply #12 on: Jul 20th, 2004, 12:35am » |
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D.J.............you're the one on the left....LMFAO
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How lucky I am... to have known someone who was so hard to say goodbye too.
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Big Dan
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Re: Sufferers become supporters for the first time
« Reply #13 on: Jul 20th, 2004, 12:39am » |
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on Jul 20th, 2004, 12:35am, TxBasslady wrote:
D.J.............you're the one on the left....LMFAO
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I dunno Jean... that guy on the left has a lot more threads on his grape...
-Big Forehead
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Re: Sufferers become supporters for the first time
« Reply #14 on: Jul 20th, 2004, 1:35am » |
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I reckon I told this to a few folks while we were there...but fer those who didnt get to hear it directly from my mouth...
" I am REAL good at suffering....but I aint good at all at watchin."
The intense feelings of helplessness for a supporter are
X-treme..so dont forget to recognise your supporters efforts to help.
Lucky for me I never outgrew my woobie.
Ramon
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Re: Sufferers become supporters for the first time
« Reply #15 on: Jul 20th, 2004, 3:36am » |
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I never have, I do and IO don't want to... If you know what I mean.
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BarbaraD
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Re: Sufferers become supporters for the first time
« Reply #16 on: Jul 20th, 2004, 5:45am » |
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Drummer's garage was an experience for all of us. I got there a day late, but that night I looked up and saw Kip's face and was totally shocked. It was the SAME face I'd seen in the mirror so many times. Then later, Elaine and the next night Drummer (I think I got off to myself before I got hit). But the odd thing about it was we "laughed" with each other afterwards.
Thank you DJ for reminding us of the "other side".
I think being a supporter SUCKS!!! Thanks to all of you brave people.
Hugs BD
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Jeepgun
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Re: Sufferers become supporters for the first time
« Reply #17 on: Jul 20th, 2004, 7:40am » |
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Last night, after reading this thread, I went downstairs and just hugged my wife long and hard, and thanked her for being my supporter. Until I saw Chuck getting hit, I never realized what a supporter goes through. I guess I sort of took it for granted... She still looked at me like I was from outer space: "OF COURSE I'm here, and OF COURSE I am supporting you!"  LOL..
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purpleydog
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Re: Sufferers become supporters for the first time
« Reply #18 on: Jul 20th, 2004, 7:40am » |
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on Jul 19th, 2004, 11:24pm, Racer1_NC wrote:
Not sure how to put this but.....it's like somehow I "link" with that person, just for a second. I feel the emotion they feel, but not the pain. Make sense to anyone?
Bill |
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Makes perfect sense to me, Bill. I understand exactly what you mean. 
pd
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Giovanni
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Re: Sufferers become supporters for the first time
« Reply #19 on: Jul 20th, 2004, 8:21am » |
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Seeing just one was very difficult. I now really appreciate my wife who has witnessed 10 years of these things. Thanks for everything DJ!
Regards,
John
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Kevin_M
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Re: Sufferers become supporters for the first time
« Reply #20 on: Jul 20th, 2004, 8:24am » |
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That was a very, very difficult sight to see when it is a friend and loved one. The pain so changes that smiling face we love to see, to cringing, clinging agony which they try to hold on with. It had an immediate emotional impact. And then to see their smiling face again afterwards.....makes you love them even more.
Kevin M
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| « Last Edit: Jul 20th, 2004, 8:26am by Kevin_M » |
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catlind
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Re: Sufferers become supporters for the first time
« Reply #21 on: Jul 20th, 2004, 8:48am » |
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It's called heart pain, and the person who explained it best for me did so from a supporters stand point, and until I had experienced the supporters side of the fence her post would not have meant nearly as much. I'll take the sufferers side of the fence anyday.
Thank you Jackie for the words that tell us how much our supporters hurt too.
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=supporters;a ction=display;num=1063832550
As supporters remember one thing though, yes it feels completely helpless, and no we can't take it away for any of our family here and our partners can't take it away for us, but they aren't helpless, they give us love.
Cat
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vig
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Re: Sufferers become supporters for the first time
« Reply #22 on: Jul 20th, 2004, 10:53am » |
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Try giving someone else a shot....
I muffed it up a bit as you can see!
Looks like a damn tattoo.
still sorry Pegg
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Re: Sufferers become supporters for the first time
« Reply #23 on: Jul 20th, 2004, 11:22am » |
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*crying*
Man.......
You're all truly amazing! I can't imagine what that must have felt like.
I try to thank my fiance' every day and it never seems like enough(to me) as I try to thank all of you (sincerely)who ever respond to my long posts of confusion or inquiry.
This is a group of people that I hope to someday meet and hug and laugh and cry with in person.
Despite being relatively new here you have all made me feel so very comfortable and have been godsends!!!
Eric
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Lizzie2
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Re: Sufferers become supporters for the first time
« Reply #24 on: Jul 20th, 2004, 11:34am » |
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Well I did not witness anyone else have an attack, although I saw many make the mad dash.
However, I felt what it was like to have someone be my supporter who truly understood. I really don't have a supporter because I don't live at home anymore, and I'm at school. I have a roommate, but that's kinda a different situation. Sooooo the support from this weekend actually has helped me, and will continue to help me for a long time.
To Big Dan, BillyJ, DJ, Mark, Luke, Donna, Tina, Ramon and I know other people were around with that oxygen incident, but I don't remember.  I'm sorry!! But thanks to all of you!!! Your support in anyway helped more than you can possibly know.
I'm now actively working to get oxygen set up for me to use in the lounge on the floor where I go for clinical days and also somewhere in one of the buildings close to my classes. We'll see how far I get with this!! Seeing and finally realizing how necessary this is has made a HUGE difference.
Thanks
Carrie/Lizzie2
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