Author |
Topic: Neuro gave up on me (Read 499 times) |
|
athos
New Board Hall of Famer
Reality is for those who lack imagination!
  
 
Gender: 
Posts: 770
|
 |
Neuro gave up on me
« on: Jul 6th, 2004, 10:51pm » |
 Quote  Modify
|
My neuro gave up on me today... I really thought that I had a winner hooked up that would be with me for the long haul.
I don't have the streangth to start over again......
I just don't think that I have it in me.... Tooo much all at once..... He wants to refer me to a pain management clinic here.... I can't start over I really can't
--Ken
|
|
 IP Logged |
http://www.XdUP.com
Find Your Value For X
|
|
|
miapet
New Board Hall of Famer
what doesn't kill me makes me stronger
Gender: 
Posts: 676
|
|
Re: Neuro gave up on me
« Reply #1 on: Jul 6th, 2004, 11:01pm » |
Quote Modify
|
I'm sending LOTS of my energy to you athos . . .we believe in you.
I'm sorry your doc pulled that number on you . . .he's a bad bad man . . .
*positive light and energy*
miapet
|
|
IP Logged |
Clusterbusters Rock
www.clusterbusters.com
|
|
|
Jeepgun
Guest
|
Man, fuck 'im... Increasingly, I'm convinced that neurologists are a bunch of quacks.  Any good general practitioners in your area? Hang tough, my friend. You'll find a good physician soon.
|
|
IP Logged |
|
|
|
jimmers
CH.com Alumnus
New Board Hall of Famer
Hello GOD! The gene pool needs some chlorine!
Gender:
Posts: 2092
|
|
Re: Neuro gave up on me
« Reply #3 on: Jul 6th, 2004, 11:09pm » |
Quote Modify
|
Ken,
Is he just uninformed about our malady and doesn't know what to do, or is it just that nothing seems to be helping you beat the beast?
We are all here for you! And I mean all of us!
You hang in there,
Peace,
Jimbo
|
|
IP Logged |
I don't suffer from INSANITY; I'm enjoying every minute of it!
|
|
|
purpleydog
CH.com Alumnus
New Board Hall of Famer
Posts: 2240
|
|
Re: Neuro gave up on me
« Reply #4 on: Jul 6th, 2004, 11:23pm » |
Quote Modify
|
Hey Ken,
I know exactly how you feel. I had a real good neuro that eventually told me there was nothing more he could do for me. It was a real blow at the time, I didn't know what I was gonna do. I hooked up with another one from out of town, I had seen all the nuero's here. He helped me out until I got tired of the drive (about a year).
I then had to go see my new gp (insurance changed) to discuss blood tests for an upcoming surgery. We talked about my headaches and he was interested in checking them out. He has been treating me ever since and I go see a neuro about once a year (there are now more here). That was in 1999.
Keep your chin up.  Call some neuro's offices and ask if they treat CH. Some neuro's make it a point to get a CHer in as soon as possible. Just make sure to get all your records transferred to the new doc.
As far as the pain clinic, they may be able to help you. You should take a look at Unsolved's post in the medications page. It may help you with some questions. I will have to go look at it, I can't remember the name.
Edit: the name of the thread is "Narcotics Question" it is on page 2 in treatments/medications page.
purpleydog
|
| « Last Edit: Jul 6th, 2004, 11:27pm by purpleydog » |
IP Logged |
|
|
|
Kevin_M
CH.com Alumnus
New Board Hall of Famer
withered branches grow green again.
Gender:
Posts: 6184
|
|
Re: Neuro gave up on me
« Reply #5 on: Jul 6th, 2004, 11:36pm » |
Quote Modify
|
on Jul 6th, 2004, 10:51pm, athos wrote:| He wants to refer me to a pain management clinic here.... |
|
It don't sound like he's giving up on you Athos, it's more like the pain management center may be able to do more for you. Give it a try, they may be able to help. Some pain management centers handle all sorts of pain which has filtered to them from refering docs, that's how you get there. He is refering you there. That may be the next step toward recovery, don't give up until you have done everything that can be done.
This neuro just pushed you up a notch to perhaps what may be better facilities for you. You've got to try it. You are not actually starting over, you are getting better help maybe. If the neuro is admitting his limitations, then the better facilities he is recommending may be just what you need. Do everything you can first.
Kevin M
|
|
IP Logged |
|
|
|
Sean_C
Guest
|
Ken, your forgetting the most important rule here.................we NEVER give up brother, ever. Alot of us lived with no diagnosis, no relief, and no meds for decades. If we could do it, everybody can do it. Hang tough bro, just cause something doen't work this very instant doesn't mean alls lost. Hope will concour all evil 
Wishing you PFDAN
Sean...........
|
|
IP Logged |
|
|
|
athos
New Board Hall of Famer
Reality is for those who lack imagination!
Gender:
Posts: 770
|
|
Re: Neuro gave up on me
« Reply #7 on: Jul 6th, 2004, 11:59pm » |
Quote Modify
|
I had felt so compfortable.... so trusting, it is like I feel betrayed if that makes sense.....
