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Topic: Been lurking but not posting... Update on me (Read 227 times) |
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Tiannia
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Been lurking but not posting... Update on me
« on: Jul 2nd, 2004, 4:08am » |
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Well, work has been kicking my butt. Not sure if the PT is helping or my neverending cycle is just slowing down for a little, but at the moment I have only been getting hit 2 (maybe 3) times a day. Much better then the 6+ I have had for the past 2 months straight. From the time that my HA started in July, approx every 8-9 weeks the frequency of the HA would decress slowly for about 2 weeks and then I would get 4 days PF. Then they would come back with a vengence, but that 4 days was nice. But my last PF days where the end of February, so I guess it is just a matter of seeing what is happening.
The MRI shown nada... Well not really, but nothing that shocked me at all. It showed that the left side of my neck(my HA side) was in spasm. So I guess the PT is a good thing. I have been able to losen up those muscles and move more. She is using heat and a TENS unit on my neck and shoulder, then ultrasound (for deep heating the muscle), then deep tissue message and stretches, then ice. 2 times a week. About the only thing that is really nice is that it is getting me out of the office for a hour at lunch.
As I said work is kicking my butt, they have tried to get two different people in to assist since the gal that quit, and neither have been of any use. So I am the only processor in my Civil Engineers office for 55+ active jobs and 11 Engineers. I really dont get time to breathe, eat lunch, leave the office at the office and come home and relax  ...... let alone check the boards, for more then a minute here and there, just as a mental break.
Then on top of it, I ended up going to the doctors Wednesday morning and was told that yet again I have acute bronchitis. He wanted me to take the rest of the week off, but I convinced him that all I could take off was Wed, as it was a long weekend and I would have time to rest then. So he gave me my first dose of meds while i was there and sent my ass home. It knocked me out for the rest of the day (so I guess it was a good thing that I went home and not just to work, like I had first planned to). Anyway, he said that my lungs where clear at the moment, but if I did not follow the directions and get rest, that it would turn to walking pneumonia all over again, like I had for 4 months November to almost March this winter. People should not end up with pneumonia when they live in a freaking desert during the fucking summer. 
ok back to the Neuro. He is having me stay with the PT. And he has put me on a prednisone (sorry if I spelled it wrong, but I cant sleep) taper, and is sending me to a pain management doc that specializes in Neck issues to try the injections again. He is still hoping that if we can get the occipital neuralza under control that it will assist in NOT triggering the clusters. He states that with the decress in the HA he is hoping that the prednisone will kick the cycle, or at least maybe give me more of a break then 4 days. Never used the stuff before. NO I still did not get any O2. He will not hear at this point. Not sure about the one HA causing the other. I am stll getting the clusters HA, but they are not starting in the back of the head first, I just feel it starting right inside my head (like if you took an icepick and jabbed one in my eye and the other in my ear, where they cross is where it starts. It is all in that upper quadrent of the head and does not go intot he back and neck (that I can tell) until it is over, and I think that is because I tense up so bad. The PT has shown me some excersises that actually help after the fact witht he neck pain. Cant do shit while I am getting hit. But that comes as no surprise.
Sorry for the long post. You all are in my heart and thoughts.
-Tia
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Superpain
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GOT O2!?
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Re: Been lurking but not posting... Update on me
« Reply #1 on: Jul 2nd, 2004, 5:41am » |
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Sorry to hear all that T...
I can't believe you still can't get O2... is it because of the bronchitis? 
Hopefully the pred will work for you... It took about 90% of my hits away right after I started taking it, and the ones it missed, I'm pretty sure it was cuz I was drinking.
I just don't understand his theory of the ch "trigger"... Triggers are pretty much meaningless to me, except for alcohol. I agree triggers can cause a cluster, but more often than not, they just come and go as they please...
You still got any abortives?
Hope you get relief soon! Your day is due!
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Chris
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Tiannia
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Re: Been lurking but not posting... Update on me
« Reply #2 on: Jul 2nd, 2004, 8:58am » |
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on Jul 2nd, 2004, 5:41am, Superpain wrote:Sorry to hear all that T...
I can't believe you still can't get O2... is it because of the bronchitis?
Hopefully the pred will work for you... It took about 90% of my hits away right after I started taking it, and the ones it missed, I'm pretty sure it was cuz I was drinking.
I just don't understand his theory of the ch "trigger"... Triggers are pretty much meaningless to me, except for alcohol. I agree triggers can cause a cluster, but more often than not, they just come and go as they please...
You still got any abortives?
Hope you get relief soon! Your day is due! |
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Personally I think he is full of it as well, cause when I had the rfg (radio frequency generator) on the occipital nerve I still had the cluster headaches, still had the sweats and the eye and jaw pain, I just did not have the pain that was up and behind my ear and down into the neck.
I think that Charlie had it right, that he is hoping that by treating the one HA that the clusters will disappear and then he wont have to treat it. I hope I am that lucky.
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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Tiannia
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Life does not apologies......
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Re: Been lurking but not posting... Update on me
« Reply #3 on: Jul 2nd, 2004, 10:47am » |
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on Jul 2nd, 2004, 5:41am, Superpain wrote:
You still got any abortives?
Hope you get relief soon! Your day is due! |
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Sorry I di dnot answer this part this am. Yes I still have my trex ns scripts and some tabs (that came from an angel)... So I have routes to fight the onces that I get, when they are big enough to use meds that is.
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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Luke63
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Re: Been lurking but not posting... Update on me
« Reply #4 on: Jul 2nd, 2004, 11:03am » |
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Just glad to see you're here Tia...missed ya. keep your chin up...and PF wishes and a happy 4Th ok?
Love ya Luke
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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Redd
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Re: Been lurking but not posting... Update on me
« Reply #5 on: Jul 2nd, 2004, 11:03am » |
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Happy to see you back sis...and glad to hear that you are getting at least a little relief...some is better than none...but still not good enough in my opinion.
Keep smileing dear friend!!! Someday, something has got to give.....
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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Gator
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Re: Been lurking but not posting... Update on me
« Reply #6 on: Jul 2nd, 2004, 12:10pm » |
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Good to hear from you, Tia. Sorry things are still going so rough for you. I hope that things get better for you, soon.
Sending out vibes for you!
Gator
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