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psycofemale0403
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Anyone try Prednisone?
« on: Jul 8th, 2004, 11:59pm »
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I have found that NOTHING has worked to prevent or abort my hits.  SOOOOO.....  I go camping, and get some wierd ass mesquito bites on my hand, and have some kind of allergic reaction to them.  My hands swelled up and cracked... blah blah.. pretty nasty.  The Doctor gives me a prednisone pack a.k.a. steroids... The whole time I'm taking this I have NOOOOO headaches.  The day after I finish the "pack"  I get hit worse than ever.  So the Dr. gives me another pack. (which is about a week's worth)  Again, no headaches, untill I've finished them all. So I call her and beg her to give me more!  I'm taking them again now, and no hits.  The bad thing: I'm reading about prednisone, and it's super bad for your immunine system.  It takes like a year for your immunine system to recover.  It says on the bottle to avoid contact with people who have a contagious disease!  What the hell should I do?  I'm afraid I'm already getting addicted to them.  Oh and by they way, This shit makes you soooooooo hungry!  I can't eat enough to get full!  I'M TURNING INTO A FAT ASS! Please give me some advise, you guys know more than my freakin Dr.!  Thanx all!
 
Lisa
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Lobster
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Re: Anyone try Prednisone?
« Reply #1 on: Jul 9th, 2004, 12:03am »
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Yes... we have all done it.
 
Pred is a transitional... we take it until the long-term preventative of your choice (ie Topamax, Verapamil, Lithium) kicks in.
 
Do a find on pred.  Lotsa data on it.
 
Lobstah
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Re: Anyone try Prednisone?
« Reply #2 on: Jul 9th, 2004, 4:16am »
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Lisa
 
Do have a read around this site about prednisone/prednisolone, there's lots here, but check carefully as you already may be at the limit of the time recommended to take it (usually 2-3 weeks only). It is a short term treatment only, usually used while waiting for another preventive e.g. Verapimil to kick in or to 'break' a cycle.
 
Also VERY importantly you must taper off it, not just stop taking it and yes it can compromise your immune system (amongst other side effects)
 
Wendy
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don
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Re: Anyone try Prednisone?
« Reply #3 on: Jul 9th, 2004, 6:48am »
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I just recently terminated a cycle this way;  
 
1st week      480 mg of verap. per day  
2nd and 3rd week  480 verap + prednisone taper  
4th week      480 verapamil per day  
 
I will continue the verapamil until I am sure the cycle has terminated.  
 
Always 2 mg of imitrex to abort.  
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Re: Anyone try Prednisone?
« Reply #4 on: Jul 9th, 2004, 7:48am »
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on Jul 9th, 2004, 6:48am, don wrote:
I just recently terminated a cycle this way;  
 
1st week                480 mg of verap. per day  
2nd and 3rd week  480 verap + prednisone taper  
4th week                480 verapamil per day  
 
I will continue the verapamil until I am sure the cycle has terminated.  
 
Always 2 mg of imitrex to abort.  
 

 
 
Yeah Don!!!  So glad to hear this terminated your cycle!!  Keeping fingers crossed that it STAYS that way! Smiley
 
Liz
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Re: Anyone try Prednisone?
« Reply #5 on: Jul 9th, 2004, 8:22am »
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Happy for ya don!! Cheesy
 
Lisa, the pred taper is pretty common, you can search this site for it. It IS transitional, and temporary. You can't take it all the time. It does have side effects. You need to determine if they are worth it compared to your headache.
 
here's to painfree days and nites!!  Smiley
 
purpleydog
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Root
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Re: Anyone try Prednisone?
« Reply #6 on: Jul 9th, 2004, 11:29am »
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How much do you wiegh now Don.
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Re: Anyone try Prednisone?
« Reply #7 on: Jul 9th, 2004, 1:05pm »
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That is great don.  
 
I am just finished off my prednsone, I only got hit once yesterday and have only had shadows today so far...  so I guess that is a good thing.  But it did not make them totally stop. That would have been a nice break.  Undecided
 
Please be careful.  No med is worth taking that has so many side effects long term, there has to be something that you are using it as a bridge too.  
 