I am soooooooooo tired of fighting.... My work gave up on me.. now my neuro. Can't take it.
|
|
IP Logged |
http://www.XdUP.com
Find Your Value For X
|
|
|
Lobster
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2016
|
|
Re: Neuro gave up on me
« Reply #8 on: Jul 7th, 2004, 12:02am » |
Quote Modify
|
Fuck the neuro. My GP treats me like a king... find a decent GP brother.
|
|
IP Logged |
Rock beats Scissors.
|
|
|
Cathi04
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 1745
|
|
Re: Neuro gave up on me
« Reply #9 on: Jul 7th, 2004, 12:25am » |
Quote Modify
|
Ken...
you know better..
This is NOT just CH we are talking about...your Neuro has also considered himself a friend....
He is trying to find the right person to HELP YOU!
Take a deep breath......fight for your health......
you have a lot of people fighting for you and sending you all the vibes you can handle..
You WILL get better...
Cathi
|
|
IP Logged |
Life is not measured by the number of breaths we take but by the moments that take our breath away.
|
|
|
Cerberus
New Board Hall of Famer
Whomever said that two heads are better than one?
Gender:
Posts: 2117
|
|
Re: Neuro gave up on me
« Reply #10 on: Jul 7th, 2004, 1:44am » |
Quote Modify
|
Pay no attention to the man behind the curtain....
I can't believe I'm sitting right here next to the guy and I should be screaming in his ear...anyhow, I put some headphones on the man and he is lulling to the soulful sounds of Stevie Ray Vaughn.
I'm not suure exactly what happened today with the neuro, however, I hardly believe that he simply quit on Commander Athos. I met the guy and he was rather nice...something else is afoot.
Ramon
|
|
IP Logged |
I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
|
|
|
athos
New Board Hall of Famer
Reality is for those who lack imagination!
Gender:
Posts: 770
|
|
Re: Neuro gave up on me
« Reply #11 on: Jul 7th, 2004, 1:54am » |
Quote Modify
|
It seems that if a doc can't find a reason for a particular thing. ie.. the back spasms that I have been fighting for about a month and a half, the doc's come to the conclusion that it must be an emotional problem an therefore not a real one. i have done as much fighting as I can do... and those that are in my corner are slowly leaving and it is hard to take right now.... What is left?
|
|
IP Logged |
http://www.XdUP.com
Find Your Value For X
|
|
|
Superpain
New Board Hall of Famer
GOT O2!?
Gender:
Posts: 1351
|
|
Re: Neuro gave up on me
« Reply #12 on: Jul 7th, 2004, 1:55am » |
Quote Modify
|
I can get you to a very good headache doc if you can drive to Phoenix. If they could help, it would be worth the drive...
|
|
IP Logged |
Chris
|
|
|
athos
New Board Hall of Famer
Reality is for those who lack imagination!
Gender:
Posts: 770
|
|
Re: Neuro gave up on me
« Reply #13 on: Jul 7th, 2004, 1:56am » |
Quote Modify
|
it would be worth it...
|
|
IP Logged |
http://www.XdUP.com
Find Your Value For X
|
|
|
Cathi04
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 1745
|
|
Re: Neuro gave up on me
« Reply #14 on: Jul 7th, 2004, 2:00am » |
Quote Modify
|
Ken....stop at nothing, know you will always have your friends here, keep digging just a bit deeper!
CONSTANTLY sending you vibes, prayers and good juju, crossing my fingers....and reminding you to msg Superpain...leave NO stone unturned! GET WELL!!
Ramon..stomp on his foot for me, wouldja?
Cathi
|
|
IP Logged |
Life is not measured by the number of breaths we take but by the moments that take our breath away.
|
|
|
Woobie
CH.com Alumnus
New Board Hall of Famer
I luv you guys!!!!!!!!
Gender:
Posts: 3800
|
|
Re: Neuro gave up on me
« Reply #15 on: Jul 7th, 2004, 2:01am » |
Quote Modify
|
on Jul 7th, 2004, 1:54am, athos wrote:
What is LEFT Ken??
Your family - your friends.......your kids. CH.com........
I know it's hard to see the that when you're down, and the pain meds probably dont let you think too clearly, - but you DO have something left to fight for.. Read the words under your picture of Connor, and start there!
Keep your chin up - now is not the time to lay down and stop fighting!!!
Slap Ramon for me 
Tina 
|
| « Last Edit: Jul 7th, 2004, 2:02am by Woobie » |
IP Logged |
|
|
|
Superpain
New Board Hall of Famer
GOT O2!?
Gender:
Posts: 1351
|
|
Re: Neuro gave up on me
« Reply #16 on: Jul 7th, 2004, 2:04am » |
Quote Modify
|
Foothills Neurology
4530 E Muirwood Dr., Suite #111
Phoenix, AZ 85048
(480) 961-2365
Stuart Hetrick
Daniel Cacioppo
Dr Stuart Hetrick is the one referred to me by a fellow clusterhead. He is supposed to be excellent.
However, becuase I could get in earlier, I got Dr Cacioppo, and he saved my ass...
