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Topic: One Year and Counting......... (Read 223 times) |
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Tiannia
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Life does not apologies......
 
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One Year and Counting.........
« on: Jul 12th, 2004, 1:19am » |
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Well, it is official. It has been one year ago that I had my first dance with the Beast. And he made sure that I remembered it well today. Got a visit from him 4 times today (2 k7+) and I fully explect at least one more tonight.  We will see... I wont concider myself chronic. I have had a total of 3 breaks inthe past year. In Oct I got 12 days PF, and I got 4 days each end of Dec and end of Feb. But considering I have only finally been with a neuro for 2 months. So there is still losts to figure out and try and management. So I am still just a Clusterhead and dont know yet if my first cycle is just a long one or if in fact I am a chronic.
A refuse to consider this an anniversary, cause that should be something happy. So if you all dont mind, I wait 6 weeks and consider that my CH Anniversary cause that is when I found this board and posted that I was new to these and was very happy to have found some people who might be able to help me learn more about them and how to deal with them.
Cheers to many more years that I am a member of this wonderful family and thank you for all of your support.
-Tia
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| « Last Edit: Jul 12th, 2004, 1:47am by Tiannia » |
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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purpleydog
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Re: One Year and Counting.........
« Reply #1 on: Jul 12th, 2004, 1:38am » |
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Sorry you're getting hit Tia. Hopefully this is a temporary thing. 
purpleydog
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miapet
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what doesn't kill me makes me stronger
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Re: One Year and Counting.........
« Reply #2 on: Jul 12th, 2004, 2:13am » |
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sorry Tiannia . .we hope you get relief soon . . .
*positive light and energy*
miapet
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Clusterbusters Rock
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alleyoop
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Wake me up when it's all over.
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Re: One Year and Counting.........
« Reply #3 on: Jul 12th, 2004, 6:12am » |
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I, too am sorry you're getting hit Tia! I am also sorry you can't make Nashville. I would really like to meet you!
I hope I am wrong, but as a diagnosed chronic myself, you sure sound chronic to me.
Wishing and hoping that you are ECH.............
.............................................alley
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I know that the Good Lord won't put any more on you than you can stand, but sometimes I wish He weren't quite so PROUD of ME!
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don
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Re: One Year and Counting.........
« Reply #4 on: Jul 12th, 2004, 7:23am » |
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Chronic = less than 30 days pain free in the course of 1 year. You decide.
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Woobie
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Re: One Year and Counting.........
« Reply #5 on: Jul 12th, 2004, 8:05am » |
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Sorry T.
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Gator
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Re: One Year and Counting.........
« Reply #6 on: Jul 13th, 2004, 4:38am » |
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You can be whatever you want to be babe. I'm just sorry you're getting hit so hard. If'n you ever need to bend an ear, I'm here for you.
Gator
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Prense
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Re: One Year and Counting.........
« Reply #7 on: Jul 13th, 2004, 10:23am » |
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Hang in there Tia!
This time next week, I'll be unemployed. I have about 60 injections to last until I get a job and wait for what ever "preexisting" condition clause to expire from the potential new insurance. I'm losing my O2 this week. It's cheap enough to keep out of pocket, but it really wasn't working very effectively. I am back to no preventative meds, because they were not working.
Anyway, just letting you know things can always be worse.
Chris
*Edit* I need sympathy about as much as another attack. Please don't...
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| « Last Edit: Jul 13th, 2004, 10:23am by Prense » |
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Where does the white go in a snowman when the snow melts?
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Tiannia
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Life does not apologies......
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Re: One Year and Counting.........
« Reply #8 on: Jul 13th, 2004, 12:34pm » |
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on Jul 13th, 2004, 10:23am, Prense wrote:Hang in there Tia!
Anyway, just letting you know things can always be worse.
Chris
*Edit* I need sympathy about as much as another attack. Please don't... |
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No sympathy Chris... just understanding. It is why this board has helped. That I know that I can keep going no matter what.
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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broomhilda
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Ride it!
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Re: One Year and Counting.........
« Reply #9 on: Jul 13th, 2004, 12:46pm » |
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Tia, I am so sorry
Hugs 
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Suck it up Princess...
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Cerberus
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Re: One Year and Counting.........
« Reply #10 on: Jul 13th, 2004, 7:16pm » |
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Dang it gal....I Tried to get to ya when I was in Vegas....
Hope yer not chronic and hope this cycle ends for ya soon. 
Ramon
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I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
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Charlie
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Re: One Year and Counting.........
« Reply #11 on: Jul 13th, 2004, 7:29pm » |
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Rats.
Sorry about this but you sound like you're doing fine. Your coming here shows that.
Try to keep the beast on the run but don't catch him.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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cootie
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Re: One Year and Counting.........
« Reply #12 on: Jul 13th, 2004, 10:06pm » |
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Sorry Tia...hopein yer not chronic and it all goes away as fast as it came !!!
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Tiannia
New Board Hall of Famer
Life does not apologies......
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Re: One Year and Counting.........
« Reply #13 on: Jul 13th, 2004, 11:47pm » |
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on Jul 13th, 2004, 7:16pm, Cerberus wrote:Dang it gal....I Tried to get to ya when I was in Vegas....
Hope yer not chronic and hope this cycle ends for ya soon.
Ramon |
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Ramon I am so sorry - but I have to work and middle of the week is so hard. I will meet more people. I did enjoy at least talking to Tina. Make sure you send me pictures
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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