-Tia
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psycofemale0403
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Re: Anyone try Prednisone?
« Reply #8 on: Jul 9th, 2004, 1:07pm »
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How much do I weigh??????????????????????? hmm. I dare not keep a scale in my house.  (too depressing)  After having both of my babies, 14 months apart, I was about a buck fifty.  Now since I"ve been taking all these meds, and a shot of cortizone in my ass, I'm a about 170 or so.  ((((((AAAAAAAAAAHHHHHHHHHHH))))) I can't believe I'm telling you my weight!   bag
 
Lisa
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purpleydog
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Re: Anyone try Prednisone?
« Reply #9 on: Jul 9th, 2004, 1:22pm »
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on Jul 9th, 2004, 1:07pm, psycofemale0403 wrote:
 ((((((AAAAAAAAAAHHHHHHHHHHH))))) I can't believe I'm telling you my weight!   bag

 
Lisa,
I think Root was asking Don what his weight is. However, I applaud your fearlessness!  Cool  Grin
 
purpleydog
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Kris_in_SJ
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Re: Anyone try Prednisone?
« Reply #10 on: Jul 9th, 2004, 8:40pm »
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Hi Lisa,
 
Forget for a minute what Don weighs (you can find a list of the various foods he's eaten on an earlier post - I'm sure the 3 seagulls added a few pounds).
 
Have you been diagnosed with CH?  If not, do you think you have them (sounds like it)?
 
If so - I ditto "Don the Gigantic" and his response.  You probably need Verapamil or another CHA preventative, plus an abortive like O2 or Imitrex.  
 
Prednisone should not be taken for long periods of time.  It wrecks your body and immune system (in addition to making you ravenous!!!)  It's meant to stop your pain until the prevents have a chance to work.  Talk to your doc and get a proper diagnosis, followed by some type of CH treatment.  Good luck and best wishes!
 
Kris
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Re: Anyone try Prednisone?
« Reply #11 on: Jul 9th, 2004, 8:52pm »
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Hey you can all kiss my ass. And you could.
 
Even if everybody lined up shoulder to shoulder.
 
I now cover two zip codes and get charged for roaming  to call myself.
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Re: Anyone try Prednisone?
« Reply #12 on: Jul 9th, 2004, 9:10pm »
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LMAO! Don!!!! laugh laugh laugh
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Re: Anyone try Prednisone?
« Reply #13 on: Jul 9th, 2004, 9:25pm »
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ohhhhhhhhhhhhhhhh cut it out Don................  
 
"Hey can you get me my suntan lotion its on the other side of Don................ rotten ree"
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Re: Anyone try Prednisone?
« Reply #14 on: Jul 9th, 2004, 9:28pm »
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Thats OK Ree.
 
I'm getting to the Onset Blues Festival early.
 
I'm going to sit right in front of the stage and nobody but me will get to see the bands !
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Re: Anyone try Prednisone?
« Reply #15 on: Jul 9th, 2004, 10:57pm »
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Rock on Don.
 
 
Tim
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psycofemale0403
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Re: Anyone try Prednisone?
« Reply #16 on: Jul 9th, 2004, 11:34pm »
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Hello everyone. I am a dumbass.   bag
 
Duh.
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purpleydog
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Re: Anyone try Prednisone?
« Reply #17 on: Jul 9th, 2004, 11:48pm »
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on Jul 9th, 2004, 11:34pm, psycofemale0403 wrote:
Hello everyone. I am a dumbass.   bag
Duh.

 
No you're not. Smiley Don't worry, just keep posting. I still admire your confidence.
 hug
 
purpleydog
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Re: Anyone try Prednisone?
« Reply #18 on: Jul 9th, 2004, 11:52pm »
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on Jul 9th, 2004, 11:34pm, psycofemale0403 wrote:
Hello everyone. I am a dumbass.   bag
 
Duh.

 
LMAO
 
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