They are both great docs and specialize in cluster's and have plenty of experience dealing with them.
Take the first available appt with either one of them, and bring in all your charts with you. You can take the info off the sight about treatments and such if it makes you feel better, but they're pretty on top of what works. And they have a big sample closet!
|
|
IP Logged |
Chris
|
|
|
athos
New Board Hall of Famer
Reality is for those who lack imagination!
Gender:
Posts: 770
|
|
Re: Neuro gave up on me
« Reply #17 on: Jul 7th, 2004, 3:58am » |
Quote Modify
|
thanks guys, I will look into those docs...
|
|
IP Logged |
http://www.XdUP.com
Find Your Value For X
|
|
|
helpless23
New Board Old Timer
Gender:
Posts: 269
|
|
Re: Neuro gave up on me
« Reply #18 on: Jul 7th, 2004, 8:14am » |
Quote Modify
|
Ken,
Don't give up! Never give up! SOMEONE here will help you find a Dr. or a neuro to help you out of this horrible situation!
My husband's name is Ken also, and we almost gave up after only 2 months too being so frustrated.
I don't know where you live, but if you're willing to travel, or can for that matter, I can refer you to Ken's neuro. He knows his CH ! If you need to talk about it, or want his info - give me a shout! We live in North Jersey by the way and Dr. is in Longbranch NJ.
Like I said, if you're interested....drop me a PM.
Much love and vibes,
Toni
|
|
IP Logged |
|
|
|
Luke63
New Board Hall of Famer
For sale: 1 BIG BARKING HEAD Price: Free
Gender:
Posts: 1182
|
|
Re: Neuro gave up on me
« Reply #19 on: Jul 7th, 2004, 11:54am » |
Quote Modify
|
Hey Ken....Hang in there...ok? Sendin Vibes buddy...you can do it...be strong!!! Luke
|
|
IP Logged |
I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
|
|
|
Big Dan
CH.com Alumnus
New Board Hall of Famer
SMASH BRAIN!
Gender:
Posts: 1513
|
|
Re: Neuro gave up on me
« Reply #20 on: Jul 7th, 2004, 12:02pm » |
Quote Modify
|
Hey, Ken... quit with the 'I don't have the strenght to start over again' crap...
We've got plenty of strength to spare ya... just tap into it, bro... that's what we're here for...
Now pick yourself up, dust yourself off, and tell your old neruo to go get fucked.
-Big Dan
|
|
IP Logged |
Not going anywhere for a while?...
... Grab a Snickers, Fatass.
|
|
|
Tiannia
New Board Hall of Famer
Life does not apologies......
Gender:
Posts: 3241
|
|
Re: Neuro gave up on me
« Reply #21 on: Jul 7th, 2004, 12:08pm » |
Quote Modify
|
Ken dont give up. You are close enough (I know it is not right around the corner but you know what I mean ) to Pheonix. Please let Chris get you in. It does not matter how many leave your corner... there are more of us that are there that will never leave. You will never be alone.
What else is left, is everything. You have people who just smile thinking about you. That is worth more then anything that a doc can say or do... or not do. That os the part that does not matter. There is something going on and thus it has to be treated. If the Pain Management doc can assist with the back spasms then let him. I know that I have to see a total of 3 docs for me. Between my back, then my neuro and he is sending me to a different pain mgmt doc about my neck. So now I will have to talk to him and see what and how he thinks he can help. But it is worth it for me to try and get it handled. If even one of them can assist in making one part of it better, then that is a win for me. You have to look at the little victories and not stress about the whole damn battle... That is way to daunting.
Blessed Be my friend.
-Tia
|
|
IP Logged |
The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
|
|
|
BlueMeanie
Guest
|
Hi Ken,
At least the neuro is being honest here. If he's tried all he can, than take his advise and try the pain management center. Just maybe they will figure your pain out and help. They will get a copy of your records so it won't be starting over; just a continuation of progress towards your recovery.
Vibes to ya Ken and hang in there.
|
|
IP Logged |
|
|
|
echo
CH.com Alumnus
New Board Hall of Famer
Chronic and still alive --- I Win!
Gender:
Posts: 4214
|
|
Re: Neuro gave up on me
« Reply #23 on: Jul 7th, 2004, 1:18pm » |
Quote Modify
|
on Jul 6th, 2004, 10:51pm, athos wrote: He wants to refer me to a pain management clinic here....
--Ken |
|
A visit to the pain management center may help you out. I know that it has been beneficial to me over the years.
|
|
IP Logged |
"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
|
|
|
Little Deb
New Board Hall of Famer
Please SPAY and NEUTER all dogs, cats and idiots!
Gender:
Posts: 1346
|
|
Re: Neuro gave up on me
« Reply #24 on: Jul 7th, 2004, 1:39pm » |
Quote Modify
|
Ken,
Vibes and prayers headed your way. You hang in there and don't you dare give up! You are strong...look deep inside. You can do it, and we are all here to help.
Keep your chin up.......Little Deb
|
|
IP Logged |
Adopt a shelter pet!
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss